Doctor's Awareness of Glulten Intolerance

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MBombardier
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Post by MBombardier »

I hear you. What I have eaten there before is a hamburger patty and grapes. They did know enough to tell me that I couldn't have the sweet potato fries, which I had ordered. I don't put wheat flour on my sweet potato fries. :shock:

Portland has a stunning number of gluten-free restaurants. I may spend some time tomorrow looking at the list. After all... What's not to like about a free GF meal at a new restaurant with good friends? :grin: I may discover an excellent option for future events!
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Post by MaggieRedwings »

Out of all the chain restaurants, I have found Ruby Tuesday's to be the safest for me. Numerous times I have eaten there and no reaction to date. Also, always print down their internet coupons to savea dollar or two. :grin:

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Post by starfire »

Paula & stanz......... Thanks for the video.

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Post by humbird753 »

Connie, thank you for posting both of these links.

I agree with Polly that the term "gluten allergy" was not appropriate. My favorite part was when the Dr. looked at the camera and addressed interns/doctors to listen to their patients.

I have not been a member here very long. Have all of you been hearing things like this all along? I was hoping it was a step forward, but maybe there have been these types of discussions for years, yet still has not gotten anywhere with the medical field.??

IMO it seems like a "no brainer" that the foods we eat are the problem (especially when the digestive system is involved). So it does surprise me that most GI's aren't talking to us about the foods we eat.

Have a good day everyone.

Paula
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Post by Gloria »

Polly wrote:In fact, it appears that celiacs usually have far fewer sensitivities than those of us with "just" gluten sensitivity.
I've noticed that pattern, too. It even seems that people with just one celiac gene have fewer sensitivities once they have reached remission.

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Post by Stanz »

Lesley wrote:It may be show buz-y, but it explains it nice and simply. You'd think the docs could understand it, wouldn't you? However, only a few of us here, with the dx of MC or CC, manage to get better after 2 weeks of ONLY being gluten free.
So is this another category altogether? Is there a continuum from being "merely" gluten sensitive, but with MC to the full blown disease most of us have? If that is caught early on, could other food sensitivities be avoided?
Lesley, as pervasive as GS is turning out to be, there is NO excuse that the docs don't look at diet first. it took me a full 5 months of being GF before my D stopped, most people give up long before that. I have little doubt that if I had changed my diet when I was a little girl and my symptoms for what eventually became MC were evident, that I wouldn't have joint damage/hair loss/etc. I'm not sure if that would have helped me to avoid other food sensitivities, but it makes perfect sense.

Zizzle brings up a good point about restaurant staff. When we are still having GF described as a "fad diet", it's pretty obvious that the vast majority of people don't take it seriously. Yes, Paula, we have been hearing this all along and I'm also a bit of a newbie here. I have felt like I'm educating my MD for the last 2+ years, but at least she now seems to be doing some research in her free time.

Marliss, it does seem as if Portland is on the cutting edge of at least trying to cash in on the GF "craze", much as I love the cupcakes at Crave in L.O., $4.50 per cupcake - and they are small - is a bit insane and truly only a luxury.

Out of nowhere yesterday, I became nauseous and was afraid to eat anything, I also have some new weird boil-like pimple on my face that is filled with thick puss, which brings up the whole MAP fear again. I had a glass of tomato juice in the afternoon and immediately vomited. I was so dizzy I went to bed around 3 PM and ended up with chills and a fever of 102 - and I never get fevers. It was a rough night. It's just so frustrating that the research/knowledge is there about what gluten does to our gut, and the drug companies only care about profits. There is NO reason, other than trying to corner the "drug fix" profits for this, that there isn't a blood test on the market now for MAP, when two thirds of the Crohns patients in the U of F study were positive for it.

To quote the goddess, Janis Joplin, it's all the same damn thing, man. We are what we eat.

Is it too late for us all to put you through medical school, Tex?
Resolved MC symptoms successfully w/L-Glutamine, Probiotics and Vitamins, GF since 8/'09. DX w/MC 10/'09.
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Post by tex »

Lesley wrote:If that is caught early on, could other food sensitivities be avoided?
IMO, yes, in many cases. Many of us have been generating antibodies to gluten for many years, before our symptoms become serious enough to grab our attention. The longer we react, the more likely the leaky gut syndrome will become a major problem, and the leakier the gut, the more likely we are to develop additional food-sensitivities and autoimmune diseases.

Gloria wrote:
Polly wrote:In fact, it appears that celiacs usually have far fewer sensitivities than those of us with "just" gluten sensitivity.
I've noticed that pattern, too. It even seems that people with just one celiac gene have fewer sensitivities once they have reached remission.
Perhaps celiac genes provide some protection against other food-sensitivities. For example, I have one copy of the DQ2 gene, and even though I produce antibodies to casein, I appear to be asymptomatic to casein. :shock: Of course, I'm avoiding it anyway, but I really couldn't detect any symptoms, or any difference in the way I felt, when I was eating it, and I don't feel any different now that I'm avoiding it.

