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coryhub
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Post by coryhub »

Welcome Henry,
Your story is much like mine. I found this wonderful site two years ago. Back then I was on Entocorte. My Doctor had tested my blood and said I was not gluten intolerant - boy was he wrong! I changed my diet along the guidelines people in this room recommended. I've only had one flare up since and that I remedied with only 10 days of entocorte because I immediately got back on course with my "safe" foods list. I'm a one of the lucky ones that can eat some hard cheeses and I can eat eggs so I have some dairy in my life. No gluten though. I also have to avoid "roughage" anything with a skin, seed, raw, fibres etc. it's just not worth it. That said, you may want to stop eating salads and "caffine" coffee for a while and see what happens. No specific diet works for me. I have to tweek all recipes and must be flexible because something that I was okay with one day can turn on me the next. That's why no specific diet works for me. We are always fine tuning our dietary needs. Listen to your body and you will work it out slowly. Patience is learned. Today, it blows my mind how many recipes I can prepare that won't hurt my gut.
Good luck as you continue on this food adventure.
As always, thanks to my Potty Crew! :occupiedtoiletstall:
CoryGut
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Diagnosed with Lymphocytic Colitis Sept. 2010
On and off Entocort(Currently Off)
henrym
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Post by henrym »

tex wrote:Many doctors are apparently bad about overlooking out-of-range test results. When my platelet count showed up way out of range on a test, the lab flagged the result, and required my doctor to call the lab, and read that particular result back to them, to guarantee that he understood what it said, and what the risks were, (stroke). Needless to say, he called me at 8 o'clock the next morning, to ask me to go to the lab, that same day, for another blood draw.

I agree with you that there's probably nothing to be gained by waiting that long. I don't know how your health care system is set up, but it probably has certain recommended intervals for tests such as that, (to save money), so that may be why your doctor scheduled it that way, but whenever test results indicate the possibility of a problem, surely followup tests can be done as needed.

It appears that you may not be metabolizing iron properly, and rather than using it, (and/or eliminating it), your body is storing more of it than it should. Ferritin is a measure of the amount of iron your body has stored, and your ferritin level is only slightly elevated, so I don't believe you're at any significant risk, at the moment, so a retest probably isn't urgent. Still, as you say, it's usually better to check those things out, and have the facts in hand, rather than to simply postpone it, unless there's a good reason to wait.

The kicker here is whether your transferrin result was actually 32, or if there was a decimal error in the result. If it's actually that high, it could be due to an inflammation response, and in that case, both ferritin and transferrin would be high, because an infection, or other inflammatory event, tends to cause the body to make more of the stored ferritin available to help fight the problem. If your ferritin was elevated in response to an infection or inflammation, though, your C-reactive protein level should also have been elevated. If your C-reactive protein was normal, then your ferritin level shouldn't have been elevated.

Normally, even a severe MC flare doesn't tend to cause much of an elevation in C-reactive protein level for most of us. And if you weren't in a severe MC flare when that test sample was drawn, then your C-reactive protein level shouldn't have been elevated, (not due to MC, anyway). Still, if your C-reactive protein level was checked, and it was high, that could explain why your iron markers were elevated.

On the other hand, if your C-reactive protein level was normal, then there doesn't appear to be a legitimate reason for your iron markers to have been elevated. :shrug:

Tex

I asked to do new blood tests today, and then again in 2 months
Thursday I will get the results ;)

In the meanwhile I visited friends in Belgium this weekend... Ofcourse I told them about the gf diet, but at those times you realize how difficult it is when you eat at other people's!

Apparently there were some gluten in the food my friend served and I reacted pretty heavily to it! Unbelievable what (wrong) food can do to you...

@ Coryhub.
Thanks for your reply!
I also realize now that getting the right diet is the only way to get better!
I am still figuring out what I can and cannot eat. Maybe I should go a bit easy on the coffee too :(
A year ago I had a lactose intolerance test done and that came out extremely positive, I had extreme D for days because of the test! I found it very strange to hear that when the doctor found out I had LC he told me that I could slowly start using milk products again :shock:
I know I am also allergic to soy products, so I should cut all soy products out too (I still use a GF breadmix that has soy in it).
patience is the key..

