Good News And Bad News

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tex
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Good News And Bad News

Post by tex »

Hi All,

The good news is that my suspicions were confirmed, and I've found the reason for my aches, pains, osteoarthritis, etc.

The bad news is that my suspicions were confirmed, and my test results were positive. :sigh:

Gluten Sensitivity Stool Test

Fecal Anti-gliadin IgA 62 Units (Normal Range is less than 10 Units)


Milk Protein Sensitivity Stool Test

Fecal Anti-casein (cow’s milk) IgA 24 Units (Normal Range is less than 10 Units)


Now remember that I don't even have a colon, or cecum, and part of my terminal ileum is missing. So obviously, all food sensitivities are detected and activated waaaaaaaaaaaay upstream of the colon.

Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Zizzle
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Post by Zizzle »

WOW, Tex, that is amazing. :shock: Aren't you on a strict GF diet? Any chance of cross-contamination right before your test??

Sorry about the milk. Bummer.
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Post by Gabes-Apg »

Tex
it really does support the discussion that a sensitivity can start 'reacting' as soon as we put it into our mouths...

given your 'slightly' modified digestion set up, i am guessing that your motility time is shorter, would the heightened results occur because of the shortened mobility time.

like zizzle i am interested to hear if you are strict GF/DF eating plan or you had some for this test?
Gabes Ryan

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Post by Lesley »

Didn't you consume milk products prior to this test? I seem to remember your saying you ate some ice cream.

You did get glutened (or something else) when you went out to a restaurant. Was that prior to sending the samples are post? Could that have contributed?

What else do you have to cut out to get things back under control?
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Post by Gloria »

Well, that's pretty surprising and inexplicable - at least for the gluten results. Can you find an explanation?

Gloria
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tex
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Post by tex »

Zizzle wrote:WOW, Tex, that is amazing. :shock: Aren't you on a strict GF diet? Any chance of cross-contamination right before your test??
I thought I was, but lately, I've had a nagging suspicion that I've been getting cross-contaminated regularly.
Gabes wrote:given your 'slightly' modified digestion set up, i am guessing that your motility time is shorter, would the heightened results occur because of the shortened mobility time.
My average turnaround time seems to be roughly 9 hours, now, whereas previously, it was around 30. Anti-gliadin antibodies have a 21 day half-life, and antibodies to casein, and most other food-sensitivities have a half-life in the 5 to 6 day range. Therefore, with only a 21 hour difference in turnaround time, and relatively long antibody half-lives, statistically, the shorter transit time shouldn't make much difference.
Gabes wrote:like zizzle i am interested to hear if you are strict GF/DF eating plan or you had some for this test?
I thought I was strictly GF, (obviously, I wasn't), but I was eating dairy occasionally, because it never seemed to bother me. During the last 2 or 3 months prior to sending the sample, I tried to eat some dairy fairly regularly, in order to get a valid test - looks like it worked. :lol:
Lesley wrote:Didn't you consume milk products prior to this test? I seem to remember your saying you ate some ice cream.
Yes - see remarks to Gabes.
Lesley wrote:You did get glutened (or something else) when you went out to a restaurant. Was that prior to sending the samples are post? Could that have contributed?
I took the sample 4 days prior to, and sent it 2 days prior to that incident, so it couldn't have affected the test.
Lesley wrote:What else do you have to cut out to get things back under control?
Well, I'll need to avoid all dairy products, obviously, and start doing all my own cooking, apparently.
Gloria wrote:Well, that's pretty surprising and inexplicable - at least for the gluten results. Can you find an explanation?
Yes - I've been too trusting of others' cooking, apparently. :sigh:

Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Post by Zizzle »

tex wrote:I thought I was, but lately, I've had a nagging suspicion that I've been getting cross-contaminated regularly.

Yes - I've been too trusting of others' cooking, apparently. :sigh:

Tex
I hear you. I only eat at 2 people's houses, a friend who tries really hard to make safe food, and my in-laws, where my MIL is GF. I get sick from meals at both places. I'm still recovering from a flare that began over the holidays at my in-laws. I imagine it's the cookware, the spoons, the fact they eat pretzels and bread, and my FIL sneaking butter into everything...

I recall you eat a good deal of corn (tortillas, chips). Any suspicions there? I've been trying to stay with white instead of yellow corn, but I do eat both.
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Post by draperygoddess »

Tex,

Wow, that's amazing. Hard to believe you've got that many antibodies after all this time! It does bring up the question of whether we all need to be more careful than we are. Just because we might not be having a full-blown reaction doesn't mean we aren't getting glutened (or dairied, or soyed, or...) in miniscule amounts, maybe by cross-contamination, and having low-level reactions that might be beneath the radar, so to speak. I have been thinking about commandeering our old stainless-steel pots for my use alone--your results make me want to go ahead and do it, along with utensils!

