Well, I just went ot get my last lupron shot. I get the nurse giving it to me today instead of the doctor. I like this doctor...he is very compassionate and very willing to consider many options.
Anyways, this nurse says okay you'll need to make an appointment in 3 or 3.5 months for when this shot wears off. So I said, I'm planning on having a hysterectomy when this shot cycle is done. She tried talking me out of it. Says do research. What the hell does she think, I came to this conclusion lightly! I don't want to bleed to death. I'd much rather give up my ability to have kids (that I probably couldn't concieve anyway...the endo has dragged my ovaries away from the tubes), than have that happen. I;m so tired of being sick, wondering when bad things will happen. I had hoped to see the doc today...he was always encouraging. But now I'll have to wait until my consultation appointment. I did make that for just 2.5 weeks from now. But my nerves are raw just thinking about all this. I just want to be able to get on the road to recovery from this long drawn out process that I've been on since the major problems 3 months ago!
I just went to this appointment expecting to have more of a plan in place (i.e., see doc, have him say set up a consult, we can do this in say december, you'll be feeling better by spring, etc.). I've never been very patient and waiting SUCKS!
Katy
UGH! Dumb Nurse just got to me
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kate_ce1995
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barbaranoela
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sorryyyyyyyyyyyyyyy
Hi Katy----sometimes the medical peoples DONT think that we consider every aspect of things in our life!!!! Good/bad!!!
I did the same with issues and me and my GYN and had a big fight---but one knows deep inside whats the best way to go---
100% agree~~~~~~~ waiting SUCKS!!!!!
take care and keep spirits up
luv Barbara
I did the same with issues and me and my GYN and had a big fight---but one knows deep inside whats the best way to go---
100% agree~~~~~~~ waiting SUCKS!!!!!
take care and keep spirits up
luv Barbara
the fruit of the spirit is love, joy, peace, patience, kindness, goodness, faithfulness and self-control
Yes, waiting SUCKS - big time!!!
If I were you I don't think I'd pay too much attention to that nurse. She is probably a doctor-wanna-be.
I have a neice like that. ALWAYS second guessing whatever the doctor said (not for herself - for everyone else).
You do what feels right for YOU.
Shirley
If I were you I don't think I'd pay too much attention to that nurse. She is probably a doctor-wanna-be.
I have a neice like that. ALWAYS second guessing whatever the doctor said (not for herself - for everyone else).
You do what feels right for YOU.
ShirleyWhen the eagles are silent, the parrots begin to jabber"
-- Winston Churchill
-- Winston Churchill
That nurse sounds like she has her own agenda which she should not be dumping on her patients. Go with what you and your doc have decided. She is a mere bump in the road. Drive on, my dear! Too bad you couldn't see the doc, though. It kind of irks me that when I make an appointment to see the doc I get the nurse. Expecially one with a BIG MOUTH.
Hang in there, Katy,
Lots of love,
Sally
Hang in there, Katy,
Lots of love,
Sally
Mitakuye oyasin
(Lakota for "We are all related")
(Lakota for "We are all related")
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annie oakley
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Katy.....I think I agree with the others....next time just nod and say uh huh and go with what you and the Doctor decided. Waiting really Sucks big time. It makes me nervous. Hang in there...My historectmy wasthe best thing I ever had done. Love Oma
May I be more compassionate and loving than yeterday*and be able to spot the idiots in advance
Hi Katy - Always remember - everyone has an opinion - and we all know what comes next! LOL
Do whatever YOU think is best for YOU! Only you know your body and have weighed the pros and cons of this decision. It wasn't an easy one for you but you are comfortable with the decision now that it is made.
I had many problems and am soooo glad I had my hysto. I was in my mid twenties. Saved me years of misery.
Do whatever YOU think is best for YOU! Only you know your body and have weighed the pros and cons of this decision. It wasn't an easy one for you but you are comfortable with the decision now that it is made.
I had many problems and am soooo glad I had my hysto. I was in my mid twenties. Saved me years of misery.
"Let us rise up and be thankful, for if we didn't learn a lot today, at least we learned a little, and if we didn't learn a little, at least we didn't get sick, and if we got sick, at least we didn't die; so, let us all be thankful." -- Buddha
Katy,
Nurses almost never work in doctor's offices unless they are married to the doc or family.
I'll bet this person is a medical assistant and not a nurse, but there is a slight possibility that she's an LVN or whatever they call them in Vermont. By the way, if she's being called a nurse in that office, then the office is in violation of the Nurse Practice Act in most states. Did they call her "the nurse." If so, be sure to remind the doctor that they'd better start referring to her by the appropriate title or risk someone reporting the office to the Board. She should be wearing some kind of clear identification of her crudentials along with her name so that patients can easily read it.
