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Lesley
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Post by Lesley »

My position has been on the throne all day.
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tex
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Post by tex »

I would still wait a while. :lol:

Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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sarkin
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Post by sarkin »

Lesley, I don't know what to say except to wish you a better tomorrow.

Tex,

This is really interesting to me - I really appreciate the way you can think about these things, in the absence of certainty. My imagination and curiosity can be pretty hard-working, but I do get to a point of throwing my hands up. Today, with a totally unexpected bout of crampy D, mid-day (and nothing since, though I'm obviously 'on notice'), I thought at first that nothing was different from what I've been up to. But - I racked homemade blueberry and tomato wine yesterday, by siphoning it from one container into another. I haven't had trouble with blueberries or tomatoes. BUT - these batches have things like 'acid blend' or 'pectic enzyme' or 'yeast nutrient' - and I actually have no idea what's in those. If any of those turn out to be the culprit, then I am one lucky so-and-so to be doing so well, because it would mean I am extremely sensitive to tiny amounts of - whatever it is. For me, nothing feels like this, other than gluten or dairy (this actually feels more like dairy - my research is about to start on those additives!).

And, of course, upon reflection - it wasn't the only different thing. When I'm on full vigilance, I'm super-controlling the experiment, but I've been feeling great for a while now. And, of course, it could be that a new intolerance has just popped up - and it could be the first of many.

I would also like to say that your nuanced and thoughtful wording about the value and limitations of tests should be required reading for doctors. (I have specifically wondered whether a confused, corrupt or alarmed immune system might not react, as you suspect may be possible. How I wish some doctor with sick patients had that kind of curiosity.)

I don't know whether you saw the 'medical mystery' article in the NYTimes Magazine. SPOILER ALERT - the patient has celiac disease. The doctor actually figures this out - this woman came to him with *two* positive celiac blood tests from previous doctors. Pardon my French, but WTF?? Those of us with unproven celiac, sick as dogs with gluten sensitivity, can't come up with those antibodies... plus she's 4'9". (Actually, maybe the gasket I blew when I read this article is what caused my micro-flare today! It infuriated me so much I've lost the link.)

This patient suffered for years and years with unrelenting pain. I am not proud of it, but I'd like her former GI doc to get a little dose of that. And a clue.

I do realize that this turned not only into a tangent, but a bit of a rant :shock:

We'll just chalk that up to gluten-induced brain-something... OK?

Love,
Sara
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Gloria
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Post by Gloria »

Lesley,

Thank you for the Entocort offer. I presently have a stash of it from when I was taking little or none, so I'm not in need of any for a while. I'm hoping, of course, that I can get the dosage lowered from the 3x/day that I'm presently taking so my stash lasts me even longer.

Gloria
You never know what you can do until you have to do it.
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tex
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Post by tex »

Sara,

Thanks for the entertainment - I'm still laughing. No, I haven't seen that article, but I'm truly impressed that the doctor was able to make a correct diagnosis with only such subtle clues to work with. :ROFL: His peers undoubtedly view him as some sort of clairvoyant. :lol: :lol: :lol:

I apologize for laughing, because I realize that's a sad situation, but it's so ridiculous to think that someone could actually feel that such a no-brainer was some sort of indication of some degree of competence, worthy of writing an article about, that I just can't stop laughing. :lol: :lol:

I hope I don't get sick - from all the laughing.

I also hope that the shot across the bow that you experienced today was just an accidental discharge. (Sorry for all the puns). :lol:

Love,
Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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sarkin
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Post by sarkin »

Thanks, Tex - do avoid that article, for health reasons...

I am optimistic that, despite your scary puns, tomorrow will be a better day!

L,
S
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Lesley
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Post by Lesley »

You're welcome Gloria. I am keeping them here JIC. I am HOPING not to need them. I had to use Imodium in addition to the Norco (for pain) because the D was truly out of control today. I am HOPING it settles down by tomorrow. I don't want it to take as long as it did the first 2 big flares.
Just know that I have a 3 month stash right now, and if you run out and I haven't used it, you, or anyone else that needs it, is welcome.

Sara - I agree with Tex. It's FUNNY! Not worth blowing a gasket and waking the dormant, dreaded, despicable, disastrous D!
At least it would be if it wasn't so sad.

Tex. Laugihng, to quote the sages, is the best medicine.
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deltawolf
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AllDayChemist.com

Post by deltawolf »

How did you pay for it. I do not have a VISA card only Mastercard, and feel funny about sending a check to India? Thoughts?
Amy
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Lesley
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Post by Lesley »

Paid with a Mastercard, Amy. They don't need a Visa specifically. Just a recognized credit card.
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tex
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Post by tex »

I use Mastercard for overseas payments regularly, and have never had any problems so far. Don't they take Mastercard at AllDayChemist?

I notice that almost everyone seems to think that AllDayChemist is located in India. Actually, they're located in Cyprus. Here's their actual address:

Eyston Enterprises Limited
15 Agiou Pavlou Ledra House
1105 AgiosAndreas
Nicosia
Cyprus
:cowboy:

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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deltawolf
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Post by deltawolf »

I found that address as well. But when you talk to them they say India and that would be where you have to send the check and make it out to a Derrick Wood. No they do not take mastercard, odd?
Amy
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sarkin
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Post by sarkin »

That does seem strange, and I thought they did take MC. I'd feel uneasy about the check, too. Not to mention the delay. But the part about making it out to this fellow would really make me wonder about phishing (a topic about which I know very little).

(Nice to see you, Amy - hope you're feeling great...)

--Sara
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tex
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Post by tex »

I'm sure they do fulfill the orders in India, (since that's where most of the drugs are manufactured). The Cyprus business entity is probably just a front, to get around some legal issue.

Regarding the issues that Sara raised - you didn't by any chance get that phone number from a fraudulent e-mail, did you? Did you read this notice:

https://www.alldaychemist.com/content/1 ... nt_Message

If you called the number at the top of their website, (1-866-403-5832), you should be OK.

If that phone call was legit, then Derrick Wood must have a U. S. bank account. Otherwise they would surely have to charge an additional fee for processing. Most banks won't even accept a check written on a foreign bank account, (because they have absolutely no recourse if the check is no good), and the few that do, charge a hefty fee for processing the transaction, because of the risk involved. That is indeed odd that they don't take mastercard, but I see that VISA is the only credit card they accept, so I'm sure they save a lot of bank fees that way, by not having to pay for all those other banking accounts.

I hope that doesn't slow down your order too much.

Tex
:cowboy:

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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