scd diet

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tex
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Post by tex »

Rosie,

That's a very good observation. In fact, pregnancy causes the mother to produce additional thyroid hormone, so this could be part of the reason for Belle's hyperthyroid symptoms. Hopefully, her thyroid production will soon return to normal, and the symptoms may resolve on their own. If they don't, then the possibility of hyperthyroidism should be evaluated. Here's a reference on that, with additional information:

http://endocrine.niddk.nih.gov/pubs/pregnancy/

Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Robin
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Post by Robin »

Belle...My heart goes out to you! I know how debilitating MC can be. It takes a hold of your life and spins you out of control. I can tell you that it gets better. I didn't think so for a very long time...but it does happen. I am on Entocort and have been since October. As Brandy mentioned to you the side effects are rare but do occur. I have the loss of hair, mental acuity and dizziness. I am also a 54 year old who still gets her period ( I don't know why, but I do) and I can tell that I do bleed very heavily, for a much longer period of time and it comes regularly every damn month (Gyno says everything is ok). So with that said, IMO I would not take the chance of taking the Entocort if your trying to get pregnant. Again this is only my opinion. Its hard enough having the symptoms you have with the MC to have to worry about taking a medication that might hurt the fetus. Plus having more issue yourself to deal with to deal with. Also on this forum you will find people that Entocort hasn't worked for them. So again, why take that chance.

Years ago when my children were still in school I need an operation, I had a prolapsed rectum. Needless to say I couldn't walk, stand and even lying down bothered me. I didn't know what to do or where to turn. I had taken a medical leave from work but still need to take care of my family. My friends were great, but after a week they found it hard to take care of me and my family along with there own. I didn't know what I was going to do because most days I couldn't get out of bed. I found out that through my children school and through my church there were volunteers willing to come and help me. Well they were my angels ...they did my laundry, cleaned my house, did food shopping took care of the kids, made meals, even drove me to doctors appointments. I cant tell you what a relief it was for me to have them! So if things are getting very hard for you ask for help! There are, believe or not, a lot of volunteers that will be willing to help take the load of your shoulders for a little while. I know because I give back now! I am a volunteer, I teach children with down syndrome and Autism to ride horses. I find it very rewarding. Just ask around and I am sure you can find someone to help you all you have to do is ask.

I do wish the very best for you and hope you start recovering very soon!

Love Robin
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tex
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Post by tex »

Wow, Robin!

Your post brought tears to my eyes. That's some great advice.

And kudos to you, for being a volunteer.

Love,
Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Post by Robin »

Thanks Tex! I have been volunteering now about 30 years. I LOVE IT!!!! Just when you think you have problems someone right around the corner as a bigger one. Around the holidays I make food for homeless shelters and for abused women and there children. I also counsel at a drug and alcohol rehab for children under the age of 15! Yes you read that right these kids are ALL under the age of 15!!! God as truly blessed me with giving me 2 wonderful sons who are very healthy and happy. Although I am very financially secure life is not about that! Its about HEALTH and HAPPINESS! You cant buy either one of those things and most people take those things for granted! I got to tell you that is an eye opener! Sometimes its very hard to walk away, you want to take them all home with you! So when I start feeling shi**y I go and talk to someone less fortunate then I and the day seem to get brighter! I think having MC as made me a little more humble and definitely as given me more compassion for others.

People always ask me why I do what I do! I do it because I too as a young teenager was on drugs, homeless living on the street. I am very proud of what I have become and accomplished in my life! I am one of those statics everyone writes about! I wasn't suppose to make it off of drugs and off the streets but I did! So I just feel like if I can then there are others that can too! I give back because a long time ago someone gave back to me and thats why am alive! So I give thanks everyday for all the things god as given me!

Love Robin
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tex
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Post by tex »

Awesome!

Love,
Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Post by Brenda »

Hi Belle,

I'm thinking of you; please hang in there and keep talking to folks on this board. Personally, my only pregnacy was not planned, it was a very difficult one at age 40, and there was little left of me to care for baby. If I had planned ahead, I would have gotten myself as healthy as possible before the pregnacy - although I was still doing aerobics at 7 month pre-term labor. Be patient with yourself as Robin said. For me, hypothyroid can cause inability to function well at life in general. I was interested in what Tex posted about rhemotologist, as I was considering that option. As for the paper plates and plastic bowls...just do what you need to do to make it work for you and your family...and be kind to yourself. I've gotten creative about how I do chores, cook, keep my home and tend to family affairs including a farm an hour away. Some modifications and coping mechanisms have become second nature, some I'm still working on, and some days I just don't do them. On extremely painful days, I do everything possible on a counter-height surface; cat chow bowl is now on the clothes dryer; I'm no longer fussy about perfection; and yes, I use disposable dishes when needed. How does that saying go?...when you miss a dance step, just pretend it's part of the dance. I'll be interested in how you are doing.

Brenda
It is important to be able to sacrifice what we are for what we can become.
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Brenda
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Post by Brenda »

Robin,

For a number of years, I was an independent contractor with the state rehabilitation commission providing specific services to clients referred to me by state rehab counselors. I worked with various types of physical disabilities and alcohol and drug rehab centers. Later, I followed a few rehab counselors into the private arena of Worker's Comp case management. I found the first to be most satisfying, and I love hearing follow-up success stories such as yours. The personal satisfaction was much more rewarding in social services. I'm not "wired" for the coorporate world.

Also, I researched extensively and strongly considered the charter of an equistrian center for people with disabilities in my brother's memory. He suffered TBI and later died from an accident caused by a drunk driver. I had the perfect horses, land, diverse equistrian background and desire. Recently, I wondered what if I had? It would have become difficult considering my health issues since that time.

You're so right about giving back and paying it forward! Friends and neighbors drove me to doctor appointments and brought me food when I was assigned to bed rest and home monitor. Now days, taking Mocha (dog) to the nursing home or helping to clean house for a Hospice patient puts a really crappy day in perspective.

Brenda
It is important to be able to sacrifice what we are for what we can become.
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Belle
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Post by Belle »

Thanks for all your help.
My thyroid was tested and it was fine. I am off soy now for at least a few weeks but I don't remember if enterolab tested for it. I'll have to check.
Belle
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Robin
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Post by Robin »

Brenda....I wish you didn't live so far....My dream is to open my own Equestrian Farm for ALL disabled children. I would love to have a partner with the same passions and goals! Here on Long Island land is so expensive. So for now I have put it on the back burner. My husband plans on retiring in about 18 months and would like to relocate to North Carolina. So maybe then I will be able to have my dream. There is one little problem which we both haven't figured out yet. I love my job! I don't want to retire nor do I feel like I should at my age. I have been working with the same doctor for 17 years. But some day I will make my dream come true!

Robin
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Post by susan »

Robin

I'm a Long Islander living now in North Carolina. Land is, relatively speaking, inexpensive here. My daughter volunteers teaching riding for the disabled as well-in Virginia.

I spent much of my work life training and working with volunteers. I've never known more wonderful, special people. Your story is inspiring--and makes me want to be doing more volunteer work right now!
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Post by Robin »

Susan....When I finally move to NC I will definitely look you up....maybe you can volunteer for me! Or be a partner?!
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