Can you tolerate coffee?

draperygoddess · Post by **draperygoddess** » Sat Oct 08, 2011 12:49 pm

I'm just wondering, how many of us have a problem with coffee? If you're able to drink it, how much and how do you take it (black, sweetened, etc.).

Cynthia

Gabes-Apg · Post by **Gabes-Apg** » Sat Oct 08, 2011 2:08 pm

Cynthia

I had been drinking coffee as a latte, with lactose free milk for about 5 years before Dx
Post Mc diagnosis and once i realised that Dairy was an issue, i did manage to convert to black coffee.

I dont buy commercial, i buy from a coffee roaster, it is a mild blend that is not bitter,
I have about 3 cups a day (it is half coffee half water) and have some demura sugar in it

For the coffee i have at work, i brew the coffee at home stir in the sugar, refrigerate it and then take it to work. Using my cup there is no risk of any contamination from the other stuff at work.
It costs me about $1 per day to have this coffee.
There is a coffee van that comes to work each morning and people pay $3 - $4 dollars for their coffee each day.

maestraz · Post by **maestraz** » Sat Oct 08, 2011 2:49 pm

I gave up coffee for about six months to try to get my system settled down, as it was causing a very upset stomach. During that time, had tea instead. Now back to LIMITED coffee in the AM. I use sugar and non-dairy coffee creamer (not Lactaid). This seems to be working.

carolm · Post by **carolm** » Sat Oct 08, 2011 3:34 pm

I was a die-hard Starbuck's drinker until diagnosis. A couple of weeks ago I tried a low acid decaf coffee from Healthwise Coffee. It's about $13 a bag so not much more than the Starbuck's I was buying at the grocery store. I have to say I REALLY like it. Since it's low acid it's always smooth and easy to drink black. Now that the weather is getting colder it's been a real treat to be able to drink coffee again. Yesterday I ordered two bags and got free shipping. :)

https://www.healthwisecoffee.com/index. ... ee5d6dd587

Carol

CAMary · Post by **CAMary** » Sat Oct 08, 2011 6:09 pm

Initially coffee gave me trouble. Now I can tolerate decaf.

Mary

sarkin · Post by **sarkin** » Sat Oct 08, 2011 9:11 pm

I drink black coffee daily, at about the same amount I was enjoying pre-MC. I have about 1.5 (strong) cups each morning, and rarely have any later in the day. Today I was fasting, for Yom Kippur, and definitely noticed that i have a mild addiction to the caffeine... because I was pretty dim-witted by 3-4pm

It is a huge part of our morning ritual - which may be even more habit-forming than the caffeine itself. It has always struck me as crazy that I can drink coffee, but a piece of toast would about kill me. But that's exactly how it is, for sure!

--Sara

draperygoddess · Post by **draperygoddess** » Sat Oct 08, 2011 9:55 pm

Thanks, you all have made my day! I quit coffee for the first two weeks on the diet, then added back one cup a day. With this latest flare, I've noticed it seems to be giving me trouble again. I guess I need to back off till things settle down--but hopefully I'll get it back soon! I definitely had some caffeine withdrawl symptoms going on at first, but now I just miss the taste.

Cynthia

harma · Post by **harma** » Sun Oct 09, 2011 12:26 am

I only tolerate decaf coffee, now in Amman I don't have a descent coffee maker yet (I only like espresso or cappuccino), so for now it is only tea. Sometimes in a cafe (or starbucks) I order a decaf espresso and emphasize it need to be decaf "yes yes no problem", but sometimes I do have a reaction. I was already suspecting that decaf is a problem too, but while I was in Holland I had no problems. So I am almost sure that some cafe's here say they serve decaf, but just give me a normal one.

After some experimenting I found out I prefer ricemilk for cappuccino. But I also discovered it does not taste good, with all the decaf coffee. I really liked with the ground decaf coffee of segafredo.

You see, even with MC and having to give up caffeine and dairy, with some experimenting and creativity it is still possible to have a cappuccino.

karenswans · Post by **karenswans** » Sun Oct 09, 2011 5:48 am

I have about 2 cups in the morning, and that's it for the day. I drink it black. I used to drink it with milk but I haven't found that transition to be too difficult.

MaggieRedwings · Post by **MaggieRedwings** » Mon Oct 10, 2011 7:38 am

Only (1) cup per cardiologist's recommendation. My only dairy of the day is about 2 tbsp. in it. Just cannot do it black.
Love, Maggie

dgshelton · Post by **dgshelton** » Mon Oct 10, 2011 12:57 pm

I drink 2-3 cups a day sweetened with Splenda and So-Delicious coconut creamer. I like the plain creamer, but they also have French vanilla that is good. It doesn't separate in coffee like some non dairy milks often do.

Hugs,

Kari · Post by **Kari** » Mon Oct 10, 2011 3:21 pm

Ahhhhh - coffee - the world's most popular drug :). I've started my day with a cup of coffee almost all my life. Then I discovered that I was highly sensitive to it through my MRT test. It was really tough to let it go - I was irritable and sluggish, often with a pounding headache. It took me a couple of weeks to feel semi normal again. I've had to think of something else to entice me out of bed in the morning - so now I do yoga poses and meditation, and am actually starting to look forward to this new little routine.

However, I fully intend to go back to coffee as I heal more - I love everything about it, from the aroma, to the taste, to what it does for my brain. It's as if it clears the fog, and makes my thinking crystal clear. Then, of course, it is the rush of energy. My acupuncturist suggested that I have a little coffee every 2 or 3 days. I've been trying with 1/4 cup of coffee in this manner, but it does not seem to work very well, since the days I don't have it, I seem to go into a mini withdrawal. Don't know if this is real, or just in my mind :).

Love,
Kari

Zizzle · Post by **Zizzle** » Tue Oct 11, 2011 10:12 am

Coffee has never been my friend. It usually sends me running to the bathroom right away. I have no trouble with tea. Now I can tolerate 1/4 cup of coffee without much trouble, usually with coconut milk added. I do prefer the low acid varieties.

starfire · Post by **starfire** » Tue Oct 11, 2011 3:37 pm

I seem to tolerate coffee just fine.... I don't make it real strong though. No cream, no sugar.

Love, Shirley

mzh · Post by **mzh** » Thu Oct 13, 2011 8:22 am

Interesting thread. I used to drink two cups a day with half-and-half and hazelnut syrup (DaVinci) sweetened with Splenda. My first cup was always before breakfast. I had to run to the bathroom many days during or right after breakfast, yet I didn't connect that to the coffee!

But - I've been on 9 mg Entocort for 3 weeks again - I had been on 6 mg for the prior month because I couldn't get the nausea and D under control. The Entocort always helped 99% within a week but not this time. So, I gave up drinking coffee the first thing in the AM and waited until after breakfast to have a cup. That worked quite well but I often have a somewhat loose but formed BM after that first and only cup 11 AM-ish. So, I seem to have developed a problem with coffee.

Today I had no coffee at all - just Sweet and Spicy Red Tea from Good Earth. Very nice and no problems yet today. I hope I haven't been taking all that Entocort for nothing! Sadly, the tea has no caffeine and I'm sleepy and aphasic. But not running to the bathroom has been a blessing.

I really need to do the sensitivity tests. Should I go right to the MRT or do Enterolab too?