Hi ALL,
Hopefully someone here can help me before I call the doctor(which I rather not)! For the last 2 week I have been having very bad dizziness, fatigue, the brain fog, heart palpitations, irritability and bad headaches!!! Now I have been on GF, DF, SF, corn, egg and chicken free diet for over 2 months! I am only taking 3mg of Entocort a day now. My BM's, depending on the time of day, range from D to C! I have really never gotten rid of bloating so thats not new or old. I started taking Claritin 10mg about 4 days ago. I was hoping that the Claritin was the answer but it is not helping. Given my somewhat medical back ground (surgical nurse), I am starting to wonder if it is not my thyroid!!! Has anyone else had any similar problems and if so what did you do? The dizziness and heart palpitations this morning were so scary I stayed home from work today and slept the entire day! Thanks Guys!!
Love
Robin
MC ISSUE'S OR THYROID HELP?????
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
Did you check your BP?
I suppose it could be thyroid-related. But hypothyroidism usually causes insomnia, doesn't it? There are a lot of possibilities - it could even be something such as candida. Do you have thrush on your tongue?
It could even be some type of dysautonomia.
I had days like that when I was recovering, but the dizziness usually only lasted for a few hours or so.
Dehydration can cause those symptoms. Could it be dehydration? I believe that a severe magnesium deficiency can cause those symptoms, also. Is that a possibility? I had serious magnesium deficiency problems at least a couple of times when I was really reacting. A banana or two should help, if that's the problem. My mother once developed a severe magnesium deficiency, and she had those symptoms - I can still remember how belligerent she became, when we tried to convince her that she needed to go the ER.
Otherwise, it might be time to call the doctor.
Love,
Tex
I suppose it could be thyroid-related. But hypothyroidism usually causes insomnia, doesn't it? There are a lot of possibilities - it could even be something such as candida. Do you have thrush on your tongue?
It could even be some type of dysautonomia.
I had days like that when I was recovering, but the dizziness usually only lasted for a few hours or so.
Dehydration can cause those symptoms. Could it be dehydration? I believe that a severe magnesium deficiency can cause those symptoms, also. Is that a possibility? I had serious magnesium deficiency problems at least a couple of times when I was really reacting. A banana or two should help, if that's the problem. My mother once developed a severe magnesium deficiency, and she had those symptoms - I can still remember how belligerent she became, when we tried to convince her that she needed to go the ER.
Otherwise, it might be time to call the doctor.
Love,
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
This is what Julie said she takes:
Her regimen is probably more than most of us need to take because she has a systemic reaction, as I recall. You'd have to read some of her posts to see how many symptoms she has.
I've taken Claritin or Zyrtec and/or Histame in the past without seeing any difference. The first time I did was when I took Benadryl. I quickly cut my dosage to 1/2 pill because I was too groggy all day. I no longer see any change in my symptoms, however, and am considering discontinuing it. I haven't tried Allegra or Singulair, and I'm reluctant to use an H2 blocker.
We each probably will have to experiment with the dosage to see what works.
Gloria
This is on page 3 of this thread: http://www.perskyfarms.com/phpBB2/viewt ... s&start=30For my mast cell symptoms I currently take:
Zyrtec 2x/day
Zantac 150 mg 2x/day
Singulair 1x/day
Nexium 2x/ day
Benadryl on top of all of this as needed.
Her regimen is probably more than most of us need to take because she has a systemic reaction, as I recall. You'd have to read some of her posts to see how many symptoms she has.
I've taken Claritin or Zyrtec and/or Histame in the past without seeing any difference. The first time I did was when I took Benadryl. I quickly cut my dosage to 1/2 pill because I was too groggy all day. I no longer see any change in my symptoms, however, and am considering discontinuing it. I haven't tried Allegra or Singulair, and I'm reluctant to use an H2 blocker.
We each probably will have to experiment with the dosage to see what works.
Gloria
You never know what you can do until you have to do it.
Robin, so hard to say what is wrong. I would suggest a very thorough blood work, the whole enchilada! Check iron, magnesium, all B's, zinc, hormone levels, everything! Go for it all! You may be very surprised at what you are low in. I have done this religiously and I have caught various high/low levels that I managed to correct before it became a real problem. For example, on my most recent blood work, I was virtually non existent in B vitamins, yet only six weeks before that my blood work showed a med/low range. My PA was surprised at the quick decrease and asked if I was experiencing certain symptoms. I said no, but KNEW that I would be soon if I didn't do something about it. So I rushed out and bought a B complex. The thing is, it seems that MC can screw up a lot of our levels and we need to be super vigilant. As careful as we are with our diet, watching our blood work should be almost as important! By having a timeline of consistent blood work, you can monitor how much your body is absorbing (or not) various vitamins and then decide how much to take to correct/maintain that optimum level. Once you get your vitamin/hormone intake on a consistent level, you will know that at least any physical problem is most likely not due to lack of nutrients. One less thing to worry about, IMO.
