questran/habaa syndrome
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laurenla520
- Little Blue Penguin
- Posts: 29
- Joined: Sun Jan 30, 2011 6:26 am
questran/habaa syndrome
Hello guys. Well ive returned to a gluten free diet for about a week so far with mediocre improvements. I am wondering who is familiar with habaa syndrome featured on mystery diagnosis. He believes ibs is non existent and can be broken down in treatable terms and that the majority of people with ibs d have habaa which is excess bile causing d more than 3.movements a day easily treated by a medication like questran or welchol. Habaa does in fact take microscopic colitis into account in his findings determining a certain percentage of patients in his studies had it as well. I am wondering if I can have both and more specifically if any of you have had success with questran or a similar medication???
Look at his description of "Habba Syndrome". Here's the main part of it:
He claims that only 7% of patients with chronic diarrhea have MC, and only 4% have either celiac disease or gluten-sensitivity. The research studies that I've seen consistently show MC to be much more prevalent than that, and that's using obsolete statistics. With the current diagnostic trends, MC is much, much more common than the "experts" believe it to be. The same goes for gluten-sensitivity and celiac disease. Considering the current GF diet trend, the medical "experts" are under-reporting the numbers by a huge margin. Even the medical experts admit that they are only diagnosing about 5% of the celiac cases. That means that for everyone diagnosed, 20 more celiacs are not diagnosed. Looking at Habba's celiac percentage of 4% - if that were extrapolated by the ratio of undiagnosed to diagnosed celiacs, the correct percentage could be as high as 80%, meaning that 80% of people with chronic diarrhea are actually celiacs. And that doesn't count all the people who have non-celiac gluten-sensitivity, who will never be diagnosed, unless the medical "experts" accept a reliable method of diagnosing the problem, such as the stool tests offered by Enterolab.
A small percentage of members here have seen less D when using a bile-acid sequestrant, but it doesn't provide much help for most of us, and it causes cramps for many of us, if we try to use it. The main point is, for someone with diagnosed MC, Questran does absolutely nothing to address the inflammation.
IMO, Dr. Habba developed this "Habba Syndrome" idea a few years ago, before most GI docs learned how to diagnose MC, and before the "celiac awareness" movement took hold, and most people who he claims to have the syndrome, actually have either MC, celiac disease, or non-celiac gluten-sensitivity.
FWIW, I do agree with him that "IBS" does not exist, but "IBS" is not Habba Syndrome - it's mostly undiagnosed microscopic colitis, celiac disease, and non-celiac gluten-sensitivity.
That's just my personal opinion.
Tex
What does that describe? It describes exactly what all of us with MC deal with.Diarrhea is classically described as frequent, loose bowel movements and may be watery in nature. They could be explosive at times and may even be associated with great urgency and even incontinence. Diarrhea is mostly after meals (post prandial diarrhea). Because of this urgency, patients usually look for a bathroom wherever they go, also known as "bathroom mapping".
These symptoms are usually very distressing and may cause social embarrassment and interference with daily activities. Some patients are even homebound in fear of social embarrassment. Some lose weight because they are afraid to eat for fear of getting diarrhea.
Diarrhea is rarely nocturnal, unless the patient had a late meal close to bedtime.
He claims that only 7% of patients with chronic diarrhea have MC, and only 4% have either celiac disease or gluten-sensitivity. The research studies that I've seen consistently show MC to be much more prevalent than that, and that's using obsolete statistics. With the current diagnostic trends, MC is much, much more common than the "experts" believe it to be. The same goes for gluten-sensitivity and celiac disease. Considering the current GF diet trend, the medical "experts" are under-reporting the numbers by a huge margin. Even the medical experts admit that they are only diagnosing about 5% of the celiac cases. That means that for everyone diagnosed, 20 more celiacs are not diagnosed. Looking at Habba's celiac percentage of 4% - if that were extrapolated by the ratio of undiagnosed to diagnosed celiacs, the correct percentage could be as high as 80%, meaning that 80% of people with chronic diarrhea are actually celiacs. And that doesn't count all the people who have non-celiac gluten-sensitivity, who will never be diagnosed, unless the medical "experts" accept a reliable method of diagnosing the problem, such as the stool tests offered by Enterolab.
A small percentage of members here have seen less D when using a bile-acid sequestrant, but it doesn't provide much help for most of us, and it causes cramps for many of us, if we try to use it. The main point is, for someone with diagnosed MC, Questran does absolutely nothing to address the inflammation.