I just find it strange that my LC problems came from out of the blue. The only cause I can think of what might have offset something is the use of supplements. At the time when I got the LC problems I started to use curcumin/resveratrol and some vitamins (D, B, C with bioflavanoids).
I don't think the vitamins had something to do with it, but maybe the curcumin caused a weird reaction in my gut.
I just remember something... A week after I started using those supplements I moved in with my new gf (to another country). The strangest thing happened the first morning after we moved; I woke up with a HUGE allergic reaction, my face around my eyes was all swollen up.
This was strange to me because this was not something that was happening before.
After that day I didn't get any allergic reactions anymore, but I did get the LC problems then!

In the past (years ago) I used to have allergic reactions like hayfever, but not that insane. I only had one other heavy reaction, that was strangely enough because of eating an apple, which i ate everyday back then. This was many years ago though.
I always had a 'stuffy nose', but that disappeared when the LC problems started... and I have scalp problems, itch an flaky with some hard little bumps and flaky which seems to get worse now.

I just read the post about mast cell is there a connection here, and does the curcumin have something to do with it?

Does anyone have experience with this?
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tex
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Post by tex »

Henry wrote:I just read the post about mast cell is there a connection here, and does the curcumin have something to do with it?
The allergy symptoms are surely connected with mast cell reactions, but I'm not sure where the curcumin fits in. Curcumin is generally considered to be an anti-inflammatory substance, and therefore it is sometimes recommended by NDs for treating IBDs. Curcumin reportedly has anti-allergenic effects based on it's ability to inhibit the release of histamine from mast cells. In fact, research shows that curcumin has antitumor, antioxidant, antiarthritic, antiamyloid, anti-ischemic, and anti-inflammatory properties. This hasn't necessarily been proven in humans, but it has certainly been documented in vitro and in animal studies.

You may, however, have an unusual allergy to curcumin, based on your response to apple, (which contains the flavonoid quercetin). See Lyn's post, (Bifcus16), in the thread at this link:

http://www.perskyfarms.com/phpBB2/viewt ... &view=next

If that allergic reaction did indeed trigger your MC, that will be a new, (previously unknown), possible etiology for the disease.

Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Post by henrym »

Tex, I don't think you gave me the right link.
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tex
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Post by tex »

Hmmmmmmmmm. :monkey: :headscratch: :shrug: I have no idea where that one came from, but thanks for pointing it out. Here, try this one:

http://www.perskyfarms.com/phpBB2/viewt ... &view=next

I'll change it in the post above, also.

Sorry about that slip up,
Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Post by henrym »

thanks tex,

I don't really get the connection you make with quercetin and curcumin. Quercetin is found in apple's and is supposed to enhance the effect of curcumin.
But the curcumin and the apple incident are 10 years apart from each other.
I did eat chocolate the night before i got the allergic reaction in my face, but who knows..

It's weird, I know curcumin supposed to be good for a lot of things. I took it because of my scalp itch/inflammation and heard good things a about it.
Ofcourse it is not sure if it was the curcumin that caused the reaction, I have tried it a couple of months ago and again it didn't go down so well...
I guess i have to try it out again and see what happens :roll:
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Post by Lesley »

Funny, I just heard people talking about curcumin yesterday. A guy at the pool said he'd contracted Chlamydiosis when he was in Hawaii that developed into FMS. He said he's been taking curcumin, and all his symptoms have gone.
I ordered some, and will report.
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Post by henrym »

Good idea Lesley, you try it first :wink:

Anyway, would zyrtec or something like it be a good thing to take then, against these mast cell reactions?
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Post by brandy »

Hi Corygut,

Thanks for your feedback about somethings are ok one day and iffy the next. I'm definitely finding that to be the case. Brandy
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tex
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Post by tex »

Henry wrote:I don't really get the connection you make with quercetin and curcumin. Quercetin is found in apple's and is supposed to enhance the effect of curcumin.
But the curcumin and the apple incident are 10 years apart from each other.
Well, the quercetin enhances the potency of the curcumin, apparently because it has similar properties, so a common ingredient in them may be causing your allergic reaction to either of them. That's all I meant. :shrug:
Henry wrote:Anyway, would zyrtec or something like it be a good thing to take then, against these mast cell reactions?
Maybe, or Claritin, or Benadryl, etc.

Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Post by brandy »

Hi Lesley and Henry,

Tex can probably clarify but I believe that curcumin and turmeric are the same thing. Both Dr. Oz and Dr. Weil are big on curcumin/turmeric as an anti inflammatory. I bought a turmeric supplement a while back. I reacted to it pretty strongly but of course I did not read the label well and of course the one that I bought contained soy so I don't know if I was reacting to the soy or the concentration was just too strong. I've since bought a curcumin supplement that is soy free but still sealed, i.e. I have not tried yet. I'm working on adding some more foods to my regimen so probably won't try this for awhile.

In the meantime I've been sprinkling the heck out of the herb "turmeric" pretty heavily on all fish, chicken, pototoes, white veggies that I am eating for about 8 weeks. The flavor is pretty neutral and I'm having no side effects. Your food will turn yellowish in color. Using the herb will be much more economical than buying the supplement and you can start with a little sprinkle to see how it goes. Lesley the one that I got was in my regular grocery store in the regular spice area Turmeric by Spice Islands. Henry "turmeric" is heavily used in Indian cooking. I'm not sure how much Indian style cooking is done in your part of Europe if you can't find it in your regular grocery check an ethnic foods store.

Hope this helps, Brandy
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Post by henrym »

Hi Brandy,

Tumeric and curcumin are the same thing, only curcumin is much more potent!
I never had problems with Tumeric with my Indian food.
I used to be a chef and I love the Indian cuisine, it is also easy to find ingredients for almost every type of cuisine in Berlin.
They use it so much in India because next to the flavor it also kills bacteria!
I have a feeling that maybe the curcumin was too strong for my system, I would like to try it again in the future when everything is a bit calmed down again.
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Post by Lesley »

I have been taking turmeric for a long time, and use turmeric extensively as a matter of course. It substitutes for saffron purely for color (doesn't have the same fragrance, but colors food yellow) because it is virtually tasteless.
Curcumin is, as Henry says, is far more potent. It's from a different part of the same plant.
It's used extensively in the middle east. I love the flavor.

I also use bromelain, on the advice of my doctor. It's an enzyme from pineapple, which is a known anti inflammatory.

Henry, I will try it. I will try anything that will decrease the inflammation, and help me feel better.
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Post by Bifcus16 »

Hi gang,

Curcumin is the active component in turmeric. Turmeric is the ground up root of the turmeric plant - the plant is basically a form of ginger. If you buy turmeric root you can see it just looks like skinny orange ginger root.

The amount of curcumin in turmeric is very small. You would need to eat a very large amount (ie, sprinkle food on your turmeric, not the other way around :lol: ) in order to get the same amount of active ingredient as you do in processed curcumin capsules. In larger quantities it has a taste which I for one dislike.

Curcumin can cause diarrhea when you start taking it. So you generally want to start with a small dose for a few days to a week, and then ramp up.

It is absorbed in fat, so you really want to eat it with fat to stop it going through the gut too quickly. That also means if you spill it and have trouble cleaning up the resultant stain, you can try adding oil to dissolve the turmeric and then use a detergent to get rid of the yellow oil. This can apply if you have a bathroom accident while taking it. Turmeric D is the pits.


Good luck. It never resolved my MC, but I was taking it for other purposes.

Lyn
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tex
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Post by tex »

Lyn wrote:This can apply if you have a bathroom accident while taking it. Turmeric D is the pits.
Hmmmmmm. I suppose the lazy way out would be to just paint the bathroom yellow. :lol:

Thanks for the clarification. I always wondered how much difference there was in the two items - apparently the difference is huge.

Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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