Good News And Bad News

[hazel]

Tex, glad to hear it.

[ssharril]

Tex,

I am sorry for the diagnosis. I find it very difficult eat away from home and be sure that all is well. Several times I have eaten what is supposed to be GF and had a reaction shortly after.

Hope you find where you have gotten the food causing the problem. Good luck on finding a good pancake recipe. I decided that pancakes were just not something I would eat again. I didn't like any of the ones that I tried.

Sammye

[tex]

Hi Sammye,

If you're not sensitive to casein, you should be able to eat Pamela's Pancake Mix. IMO, it's the best I've ever had, but unfortunately it contains cultured buttermilk.

I think I'm back on track, now. I'll do okay on bacon and eggs for breakfast, alternated with Chex cereal, and Silk Almond Milk. If I ever get tired of that, I'll try some other pancake mixes, or try to develop one based on existing recipes, by substituting flours, etc.

Thanks for the support.

Tex

[jmayk8]

sorry about the results Tex..I know you were enjoying dairy.
whenever i am craving ice cream, i usually do well with so-delicious coconut ice cream. it comes in different flavors and is really good. it does contain fiber so eating too much is a big no-no. but, i do recommend it.
Jenny

[tex]

Jenny,

I may need to try to locate some of that stuff.

Thanks,
Tex

[Lesley]

Jenny and Tex,
I make my own. MUCH cheaper (I eat too much of it) and also tastier (which is why I eat too much of it).

[tex]

That's my problem - I don't know when to stop.

Tex

[Lesley]

There is no stopping when it comes to ice cream. I just made a lime, mint and coconut one that is DELICIOUS!

[draperygoddess]

I do like the So Delicious Coconut ice cream, but I agree with Jenny--small portions is key! One day I sat down with a carton of it and before I knew it, I had eaten almost half of the thing. I was INCREDIBLY gassy after that--not pleasant. But I used some when we did root beer floats for my husband's birthday (his favorite), and I had no problems.

Paula, I didn't respond to this before, but I find that dried fruit is way too much fiber for me, even now. If you're eating lots of dried fruit, it could be part of the reason why you're still not seeing Norman. Sara describes it this way: your digestive system is irritated, like sunburned skin, and fiber is like sandpaper. I can do a SMALL helping of GF granola with dried cranberries now, but a bowl of the stuff would do me in.

Hey Tex, how's your book coming?

[mzh]

Tex,

Why not self-publish your book and sell it on Amazon - and here. So what if you can't get doctors to endorse what you write? You are out to teach, after all. They just might learn a bunch of things from you. And it would be easier for us to find all the information you've posted here in a book rather than in a search!

I have to admit, I'm confused about Enterolab and those stool tests you just had done. They seem to conflict. And I never heard of the fecal tests you had either. Why don't GI docs do these for people with long-term, intractable D? Don't they even know about them? I guess these are rhetorical questions, sadly.

[tex]

Hey Tex, how's your book coming?

Mighty slowly, the last couple of days, but I hope to get going on it again this weekend.

Why not self-publish your book and sell it on Amazon - and here. So what if you can't get doctors to endorse what you write? You are out to teach, after all. They just might learn a bunch of things from you. And it would be easier for us to find all the information you've posted here in a book rather than in a search!

That's my plan, to sell it on Amazon. I hesitate to try to sell it on this site, though, because this is an ad-free site, and I kinda like it that way. Besides, that seems so mercenary. There's a lot of information in the book that has never been posted here, and much of the new information is pretty profound, IMO, especially about the history and hazards of gluten in the human diet.

Well, now I'm confused about why you're confused about my test results. I originally avoided casein, because I was sensitive to it, but I never had a sample tested for casein sensitivity at Enterolab. After I was in remission, I found that I could eat casein without any obvious clinical symptoms, but since I seem to have a little lingering osteoarthritis, I decided to test for casein-sensitivity, and sure enough, I'm definitely casein-sensitive, even though I may be asymptomatic. The reason I still believe that I am asymptomatic to casein, is because I have apparently been getting traces of gluten cross-contamination, on a somewhat regular basis, and this is probably the cause of the osteoarthritis. The relatively high anti-gliadin antibody test result verifies that I have been exposed to cross-contamination on a somewhat regular basis.

