Well, have been making pretty good progress lately. I traveled twice on "public" transportation (train and plane) with no problems. After Robin's post about confiscated food, I got a letter from my doc, as well as printing out TSA language on carry-on food, just in case, but no issue. Being able to do this was greatly encouraging, in terms of feeling like I'm getting my life back. I also was able to successfully eat GF/DF in several restaurants on our trip.
And, maybe you all will consider this a form of progress: I had a follow-up visit with my GI doc yesterday, at which she asked for more info about this site so she could recommend it to people she diagnosed with MC (this after I had mentioned it to her in a previous visit as a great resource). I was impressed!
Progress"?????
Moderators: Rosie, JFR, Gabes-Apg, grannyh, Mars, starfire, Polly, Joefnh
Progress"?????
Suze
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Joefnh
- Rockhopper Penguin
- Posts: 2478
- Joined: Wed Apr 21, 2010 8:25 pm
- Location: Southern New Hampshire
Suze that is progress, I am so glad that you were able to travel hassle free with your foods, thats certainly good news. It's also great news to hear that a doctor is open minded to be able to look into sites like this for information. It seems like you may have found a very good doctor.
Take care and thanks for the update Suze
Joe
Take care and thanks for the update Suze
Joe
Joe
That's great news that things are going so well, and your traveling is working so well.
Thanks for the update, and the progress report.
Tex
I'm impressed too. Good for her, and good for you for inspiring her. That will probably help a lot of people in the long run.Suze wrote:I was impressed!
Thanks for the update, and the progress report.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Suze,
I am happy for you and your progress. And it is smart to carry a note for TSA regarding your food. Frankly, I have never had them take any food from me, except for the occasional water bottle that I forgot to take out of my camera bag.
If you need any travel tips, let me know, I am on the road and on planes every week. For the longest time, I thought I would have to give up this career path that I love so much due to the demands of travel on my body and the lack of a normal routine. If you read my posts from a year ago, you can see how "dark" they were. It scares me to even read them any more. But with the help and support from this board (and education), I am confident to say I have actually figured out how to "do it all". But as Gabes says, it is a different life. It does mean a lot of limitations in my diet. It also means planning my flights so I am not pushing so hard. But I am proof that it can be done. And I was the doubting Thomas. I have also shared my condition with those around me in whom I trust. They help to prop me up and understand my limitations.
Regards,
Rich
I am happy for you and your progress. And it is smart to carry a note for TSA regarding your food. Frankly, I have never had them take any food from me, except for the occasional water bottle that I forgot to take out of my camera bag.
If you need any travel tips, let me know, I am on the road and on planes every week. For the longest time, I thought I would have to give up this career path that I love so much due to the demands of travel on my body and the lack of a normal routine. If you read my posts from a year ago, you can see how "dark" they were. It scares me to even read them any more. But with the help and support from this board (and education), I am confident to say I have actually figured out how to "do it all". But as Gabes says, it is a different life. It does mean a lot of limitations in my diet. It also means planning my flights so I am not pushing so hard. But I am proof that it can be done. And I was the doubting Thomas. I have also shared my condition with those around me in whom I trust. They help to prop me up and understand my limitations.
Regards,
Rich
"It's not what I believe. It's what I can prove." - A Few Good Men
Rich it's wonderful to hear you sounding so strong and settled and happy. I woke up this morning thinking about your skin-irritation encounter, and how we are all living with a level of 'haz-mat' vigilance around food... which must seem to others (and to us!) very stressful, until it becomes a way of life. It must be the same to you, in the course of your working life - you don't mind putting on the gloves, or taking the necessary precautions, because that is just part of the job - part of life...
And you're right to remind us, that having the right support around us is so helpful.
Here's to your continuing health and healing!
Sara
And you're right to remind us, that having the right support around us is so helpful.
Here's to your continuing health and healing!
Sara
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Joefnh
- Rockhopper Penguin
- Posts: 2478
- Joined: Wed Apr 21, 2010 8:25 pm
- Location: Southern New Hampshire
Rich it's great to hear your doing fairly well. I have the opposite problem when it comes to environmental contamination, where I work in clean rooms I spend a good part of every day in a 'space suit' where the air I breath is ultra ultra clean. Ive always wondered if that amount of time in such a sterile environment is a bad thing.
As far as travel tips, those are always welcome. I am looking into another trip to Australia at some point fairly soon, so any hints or tips are always useful.
Joe
As far as travel tips, those are always welcome. I am looking into another trip to Australia at some point fairly soon, so any hints or tips are always useful.
Joe
Joe
I am so glad to hear that we (MC club) can make it possible to travel and keep MC under control. I have my trip coming up in 2 weeks to Hawaii and still a little nervous. I am armed with doctors letter, TSA caring food aboard a plane and I just received a letter from Continental stating because of health my issue that I need to bring my own food on board the plane. So I think I will be covered!
