New and Really Confused - Update
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
-
susanfuchs
- Posts: 8
- Joined: Sun Jul 31, 2011 12:57 pm
New and Really Confused - Update
Sorry I haven't been on in a while but I've started back to school and I'm just wore out! I had a colonscopy done, and the gastroenterologist said I had IBS. However, if I eat any kind of wheat bread, my symptoms return although not as bad as that first time. They put me on fibercon for two weeks which helped at first. However, I was naughty and ate most of a hamburger bun this weekend and had minor symptoms again. I called and let them know I'd kept a rough food diary and noticed I was having symptoms after eating bread type food, and while the doc doesn't think I have Celiac, he wants to do the bloodwork to rule it out. I don't think it's Celiac either, based on all my reading I think it's MC . . . it's getting them to acknowledge that is hard. So I'll keep eliminating gluten because that is helping, and keeping working with the doctors until they learn to listen to their patients. Meanwhile, I'll keep having mild pains and the occasional embarrassing malodorous poot or worse, watery runs and *gasp* anal seepage. It's a work in progres..
Susan C. Fuchs
Hypothyroid July 2000; High Blood Pressure 2005; Colitis June 2011
Guess God gave me a Wal-Mart fall-apart body, hope he gave me a better brain than the bod.
Tomorrow will be better.
Hypothyroid July 2000; High Blood Pressure 2005; Colitis June 2011
Guess God gave me a Wal-Mart fall-apart body, hope he gave me a better brain than the bod.
Tomorrow will be better.
Hi Susan,
Do you have a copy of the endoscopy, (colonoscopy), report? If so, it may contain clues about whether or not you might have MC, even if he didn't take biopsies. If he did take biopsies, than the pathology report is the one we need to analyze. It will show whether the markers of MC were present. Some GI docs have been known to ignore the pathologist's findings, and tell a patient that they have IBS, when they actually have MC, because some GI docs don't know the difference.
Of course, you wouldn't necessarily have to have MC to be gluten-sensitive. It's probably a good idea to go ahead and do the celiac blood test, just in case you might have CD. I agree with you that you probably don't have it, but now's a good time to rule it out, before you get serious about a GF diet, because after you've been on the diet for a while, the tests will no longer provide a valid result - the result will always be negative, even if you're a celiac.
Tex
Do you have a copy of the endoscopy, (colonoscopy), report? If so, it may contain clues about whether or not you might have MC, even if he didn't take biopsies. If he did take biopsies, than the pathology report is the one we need to analyze. It will show whether the markers of MC were present. Some GI docs have been known to ignore the pathologist's findings, and tell a patient that they have IBS, when they actually have MC, because some GI docs don't know the difference.
Of course, you wouldn't necessarily have to have MC to be gluten-sensitive. It's probably a good idea to go ahead and do the celiac blood test, just in case you might have CD. I agree with you that you probably don't have it, but now's a good time to rule it out, before you get serious about a GF diet, because after you've been on the diet for a while, the tests will no longer provide a valid result - the result will always be negative, even if you're a celiac.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
-
susanfuchs
- Posts: 8
- Joined: Sun Jul 31, 2011 12:57 pm
Colonoscopy results
He took some biopsies and told me that they showed some small spots of inflammation but I was otherwise normal. They're doing the celiac bloodwork tomorrow - I ate bread from a couple of different sources yesterday so maybe something will show.
Susan C. Fuchs
Hypothyroid July 2000; High Blood Pressure 2005; Colitis June 2011
Guess God gave me a Wal-Mart fall-apart body, hope he gave me a better brain than the bod.
Tomorrow will be better.
Hypothyroid July 2000; High Blood Pressure 2005; Colitis June 2011
Guess God gave me a Wal-Mart fall-apart body, hope he gave me a better brain than the bod.
Tomorrow will be better.
"Some small spots of inflammation" are not normal. Do you have a copy of the pathology report? It contains the details that count.Susan wrote:He took some biopsies and told me that they showed some small spots of inflammation but I was otherwise normal.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.