How Many of Us Were Misdiagnosed With IBS?

draperygoddess · Post by **draperygoddess** » Sun Oct 16, 2011 2:57 pm

Wondering how many "IBS" labelled patients are out there, having actually LC or CC

Harma, I have wondered about this myself. How many of us on the forum were originally diagnosed with IBS?

Gloria · Post by **Gloria** » Sun Oct 16, 2011 7:06 pm

I just talked to the wife of someone who has all the symptoms of MC. His doctor's diagnosis? IBS and anxiety. It makes me want to scream. I'm sending him this website URL and will put him in touch with JoAnn.

Gloria

draperygoddess · Post by **draperygoddess** » Sun Oct 16, 2011 9:29 pm

Gloria,

I have all the clinical symptoms of MC as well, but have been told for 5 years that I "probably had IBS." The only reason my doctor did a colonoscopy was due to my family history of colon cancer.

harma · Post by **harma** » Mon Oct 17, 2011 1:37 am

Really there are so many people with any bowel disease, UC, Crohn, Celiac, MC who first get the diagnosis IBS. Especially Celiac is famous for that, the normal diagnosis times seems to be 10 years. How easy could 10 years of misery be spared by a simple blood test.

I wish I knew earlier about the gluten and bowel problems (besides celiac) I could have spared me so much misery in the last 10 years.

But of course better now than never.

harma · Post by **harma** » Mon Oct 17, 2011 1:43 am

oh by the way, my GI does not give on IBS, I have now CC + IBS, even when there is a diagnosis for the bowel problems...if not all the symptoms fit in with the classical picture of MC (that is in my GI opinion only watery D), than the rest is, what else, IBS. First I thought IBS was created for patients to reassure patients that they really "have something". But I am sure it is also easy for doctors, call it IBS an sent them home.

beni · Post by **beni** » Mon Oct 17, 2011 5:33 am

hi, here is one to beat all! i was diagnosed with IBS 13 years ago, within a month I had to have an urgent total hysterecomy, strangely the IBS so called went after my op only to get another diagnosis 8 years later of IBS followed by a colonoscopy showing MC !!!!!!Beni

karenswans · Post by **karenswans** » Mon Oct 17, 2011 6:09 am

My GI said it could be IBS or MC, and we had to do a colonoscopy to differentiate because "the treatments are very different." It did take me years to get a diagnosis anyway because it took me that long to actually address it with my doctor because I assumed I had IBS!

Dee · Post by **Dee** » Mon Oct 17, 2011 1:50 pm

Initially I was told IBS and was prescribed Bentyl & Questran.
After no signs of improvement was finally diagnosed by colonoscopy biopsies, showing collagenous colitis.
Then I was put on Asacol. Didn't help.
Then Entocort EC, which did work.
GI does not recognize anything to do with MC & food intolerances.
Just shakes his head when I bring it up and says, "you are not a celiac"!
You don't even want to know what I'd like to express to him!

Dee~~~

MotherGrizzly · Post by **MotherGrizzly** » Fri Oct 28, 2011 8:24 pm

I have spent most of my life with the misdiagnosis! Now, I have a GI who correctly diagnosed me with the lymphocytic colitis, but he tells me that diet "doesn't improve" the LC and that it's a TYPE OF IBS. If it weren't for this board, I would be so confused. WHY do these doctors, who get paid so much, know so little?

draperygoddess · Post by **draperygoddess** » Mon Oct 31, 2011 6:30 am

I am not a swearing person, but two abbreviations are fast becoming bad words in my vocabulary: GI and IBS-D!

harma · Post by **harma** » Mon Oct 31, 2011 8:28 am

but he tells me that diet "doesn't improve" the LC and that it's a TYPE OF IBS

MC, CC or LC a type of IBS....sigh...some even with inflammation markers that is linked to a disease with a name call it IBS. This one is really the worst one I have heard ever on MC.

Lesley · Post by **Lesley** » Mon Oct 31, 2011 1:22 pm

My doc beat all. He did the biopsy and dx'd MC. When I told him how uncomfortable I was he said it must be IBS. I asked him how it could be both when he had actually dx'd it through a biopsy. NO REPLY! His silence was deafening.

Post by **tex** » Fri Nov 11, 2011 10:27 am

It appears that almost half of us were misdiagnosed with IBS.

That's mighty significant. It says a lot about the prevailing medical mindset regarding diagnosing digestive system issues.

Tex

hoosier1 · Post by **hoosier1** » Fri Nov 11, 2011 10:33 am

I was misdiagnosed with, LOL, IBS for 7 years!!!!!!!!

draperygoddess · Post by **draperygoddess** » Fri Nov 11, 2011 7:31 pm

My doc is STILL trying to tell me it's IBS, despite pathological evidence to the contrary. When I questioned him about it, he said, "So you think you know more than a doctor and two pathologists?"

MICROSCOPIC COLITIS SUPPORT

How Many of Us Were Misdiagnosed With IBS?

Were you ever misdiagnosed with IBS?

How Many of Us Were Misdiagnosed With IBS?