Update

kitty16 · Post by **kitty16** » Sun May 13, 2012 12:08 pm

Hi,

I have been on 30mg of prednisone and 6mg of entocort since last wednesday. According to gastro this was supposed to give me relief from diarrhea. Well Im still having more than 8 BM a day now granted they are not mushy anymore but come on. Was I expecting to much I do tend to be impatient. They also switched my colonoscopy to Friday so I guess I will just stay on these pills til then. Anyone have similar experience with the "Miracle drug"

Thanks, K

Was I expecting to much to soon I am impatient.

Post by **tex** » Sun May 13, 2012 2:17 pm

Prednisone plus budesonide should have brought better control by now. It doesn't appear to be working very well for you.

The question is "Why?" Are you taking any other drugs that can trigger MC, such as a PPI, SSRI, SNRI, statin, beta blocker, bisphosphonate or HRT?

Tex

kitty16 · Post by **kitty16** » Sun May 13, 2012 2:35 pm

Hi Tex

He did give me a PPI to take with the prednisone but I realized after the first day it was causing problems, so I stopped that was 4 days ago. Does stress effect MC and crohns that might explain it . I just keep getting this feeling that there is something wrong that they are missing.

Thanks for answering,
K

Post by **tex** » Sun May 13, 2012 4:01 pm

Kitty wrote:Does stress effect MC and crohns that might explain it .

Yes it does. Stress has a very big effect.

You're most welcome,
Tex

kitty16 · Post by **kitty16** » Sun May 13, 2012 4:36 pm

AAKKK I just also realized have not been feeling to well so without thinking slipped back into my old habit have been eating crackers regular crackers.

sigh I keep trying to learn

Thanks

K

Joefnh · Post by **Joefnh** » Sun May 13, 2012 4:43 pm

Kitty you would think that combo would knock it out quickly. How are you doing avoiding gluten, soy and dairy? Even with meds a sensitive reaction to those can be problematic.

Your right stress is a big factor...

kitty16 · Post by **kitty16** » Sun May 13, 2012 5:10 pm

Hi Joe

I also tried almond milk and added bananas over these past few day I will stop both. Im confused the more medicine I take the worse it gets. I'am stressing over the colonoscopy I know its not a big deal just have to juggle work and other things now.

Thanks,

K

maestraz · Post by **maestraz** » Sun May 13, 2012 8:56 pm

Kitty,

RE: your comment about the more medicine you take the worse it gets...

I will just tell you that both my PCP and GI docs agree that, in treating my LC, less is more. Their goal is to have me on the least number of prescription meds possible, and to put me in total control of a diet that makes me feel well. No question from either of them that diet is the key factor in treatment.

After the last year with LC, I totally believe that many of the meds we have been made to think would help us with various conditions, only make us sicker.

Here are the meds I've eliminated, with very good results: Fosamax (for bone density), all NSAID pain relievers including Celebrex, Celexa (an SSRI anti-depressant). After a year of Entocort, I have weaned myself off, and my GI doc wants me to try Colazal/balsalazide for a while. Since last week, no problem with four 750 mg tabs/day (which is half the dose originally prescribed during a flare a year ago).

All of us walk the MC/LC/CC path individually, but not alone. That's one of the lessons I've learned from folks here.

Stress is a definite trigger for me, and I have to trouble-shoot those situations. Immodium is my fallback med.

Leah · Post by **Leah** » Sun May 13, 2012 9:17 pm

Oh no Kitty! Try to eat as simply as possible during this time. I hope this gets better soon.

Leah

kitty16 · Post by **kitty16** » Mon May 14, 2012 3:30 am

thank you all

I agree I went from being a woman on no meds to taking waaayyy to many. Im back to just plain rice and chicken.