Most GI docs don't believe in stool tests to determine food sensitivities, because historically, such tests were very unreliable. That was before the EnteroLab tests came along, of course, but most doctors are like old dogs - it's not easy to teach them new tricks. And many of them receive virtually all of their on-the-job training and updating from their friendly "Big Pharma" reps, and Big Pharma is never going to train doctors in new ways improve their patients' health, because Big Pharma is interested in selling drugs - they're not interested in improving anyone's health, (because that could have a negative effect on drug sales).

Tex

[mzh]

Hey Tex, how's your book coming?

Mighty slowly, the last couple of days, but I hope to get going on it again this weekend.

Why not self-publish your book and sell it on Amazon - and here. So what if you can't get doctors to endorse what you write? You are out to teach, after all. They just might learn a bunch of things from you. And it would be easier for us to find all the information you've posted here in a book rather than in a search!

That's my plan, to sell it on Amazon. I hesitate to try to sell it on this site, though, because this is an ad-free site, and I kinda like it that way. Besides, that seems so mercenary. There's a lot of information in the book that has never been posted here, and much of the new information is pretty profound, IMO, especially about the history and hazards of gluten in the human diet.

Well, now I'm confused about why you're confused about my test results. I originally avoided casein, because I was sensitive to it, but I never had a sample tested for casein sensitivity at Enterolab. After I was in remission, I found that I could eat casein without any obvious clinical symptoms, but since I seem to have a little lingering osteoarthritis, I decided to test for casein-sensitivity, and sure enough, I'm definitely casein-sensitive, even though I may be asymptomatic. The reason I still believe that I am asymptomatic to casein, is because I have apparently been getting traces of gluten cross-contamination, on a somewhat regular basis, and this is probably the cause of the osteoarthritis. The relatively high anti-gliadin antibody test result verifies that I have been exposed to cross-contamination on a somewhat regular basis.

Most GI docs don't believe in stool tests to determine food sensitivities, because historically, such tests were very unreliable. That was before the EnteroLab tests came along, of course, but most doctors are like old dogs - it's not easy to teach them new tricks. And many of them receive virtually all of their on-the-job training and updating from their friendly "Big Pharma" reps, and Big Pharma is never going to train doctors in new ways improve their patients' health, because Big Pharma is interested in selling drugs - they're not interested in improving anyone's health, (because that could have a negative effect on drug sales).

Tex

Good about the book! From a previous post - having Polly endorse it would be wonderful if she could do it. As for the casein I'm probably confused about your test results because I have brain fog and because I don't know what your Enterolab results are. Even worse, half the time I forget the difference between casein and gluten. (I know - duh.) Then you have a third problem - the avenin. (I now see casein isn't in your intolerances profile either; I bet it will be there soon, sadly.)

It's really sickening that doctors rely so heavily on big Pharma salespeople for their post-grad medical training. I wonder what their degrees are in. Docs should be studying testing, symptoms, new research and what *we're* saying! (Grumble, grumble)

[tex]

Marcia,

My casein test result was positive, so I'm obviously producing antibodies to all dairy products.

Thanks for the reminder - I updated my profile.

The most successful drug reps have an advanced degree in science, though not all of them do, of course.

Tex

[mzh]

Wow, I had no idea they have advanced science degrees. It would be even better if they had advanced medical degrees, like a pharmacy degree. BUT - I once asked a pharmacist why the nose sprays out there hurt my nose so much after having nasal surgery; he said they were all alike and shouldn't do that. (Yeah, right.) Even the stuff the ENT suggested stung badly.

Finally I found out about Simply Saline on an ENT forum; no sting b/c it has nothing in it except for saline. The sprays giving me problems all have preservatives. I had to get this info from people with the same problems as I have, not from the doc or the pharmacist.

So, to sum it up - this is why your book will sell. It will have info in it that the docs (and pharmacists!) won't have a clue about!

Incidentally, I bought a book, Integrative Gastroenterology. It's 612 pages long and never mentions Entocort! What's wrong with this picture?

[tex]

So, to sum it up - this is why your book will sell. It will have info in it that the docs (and pharmacists!) won't have a clue about!

I hope you're right, because out of several completely different titles that I've considered, the one that I prefer is either:

Everything you ever wanted to know about Microscopic Colitis, that your doctor failed to tell you

or

Everything you ever wanted to know about Microscopic Colitis, that your doctor couldn't tell you

Tex