hi I'm new
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hi I'm new
Hi. I'm new to this forum ( and have recently been diagnosed with CC) and am wondering if it seems fine when I eat bread, could i still be gluten intolerant?
Hi Leah,
Welcome the to the board.
I was as sick as a dog, but I couldn't tell what was making me sick, until after I cut gluten out of my diet.
As Shirley asked, "What are your symptoms?"
Again, welcome aboard, and please feel free to ask anything.
Tex
Welcome the to the board.
Leah wrote:and am wondering if it seems fine when I eat bread, could i still be gluten intolerant?
I was as sick as a dog, but I couldn't tell what was making me sick, until after I cut gluten out of my diet.As Shirley asked, "What are your symptoms?"
Again, welcome aboard, and please feel free to ask anything.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
symptoms... and intolerance test
Nice of you to answer. When it all started, I had D many times a day and pelvic pain. I took all the high fiber out of my diet ( which was prevalent in my diet) and my black tea. Things settled down a bit, but I did have a colonoscopy and endoscopy with biopsies taken. Once I got the diagnoses of CC, i took out dairy and salad( I was eating cheese still and a lot of salad). I was also put on Colozal. It's been about two weeks and I do feel much better. I am down to 1-2 BMs a day. They are not solid, but better. I seem not to be bothered at all by bread and such and would rather not ALSO take that out. I'm having a hard enough time with the changes I've made already.
Has anyone taken the DNA hair test that "testyourintoleranceusa.com" does? I'm thinking of doing it since I'd like to know what I am intolerant of and it's pretty comprehensive for only $85
Has anyone taken the DNA hair test that "testyourintoleranceusa.com" does? I'm thinking of doing it since I'd like to know what I am intolerant of and it's pretty comprehensive for only $85
Hi Leah....WELCOME! This is the ONLY place on the entire internet that you will find sound advice! We are all different but all have the same diagnosis. I was always able to tolerate bread. It never bothered me where I would have thought that it was the bread, I always thought that it was something else I had eaten. I ate toast almost everyday, I never got sick after eating it. Now I know differently. It is the bread and anything else made with gluten! But of course that is me and I am not saying you have a problem with bread. But be careful, because as we all know here it is something in our diets that do make us sick. I am sure Tex and some of the others who have been doing this for years will be posting you.
Good Luck and Again welcome to Potty People!
Robin
Good Luck and Again welcome to Potty People!
Robin
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GF-aka Oma
- Adélie Penguin
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Joefnh
- Rockhopper Penguin
- Posts: 2478
- Joined: Wed Apr 21, 2010 8:25 pm
- Location: Southern New Hampshire
Hi Leah and welcome from New Hampshire. I'm sorry you have CC, but glad your here. We all have a different set of intolerances, but there are a lot of similarities. I believe most of us react to gluten which can be found breads, cereals and a fair amount of all of the prepared foods found in the stores. Along with gluten, soy and dairy can also cause issues. Like you I could not tolerate high fiber content in my diet.
As you are taking some meds now, you most likely will not quite notice what foods may be causing you issues as the medication will mask the symptoms.
Some of us use medications and some are able to manage the symptoms without using any meds. Certainly you have to find what works best for you in your situation.
Even with meds knowing your sensitivities and avoiding them is important and helpful. While the meds can mask the overt symptoms, they will not help with fatigue, joint pain and other misc symptoms. The only way to truly get you're health back is by avoiding the foods your body is letting you know it is having issues with. The meds along with a diet that avoids the problem food is the quickest way to feeling better and actually allowing your GI tract to heal.
To determine your intolerances, you can as Tex mentioned eliminate the problem foods for a while and then slowly challenge one food type at a time while keeping a food diary. The other proven ways are to look into testing by Enterolab or MRT testing. Both do a good job of helping you find out what your sensitive to. Keep in mind that the meds while helpful can only mask the symptoms, not allow for healing or address the underlying problem.
Feel free to ask the group anything, we have all been there and done that.
