Polly--
Congratulations! I'll just carry the motion that your results need to be written and published. Your hard work and dedication are truly remarkable and an inspiration to us all. Thank you.
Love,
Mags
TA DAAA! My MC is GONE!
Moderators: Rosie, JFR, Gabes-Apg, grannyh, Mars, starfire, Polly, Joefnh
Polly,
First, a heartfelt congratulations to you. You have shown us all that one merely needs to "stay the course". Easier said than done, I know.
I am curious about your anxiety prepping for you colonoscopy. Did you fear a relapse via the prep?
Now, please bottle your success and create a pill that we can all take to miror your results
Regards,
Rich
P.S. What is Norman for you now that you have negative biopsies? Has your GI returned, functionally, to pre-MC conditions (I.e. Frequency, form, pain, etc.).
First, a heartfelt congratulations to you. You have shown us all that one merely needs to "stay the course". Easier said than done, I know.
I am curious about your anxiety prepping for you colonoscopy. Did you fear a relapse via the prep?
Now, please bottle your success and create a pill that we can all take to miror your results
Regards,
Rich
P.S. What is Norman for you now that you have negative biopsies? Has your GI returned, functionally, to pre-MC conditions (I.e. Frequency, form, pain, etc.).
"It's not what I believe. It's what I can prove." - A Few Good Men
No Sign Of MC, Either
I had my colonoscopy 2 weeks ago & went today for my follow up visit.
GI said no signs of MC from biopsies!!!
BUT, He is suspecting mild crohn's, of which, he showed me the pics from the scope of the areas.
While he was doing the colonoscopy, he went a little way into the small intestine and saw what he believed to be crohns. Had me have lots of blood work and then the Promtheus- 7 (sp)????? Which specifically checks for celiac & crohns.
I will go next Friday for a barium swallow to check the rest of the small intestine.
FOR JOY!!!!
Love
Dee~~~~~
GI said no signs of MC from biopsies!!!
BUT, He is suspecting mild crohn's, of which, he showed me the pics from the scope of the areas.
While he was doing the colonoscopy, he went a little way into the small intestine and saw what he believed to be crohns. Had me have lots of blood work and then the Promtheus- 7 (sp)????? Which specifically checks for celiac & crohns.
I will go next Friday for a barium swallow to check the rest of the small intestine.
FOR JOY!!!!
Love
Dee~~~~~
"What the heart gives away is never gone ... It is kept in the hearts of others."
Hi Dee,
Hmmmmmm. That's a heck of a note, if he's right, (not about the MC being gone - but about the suspected Crohn's disease). I wonder if your doctor, (or the pathologist who examined your biopsy slides), is aware that there is a form of MC known as MC with granulomatous inflammation. The inflammation pattern is very similar to the pattern seen with Crohn's disease, and apparently misdiagnoses sometimes occur:
http://lib.bioinfo.pl/pmid:17878641
Please be aware that, contrary to the description of the disease, MC usually, (not just sometimes, but typically), affects at least the terminal ileum of most patients. Did he show you actual lesions in the surface of the ileum, (visible through the colonoscope, without the need of a microscope), or did he show you images taken from the microscope, during the analysis of the biopsy slides? If he showed you images from the colonoscope exam, where the markers were visible without magnification, then that could possibly be Crohn's. Markers, (such as granulomas), visible only under the microscope, however, would indicate MC with granulomatous inflammation, instead. Even if he showed you evidence on the colonoscope images, if it appeared only as patches of general inflammation, with no visible lesions, that's not likely to be Crohn's disease, (unless the pathology report confirms it).
Patches of general areas of inflammation are usually visible through a colonoscope, with MC, if the doctor realizes what he's looking at, (most of them don't even realize that MC causes inflammation patterns that can be seen with the naked eye). Exactly what did the pathology report say? That will tell you what's going on. GI docs commonly misinterpret pathology reports, unfortunately. My point is, if Crohn's disease is indicated, then a description of that evidence should definitely be in the pathology report.
Did the blood tests show that your C-reactive protein was elevated? I hope the Prometheus test and the barium x-ray series is negative. That barium x-ray exam was one of my least favorite tests, because I was as sick as a dog when I had the test, and it made my nausea worse, and the exam seemed to take forever, and then later, it caused severe constipation, and it took me a long time to get rid of the barium, afterward. Otherwise, it wasn't too bad.
Good luck with those tests, and thanks for the update. Please keep us posted.
Love,
Tex
P. S. Since your laboratory markers appear to have changed recently, have you been taking Entocort or following the diet, or both, or neither?
