Gloria/Tex,
I guess I'm one of the very few here who has 2 celiac genes. According to your theory, shouldn't that make for fewer food sensitivities??? I'm still struggling like mad with an over abundance of intolerances after a year and a half of strict gluten (and everything else) avoidance.
My latest theory is that histamine is the big culprit. I have just about every single symptom of histamine intolerance (and have had them since childhood), so I have started taking claritin and plan to order histame. Although I have read about it many times here, I've sort of glossed over it, thinking that I was home free. However, when Joe brought the topic back in a big way (along with Gabes) I finally paid attention!!!
I will update on what has been going on with me once I know how this latest chapter in the ongoing saga unfolds.
Love,
Kari
Doctor's Awareness of Glulten Intolerance
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
Kari,
The problem is that a double DQ "anything" predisposes to additional food sensitivities, and greater difficulties in achieving remission, unfortunately.
Good luck with your new treatment plan.
Love,
Tex
The problem is that a double DQ "anything" predisposes to additional food sensitivities, and greater difficulties in achieving remission, unfortunately.
Good luck with your new treatment plan.
Love,
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
This has been a big wake-up to me today also, Kari, I've been researching it all day. I'm a double DQ1, not sure how that equates to double DQ anything, but I'm sure we here will eventually suss it all out.However, when Joe brought the topic back in a big way (along with Gabes) I finally paid attention!!!
Resolved MC symptoms successfully w/L-Glutamine, Probiotics and Vitamins, GF since 8/'09. DX w/MC 10/'09.
Hi Kari...Its funny you wrote what you did. It never occurred to me either that I might have a histamine problem until I read Joe and Gabes thread on Mast Cell recently. I too, just started taking Zyrtec. I do hope this works because I am starting to get frustrated with all the "WHY'S" again!
Love Robin
Love Robin
Kari,
I, too remember reading posts by Faithberry and Mary Beth, thinking "I'm glad I don't have to worry about that." Then Mary Beth wrote that she thought I might have a problem and I started looking at the list of foods high in histamines. When I realized that I reacted to nearly all of them, I had to take the issue seriously. I have a feeling that many of us have problems with histamines.
Gloria
I, too remember reading posts by Faithberry and Mary Beth, thinking "I'm glad I don't have to worry about that." Then Mary Beth wrote that she thought I might have a problem and I started looking at the list of foods high in histamines. When I realized that I reacted to nearly all of them, I had to take the issue seriously. I have a feeling that many of us have problems with histamines.
Gloria
You never know what you can do until you have to do it.
Hi All! But now I have a question....How much antihistimines do we have to take? I have been taking a 10mg Claritin at night for the last 4 days and see no improvement. I have been staying away from high histamine foods such as....strawberries, rasberries, spinach and pumpkin! So if anyone would like to explain to me how much antihistimaine we are suppose to take I would greatly appreciate it.
Thanks
Robin
Thanks
Robin
Kari
You stated that you plan to take histame. I went to the web site and this is what they said:
Who should take Histame
This product is for children (5 years and older), teenagers and adults consuming foods rich in histamine. Histame is not intended for those who have immune system-related food allergies.
Warnings and when to ask a health care professional
Histame is not effective with immune system-based food allergies, or with peanut or wheat gluten allergies.
So, is histame a no go? Just wondering...
Mandy[/b]
You stated that you plan to take histame. I went to the web site and this is what they said:
Who should take Histame
This product is for children (5 years and older), teenagers and adults consuming foods rich in histamine. Histame is not intended for those who have immune system-related food allergies.
Warnings and when to ask a health care professional
Histame is not effective with immune system-based food allergies, or with peanut or wheat gluten allergies.
So, is histame a no go? Just wondering...
Mandy[/b]
No. That warning simply states that it is not effective for preventing life-threatening anaphylactic reactions, and though it doesn't say so, it also will not be effective for controlling IgA-based reactions in the intestines that result in autoimmune reactions.Mandy wrote:So, is histame a no go? Just wondering...