I, too, have had all those parts removed, and it was a no brainer in my case as I had a cantelop (sp) size tumor which could've been malignant theoretically.
At any rate, you're young, and should do well.
We'll back you up all the way.
Yours, Luce
Nurses almost never work in doctor's offices unless they are married to the doc or family.
I'll bet this person is a medical assistant and not a nurse, but there is a slight possibility that she's an LVN or whatever they call them in Vermont. By the way, if she's being called a nurse in that office, then the office is in violation of the Nurse Practice Act in most states. Did they call her "the nurse." If so, be sure to remind the doctor that they'd better start referring to her by the appropriate title or risk someone reporting the office to the Board. She should be wearing some kind of clear identification of her crudentials along with her name so that patients can easily read it.
I, too, have had all those parts removed, and it was a no brainer in my case as I had a cantelop (sp) size tumor which could've been malignant theoretically.
At any rate, you're young, and should do well.
We'll back you up all the way.
Yours, Luce
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MaggieRedwings
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- Location: SE Pennsylvania
Hiya Katy!
Yup, I agree with everyone else. You know what is best, but I know it is annoying when someone tries to interfere with your decision. Your plan sounds very well-reasoned to me, especially in light of the many years of endometriosis suffering you have experienced, not to mention the recent life-threatening event. (I was so worried about you). I don't blame you for being angry with that "nurse". Hang in there......better times are ahead. I'm glad the injections seem to be working for now.
Love,
Polly
Yup, I agree with everyone else. You know what is best, but I know it is annoying when someone tries to interfere with your decision. Your plan sounds very well-reasoned to me, especially in light of the many years of endometriosis suffering you have experienced, not to mention the recent life-threatening event. (I was so worried about you). I don't blame you for being angry with that "nurse". Hang in there......better times are ahead. I'm glad the injections seem to be working for now.
Love,
Polly
Blessed are they who can laugh at themselves, for they shall never cease to be amused.
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kate_ce1995
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- Location: Vermont
Thanks guys. I was so mad that apparently when I left home after a brief trip there before a engineering dinner meeting, I didn't even notice Geoff and Erin waving madly at me in the car behind me at an intersection in town! When I told Geoff about it when I got home, he said the nurse is lucky he wasn't there or that I wasn't him or she'd have gotten an earful!
Yes, Polly, it really is that "life threatening" event driving the decision more than anything else. I don't know how close I was to being in really really bad shape, but I know that the daughter of one of my Mom's collegues had a cyst rupture around the same time, and her #s dropped into the 5s and they told her she was very lucky to survive it. My lowest test was 8.1, but that was after 2 units of blood were pumped into me and my doc said it usually continues to drop until the transfusion kicks in and it goes back up so he thought I was around 6s. It was still reading 8.6 the morning after, which he said was probably sightly diluted from all the fluids they were pumping into me and that it was probably 9.
My arm is killing me after the injection. I got a 3 month dose this time instead of a 1 month dose. Well all that means is I got 3 times the stuff injected in there! OUCH! Its better this morning (I had to take my prescription strength naproxen in order to sleep last night because I couldn't sleep in any of my normal positions it hurt so much).
I just want my energy back and to feel good again. I'm much too tired for a normal 33 year old. I'm coping best I can, but a big part of what is getting me through right now is the knowledge that the problems are being taken care of and will not be problems again.
I see the doc on Oct. 3 for a consult...not too far away, especially considering I already know he won't do the surgery before December (unless he has changed his mind on that...he wants the full course of Lupron to shrink the fibroids, and I assume then he doesn't want to give them time to grow again as my estrogen level kicks back up.
For those of you who have had hysts, did you keep your ovaries? I had figured that I was going to have to have them removed too because of the endo, but my aunt who had bad endo (worse than me) kept her one remaining ovary and seems to be doing fine 6 or 7 years after the hyst. I am young to be estrogenless.
Katy
Yes, Polly, it really is that "life threatening" event driving the decision more than anything else. I don't know how close I was to being in really really bad shape, but I know that the daughter of one of my Mom's collegues had a cyst rupture around the same time, and her #s dropped into the 5s and they told her she was very lucky to survive it. My lowest test was 8.1, but that was after 2 units of blood were pumped into me and my doc said it usually continues to drop until the transfusion kicks in and it goes back up so he thought I was around 6s. It was still reading 8.6 the morning after, which he said was probably sightly diluted from all the fluids they were pumping into me and that it was probably 9.