Take care
Joe
As you are taking some meds now, you most likely will not quite notice what foods may be causing you issues as the medication will mask the symptoms.
Some of us use medications and some are able to manage the symptoms without using any meds. Certainly you have to find what works best for you in your situation.
Even with meds knowing your sensitivities and avoiding them is important and helpful. While the meds can mask the overt symptoms, they will not help with fatigue, joint pain and other misc symptoms. The only way to truly get you're health back is by avoiding the foods your body is letting you know it is having issues with. The meds along with a diet that avoids the problem food is the quickest way to feeling better and actually allowing your GI tract to heal.
To determine your intolerances, you can as Tex mentioned eliminate the problem foods for a while and then slowly challenge one food type at a time while keeping a food diary. The other proven ways are to look into testing by Enterolab or MRT testing. Both do a good job of helping you find out what your sensitive to. Keep in mind that the meds while helpful can only mask the symptoms, not allow for healing or address the underlying problem.
Feel free to ask the group anything, we have all been there and done that.
Take care
Joe
Joe
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MaggieRedwings
- King Penguin
- Posts: 3865
- Joined: Tue May 31, 2005 3:16 am
- Location: SE Pennsylvania
Welcome Leah and sorry you had to develop CC to discover us. I too think you need to find your intolerances and then eliminate them. So far as the hair test - checked their website and it seems like another money grabber in my opinion.
Maggie
Maggie
Maggie Scarpone
___________________
Resident Birder - I live to bird and enjoy life!
___________________
Resident Birder - I live to bird and enjoy life!
thanks
Thanks to all of you for welcoming me and giving me advice.
As for the drugs, believe me when I say that I don't plan on taking them forever ( it's only been two weeks). I am a personal trainer and I need to be "OK" in the morning since that is when most of my clients are with me. I have always been very health conscious and always ate "healthy". This is a huge adjustment for me. Fresh fruits and veggies along with high fiber foods and black tea were my staples. I thought I would use the drugs for a while to help calm things down ( which they have). Once I get a grip on things, I will ween myself off of them.
As for the gluten thing, I will probably get tested at some point, but for now I am getting use to not having dairy, salad,tea, and fiber. Because of my profession, I need to keep my energy and strength up and really can not afford to back slide. Having the bread and pasta in my diet helps me keep weight on ( I was thin to begin with) and I am tolerating it well right now. I only have 1-2 BMs a day with occasional abdominal pain. Not bad. Better than what it was.
I will continue to read and listen to all of you and experiment with my diet to figure it all out.
Thanks again for your input. Leah
As for the drugs, believe me when I say that I don't plan on taking them forever ( it's only been two weeks). I am a personal trainer and I need to be "OK" in the morning since that is when most of my clients are with me. I have always been very health conscious and always ate "healthy". This is a huge adjustment for me. Fresh fruits and veggies along with high fiber foods and black tea were my staples. I thought I would use the drugs for a while to help calm things down ( which they have). Once I get a grip on things, I will ween myself off of them.
As for the gluten thing, I will probably get tested at some point, but for now I am getting use to not having dairy, salad,tea, and fiber. Because of my profession, I need to keep my energy and strength up and really can not afford to back slide. Having the bread and pasta in my diet helps me keep weight on ( I was thin to begin with) and I am tolerating it well right now. I only have 1-2 BMs a day with occasional abdominal pain. Not bad. Better than what it was.
I will continue to read and listen to all of you and experiment with my diet to figure it all out.
Thanks again for your input. Leah
Hi Leah,
New research presented last year at the American College of Gastroenterology (ACG) 2011 Annual Scientific Meeting showed women with young onset CC are 8 times more likely to have Celiac disease. And note - many of the gluten intolerant folks here don't even test positive for Celiac, so I'm sure they left many people out of their findings who react to gluten.
http://www.carislifesciences.com/media/ ... deir_2.pdf
Why not stop gluten for 2 weeks (even one week) and add it back in to see how you feel?
