Does anyone know if MC is related to previous Epstein Barr or Shingles?
Also, bending or reaching over-head can bring on D. Anyone else?
Brenda
Is MC related to these?
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
Is MC related to these?
It is important to be able to sacrifice what we are for what we can become.
unk
unk
Brenda,
My experience is that if I'm going to have D, I will have it whether I move around a lot or not. However, the timing of when it happens is definitely impacted. In other words, I'll have it sooner rather than later if I do a lot of physical activity.
Love,
Kari
My experience is that if I'm going to have D, I will have it whether I move around a lot or not. However, the timing of when it happens is definitely impacted. In other words, I'll have it sooner rather than later if I do a lot of physical activity.
Love,
Kari
"My mouth waters whenever I pass a bakery shop and sniff the aroma of fresh bread, but I am also grateful simply to be alive and sniffing." Dr. Bernstein
Thanks ladies for comments. Since I posted questions, I found a Dermatitis Herpetiformis link in Celiac Wiki which answered my question about MC and Shingles.
(Forgive me, I must learn how to use quote box, but want to post this now!)
"Dermatitis herpetiformis (DH), or Duhring's disease, is a chronic blistering skin condition, characterised by blisters filled with a watery fluid. Despite its name, DH is not related to or caused by herpes virus: the name means that it is a skin inflammation having an appearance similar to herpes.
DH was first described by Dr. Louis Duhring in 1884. A connection between DH and gluten intolerance (celiac disease) was recognized in 1967, although the exact causal mechanism is not known."
I was treated for Shingles the entire summer of 2010 and dx with MC in January 2011. Pics of DH look like Shingles. Dad had Shingles in early adulthood, dx with LC prior to death. Since finding you guys, researching, reading, studying - I feel certain Dad had LC for a very long time. Also read the spleen is often smaller (he had two spleens, one was very small and this was learned during pancreatic Sx)
I'm gratefully learning so much through PP support. I've often thought to myself what a humbling illness this is. Everyone is so willing to discuss anything, answer any question and share knowledge/experience. Reading your posts encourages me, spurs me to seek answers, reminds me to listen to my body and moves me another step toward better health.
Brenda
(Forgive me, I must learn how to use quote box, but want to post this now!)
"Dermatitis herpetiformis (DH), or Duhring's disease, is a chronic blistering skin condition, characterised by blisters filled with a watery fluid. Despite its name, DH is not related to or caused by herpes virus: the name means that it is a skin inflammation having an appearance similar to herpes.
DH was first described by Dr. Louis Duhring in 1884. A connection between DH and gluten intolerance (celiac disease) was recognized in 1967, although the exact causal mechanism is not known."
I was treated for Shingles the entire summer of 2010 and dx with MC in January 2011. Pics of DH look like Shingles. Dad had Shingles in early adulthood, dx with LC prior to death. Since finding you guys, researching, reading, studying - I feel certain Dad had LC for a very long time. Also read the spleen is often smaller (he had two spleens, one was very small and this was learned during pancreatic Sx)
I'm gratefully learning so much through PP support. I've often thought to myself what a humbling illness this is. Everyone is so willing to discuss anything, answer any question and share knowledge/experience. Reading your posts encourages me, spurs me to seek answers, reminds me to listen to my body and moves me another step toward better health.
Brenda
It is important to be able to sacrifice what we are for what we can become.
unk
unk
Brenda,
To quote text, just enter the text that you want to quote, either by copy/paste methods, or type it in. Then highlight the text that you want to appear in the quote box, and click on the "Quote" button, located right above the message composing window.
If you should want to quote someone's entire post, just click on the "Quote" button at the upper part of their post, and the system will open a message-composing window for you, that already contains the quote, and the code necessary for browsers to properly interpret and display it. You can add your message either before the quoted text, or after it, and then click on the "Submit" button to post it to the board. Of course, if you only want to quote part of their post, you can cut out the part that you want to eliminate, in the quoted text, before you submit the post.
To add smileys, when you get to where you want to add one or more, click on the "View more Emoticons" link, (below the smileys to the left of the message composing window), and maximize the popup window that the system will open, so that you can see all the available emoticons, find the one/s you want, and just click on it/them, and the system will automatically add the correct code to your message.
Tex
To quote text, just enter the text that you want to quote, either by copy/paste methods, or type it in. Then highlight the text that you want to appear in the quote box, and click on the "Quote" button, located right above the message composing window.
If you should want to quote someone's entire post, just click on the "Quote" button at the upper part of their post, and the system will open a message-composing window for you, that already contains the quote, and the code necessary for browsers to properly interpret and display it. You can add your message either before the quoted text, or after it, and then click on the "Submit" button to post it to the board. Of course, if you only want to quote part of their post, you can cut out the part that you want to eliminate, in the quoted text, before you submit the post.