It is effective, however, at purging residual histamines from the body that are the result of an inadequate supply of diamine oxidase enzyme. IOW, it doesn't prevent mast cells from degranulating, it only mops up some of the histamines that remain in circulation, because not enough DAO is available to decompose them by normal means. An anti-histamine will still need to be used, to prevent the mass degranulation of mast cells, (because without an anti-histamine, the volume of histamines released could possibly vastly exceed the capacity of the DAO to break it down, in many cases.
Histame will also help to remove the histamines found in high-histamine foods. Antihistamines block the action of histamines, whereas histame helps to restore the ability of the body to remove histamines from the system, thereby helping to prevent the numbers from building up in an unnatural fashion.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Robin,
I think the type and quantity of antihistamines that you take depends on each individual. For example, Claritin and Zyrtec don't seem to help me; neither does Histame. I take 1/2 tablet of Benadryl, but since it no longer seems to help, either, I'm considering discontinuing it. Each type is made from a different ingredient, so one might work better than another for different individuals.
This is what Julie takes daily (posted here: http://www.perskyfarms.com/phpBB2/viewt ... torder=asc , page 3)
I think the type and quantity of antihistamines that you take depends on each individual. For example, Claritin and Zyrtec don't seem to help me; neither does Histame. I take 1/2 tablet of Benadryl, but since it no longer seems to help, either, I'm considering discontinuing it. Each type is made from a different ingredient, so one might work better than another for different individuals.
This is what Julie takes daily (posted here: http://www.perskyfarms.com/phpBB2/viewt ... torder=asc , page 3)
GloriaFor my mast cell symptoms I currently take:
Zyrtec 2x/day
Zantac 150 mg 2x/day
Singulair 1x/day
Nexium 2x/ day
Benadryl on top of all of this as needed.
You never know what you can do until you have to do it.
Hi all,
I don't know quite to make of the histame discussion, as I haven't researched all the previous threads. All I can say, is that, since going GF, I have not needed Claritin for seasonal allergies after about four years of taking it. The only food I can identify as having a histamine reaction for me is eggplant (my daughter has the same thing, but she has an aversion to raw tomatoes, which I don't, and neither of us seems to have an issue with potatoes). I have major "yicky" aversions to coconut and raisins, but can't say whether there's any rational reason for that. Why would I skeeve raisins, but eat dried apples, cranberries, prunes, apricots?
I don't know quite to make of the histame discussion, as I haven't researched all the previous threads. All I can say, is that, since going GF, I have not needed Claritin for seasonal allergies after about four years of taking it. The only food I can identify as having a histamine reaction for me is eggplant (my daughter has the same thing, but she has an aversion to raw tomatoes, which I don't, and neither of us seems to have an issue with potatoes). I have major "yicky" aversions to coconut and raisins, but can't say whether there's any rational reason for that. Why would I skeeve raisins, but eat dried apples, cranberries, prunes, apricots?
Suze
Hello everyone, I've been off a few days for health related appointments, issues, etc.
I agree with Polly regarding the term "gluten sensitivity" vs "gluten allergy." At what may have been my LAST visit with GI doc 3 months ago, I asked him about possible gluten intollerance. He replied in a joking manner including his opinion about "allergists" and dismissed my question. Last week I went back to my family medicine practioner who I had not seen since being dx'd with MC by the GI doc. The first question he asked me was regarding gluten.
When possible I check out the restaurant website and pre-determine what I'll order. Chili's has suggested menus online for several sensitivities, and I'm still careful. I called a Mediterranian restaurant and was told they had GF meals. With discussion, I was told to just not eat the bread. My son is familar with the menu and says everything is covered in sauces. I'd heard enough to scratch that one off the list. I'd be very skeptical if a restaurant offered barley in a GF meal.