New research presented last year at the American College of Gastroenterology (ACG) 2011 Annual Scientific Meeting showed women with young onset CC are 8 times more likely to have Celiac disease. And note - many of the gluten intolerant folks here don't even test positive for Celiac, so I'm sure they left many people out of their findings who react to gluten.
http://www.carislifesciences.com/media/ ... deir_2.pdf
Why not stop gluten for 2 weeks (even one week) and add it back in to see how you feel?
Hi Leah,
Welcome to the forum! I came on as a lurker in Aug 2010 and was simply too sick to post then. When I first found this forum it seemed very "uber healthy" and kind of "new agey" to me. When I first came on board there were a number of posters who healed themselves through GF, DF diet alone which was pretty impressive to me as I had to resort to meds and adjusting my diet.
My sister is a personal trainer as well as a retired Marine and an Olympic level athlete so I understand your concern about getting enough calories. I agree with Zizzle, try GF for several weeks. Think sweet potatoes, white potatoes, rice, quinoa, buckwheat, Udi's bread and Tinkyada brown rice pasta as your wheat replacements. It's not so bad.
Keep us posted. Brandy
Welcome to the forum! I came on as a lurker in Aug 2010 and was simply too sick to post then. When I first found this forum it seemed very "uber healthy" and kind of "new agey" to me. When I first came on board there were a number of posters who healed themselves through GF, DF diet alone which was pretty impressive to me as I had to resort to meds and adjusting my diet.
My sister is a personal trainer as well as a retired Marine and an Olympic level athlete so I understand your concern about getting enough calories. I agree with Zizzle, try GF for several weeks. Think sweet potatoes, white potatoes, rice, quinoa, buckwheat, Udi's bread and Tinkyada brown rice pasta as your wheat replacements. It's not so bad.
Keep us posted. Brandy
Leah,
Welcome! You have come to the right place for answers.
Not everyone with MC is gluten sensitive, but a good percentage are. Other common food triggers include dairy, soy and eggs. There could be additional sensitivities and some of us have multiple food triggers. You have done well to eliminate the foods you have and it is working. But since you are not having what we call "normans" (normal stools), you can't really say that you have no symptoms from gluten . . . your loose stools very well could be from ingesting gluten. The symptoms of gluten intolerance and their severity vary from person to person. I hear you loud and clear that you would prefer not to give up gluten. Believe me, none of us did either. But we have found eliminating gluten a necessary evil in finding remission. FWIW, I found giving up gluten easier than giving up dairy. There are plenty of good gluten substitutes available these days.
Mary Beth
Welcome! You have come to the right place for answers.
Not everyone with MC is gluten sensitive, but a good percentage are. Other common food triggers include dairy, soy and eggs. There could be additional sensitivities and some of us have multiple food triggers. You have done well to eliminate the foods you have and it is working. But since you are not having what we call "normans" (normal stools), you can't really say that you have no symptoms from gluten . . . your loose stools very well could be from ingesting gluten. The symptoms of gluten intolerance and their severity vary from person to person. I hear you loud and clear that you would prefer not to give up gluten. Believe me, none of us did either. But we have found eliminating gluten a necessary evil in finding remission. FWIW, I found giving up gluten easier than giving up dairy. There are plenty of good gluten substitutes available these days.
Mary Beth
"If you believe it will work out, you'll see opportunities. If you believe it won't you will see obstacles." - Dr. Wayne Dyer
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harvest_table
- Rockhopper Penguin
- Posts: 1509
- Joined: Wed May 25, 2005 6:29 pm
- Location: Fergus Falls, Minnesota
Hi Leah,A warm welcome from Fergus Falls!
Joanna
THE GLUTEN FILES
http://jccglutenfree.googlepages.com/
http://jccglutenfree.googlepages.com/
Gluten
You guys are very sweet. How about I promise to try the Gluten free thing soon? I guess because I'm not suffering very much right now, I am finding it difficult to find the resolve. I am well aware of all the places gluten hides and getting rid of it will be a challenge ( along with everything else, it will make eating out a very sad affair) I will do it though. Soon :)