Rich....Any suggestion for easy travel would be greatly appreciated.
Happiness and Health Always
Robin
Rich....Any suggestion for easy travel would be greatly appreciated.
Happiness and Health Always
Robin
Robin,
Some tips for travelling with MC are here:
http://www.perskyfarms.com/phpBB2/viewforum.php?f=62
I took a trip to Hawaii last year and posted a thread detailing my experience.
IMHO, planning is the most important ingredient. Good luck!
Gloria
Some tips for travelling with MC are here:
http://www.perskyfarms.com/phpBB2/viewforum.php?f=62
I took a trip to Hawaii last year and posted a thread detailing my experience.
IMHO, planning is the most important ingredient. Good luck!
Gloria
You never know what you can do until you have to do it.
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MaggieRedwings
- King Penguin
- Posts: 3865
- Joined: Tue May 31, 2005 3:16 am
- Location: SE Pennsylvania
Polly, Gabes, Joe, Sara, Gloria, and all:
This may be a repeat post but I cope best on the road by doing the following:
1) I fast and dehydrate myself a little the day before I start travelling. I know this isn't necessarily the healthiest move, but it aids in keeping my system calm on long flights. I don't want to be the one who is always in the bathroom at 10,000 feet.
2) I eat breakfast a lot! IOW, when all else fails and I am in an unfamiliar restaurant, I eat fried eggs, bacon, and potatoes. I have found the Cracker Barrel and BoB Evans restaurants agree with me. And since cooking in butter is expensive, they don't. Making the meal safe, at least for me.
3) I carry Lara Bars with me for long plane rides and layovers where I don't want to venture out of my comfort zone. A little heavy on the fiber so be careful.
4) The JW Marriotts have gluten free menus in their restaurants and theirs meals do me no harm. And they are delicious.
5) I try to keep my eating cycle on my home time zone, even if I am several time zones different. You gotta keep your eating routine.
6) I try to pass on the early morning flights as my GI is overly active in the morning.
7) I get a lot of sleep on the weekends.
8) I drink little red wine each day. It relaxes me and seems to have no ill GI effects.
I will add more of my tips as I think them.
And some of you may recall my recent skin reaction in which I was treated with a weeks worth of tapping prednisone. We'll, I felt awesome and it spiked my appetite so I think I gained a pound or two. But...when the prednisone was done, I flared in a major way but only for a couple days. I actually popped some Entocort, imodium, and mesalimine enemas for 2 days it was so bad. Wow, what a rebound. Never going to touch prednisone again. Though it did help my rash. Odd, huh?
And the biggest thing I have learned is that when I flare, my bladder flares too. So painful. But I do know now that MC isn't going to kill me, and in the past, I thought it might. So mentall, I am calmer.
Rich
This may be a repeat post but I cope best on the road by doing the following:
1) I fast and dehydrate myself a little the day before I start travelling. I know this isn't necessarily the healthiest move, but it aids in keeping my system calm on long flights. I don't want to be the one who is always in the bathroom at 10,000 feet.
2) I eat breakfast a lot! IOW, when all else fails and I am in an unfamiliar restaurant, I eat fried eggs, bacon, and potatoes. I have found the Cracker Barrel and BoB Evans restaurants agree with me. And since cooking in butter is expensive, they don't. Making the meal safe, at least for me.
3) I carry Lara Bars with me for long plane rides and layovers where I don't want to venture out of my comfort zone. A little heavy on the fiber so be careful.
4) The JW Marriotts have gluten free menus in their restaurants and theirs meals do me no harm. And they are delicious.
5) I try to keep my eating cycle on my home time zone, even if I am several time zones different. You gotta keep your eating routine.
6) I try to pass on the early morning flights as my GI is overly active in the morning.
7) I get a lot of sleep on the weekends.
8) I drink little red wine each day. It relaxes me and seems to have no ill GI effects.
I will add more of my tips as I think them.
And some of you may recall my recent skin reaction in which I was treated with a weeks worth of tapping prednisone. We'll, I felt awesome and it spiked my appetite so I think I gained a pound or two. But...when the prednisone was done, I flared in a major way but only for a couple days. I actually popped some Entocort, imodium, and mesalimine enemas for 2 days it was so bad. Wow, what a rebound. Never going to touch prednisone again. Though it did help my rash. Odd, huh?
And the biggest thing I have learned is that when I flare, my bladder flares too. So painful. But I do know now that MC isn't going to kill me, and in the past, I thought it might. So mentall, I am calmer.
Rich
"It's not what I believe. It's what I can prove." - A Few Good Men