IMO, Dr. Habba developed this "Habba Syndrome" idea a few years ago, before most GI docs learned how to diagnose MC, and before the "celiac awareness" movement took hold, and most people who he claims to have the syndrome, actually have either MC, celiac disease, or non-celiac gluten-sensitivity.
FWIW, I do agree with him that "IBS" does not exist, but "IBS" is not Habba Syndrome - it's mostly undiagnosed microscopic colitis, celiac disease, and non-celiac gluten-sensitivity.
That's just my personal opinion.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Gabes-Apg
- Emperor Penguin
- Posts: 8332
- Joined: Mon Dec 21, 2009 3:12 pm
- Location: Hunter Valley NSW Australia
When first diagnosed, my GI specialist put me on a coctail of Questran and Loperamide.
I found this site and did my research and acknowledged that taking those meds long terms was not the solution.
As Tex said, it may slow motility to less the D, but it does not help to heal the inflammation. While ever there is inflammation, your digestion system is not working properly and you are not absorbing nutrients.
6 -8 months after diagnosis, i had ascertained most of my intolerances, and was only taking the questran when I had ingested the intolerances.
I still carry some satchets in my handbag as bit of a safetynet should something go majorily awal.
and as I type this i cant recall the last time I used it, it would be 9 months or more and I better check the use by dates on the satchets.
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I found this site and did my research and acknowledged that taking those meds long terms was not the solution.
As Tex said, it may slow motility to less the D, but it does not help to heal the inflammation. While ever there is inflammation, your digestion system is not working properly and you are not absorbing nutrients.
6 -8 months after diagnosis, i had ascertained most of my intolerances, and was only taking the questran when I had ingested the intolerances.
I still carry some satchets in my handbag as bit of a safetynet should something go majorily awal.
and as I type this i cant recall the last time I used it, it would be 9 months or more and I better check the use by dates on the satchets.
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Gabes Ryan
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
I'm currently taking the cholestyramine powder in combination with prednisone. I really don't know if it's helping or not- I'll find out more as my dosage for the prednisone decreases. I've been taking it since mid November and doesn't do much for my appetite. I get mild stomach aches but that's also hard to tell if it's the powder or food intolerances. My son also takes it for PSC related issues and he's actually thrown up because of it. The only way he can tolerate drinking it is with Sunny D (not the best drink but there's not much choice). He gets severe stomach aches because of it but the puritis he has is much worse. I don't have a problem taking it, but I've lost much of my sense of taste and have had to take things much worse in the past so it could just be my "adult" taste buds.
I wish I could tell you more about my experience with it but I thought it'd be worth a try since I haven't had much luck with anything else.
Does anyone know if cholestyramine can be taken in combination with entocort? I hate the idea of taking anything at all but the ball seems to be in my court when requesting meds from my GI. I've a long way to go with the GF/DF diet.
I must be one of "rare" ones because nocturnal D was an issue for me until I started the prednisone. I hope the diet will help with that once I'm finally off of it.
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I wish I could tell you more about my experience with it but I thought it'd be worth a try since I haven't had much luck with anything else.
Does anyone know if cholestyramine can be taken in combination with entocort? I hate the idea of taking anything at all but the ball seems to be in my court when requesting meds from my GI. I've a long way to go with the GF/DF diet.
I must be one of "rare" ones because nocturnal D was an issue for me until I started the prednisone. I hope the diet will help with that once I'm finally off of it.
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Sure - there's no medical reason why they can't be taken concurrently.DebE wrote:Does anyone know if cholestyramine can be taken in combination with entocort?
Regarding nocturnal D, when I think about that, my impression is that the members who have, (or had), that problem, often have a severe sensitivity to soy/legumes. I have no idea what the statistical correlation might be, but looking at member histories, that's the impression I get, FWIW.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Oooo- that's bad news for me. A big part of my diet right now is that. It seems like there's not many other categories left once gluten & dairy are gone and that to boot. I'll find out in about 3 weeks so will enjoy them now until I get the official word. Legumes doesn't include most nuts, right? I know peanuts are a legume & I eat a ton of PB.
This is all very interesting considering I was told to eat anything I wanted.
This is all very interesting considering I was told to eat anything I wanted.
I agree. At this point, you may as well wait for the lab results before deciding on any diet changes.
Those were the good old days, when I didn't know any better, either. 
Tex
Right.DebE wrote:Legumes doesn't include most nuts, right? I know peanuts are a legume & I eat a ton of PB.
My GI doc advised me to eat a lot of cream of wheat, "because it's easy to digest".DebE wrote:This is all very interesting considering I was told to eat anything I wanted.
Those were the good old days, when I didn't know any better, either. Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.