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Lesley
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Post by Lesley »

Thanks Lyn! I knew it but was way too lazy to explain it, but couldn't have done it as well as you anyway.

You are right - powdered turmeric doesn't pack much of a punch. You have to eat tons of it to get the benefit.
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Post by brandy »

Hi Henry, Lesley and Lyn,

Thanks for the updates and laughs!

By the way Lyn, I've made your fish dish twice. It was really good! I'm way overdue in emailing you a thank you note!

Lesley, I think I remember you mentioned you've ordered some curcumin. If it works for you I'll be glad to ship you the curcumin that I just bought at no charge from Vitamin Shoppe. It is still factory sealed. It says it is Triple Strength Curcumin, turmeric extract on side it has 900 mg turmeric extract std to 95% Curcumin 855mg.

I'm thinking for right now I should stick to the turmeric the spice although it packs less of a punch since I just stopped having D 3 months ago so really don't want to experience yellow D.

Brandy
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Lesley
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Post by Lesley »

If t'aint broke - and so on Brandy. If you are doing well with the turmeric then don't try anything else.
But keep the curcumin. I HOPE you don't relapse, but if you do and you need an anti inflammatory you will have it in your arsenal.
Thank you for the offer. Very sweet of you!

What is Lyn's fish dish? I have tilapia to cook tomorrow.
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Post by henrym »

tex wrote:
Henry wrote:Anyway, would zyrtec or something like it be a good thing to take then, against these mast cell reactions?
Maybe, or Claritin, or Benadryl, etc.

Tex
Is that also going to help my scalp problems? Do more people here have scalp problems, like flakes/crusts?
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tex
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Post by tex »

I don't know if it will help with all scalp issues, but it should help with bumps, rashes, etc. We're all different in our response to the various medications, just as our symptoms tend to vary from one person to another.

Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Post by Stanz »

Henry,
I used to have serious issues with crusting on my scalp and eyelashes. I wrote it off as stress, as I was in an extended time of severe stress. This also coincided with blistering on my hands and feet that was so severe that I almost couldn't work and when I did, I had to wear glove all the time and my hands are my life. This all went away, eventually, but was replaced by the nonstop D that eventually led to my dx/w/MC, finding this site, going GF.

I've been taking, on advice on my NP, the following supplements now for about 6 years:

400 mg of curcuma longa Rhizome Extract - in the form of a capsule called BCQ from Vital Nutrients. This also contains boswelia, quercitin and bromelain and was meant to be used as an alternative for NSAIDS, which he didn't want me to take anymore, but which I never stopped until my dx/w/MC.

100 mg. curcuma longa extract root - in the form of a capsule called Ligament Restore from Pure Encapsulations. (half the RDA)
This primarily contains glucosamine, which is known to help with joint damage, but also contains - IF you took the recommended 4 capsules/day - I take 2:

glucosamine sulfate (crab, shrimp) ............................................
1,500 mg hydrolyzed type II collagen complex (chicken sternal cartilage) .... 400 mg
providing (typical): hydrolyzed type II collagen 60%................................... 240 mg
l-proline (free-form)....................................................................... 500 mg
l-lysine HCl.................................................................................... 500 mg
ascorbic acid.................................................................................200 mg
silica (from Bambusa vulgaris (bamboo) extract (stem)) ................. 15 mg
devil’s claw (Harpagophytum procumbens) extract (root).............. 100 mg(standardized to contain 5% harpagosides)........................ (5 mg)
turmeric (Curcuma longa) extract ................................................. 100 mg(standardized to contain 95% curcuminoids).................... (95 mg)
ascorbyl palmitate (fat-soluble vitamin C) ....................................... 40 mg

4 capsules per day, in divided doses, with 8–10 oz water, with meals.

He advised these for my joint pain issues, as for a long time, those were my main issues. Seems to be possibly a bit much in the curcuma root range. I'd never questioned these supplements and now I see that the glucosamine supplement I'm taking also contains crab and shrimp. I was actually nearly hospitalized because of a reaction to crab about 35 years ago. I had maybe never eaten crab before and I was the only person who got sick from the dinner so I haven't eaten crab since then, although I still eat shrimp occasionally with no problems. AND I'm also supposed to refrigerate this after opening - and take it in divided doses w/8-10oz.water/meals - I never did that!!!

I wonder how many of us take things regularly w/o thinking. I wouldn't have ever seen this if I hadn't been originally going to reply to this thread by saying that my DH buys curcumin at an herbal store and fills vegetable capsules using the Cap-m-quik filling system.

I'm tempted to go out and buy some crab for dinner just to see if crab was the problem. I thought I was so smart and careful, this never ends.

Tex, seriously, we here need to petition PBS to start a "Food Detectives" program. I've just recently lost a direct connection to a long-time friend who hosted a show on my local station who lost her job there because of issues unrelated to her actual performance/job as a host, but was political and was unfair. I'm not involved in any way in that "controversy", and I still have contacts there.