Hmmmmmm. That's a heck of a note, if he's right, (not about the MC being gone - but about the suspected Crohn's disease). I wonder if your doctor, (or the pathologist who examined your biopsy slides), is aware that there is a form of MC known as MC with granulomatous inflammation. The inflammation pattern is very similar to the pattern seen with Crohn's disease, and apparently misdiagnoses sometimes occur:
http://www.histopathology-india.net/MCo.htmRecently non-necrotizing pericryptal granulomas have been described in cases of microscopic colitis. These cases should not be confused with Crohn's disease.
http://lib.bioinfo.pl/pmid:17878641
Please be aware that, contrary to the description of the disease, MC usually, (not just sometimes, but typically), affects at least the terminal ileum of most patients. Did he show you actual lesions in the surface of the ileum, (visible through the colonoscope, without the need of a microscope), or did he show you images taken from the microscope, during the analysis of the biopsy slides? If he showed you images from the colonoscope exam, where the markers were visible without magnification, then that could possibly be Crohn's. Markers, (such as granulomas), visible only under the microscope, however, would indicate MC with granulomatous inflammation, instead. Even if he showed you evidence on the colonoscope images, if it appeared only as patches of general inflammation, with no visible lesions, that's not likely to be Crohn's disease, (unless the pathology report confirms it).
Patches of general areas of inflammation are usually visible through a colonoscope, with MC, if the doctor realizes what he's looking at, (most of them don't even realize that MC causes inflammation patterns that can be seen with the naked eye). Exactly what did the pathology report say? That will tell you what's going on. GI docs commonly misinterpret pathology reports, unfortunately. My point is, if Crohn's disease is indicated, then a description of that evidence should definitely be in the pathology report.
Did the blood tests show that your C-reactive protein was elevated? I hope the Prometheus test and the barium x-ray series is negative. That barium x-ray exam was one of my least favorite tests, because I was as sick as a dog when I had the test, and it made my nausea worse, and the exam seemed to take forever, and then later, it caused severe constipation, and it took me a long time to get rid of the barium, afterward. Otherwise, it wasn't too bad.
Good luck with those tests, and thanks for the update. Please keep us posted.
Love,
Tex
P. S. Since your laboratory markers appear to have changed recently, have you been taking Entocort or following the diet, or both, or neither?
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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barbaranoela
- Emperor Penguin
- Posts: 5394
- Joined: Wed May 25, 2005 6:11 pm
- Location: New York
Hi Wayne!
The GI showed me images fom the colonscope....
My CRP was a little elevated.
I'm not too thriilled about doing the barium swallow either, but I want to know if there is something going on.
I will request the path report when I go back to see him.
Thank You
Love
Dee~~~~
The GI showed me images fom the colonscope....
My CRP was a little elevated.
I'm not too thriilled about doing the barium swallow either, but I want to know if there is something going on.
I will request the path report when I go back to see him.
Thank You
Love
Dee~~~~
"What the heart gives away is never gone ... It is kept in the hearts of others."
-
Sheila
- Rockhopper Penguin
- Posts: 1150
- Joined: Wed May 18, 2011 5:10 am
- Location: Palm Beach Gardens, Fl
Polly, that is so encouraging. Congratulations! Did you take entocort at any time? I am GF and SF and working on eating very little dairy and eggs. The entocort of course helps tremendously but I wonder if any of us taking the drug will every be MC free.
Sheila
Sheila
To get something you never had, you have to do something you never did.
A person who never made a mistake never tried something new. Einstein
A person who never made a mistake never tried something new. Einstein
Polly, I have to agree with others that you are an inspiration. I got on the site tonight because I'm getting discouraged. I've been on Entocort for 3 weeks and feel like I've stalled-- not getting worse but not getting better. I've ordered my Enterolab testing tonight so I can confirm my food sensitivities and genetic factors. I've been gluten free for almost 4 weeks. That has not been hard. What is hard is the no fat, low fiber, bland diet and still having occasional D or C. And cramping, spasms, discomfort, etc, etc. The constant vigilance is wearing me out.
I am so happy that others posted and I saw your Ta-Da post on the message board. It is exactly what I needed. Congrats to you. I hope to someday follow in your footsteps.
As always, this site is a blessing.
Carol
I am so happy that others posted and I saw your Ta-Da post on the message board. It is exactly what I needed. Congrats to you. I hope to someday follow in your footsteps.
As always, this site is a blessing.
Carol
What an inspiring post this is. Congratualations Polly! Where do I find the list of what GI doctors need to know about MC?
Tracy
http://thepowerofpoo.blogspot.com/
"I have not failed. I've just found 10,000 ways that won't work." Thomas A. Edison
http://thepowerofpoo.blogspot.com/
"I have not failed. I've just found 10,000 ways that won't work." Thomas A. Edison
That list can be found here;
http://www.perskyfarms.com/phpBB2/viewtopic.php?t=11951
An updated version can be found in the 5th post in this thread:
http://www.perskyfarms.com/phpBB2/viewtopic.php?t=13769
Tex
http://www.perskyfarms.com/phpBB2/viewtopic.php?t=11951
An updated version can be found in the 5th post in this thread:
http://www.perskyfarms.com/phpBB2/viewtopic.php?t=13769
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.