To add smileys, when you get to where you want to add one or more, click on the "View more Emoticons" link, (below the smileys to the left of the message composing window), and maximize the popup window that the system will open, so that you can see all the available emoticons, find the one/s you want, and just click on it/them, and the system will automatically add the correct code to your message.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
-
Joefnh
- Rockhopper Penguin
- Posts: 2478
- Joined: Wed Apr 21, 2010 8:25 pm
- Location: Southern New Hampshire
Brenda in my case I think Epstein Barr Birus (EBV) was the trigger that resulted in my immune system developing autoimmune traits.
In 1996 I had traveled to China, and after returning I got as sick as one could imagine and was hospitalized for almost 3 months with a fever that would not break and aches pains nausea etc... Like the worst flu ever that would not end. What they found after many many tests was that I had titer levels for EBV that were off the charts. I was out of work on disability for 9 months and it took another year to feel normal .... Sort of. I never regained my energy or physical stamina
Apparently EBV is the largest and most complex virus currently known. In our teenage years if you contract mononucleosis you develope an immunity to EBV as mononucleosis is a subset of the full blown EBV virus. I never had 'mono'
It was within a year of that event that I started noticing that I would have unexplained periods of D every now and then, but I made excuses for it...food issues...upset stomach...or whatever and did not deal with it for years.
In April of 2010 I was Dxd with MC (CC) and Crohns disease.
So to answer your question, in my case I would say EBV was a definite factor in the development of these conditions.
Joe
In 1996 I had traveled to China, and after returning I got as sick as one could imagine and was hospitalized for almost 3 months with a fever that would not break and aches pains nausea etc... Like the worst flu ever that would not end. What they found after many many tests was that I had titer levels for EBV that were off the charts. I was out of work on disability for 9 months and it took another year to feel normal .... Sort of. I never regained my energy or physical stamina
Apparently EBV is the largest and most complex virus currently known. In our teenage years if you contract mononucleosis you develope an immunity to EBV as mononucleosis is a subset of the full blown EBV virus. I never had 'mono'
It was within a year of that event that I started noticing that I would have unexplained periods of D every now and then, but I made excuses for it...food issues...upset stomach...or whatever and did not deal with it for years.
In April of 2010 I was Dxd with MC (CC) and Crohns disease.
So to answer your question, in my case I would say EBV was a definite factor in the development of these conditions.
Joe
Joe
I have had "small" attacks of shingles for years. I say "small" because I get small patches, usually below my waist. But they are NOT small in terms of pain. I know when I am going to get one because I get what's known as hyperesthesia, a weird, burning sensation along the route of the nerve delivering to the site of the eventual patch of blisters, and at the site. Hurts like the billyo. When the blisters come out a couple of days later they hurt worse. Takes about a week before they begin to dry up, but the pain takes 2-3 weeks to subside. It's not fun.
It doesn't happen often, thank heavens, but I dislike it enough to be heartily thankful if going GF stops the attacks.
It doesn't happen often, thank heavens, but I dislike it enough to be heartily thankful if going GF stops the attacks.
Both Epstein Barr and Shingles are associated with connective tissue diseases, meaning that they are associated with all autoimmune diseases. CC is definitely a connective tissue disease, (collagen is connective tissue), and since CC and LC often segue from one type to the other, (if untreated, according to laboratory diagnostic markers), then it follows that LC would have to be a connective tissue disease, as well.Brenda wrote:Does anyone know if MC is related to previous Epstein Barr or Shingles?
So IMO, yes, they are both connected with MC.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Tex - Thanks for instruction. Sounds like you'll be sore tomorrow. But...did you get the corn loaded ;) Seriously, I do hope you're ok. Ice can be our best friend.
Joe - Thanks for sharing your story. Over the past year, I've thought chronologically about previous illnesses, various symptoms, stress and genetics. EB (10 years ago), the continued fatigue, stomach issues and on-set of GERD kept coming to mind. I also believe it to be an autoimmune trigger.
Lesley - The odd thing about Shingles is that it was not only on one side of my body as usually seen, but culture was positive for Shingles. I experienced hyperesthesia and used Rx ointment prior to on-set which helped shorten the length of time it lasted.
Thanks to each!
Brenda
Joe - Thanks for sharing your story. Over the past year, I've thought chronologically about previous illnesses, various symptoms, stress and genetics. EB (10 years ago), the continued fatigue, stomach issues and on-set of GERD kept coming to mind. I also believe it to be an autoimmune trigger.
Lesley - The odd thing about Shingles is that it was not only on one side of my body as usually seen, but culture was positive for Shingles. I experienced hyperesthesia and used Rx ointment prior to on-set which helped shorten the length of time it lasted.
Thanks to each!
Brenda
It is important to be able to sacrifice what we are for what we can become.
unk
unk
You know, that was my biggest concern, at the time,Brenda wrote:But...did you get the corn loaded ;)
, but I kept getting light-headed every time I sat up for a few minutes, or stood up, and I sure didn't want to black out and really get bunged up, so I finally caved in and let someone else finish loading. It seemed to be the prudent thing to do. 
You're most welcome,
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.