I know PBS has undergone huge changes in the past few years and I won't go political here, as I know it's prohibited and I am very political, but the history of this isn't surprising. The drug companies are now major contributors to PBS and what used to be commercial free programming now includes "acknowledgements to sponsors" at every break.

I will start a drive here for "food detectives", anyone else here think it's a good idea? That's IF the drug company sponsors don't already have control of PBS, and I'm skeptical.
Resolved MC symptoms successfully w/L-Glutamine, Probiotics and Vitamins, GF since 8/'09. DX w/MC 10/'09.
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Post by Bifcus16 »

tex wrote:
Lyn wrote:This can apply if you have a bathroom accident while taking it. Turmeric D is the pits.
Hmmmmmm. I suppose the lazy way out would be to just paint the bathroom yellow. :lol:

Thanks for the clarification. I always wondered how much difference there was in the two items - apparently the difference is huge.

Tex
Not just paint the bathroom, but wear yellow clothes as well. :ROFL:

The capsules do have a tendency to leak just a little bit, just occasionally. A tiny bit of that yellow colouring gets on your hands while you are taking the tablets, and suddenly you find are wearing yellow, regardless of what you thought you put on that day. :oops:

Maybe I exaggerate just a little with the amount you need to take. But not much.

Seriously, Turmeric contains about 5% curcumin. The people I associate with take about 8 grams of curcumin a day - that means you need 160 grams of turmeric per day. The standard supermarket spice bottle in my part of the world is 28 grams, so that is five and a half bottles of the stuff you would need to eat per day. And because of the way the bioavailability works, you really want to take that all at once to get the maximum effect. Congratulations if you can do that without gagging.

I remember one time I tried to candy some turmeric, since it is a form of ginger and candied ginger is fine. If it worked that sounded like a nice way to take it. It was truly disgusting. Like eating candied dirt, is the best description. :mad:

For what it is worth, there is a form called C3 complex which seems to get the best results.

Lyn
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Post by Lesley »

I ordered the one recommended to me. I got it at a pretty good price. I hope it helps, otherwise my neighbor will be only too glad to buy it off me at the price I paid.

Connie, I am so with you on all counts. All!
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Post by henrym »

Hi Stanz,

Thanks for your reply!
This scalp problem I am having is very annoying and I am also loosing hair because of it :(
I started using curcumin because I've read that it could cure the inflammation.. but then I started to get
huge flare ups of D (never had problems before) with even worse scalp problems! and after a couple of weeks I had to stop taking the curcumin
because it was going really bad.
The D didn't go away and it took over a year (with terrible D) to find out that I had LC...

Ever since I've been taking the entocort, my D is gone (i have some occasional flare ups)..
Now I am already 2 months on the gf diet and I am getting weekly b12 injections.
Further I am using 5000 IU D3, 500mg C, B complex, and omega3.
I started using a magnesium/potassium supplement, but it seems to give me headaches. I was diagnosed with meniere disease and
apparantly too much potassium worsens the ear problems.. (low b12 too)

I would like to solve this scalp problem but I am afraid to start using the curcumin again...
Is there anything else I can do?

Also I want to stop using the entocort... I've ordered L-glutamine, hopefully that speeds up the recovery..
henrym
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Post by henrym »

tex wrote:
Maybe, or Claritin, or Benadryl, etc.

Tex
Back in Germany!
I went through my medicine cabinet and found a bottle of anti histamine of the brand Assured (bought in the us a year ago).
It used the same active ingredient as Benadryl, Diphenhydramine HCL 25mg, it doesn't list any other ingredients.
Is that a good antihistamine to use?
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Post by tex »

It seems to work for most of us. The biggest problem with it is that it causes drowsyness. It works good at night - some people take it as a sleep-aid.

Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Post by Gloria »

henrym wrote:It used the same active ingredient as Benadryl, Diphenhydramine HCL 25mg, it doesn't list any other ingredients.

May I ask what is the name of the antihistamine? I've been looking all over for an antihistamine with Diphenhydramine HCL and no other ingredients. Are there additional inactive ingredients? That's usually where the problem is for me.

Gloria
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Post by Leah »

Hi Henry. I'm also very new to this diagnosis and this great site. I am on a drug called colozal ( non-steriod) It does seem to help, but I am still trying to figure out what I can and cannot eat. Dairy, salad, fiber, and caffeine were the first things to go. Just taking those things out has helped a lot, but I know I will have to try the gluten free thing soon. Potatoes, sweet potatoes, and white rice seem to be great and help a lot to stay full and energized.
Good luck and keep us posted.
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Post by tex »

:cowboy:

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Post by Gloria »

Thanks, Tex. I'm having a hard time right now. It seems that the inactive ingredients in all antihistamines upset my gut. I can't seem to find the inactive ingredients in this brand, but there is a Dollar Tree store in the next town. I can look there. I hate to ask a pharmacist to compound an antihistamine for me when I don't know for sure if it works.

I've made an appointment in a little over a week with my GI to see if he's finally learned anything about mast cells. Will let you know what he says.

Gloria
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