Mandy
Mandy
Thanks Guys!
Tex is this a good time to use some cuss words! LOL I guess I have to make the phone call to my MD! UGH!!! I have taken my BP and oddly enough it is normal, I usually have high BP. I have no thrush. I doubt I am dehydrated because I drink to much water during the day that I have go to bathroom all night! I don't think its a magnesium deficiency because I take mag. everyday! These are the meds I take each day....Entocort 3mg, B12, B complex, calcium, magnesium, zinc(these 3 are all in the same pill), Vit D 5000IU, Diovan HCT (BP med) and recently Claritin 10mg.
I was thinking more along the lines of hyperthyroid than hypo. One thing I failed to mention before (its a little embarrassing, but what the hell we talk about out bathroom habits) my breast have been sore and tender, I only feel comfortable wearing a bra. I also have been running low grade fever on and off for the last 3 days! Now that I wrote this done this seems crazy!!! Am I going nuts or what! I guess since 2 weeks have passed and it doesn't seem to be getting any better I need to call the doc. Oh how I hate that! Thanks Tex!
Gloria....Thanks for the info. I am still so confused about how much to take. But since it seems like I have to pay my doctor(Internist) a visit I will discuss it with her and see what she says....this should be interesting, she is the one who told me I had a virus for 6 months! Thanks Again!
Mandy....I think your definitely right I desperately need a good blood workup! I guess I kept hoping this would all go away, but unfortunately its not! The unknown is really scary, I dont need anymore health issues. Thanks Mandy
Love Robin
Tex is this a good time to use some cuss words! LOL I guess I have to make the phone call to my MD! UGH!!! I have taken my BP and oddly enough it is normal, I usually have high BP. I have no thrush. I doubt I am dehydrated because I drink to much water during the day that I have go to bathroom all night! I don't think its a magnesium deficiency because I take mag. everyday! These are the meds I take each day....Entocort 3mg, B12, B complex, calcium, magnesium, zinc(these 3 are all in the same pill), Vit D 5000IU, Diovan HCT (BP med) and recently Claritin 10mg.
I was thinking more along the lines of hyperthyroid than hypo. One thing I failed to mention before (its a little embarrassing, but what the hell we talk about out bathroom habits) my breast have been sore and tender, I only feel comfortable wearing a bra. I also have been running low grade fever on and off for the last 3 days! Now that I wrote this done this seems crazy!!! Am I going nuts or what! I guess since 2 weeks have passed and it doesn't seem to be getting any better I need to call the doc. Oh how I hate that! Thanks Tex!
Gloria....Thanks for the info. I am still so confused about how much to take. But since it seems like I have to pay my doctor(Internist) a visit I will discuss it with her and see what she says....this should be interesting, she is the one who told me I had a virus for 6 months! Thanks Again!
Mandy....I think your definitely right I desperately need a good blood workup! I guess I kept hoping this would all go away, but unfortunately its not! The unknown is really scary, I dont need anymore health issues. Thanks Mandy
Love Robin
I must have brain fog tonight, also. I have no idea why I said "magnesium", because I meant "potassium". 
Sorry about that.
And since you added those last couple of symptoms about the tenderness and fever, I'm gonna guess that you might be entering menopause. Just about all of your symptoms fit.
Love,
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Tex.... You make me laugh so much! Thank god for you! I do eat a banana everyday. But is that enough potassium? I cant stand this ???? anymore! This is guessing game that i dont want to play anymore! I am going to start kicking the sand in the sandbox if this doesnt stop!
Thanks Tex and has always love ya!!!
Thanks Tex and has always love ya!!!
Yes! Tex is right. It may very well be perimenopause. (It's only menopause after you have gone a full year without a period.) During perimenopause, EVERYTHING is out of whack! As the hormones decrease, they put a drain on the adrenals, which basically control everything! You then get adrenal fatigue. And I don't mean just fatigue. You can become anxious, irritable, achey with muscle and bone, hot/cold, insomnia and dizzy/loss of balance. If you have ever googled perimenopause, you will get a myriad of symptoms! (But, ps. don't. It will drive you crazy with all the info.) Just because you still have your period doesn't mean that your hormones are producing enough to keep your body regulated. Have your doctor do a complete hormonal blood work. Ask the doctor to check everything! It really will help to put the puzzle together! And, if you aren't happy with the doctor's knowledge of blood test results, get a copy and show it to others! You would be amazed how different doctors interpret the same blood results.
Mandy
Mandy
Robin,
I went back and edited my post. Did you see the last sentence that I added? (Or is that what made you laugh?)
Love,
Tex
I went back and edited my post. Did you see the last sentence that I added? (Or is that what made you laugh?)
Love,
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
I was laughing Tex because i really cant picture you of all people with brain fog! I didnt see the last line that you wrote.
Mandy and Tex I hope your right! Omg! I would love that!!! I still get my period every single month like clock work!! Enough already. I am definitely looking foward to ending that! I should of had stock in the feminine hygiene products i would have been a millionaire by now. My 30 year old son likes to make a joke every month..."Mom you can still get pregnant?" Oh the thought of that.
