So after 2 days of what I thought was all the medicine (entocort and prednisone) kicking in having lesser BM and all Normans the WD returned with a vengence up all night.
Does any one else here not respond to this very strong medicine or on a dose of prednisone over 30mg,
Do any of you think this is something other than MC and crohns
I have my colonoscopy Friday and I would like to walk in there armed with as much info as possible.
Desperate
K
Sorry another question???
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Kitty,
There is a possibility that you might have a C. diff infection, especially if you are having painful cramping and/or blood in the stool. Neither Entocort nor prednisone would provide any control if a C. diff infection is the problem. If I were in your shoes, I would ask my doctor to do a C. diff culture test immediately.
Also, please be aware that the culture tests for C. diff are not very sensitive, and often the test has to be repeated 2 or 3 times before a positive result will be detected.
Good luck with this. IMO, C. diff is a strong possibility that should definitely be checked out. In fact, if I were in your shoes, I would postpone the colonoscopy exam until after the C. diff test has either returned a positive result, or returned a negative result at least 3 times. The colonoscopy exam may be unnecessary (and unproductive) if C. diff is causing your symptoms.
Tex
There is a possibility that you might have a C. diff infection, especially if you are having painful cramping and/or blood in the stool. Neither Entocort nor prednisone would provide any control if a C. diff infection is the problem. If I were in your shoes, I would ask my doctor to do a C. diff culture test immediately.
Also, please be aware that the culture tests for C. diff are not very sensitive, and often the test has to be repeated 2 or 3 times before a positive result will be detected.
Good luck with this. IMO, C. diff is a strong possibility that should definitely be checked out. In fact, if I were in your shoes, I would postpone the colonoscopy exam until after the C. diff test has either returned a positive result, or returned a negative result at least 3 times. The colonoscopy exam may be unnecessary (and unproductive) if C. diff is causing your symptoms.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Thank you Tex,
I appreciate all your info. I was tested a few months ago for c diff but as you just told me the results may be a false negative . the gastro told me that during this colonoscopy he was going to be able to take samples to again run c-diff. If they are again negative I will ask to have a re test with my primary. I had been put on xifaxcon which I think was for infection again this was early on and did not help.
I'am still having some problems with eating gf sf df Yesterday I ate at a place I always do ordered the same roasted chicken I always do. Noticed a different taste questioned and found out they used baste on it made with soy sauce. I only ate a few bites do you think I could of reacted so violently???
All I know is Im getting sicker by the day,and much more scared. Does anyone think I should push for a cat scan.
Again thank you for being sow wise and sharing all you info.
Hugs,
K
I appreciate all your info. I was tested a few months ago for c diff but as you just told me the results may be a false negative . the gastro told me that during this colonoscopy he was going to be able to take samples to again run c-diff. If they are again negative I will ask to have a re test with my primary. I had been put on xifaxcon which I think was for infection again this was early on and did not help.
I'am still having some problems with eating gf sf df Yesterday I ate at a place I always do ordered the same roasted chicken I always do. Noticed a different taste questioned and found out they used baste on it made with soy sauce. I only ate a few bites do you think I could of reacted so violently???
All I know is Im getting sicker by the day,and much more scared. Does anyone think I should push for a cat scan.
Again thank you for being sow wise and sharing all you info.
Hugs,
K
Yes, most people who are sensitive to soy react to even a very small trace of it, such as a tiny amount in a vitamin pill.kitty wrote:I only ate a few bites do you think I could of reacted so violently???
I know the feeling. I felt the same way before I started making progress with my diet. When I first went to see my doctor about my symptoms, he examined me and immediately told me that I had colon cancer, so he sent me to a GI specialist. The first thing the GI doc did was to palpate my gut and confirm the cancer diagnosis, and then he sent me to to be prepped for a CAT scan, immediately. Unfortunately, they didn't learn anything from the scan, except that the walls of my colon appeared to be much thicker than normal (but they didn't have the foggiest idea why). I eventually went through just about every test that they had, ending with a colonoscopy. After all the tests, the GI specialist ruled out cancer, and said there was nothing wrong with me. He never bothered to take any biopsies, and back in those days (this was 12 years ago), I didn't know any better, either.kitty wrote:All I know is Im getting sicker by the day,and much more scared. Does anyone think I should push for a cat scan.
The problem with trying to get C. diff specimens during a colonoscopy is that while C. diff does indeed most often infect the large intestine, small intestinal infection is becoming an increasingly common problem, and a small bowel C. diff infection isn't likely be detected from samples taken from the large bowel. It's generally more difficult to diagnosis, and therefore more likely to escape detection.
http://bjr.birjournals.org/content/82/983/890.full.pdf
Yes, the rifaximin (Xifaxan) treatment was probably intended to eradicate a possible C. diff infection, but even if it worked, reinfection is common, especially if you didn't start taking a good probiotic as soon as the antibiotic treatment was completed, and continue taking it for at least a couple of weeks. Also, some strains of C. diff are resistant to rifaximin. Vancomycin is still the most reliable treatment for antibiotic-resistant C. diff.
Hugs,
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
My Thanks again,
I looked up C-dif and it does sound like the things that I have been going through. Im also having a upper GI with small bowel follow through early next week, dont know if anything will show up with that kind of test. No I did not take any probiotics they said that was one of the things that may actually be causing the D. The problem is with all the meds they have tried I seem to feel better for a day or two and then a major relapse.
I will let everyone know what happens after the colonoscopy.
You are quite an amazing person Mr. Tex. glad to have found you here.
Hugs,
K
I looked up C-dif and it does sound like the things that I have been going through. Im also having a upper GI with small bowel follow through early next week, dont know if anything will show up with that kind of test. No I did not take any probiotics they said that was one of the things that may actually be causing the D. The problem is with all the meds they have tried I seem to feel better for a day or two and then a major relapse.
I will let everyone know what happens after the colonoscopy.
You are quite an amazing person Mr. Tex. glad to have found you here.
Hugs,
K