My arm is killing me after the injection. I got a 3 month dose this time instead of a 1 month dose. Well all that means is I got 3 times the stuff injected in there! OUCH! Its better this morning (I had to take my prescription strength naproxen in order to sleep last night because I couldn't sleep in any of my normal positions it hurt so much).
I just want my energy back and to feel good again. I'm much too tired for a normal 33 year old. I'm coping best I can, but a big part of what is getting me through right now is the knowledge that the problems are being taken care of and will not be problems again.
I see the doc on Oct. 3 for a consult...not too far away, especially considering I already know he won't do the surgery before December (unless he has changed his mind on that...he wants the full course of Lupron to shrink the fibroids, and I assume then he doesn't want to give them time to grow again as my estrogen level kicks back up.
For those of you who have had hysts, did you keep your ovaries? I had figured that I was going to have to have them removed too because of the endo, but my aunt who had bad endo (worse than me) kept her one remaining ovary and seems to be doing fine 6 or 7 years after the hyst. I am young to be estrogenless.
Katy
Hi Katy -
I went through numerous surgeries to complete my hyst. Mainly due to cysts and endrometriosis. They tried to keep my ovaries since I was in my mid 20's when I had it done but they had to come out a year after the uterus.
I have never taken HRT either. I am in my mid 40's now and don't seem to have any problems that I can identify.
Don't know if that's any help, but that's my story!
Margie
I went through numerous surgeries to complete my hyst. Mainly due to cysts and endrometriosis. They tried to keep my ovaries since I was in my mid 20's when I had it done but they had to come out a year after the uterus.
I have never taken HRT either. I am in my mid 40's now and don't seem to have any problems that I can identify.
Don't know if that's any help, but that's my story!
Margie
"Let us rise up and be thankful, for if we didn't learn a lot today, at least we learned a little, and if we didn't learn a little, at least we didn't get sick, and if we got sick, at least we didn't die; so, let us all be thankful." -- Buddha
Hi Katy,
You may already be familiar with this site, but if you aren't, check it out when you have a little time to devote to it. I think you'll find a lot of valuable information there.
The title of the article is Estrogen Dominance,The Silent Epidemic. Note especially, the section on Estrogen Effect vs. Progesterone Effect.
http://www.drlam.com/A3R_brief_in_doc_f ... inance.cfm
Wayne
You may already be familiar with this site, but if you aren't, check it out when you have a little time to devote to it. I think you'll find a lot of valuable information there.
The title of the article is Estrogen Dominance,The Silent Epidemic. Note especially, the section on Estrogen Effect vs. Progesterone Effect.
http://www.drlam.com/A3R_brief_in_doc_f ... inance.cfm
Wayne
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Katy,
The main reason that both my ovaries were removed in addition to the total hyst was that the huge tumor had created such a disaster in there as it pushed everything every which way. In the op report I read that the other ovary had what looked like MIGHT be another tumor, but I suspect that the surgeon took that one out as he knew I wanted to be done with female surgery after I gave him this one shot at it. Ha! (Remember, at that time, they wouldn't have known that I was not really at risk for ovarian cancer, so I figured that danger in then. Might not have had I known about the viral agent that was later found -- might've elected to keep the other ovary. Also, I was just 40 then.)
It just so happened that they discovered a great big mess inside the uterus to which I seem to have been oblivious -- cysts, BIG fibroids, etc. I have a built in way of not noticing physical signs and symptoms when it comes to internal things that don't beat!)
Fortunately, I'd not had any apparent excess bleeding. How scary that must've been for you. I'm so glad you're getting everything taken care of.
Yours, Luce
The main reason that both my ovaries were removed in addition to the total hyst was that the huge tumor had created such a disaster in there as it pushed everything every which way. In the op report I read that the other ovary had what looked like MIGHT be another tumor, but I suspect that the surgeon took that one out as he knew I wanted to be done with female surgery after I gave him this one shot at it. Ha! (Remember, at that time, they wouldn't have known that I was not really at risk for ovarian cancer, so I figured that danger in then. Might not have had I known about the viral agent that was later found -- might've elected to keep the other ovary. Also, I was just 40 then.)
It just so happened that they discovered a great big mess inside the uterus to which I seem to have been oblivious -- cysts, BIG fibroids, etc. I have a built in way of not noticing physical signs and symptoms when it comes to internal things that don't beat!)
Fortunately, I'd not had any apparent excess bleeding. How scary that must've been for you. I'm so glad you're getting everything taken care of.
Yours, Luce