I have a question but I'm sure y'all have probably heard it a million times, what causes mc?
The reason I'm so confused is October of this past year I had went on a week long cruise, well before and during the cruise I was perfectly fine, but a few days after is when I started having severe d. How does it hit you just like that? I mean like I said I have had joint pains for as long as I can remember. But why the d all of a sudden?
I'm confused
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
Kelly,
Quite a few possibilities are suspected, including certain drugs, food-sensitivities, bacteria, parasites, stopping smoking, etc., but so far, none have actually been proven to cause the disease. I have a theory about what causes the disease, but I can't post it until after I've published the book that I'm writing. Hopefully, it will be ready to publish in just a few more weeks, and I'll be able to answer your question then.
Tex
Quite a few possibilities are suspected, including certain drugs, food-sensitivities, bacteria, parasites, stopping smoking, etc., but so far, none have actually been proven to cause the disease. I have a theory about what causes the disease, but I can't post it until after I've published the book that I'm writing. Hopefully, it will be ready to publish in just a few more weeks, and I'll be able to answer your question then.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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GF-aka Oma
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Kelly, my D started like that, one memorable weekend. I have no idea what triggered it at that particular time but in retrospect I was having other issues beforehand like acid reflux, lactose issues, joint pain, autoimmune stuff. The D finally got my attention enough to try and figure it all out. Deb
Hi K,
I had 15 years of preexisting joint pain prior to the D and then about 6 weeks of truly gut wrenching joint pain during healing. After about 12 weeks of GF my 15 years of preexisting joint pain was gone and has been gone for about 3 months. It is pretty amazing. I wake up in the morning and can wiggle my fingers without pain and at the end of the day after using my hands all day I can wiggle my fingers without pain. With time you may see a reduction of joint pain by going GF. Interesting the last 2-3 years prior to D I could tell my joint pain was worse the day after eating a plate of wheat based pasta. Good luck, Brandy
I had 15 years of preexisting joint pain prior to the D and then about 6 weeks of truly gut wrenching joint pain during healing. After about 12 weeks of GF my 15 years of preexisting joint pain was gone and has been gone for about 3 months. It is pretty amazing. I wake up in the morning and can wiggle my fingers without pain and at the end of the day after using my hands all day I can wiggle my fingers without pain. With time you may see a reduction of joint pain by going GF. Interesting the last 2-3 years prior to D I could tell my joint pain was worse the day after eating a plate of wheat based pasta. Good luck, Brandy
D.
Kelly, my D also started very suddenly, but looking back on it, I was having "digestion issues" for many years. Most people don't pay attention to the gas, bloating, and noises. I did to the point of taking pro-biotics and Enzymes, but never thought it was the start of something serious.They were probably all early signs that I was eating things i shouldn't (although I was eating a very "healthy" diet).
Leah
Leah
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natythingycolbery
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- Location: York, United Kingdom
I went to bed one day perfectly fine, the next day I was stuck on the toilet all day, and everyday for the 8 weeks after that until I was diagnosed! Mine was suspected to have been triggered by AD's and long term NSAID abuse. I was one of the lucky few who just had to make a small change to achieve remission. Unfortunatley I now have issues with a lot of food so am having to change my diet.
'The more difficulties one has to encounter, within and without, the more significant and the higher in inspiration his life will be.' Horace Bushnell
Diagnosed with MC (LC) Aug 2010
Diagnosed with MC (LC) Aug 2010
Kelly,
My D started suddenly also. Memorial Day weekend 2008. I thought I had food poisoning, went to the doctor, had tests, antibiotics, etc. No help from the medical community until I was diagnosed with MC 18 months later, and started on Entocort. That gave me an taste of what life ought to be like, so with the help of people here, I got started on a gluten-free diet, then later dairy and soy free, and now things are pretty good, with the help of an occasional Imodium.
I can now look back, and say, "Oh, this and that and the other thing might have been related," but I had never had digestive problems until then. No gas, bloating, or anything like that. I had developed arthritis in my hands (just like my mom and grandma!) a few years earlier, but that was helped by glucosamine. I have also had headaches much of my adult life--not migraines, but bad headaches--but that too seemed to run in my family.
I rarely have headaches any more. I still take glucosamine, because I don't want the hand pain to come back. I suppose they were all related to gluten.
So, I don't know what caused my MC, but the D was a symptom that started overnight.
Love,
Martha
My D started suddenly also. Memorial Day weekend 2008. I thought I had food poisoning, went to the doctor, had tests, antibiotics, etc. No help from the medical community until I was diagnosed with MC 18 months later, and started on Entocort. That gave me an taste of what life ought to be like, so with the help of people here, I got started on a gluten-free diet, then later dairy and soy free, and now things are pretty good, with the help of an occasional Imodium.
I can now look back, and say, "Oh, this and that and the other thing might have been related," but I had never had digestive problems until then. No gas, bloating, or anything like that. I had developed arthritis in my hands (just like my mom and grandma!) a few years earlier, but that was helped by glucosamine. I have also had headaches much of my adult life--not migraines, but bad headaches--but that too seemed to run in my family.