FYI - I'm finding the book, Digestive Wellness, by Elizabeth Lipski, Ph.D.,CCN to be helpful.
Brenda
I agree with Polly regarding the term "gluten sensitivity" vs "gluten allergy." At what may have been my LAST visit with GI doc 3 months ago, I asked him about possible gluten intollerance. He replied in a joking manner including his opinion about "allergists" and dismissed my question. Last week I went back to my family medicine practioner who I had not seen since being dx'd with MC by the GI doc. The first question he asked me was regarding gluten.
When possible I check out the restaurant website and pre-determine what I'll order. Chili's has suggested menus online for several sensitivities, and I'm still careful. I called a Mediterranian restaurant and was told they had GF meals. With discussion, I was told to just not eat the bread. My son is familar with the menu and says everything is covered in sauces. I'd heard enough to scratch that one off the list. I'd be very skeptical if a restaurant offered barley in a GF meal.
FYI - I'm finding the book, Digestive Wellness, by Elizabeth Lipski, Ph.D.,CCN to be helpful.
Brenda
It is important to be able to sacrifice what we are for what we can become.
unk
unk
It has been 7 days since I started taking Claritin Reditabs. On day 2 and day 3, my BM's firmed up to better than they had been in over half a year, and my nose stopped "dripping", so I was very encouraged. However, then my BM's started getting more watery again. Also, I have been feeling increasingly dizzy and tired in late afternoons/evenings. There is no doubt in my mind that I am Histamine Intolerant, as I have most of the major symptoms, such as low blood pressure, hypotension, dizziness, diarrhea, runny nose, headaches (aura migraines), and tiredness.
I have not yet ordered Histame, but I'm planning to give it a try. I'm eating a low histamine diet and hoping that eventually that will take effect. The D. does not interfere with my lifestyle, as I seldom have urgency and for the most part only go once or twice a day, but the persistent watery stools are maddening. However, it seems like the more I focus on getting them firmed up, the less I succeed - sigh. Perhaps it is from the added stress I put on myself to "fix them"???
I'm reluctant to try any of the other anti histamines, since the bothersome side effect seems to be increased dizziness/tiredness, so I will stop taking them on a daily basis, and rather use them as needed.
Anyhow, I have come a long way from the days of being chained to the toilet, so perhaps my intestines just need more time to fully heal from a life time of gluten damage. Patience, patience and more patience :).
Love,
Kari
I have not yet ordered Histame, but I'm planning to give it a try. I'm eating a low histamine diet and hoping that eventually that will take effect. The D. does not interfere with my lifestyle, as I seldom have urgency and for the most part only go once or twice a day, but the persistent watery stools are maddening. However, it seems like the more I focus on getting them firmed up, the less I succeed - sigh. Perhaps it is from the added stress I put on myself to "fix them"???
I'm reluctant to try any of the other anti histamines, since the bothersome side effect seems to be increased dizziness/tiredness, so I will stop taking them on a daily basis, and rather use them as needed.
Anyhow, I have come a long way from the days of being chained to the toilet, so perhaps my intestines just need more time to fully heal from a life time of gluten damage. Patience, patience and more patience :).
Love,
Kari
"My mouth waters whenever I pass a bakery shop and sniff the aroma of fresh bread, but I am also grateful simply to be alive and sniffing." Dr. Bernstein
Hi Kari,
Hmmmm. That's an encouraging and interesting response, and at the same, puzzling. Do you think that it just stopped working, or that you might be sensitive to one of the ingredients in the Claritin Reditabs? Could the dosage be the problem?
If an ingredient is the problem, I wonder if it might be practical to try to get a compounding pharmacy to formulate something you could use by starting with whichever active ingredient appears to be the least likely to cause problems, and diluting it with only a minimum quantity of safe filler.
It seems strange how for some of us, the first step on the path to remission seems huge, but the final step is smooth and easy, while for others, that last step can be incredibly difficult.
