List Of Recommended Doctors

Post by **tex** » Wed Aug 17, 2011 9:10 am

Hi All,

I'm trying to create a list of doctors who are highly recommended by members, for treating MC, CC, LC, etc., and I'd like to maintain a separate list for doctors highly qualified to treat mast cell issues. Doctors who are truly qualified to treat this disease are still few and far between, but over the years, members have encountered a few, and more enlightened doctors seem to be showing up with increasing frequency, in the last year or two.

If you'd like to recommend one or more doctors, I would appreciate hearing about them, but keep in mind that this list should not include also-rans, or wannabes. I'm not interested in listing doctors who recognize the name of the disease, but that's about the extent of their expertise, or doctors who didn't cause you to end up in the emergency room, but didn't actually help you much, either. No, I'm looking for the names of doctors who are truly qualified to treat this disease - IOW, doctors who actually "get it".

I'm looking for the names of doctors who realize that 8 weeks of treatment with Entocort is not going to "cure" the disease, so if they prescribe it, they're willing to prescribe it as long as necessary, to accomplish and maintain remission. And, of course, I'm looking for the names of doctors who recognize the existence of non-celiac gluten-sensitivity, and the connection between food sensitivities and MC. I'm also looking for doctors who are willing to "think out of the box" and learn about the disease along with the patient. And, of course, I don't expect any recommended doctors to necessarily have all of these qualifications, but ideally, the best doctors will have all of them.

A number of doctors have been mentioned in the past, who are obviously qualified for listing, but tracking their names down in the archives is a pretty tedious job, so if anyone is aware of postings about such doctors in the past, please bring them to my attention, so that I can add them to the list.

I think that these lists could prove to be very beneficial, especially to newbies, if we can come up with enough qualified doctors to cover significant parts of the countries where most of our members live, provided that we don't list any doctors who demonstrate counterproductive tendencies concerning the treatment of MC and/or mast cell issues. As always, (IMO), quality is more important than quantity.

Thanks,
Tex

mbeezie · Post by **mbeezie** » Wed Aug 17, 2011 10:08 am

Tex,

Great idea!

The mast cell specialists I have seen and recommend are Marianna Castells at Brigham and Women's in Boston and Henry Legere In Austin, TX (he trained with Dr. Castells).

Mary Beth

Post by **tex** » Wed Aug 17, 2011 11:19 am

Thanks.

Tex

MBombardier · Post by **MBombardier** » Wed Aug 17, 2011 9:32 pm

I like my GI--Duane Webb at The Vancouver Clinic in Vancouver, WA. He's a Fellow of the American College of Gastroenterology. Here is his page: http://www.tvc.org/Doctors/search/detai ... b&lang=eng.

Dr. Webb thinks he knows Dr. Fine, as I've mentioned before. He diagnosed me with gluten intolerance when I told him how well I was doing on a gluten-free diet. He's very knowledgeable, but also humble--he told me that GI's really don't know how to treat MC, and was very interested in what I had to say about what works for me. He has a son who is finishing up his medical degree and plans to go into colorectal disease research.

mbeezie · Post by **mbeezie** » Thu Aug 18, 2011 4:39 am

I guess I would add Scott Lewey to the list. He definitely knows MC and seems to understand mast cells as well, at least from a GI standpoint. He will only see residents of Colorado.

Mary Beth

Sheila · Post by **Sheila** » Thu Aug 18, 2011 6:06 am

I would recommend my gastroenterologist, Dr. Bernie Stein of Jupiter, Fl. He is a partner in the largest GI group in our area. He diagnosed my mother with CC more than 10 years ago. He began treating me last December, diagnosed me with CC in March. He is in agreement that GF is the way to go. All in all, he's intelligent and open minded.
Sheila

Post by **tex** » Thu Aug 18, 2011 10:17 am

Thanks Marliss, Mary Beth, and Sheila,

I've added them to the list.

Mary Beth,

Actually, I had already added Dr. Lewey to both lists, yesterday, right after I set it up, since he came to mind immediately, due to his strong internet presence. So far, he's the only one on both lists, since most of the doctors on the "mast cell" list are allergists.

Thanks again,
Tex

barbaranoela · Post by **barbaranoela** » Mon Aug 22, 2011 10:28 am

Dr. Chapman ---New York City----

Post by **tex** » Mon Aug 22, 2011 12:17 pm

Hi Barbara,

Is this the right Dr. Chapman?

http://www.mountsinaihospital.org/profi ... -l-chapman

I hope so, because he's the first one on my list.

Thanks.

Luve,
Galahad

barbaranoela · Post by **barbaranoela** » Mon Aug 22, 2011 5:31 pm

Galahad~~~~~~~ yup---thats the man----I owe him my life and sanity ---think I drove him crazy but he well understood---

luve---columbo

grannyh · Post by **grannyh** » Tue Aug 23, 2011 9:45 pm

This is my favorite gastro doc..
Peter J Schwarz MD PC
6560 Fannin Street Suite 1008
Houston, TX 77030
Phone: (713) 795-8282

He had no problem with me referring to this site, trying things my own way.. and when I was ready for entocort ec when it came back on the market.. he prescribed it.
grannyh

Post by **tex** » Wed Aug 24, 2011 8:22 am

GrannyH,

Excellent!

Thanks,
Tex

Joefnh · Post by **Joefnh** » Tue Aug 30, 2011 9:25 pm

Tex I have been going to Dr Nagri in Nashua NH

Dartmouth Gastroenterology: Nagri Srikrishna MD
21 East Hollis Street, Nashua, NH 03060-2928
603-577-4081

I believe 'NancyL' has been enjoying working with him as well.

Joe

Post by **tex** » Wed Aug 31, 2011 7:42 am

Joe,

Thanks for the info.

Tex

nancyl · Post by **nancyl** » Fri Sep 02, 2011 3:03 pm

Tex,
Yes, Dr. Nagri is good. I like him very much.

Nancy

MICROSCOPIC COLITIS SUPPORT

List Of Recommended Doctors

List Of Recommended Doctors

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