I rarely have headaches any more. I still take glucosamine, because I don't want the hand pain to come back. I suppose they were all related to gluten.
So, I don't know what caused my MC, but the D was a symptom that started overnight.
Love,
Martha
Martha
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humbird753
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My D also started suddenly. Woke up Aug. 3, 2009 and it never stopped. Even when I look back, I cannot see any symptoms of digestive or any other autoimmune issues.
I also look forward to seeing Tex's book.
I believe you have come to the right place for answers.
Paula
I also look forward to seeing Tex's book.
I believe you have come to the right place for answers.
Paula
Paula
"You'll never know how strong you are until being strong is the only choice you have."
"Life is not about waiting for the storm to pass... It's learning to dance in the rain."
"You'll never know how strong you are until being strong is the only choice you have."
"Life is not about waiting for the storm to pass... It's learning to dance in the rain."
Hi Kelly,
Welcome to the site. You really have come to the right place. Just like everyone here, I became ill one evening, thought it was food poisoning (so did my doctor). I was intensely nauseated and cramping with pencil thin stools. I dehydrated within hours and had to go get IVs. It took me a week to recover from this episode. I thought things were fine and then 2 weeks later got hit with the same thing. This time I knew this was a trend and that first episode was not some isolated incident. With the second flare I remained sick for 6 weeks- it was like having a stomach and intestinal virus every day. During that time I had a colonoscopy and other tests run and the biopsies were positive for LC. My PCP started me on Prednisone and that helped until I could get to a GI and started Entocort. I wouldn't recommend prednisone, but I would recommend Entocort if you find you need that. It's effective in getting your immune system to back off and the side effects are minimal in my experience.
I have always had seasonal allergies but I wasn't having any digestive trouble before that. I had been using ibuprofen daily for sinus headaches and that may have been a contributing factor. I have Lymphocytic colitis that is more C dominant than D but D is the most common symptom among our members here.
I think when others think there is nothing wrong with you it's denial on their part, that someone so young and who appears otherwise healthy could get so awfully sick. But it's very real and that's where this support group is so vital. I'm much older than you and I can tell you that at the onset of my illness I was genuinely afraid that I would not be able to get back to work full-time, and at times was afraid that I might end up on disability. That was in August of 2011- 7 months ago. Now I no longer worry about those things. Like everyone had said, it does take time but you will get better with the diet changes, starting with eliminating gluten, probably followed by dairy and soy (the next two more common allergens). Some of us react to eggs too. Some members have found it effective to start their day with one or 2 Immodium. Just keep working on it and you will find a 'formula' that works for you. I also ditched caffeine, sugar, artificial sweeteners, foods that were acidic and anything with fiber. I am just now adding some fiber back into my diet... very slowly.
Hang in there-- you are not alone. Keeping reading and asking questions. There is a very knowledgeable group here and everyone is willing to help.
Carol
Welcome to the site. You really have come to the right place. Just like everyone here, I became ill one evening, thought it was food poisoning (so did my doctor). I was intensely nauseated and cramping with pencil thin stools. I dehydrated within hours and had to go get IVs. It took me a week to recover from this episode. I thought things were fine and then 2 weeks later got hit with the same thing. This time I knew this was a trend and that first episode was not some isolated incident. With the second flare I remained sick for 6 weeks- it was like having a stomach and intestinal virus every day. During that time I had a colonoscopy and other tests run and the biopsies were positive for LC. My PCP started me on Prednisone and that helped until I could get to a GI and started Entocort. I wouldn't recommend prednisone, but I would recommend Entocort if you find you need that. It's effective in getting your immune system to back off and the side effects are minimal in my experience.
I have always had seasonal allergies but I wasn't having any digestive trouble before that. I had been using ibuprofen daily for sinus headaches and that may have been a contributing factor. I have Lymphocytic colitis that is more C dominant than D but D is the most common symptom among our members here.
I think when others think there is nothing wrong with you it's denial on their part, that someone so young and who appears otherwise healthy could get so awfully sick. But it's very real and that's where this support group is so vital. I'm much older than you and I can tell you that at the onset of my illness I was genuinely afraid that I would not be able to get back to work full-time, and at times was afraid that I might end up on disability. That was in August of 2011- 7 months ago. Now I no longer worry about those things. Like everyone had said, it does take time but you will get better with the diet changes, starting with eliminating gluten, probably followed by dairy and soy (the next two more common allergens). Some of us react to eggs too. Some members have found it effective to start their day with one or 2 Immodium. Just keep working on it and you will find a 'formula' that works for you. I also ditched caffeine, sugar, artificial sweeteners, foods that were acidic and anything with fiber. I am just now adding some fiber back into my diet... very slowly.
Hang in there-- you are not alone. Keeping reading and asking questions. There is a very knowledgeable group here and everyone is willing to help.
Carol
“.... people will forget what you said, people will forget what you did, but people will never forget how you made them feel.” Maya Angelou