Thanks guys...the PP Detectives at work...love it! What would we all do without this site?
I made an appt for Friday to see my internist, we will see!
Love Robin
Mandy and Tex I hope your right! Omg! I would love that!!! I still get my period every single month like clock work!! Enough already. I am definitely looking foward to ending that! I should of had stock in the feminine hygiene products i would have been a millionaire by now. My 30 year old son likes to make a joke every month..."Mom you can still get pregnant?" Oh the thought of that.
Thanks guys...the PP Detectives at work...love it! What would we all do without this site?
I made an appt for Friday to see my internist, we will see!
Love Robin
Robin
I know you will go over everything with your doc, and probably get lots of tests, but I will second the hormonal change/menopause probability. Menopause can work in very weird and mysterious ways. I was a full 15 years into it when I developed terrible hot flashes-- which more or less coincided with the onset of MC and my initial course of Entocort. I had never had hot flashes. I thought maybe the drug was doing it, through some weird effect on the adrenals, but they didn't stop after I stopped the drug, and tests months later showed that all my hormones (excluding cortisol) had virtually disappeared--no measurable amounts of anything--and even though I had no D at the time, I felt pretty awful--a combination of MC and hormonal crash, I think. I was dizzy, had bouts of tachychardia, insomnia, etc.
So, it can be a very weird journey. Let us know how you are doing.
Susan
I know you will go over everything with your doc, and probably get lots of tests, but I will second the hormonal change/menopause probability. Menopause can work in very weird and mysterious ways. I was a full 15 years into it when I developed terrible hot flashes-- which more or less coincided with the onset of MC and my initial course of Entocort. I had never had hot flashes. I thought maybe the drug was doing it, through some weird effect on the adrenals, but they didn't stop after I stopped the drug, and tests months later showed that all my hormones (excluding cortisol) had virtually disappeared--no measurable amounts of anything--and even though I had no D at the time, I felt pretty awful--a combination of MC and hormonal crash, I think. I was dizzy, had bouts of tachychardia, insomnia, etc.
So, it can be a very weird journey. Let us know how you are doing.
Susan
Hi Robin,
I "third" the hormonal/menopause probability. Your description of what you are going through sounds a lot like what I went thru last summer concurrent w/ on set of MC. I had increasingly escalating dizziness, increasingly escalating anxiety over time culminating with three times last summer when the anxiety was so bad I could not work, blurred vision on the same days and inability to do math equations all day on those days.
Also had problems doing math for about 3-4 months during this period. Suspect I also had nutritional issues during this time as it was during my flare. Brandy
I "third" the hormonal/menopause probability. Your description of what you are going through sounds a lot like what I went thru last summer concurrent w/ on set of MC. I had increasingly escalating dizziness, increasingly escalating anxiety over time culminating with three times last summer when the anxiety was so bad I could not work, blurred vision on the same days and inability to do math equations all day on those days.
Also had problems doing math for about 3-4 months during this period. Suspect I also had nutritional issues during this time as it was during my flare. Brandy
Hi Robin,
I echo what the other ladies have said here.
I was already through menopause when the LC hit but I can vouch that perimenopause alone will give you the fatigue, heart palpitations, and soreness=== all signs of hormone fluctuations. It's like the hormones are "sputtering", too much at some times, too little at others.
As far as irritability.... you are entitled to be irritable, cuz this is miserable.
Keep us posted on what you find out. I hope the tests reveal something for you and you are better soon.
Carol
I echo what the other ladies have said here.
I was already through menopause when the LC hit but I can vouch that perimenopause alone will give you the fatigue, heart palpitations, and soreness=== all signs of hormone fluctuations. It's like the hormones are "sputtering", too much at some times, too little at others.
As far as irritability.... you are entitled to be irritable, cuz this is miserable.
Keep us posted on what you find out. I hope the tests reveal something for you and you are better soon.
Carol
“.... people will forget what you said, people will forget what you did, but people will never forget how you made them feel.” Maya Angelou
Thank you all! I guess the brain fog is worse than I thought. LOL I think you are all right! I should have suspected that myself but I have CRS (cant remember shi*) lately! Two years ago I was having problems and I tried taking estrogen replacements. That was not good, after a month I stopped. I had gone to an herbalist and he gave me a hormone replacement capsule that he compounded for me and a progesterone cream.....boy that worked. Then I got sick and stopped ALL my meds (what was I thinking). I am still going to see the doctor for a blood work up. I am going to wait to see what the blood test say before I start the hormone replacements again!
This getting older is not for me! These are suppose to be the "Golden Years", I don't think so!
Thank you ALL for your input, I really do appreciate it! You all make me feel like I am not going crazy!
Love
Robin
This getting older is not for me! These are suppose to be the "Golden Years", I don't think so!
Thank you ALL for your input, I really do appreciate it! You all make me feel like I am not going crazy!
Love
Robin