Connie wrote:Yes, Paula, we have been hearing this all along and I'm also a bit of a newbie here.
Dr. Kenneth Fine, Dr. Rodney Ford, Dr. Peter Green, Dr. Marios Hadjivissiliou, Dr. Mark Hyman, Dr. John Symes, (DVM), Dr. Scot Lewey, Dr. Stephen Wangen, Dr. Charles Parker, Dr. David Perlmutter, Dr. Peter Osborne, Dr. Vikki Peterson, etc., have all been preaching this same doctrine for about 10 or 12 years now, but their hard-headed peers are slow to learn. :sigh:

Apparently the hardest material known to modern science is found in the skull of gastroenterologists. :lol:
Connie wrote:Is it too late for us all to put you through medical school, Tex?
:grin: I appreciate the thought, but I'm afraid I'm gettin' too old, (and too slow), to be able to handle that hectic schedule. :sigh:

Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Post by draperygoddess »

I do think that, as terrible as it is for someone who has celiac disease and has to be hypervigilant even in her own home, some of us are that sensitive AND have other foods to contend with. I realize that gluten sensitivity is not an allergy per se, but I have found it much easier when ordering food in a restaurant, to say, "I'm allergic to wheat and dairy, so I need THIS..." the word "allergy" seems to get people's attention better than "gluten-intolerant."

I wish there were a national mandate that wait staff had to be certified for dealing with food intolerances, just as chefs do. I went into Cracker Barrel last week and asked for a GF menu. The hostess told me they didn't have one. I said, "yes, you do." She talked to her manager, who at least did know they had such a menu, but when he brought it to me and showed me what I could eat, he said, "And you shouldn't order biscuits or cornbread, because we have an open kitchen and there is a chance of cross-contamination." :shock: :shock: :shock: Obviously, this guy knows NOTHING about gluten.

I don't think any of this information is new. I think it's just disregarded by mainstream medicine. Most GI's consider people like Dr. Fine to be quacks. It's easier than entertaining the thought that everything they were taught in med school is obsolete. Hey, Columbus nearly got killed for suggesting the world isn't flat!

I had a good experience with Olive Garden over the weekend--a number of GF options, including GF pasta, and the bowl of salad was brought with croutons on the side, without me having to ask. Still, eating out is always a crap shoot (pun intended).
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Post by MBombardier »

I think I have decided to go to Outback Steakhouse. I have never been there, believe it or not, and it's on this side of the river so we won't have to deal with bridge traffic. Someday, though, Connie, I want to go here: http://northwestpublichouse.com. Probably in the spring, so we can sit outside. :smile:
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Post by Lesley »

Apparently the hardest material known to modern science is found in the skull of gastroenterologists. Laughing
If I wasn't too tired to laugh I would be cracked up about now.

Tex, did you see what my GI answered me? He thinks some people do better without gluten though no one knows why. He should have watched Dr. Oz's explanation for dummies. Maybe he would begin to understand.
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Post by starfire »

Marliss, Outback is probably a pretty good choice. Hope you have a wonderful time with no consequences.

Love, Shirley
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Post by tex »

Lesley wrote:He thinks some people do better without gluten though no one knows why.
Yes, I read that. The "some people" he is talking about are most people in the general population, and virtually everyone with digestive system problems, (IOW, millions and millions of people). The "no one knows why", that he mentioned, is simply an admission of ignorance on the part of the entire field of gastroenterology. Shame on them. All they would have to do is to open their eyes, and read the research articles that they are currently ignoring, because the research contradicts their obsolete knowledge and opinions.

The first rule of acquiring a well-rounded education is that in order to truly understand the truth, one has to also understand all of the opposing viewpoints, and the contradictory data. When someone only understands and acknowledges their own viewpoint, they are doomed to be locked in time, with no hope of ever benefiting from progress, and the world will pass them by.

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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Post by Polly »

And Outback has plain baked sweet potatoes. YAY! What don't more restaurants offer them?

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Post by Stanz »

I've never been to that place, Marliss, parking is always a nightmare in the Pearl District. If you really want a treat, you HAVE to go here sometime: http://www.scratchfoodsllc.com/ It's really not that much further.

The owner of this restaurant was a competitor on the Iron Chef and his food is absolutely delicious and unique. It can be a bit spendy, but as you can see from his menu - which always has daily "additions" - he focuses on GF and fresh and local. The last time I was there I had some sort of pork dish with chocolate sauce and it was lip smackin'. It's the kind of place where you literally want to lick your plate. It is a small place and the owner does all the cooking and comes to your table to ask you what you think of his food. We go there whenever we want to treat ourselves to something special. I believe he makes all his crackers and chips as well.
Resolved MC symptoms successfully w/L-Glutamine, Probiotics and Vitamins, GF since 8/'09. DX w/MC 10/'09.
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Post by Lesley »

Tex,
Someone has to stand up at an international conference and address present research. A few papers are not going to make them change their minds.
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