Sorry that casein is not your friend. I think that one is harder, since a little cheese makes GF food more appetizing, IMO. :sad:
Cynthia

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tex
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Post by tex »

Zizzle,

I try to stick with white corn tortillas and chips, but during the holidays I found myself munching on Fritos, a couple of times.

Considering that I'm supposedly avoiding the stuff, I have to have been getting a fairly regular source of contamination on a long-term basis, (IMO), to show an antibody level that high. A test result of 64 doesn't leave much room for doubt. :roll:

I think you're right - it's probably in and on the pots and pans and virtually anything else used for cooking. All you have to do is to look around in a kitchen where someone is baking cookies, or anything else that uses wheat flour, for example, and you can see that flour is not only scattered all around, but it's easy to imagine all the invisible particles that drift all over the kitchen, any time flour is poured, or otherwise agitated. If a late-afternoon ray of sunlight streaks across the room, for example, you can do much more than imagine - you can easily see that there is a heck of a lot of flour dust in the air. That dust settles in and on anything exposed, and probably a certain percentage of it even drifts into closed cabinets and drawers, to settle on dishes and utensils there. Over time, with repeated exposure, the accumulations add up. Eventually, every time a cabinet door or a drawer is opened, flour dust is blown into the air, by the air currents that result from the door or drawer movement. And, of course, even if dishes and other utensils are carefully and completely washed, (which isn't always a sure thing), they may be contaminated with flour dust wherever they're stored, either from current baking projects, or residual flour from projects done in the past.

When the countertops and tables are wiped off, a lot of the flour dust is launched into the air again, to repeat the cycle, and every time someone walks across the room, the breeze stirs up some more. This way, it slowly spreads all over the house. It's impossible to get rid of all of it - it can only get worse, as time goes on.

IMO, it may be theoretically possible to use wheat flour, and with superhuman effort, somehow keep residual levels down to below 20 ppm in any food prepared in that house, but the chances of accomplishing that goal in the real world, are not very likely, as far as I can tell. I really don't believe that it can be done, on a reliable, long-term basis, unless "the victim" has a very high tolerance threshold.

My hat's off to anyone who can successfully do that, because I strongly suspect that it's a "mission impossible". :sigh:

Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Post by Lesley »

I am dead scared to eat anywhere but home, and to eat anything prepared by someone else. I am still reacting. I am thinking of buying new pots and pans. Changing them over, one at a time. Ross has the ceramic lined pots in pretty colors (red, green blue, orange - my colors) for reasonable prices. If I go on a Tuesday I get 10% off.
I am also going to get a small freezer so I can buy meat in bulk with one of my neighbors. If another wants to join even better. It's WAY cheaper. Something is still upsetting me, and I have to sanitize my kitchen. Make sure there is nothing in there that can harm me.
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Post by tex »

Cynthia,

It's even trickier with an ileostomy, because Norman is never going to happen, so it's sometimes difficult to tell the difference between D and something as simple as just drinking too much water, (which is easy to do, because it's easy to become dehydrated with an ileostomy, so one tends to err on the safe side). Unless one has an outright flare, with all the trimmings, (which I did, after getting glutened back in December), reactions involving only D, can be tricky to pinpoint. The tip-off for me, though, was using more pouches than normal, and having to get up during the night to change a pouch, and, of course, increasing aches and pains, especially around the holidays, when a lot of baking goes on. :headscratch:

Eliminating casein again won't impose much of a hardship, because the only sources that I ever eat are an occasional Snicker bar, a helping of ice cream about once a week, and Pamela's Pancakes once in a while. I'll miss the pancakes the most, I suppose, but I can survive on eggs and bacon, or GF cereal for breakfast. Maybe I'll be able to figure out a recipe for GF, DF pancakes, but it'll be tough to match the quality of Pamela's - those puppies are good.

If I remember correctly, Van's makes GF, DF frozen waffles. I don't like that fact that they contain soy flour, but I used them back when I was healing, after I tested safe for soy at Enterolab, and they seemed to work OK.

Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Post by Lesley »

Hasn't Dee got a recipe for GF/DF pancakes? That shouldn't be a problem since you can have eggs. You could probably make a basic flour so all you have to add is your choice of "milk" (almond, right?) and eggs.
Bacon and eggs - YUM!! I wish!!!

What we have in common is that I also can't tell if I am reacting unless it's an outright flare with D as caused by turkey, duck and palm oil. Otherwise I have no idea because it's all C, and I simply feel bad. Achy, tired, and sick.
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Post by nancyl »

Tex,
I make pancakes with King Arthur's GF all purpose flour and they are pretty good. I use clarified butter and oil and almond milk. I can't compare them to Pamela's because I never tried them. The recipe is on their website and I also make their waffles and like them.

Nancy
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Post by tex »

Thanks Lesley and Nancy,

I found Dee's recipe, so now I just need to try to locate some King Arthur's GF flour.

Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Post by MBombardier »

Major bummer, Tex. I am sorry. :sad:
Marliss Bombardier

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