Love,
Tex
Hmmmm. That's an encouraging and interesting response, and at the same, puzzling. Do you think that it just stopped working, or that you might be sensitive to one of the ingredients in the Claritin Reditabs? Could the dosage be the problem?
If an ingredient is the problem, I wonder if it might be practical to try to get a compounding pharmacy to formulate something you could use by starting with whichever active ingredient appears to be the least likely to cause problems, and diluting it with only a minimum quantity of safe filler.
It seems strange how for some of us, the first step on the path to remission seems huge, but the final step is smooth and easy, while for others, that last step can be incredibly difficult.
Love,
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Hi Tex,
That's 2 very astute observations - thanks for the input.
1. Yes, there might be something I react to in the RediTabs and your suggestion of a compounding pharmacy is excellent.
2. You really got me thinking with your comment about "beginnings" and "ends" - I have tried absolutely everything to get the final loose end (pun intended) tied up. I've gone back to writing a log, to a very minimal diet that seemed to work in the past, to getting tested by my acupuncturist on every single thing I ingest, and everything to no avail. I was having almost perfect normans last spring and early summer, but then the BM's gradually deteriorated, and no amount of effort seemed to be working. Perhaps if I stop trying so hard, I will be pleasantly surprised one of these days
.
Thinking a little more - it seems that I'm following the typical MC path, wherein as healing takes place, new issues pop up. In this case the histamine issue. The gradual deterioration of my BM's finally got my attention to the point that I started exploring new ideas, and thus discovered my Histamine Intolerance. The fact that I have had those symptoms from childhood makes it a rather "big deal", so I'm hopeful that if I can get a handle on it, I can finally get into full MC remission
.
Love,
Kari
That's 2 very astute observations - thanks for the input.
1. Yes, there might be something I react to in the RediTabs and your suggestion of a compounding pharmacy is excellent.
2. You really got me thinking with your comment about "beginnings" and "ends" - I have tried absolutely everything to get the final loose end (pun intended) tied up. I've gone back to writing a log, to a very minimal diet that seemed to work in the past, to getting tested by my acupuncturist on every single thing I ingest, and everything to no avail. I was having almost perfect normans last spring and early summer, but then the BM's gradually deteriorated, and no amount of effort seemed to be working. Perhaps if I stop trying so hard, I will be pleasantly surprised one of these days
. Thinking a little more - it seems that I'm following the typical MC path, wherein as healing takes place, new issues pop up. In this case the histamine issue. The gradual deterioration of my BM's finally got my attention to the point that I started exploring new ideas, and thus discovered my Histamine Intolerance. The fact that I have had those symptoms from childhood makes it a rather "big deal", so I'm hopeful that if I can get a handle on it, I can finally get into full MC remission
. Love,
Kari
"My mouth waters whenever I pass a bakery shop and sniff the aroma of fresh bread, but I am also grateful simply to be alive and sniffing." Dr. Bernstein
Well, Tex, you have helped me solve the mystery - I'm sensitive to something in the RediTab. I've learned the technique my acupuncturist uses to test for sensitivities, and just tested it (with the help of my SO), and sure enough I'm reactive 
. The suspect ingredients are mannitol, mint flavor, anhydrous citric acid and gelatin. The active ingredient is Loratadine, which has to be what helped me.
Now I just have to figure out how I can get a non-polluted pill made :).
Thanks again Tex.
Love,
Kari
P.S. I have an unopened box of 30 RediTabs and am heading for the store to return it :).
. The suspect ingredients are mannitol, mint flavor, anhydrous citric acid and gelatin. The active ingredient is Loratadine, which has to be what helped me.Now I just have to figure out how I can get a non-polluted pill made :).
Thanks again Tex.
Love,
Kari
P.S. I have an unopened box of 30 RediTabs and am heading for the store to return it :).
"My mouth waters whenever I pass a bakery shop and sniff the aroma of fresh bread, but I am also grateful simply to be alive and sniffing." Dr. Bernstein