peripheral neuropathy

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draperygoddess
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Post by draperygoddess »

Tex, I think this may be one of those "same equipment" issues, because wheat isn't listed as an ingredient on any tortillas (or tostadas) I've bought, but they're not specifically labelled as GF. Whatever it is, there is SOMETHING that doesn't agree with me. I thought at one time it might be the oil, but that was when I was also reacting to potato chips, before I found out I was intolerant of potatoes. Kinda afraid to try again! I will keep looking to see if I can find a certified GF brand. There is one grocery store in the area that carries a much more extensive "specialty" food selection, so I might be able to find something there.

Do you find you have more to choose from in the Mexican-type food arena, being in Texas? I still can't find any GF barbecue sauce, and in Tennessee, barbecue is a food group!
Cynthia

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tex
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Post by tex »

Cynthia wrote:Do you find you have more to choose from in the Mexican-type food arena, being in Texas?
Definitely. For one thing, I haven't run across any corn tortillas that contain wheat flour, and there are many brands available, here, including various Mexican brands, one of which is my favorite: http://www.tortillasguerrero.com/es

Take a look at the list of GF barbecue sauces at this site, (and click on the links to check their ingredients), maybe one or two will fit your needs, and you can find them locally:

http://www.bbqsaucereviews.com/gluten-f ... ue-sauces/

Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Post by Zizzle »

I think I get to join you all in the neuropathy (or related issues) club! :sad: I had my second appt with my integrative medicine doc, and once again had myoclonus in my lower legs, when he stimulated them with the little hammer, they don't jerk the way they are supposed to. And with a laying down test, my feet do a double jerk, which they shouldn't (something like that). Seems I have an overactive nervous system (to match my overactive GI and immune system!! :wink: ), which we kind of already knew, since I have dysautonomia and Mitral Valve Prolapse. But it may be related to all the muscle problems in my pelvis and lower back, perhaps pinching nerves? Turns out my pelvis is locked in place (classic sign of EDS) by muscles desperately trying to hold my lax joints and ligaments in place. Without all this muscle stiffness, my hips would sublux or dislocate on a regular basis. But it means sacroiliac joint and lower back issues, back spasms, etc, many which I barely notice (since they are my norm). I start accupuncture and manipulation next week...can't wait!

I also have mild plantar faciatis - foot pain from tight muscles and ligaments trying to hold up my high arches. My feet are taped right now to see how it feels when the pressure is off - something about encouraging proprioception (a term that totally eludes me). If I get relief with the tape, I'm a candidate for prolotherapy injections. Unfortunately, they are very expensive ($600) and insurance doesn't cover them, so it'll be back to aching feet. But the weight loss of MC and the GF/DF diet have really helped!
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tex
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Post by tex »

Who was it who recently posted about prolotherapy? Was it Connie? Did you check out the link she posted?

http://www.centralcoastpaininstitute.com/id19.html

Maybe neural prolotherapy would work just as well, and surely the treatment described there would be cheaper than 600 bucks, since it requires nothing but dextrose. :shrug:l

Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Zizzle
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Post by Zizzle »

Actually, the dextrose injections are $600 each!! I guess you're paying for the skill of the injector? :roll: Here's what my practice has to say about it:

http://kaplanclinic.com/content/treatme ... herapy.php

It's all very new without much evidence, and feet require extra injections (up to 6), so I think I'll pass. But I might let my husband try it for his shoulder tendonosis (baseball injury/non-operable).
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draperygoddess
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Post by draperygoddess »

Thanks for the link, Tex! I'm sure I can find at least a few of those around here.

Zizzle--one more thing to add to your list! When you say manipulation, do you mean with a chiropractor?
Cynthia

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Zizzle
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Post by Zizzle »

He's an Osteopath, so similar, but I can't do lots of back and joint cracking (wish I had known that earlier!). Probably more muscle work.
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Post by Deb »

Zizzle, I've had problems with plantar fasciitis in the past and found and wore a brace at night that seemed to help. I know of others who have experienced similar results with a brace. I don't currently have any issues with it.
http://www.mayoclinic.com/health/planta ... -and-drugs
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Post by Lesley »

Alton Brown has a program on tortilla making. You can probably find it on the web.

It makes total sense medically speaking, that PN is caused and/or worsened by both an illness such as diabetes and/or MC, and by meds. I wonder though, whether there is a propensity for neuropathies because of some previous injury, even unoticed, that causes a weakness which is affected by gluten sensitivity.
I have a place where a nurse messed up inserting and IV many years ago, and hit a nerve. The spot always causes trouble when my hands go numb.
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Post by Lesley »

Zizzle,
Proprioception is a hard concept to grasp. It is a sense along with the other 5 senses, but it is not one that you are aware of.
There are specific receptors located in the joints, the ligaments connecting them, as well as the inner ear (it's strongly connected to movement - kinesis-, though separate from it) which inform the brain where each part is in space in relation to the others, and how this changes with movement.
It's VERY important to athletes in sports (conscious), and in righting reflexes which are developed in babyhood, is often lost with injury (unconscious until the damage). Without proprioception you could not touch your nose with your finger with your eyes closed, or, for that matter, walk with your eyes closed.

Does that make sense?
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Post by Lesley »

used to get icy cold and literally turn white and numb from lack of blood flow
That's called Reynaud's (fox in French). There are 2 types - primary (milder) and secondary to another condition. That one is more serious, and depends on the management of the other condition.
Reynaud's has been connected to sprue or wheat sensitivity, with no proof that I know of. It is also connected to other auto immune conditions like Lupus and FMS.

Nice to know that prolotherapy has helped.
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tex
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Post by tex »

Zizzle wrote:Actually, the dextrose injections are $600 each!! I guess you're paying for the skill of the injector?
:shock: That's ridiculous.

You might consider trying a prescription for Metanx. It sure helped me, and it only costs a little over 35 bucks per month.

Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Zizzle
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Post by Zizzle »

Lesley,
That is the best explanation I've read so far. Thanks!!
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Post by Gloria »

I was diagnosed with Plantar Faciitis over 15 years ago. My husband and both daughters have it, also. We all wear orthopaedic inserts, which has resolved any pain or problems. I wear mine all day, even in the summer. My feet stopped hurting the day I started to wear them.

They can be expensive, but they're cheaper than the injections and less painful. My insurance covered the first pair. I had them relined for a fraction of the original price when they started wearing a bit.

The first podiatrist I saw gave me a cortisone injection in my foot. It wasn't nearly as effective as the ortho inserts.

Gloria
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tex
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Post by tex »

I had a bad problem with plantar faciitis about 5 years ago. It came on suddenly, for no known reason, and since I was spending a lot of my day stacking bags of corn on pallets, it quickly became a major problem. I saw my doctor, (who prescribed ibuprofen :roll:), so then I decided to treat it myself, and I bought a pair of Dr. Scholl's Heel Pain Relief Orthotics, and stuck them in my shoes. They helped immediately, but since (I was carrying all that weight around for hours, while working, it took several months to get rid of the problem. I wore them for a few more months after the pain was gone, and then stopped using them. The problem never returned. Here's what I used:

http://drscholls.com/drscholls/productS ... archArg=46

Those are good products - I was dang near disabled, without them.

Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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