Newbie ready for your help
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natythingycolbery
- Rockhopper Penguin
- Posts: 590
- Joined: Tue Aug 31, 2010 5:23 pm
- Location: York, United Kingdom
Have you been tested for any other food intolerances? You could still be eating something that doesn't agree with your digestive system.
'The more difficulties one has to encounter, within and without, the more significant and the higher in inspiration his life will be.' Horace Bushnell
Diagnosed with MC (LC) Aug 2010
Diagnosed with MC (LC) Aug 2010
with Katy. The mostly likely suspect is the protein in all dairy products, but about half of us are also sensitive to anything that contains any ingredients derived from soy.Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Why do another colonoscopy? The problem with followup colonoscopies is that the cleanout solution is so caustic that it has been known to cause a few members who had been in remission for years, to relapse. 
Certain cleanout solutions have been taken off the market, because they have been documented to actually cause MC, in previously healthy individuals, and the fact of the matter is, the remaining products are not much safer, because no one has ever come up with a safe alternative.
Anyway the point is, the only reason most of us do colonoscopies, is as part of regular cancer screening. There's little value in a followup for MC, because there is no cure, so it will always be there, either active or latent. If it's active, you'll know it by the symptoms, and if it's in remission, all that most of us have to do in order to relapse, is to start eating the foods that trigger our symptoms, or stop taking a maintenance medication. Unless your last colonoscopy showed polyps, the only reason for another colonoscopy, is cancer screening, on a 5 year or so basis, depending on your age.
Gastroenterologists who request followup colonoscopies for MC, simply don't know much about the disease, and they're using their patients as guinea pigs, to try to learn more about the disease. Most of us simply decline, rather than to meekly submit to such an unnecessary, expensive, risky, and invasive exam. Over the years, I can recall many members who agreed to a followup exam, just to humor their doc, but the exam was always a waste of time and money - they never found any new information. An experienced GI doc, who knows what he or she is doing, will virtually never request a followup exam for a patient with MC, (except for the regular cancer screening exams, of course).
If you allow another colonoscopy exam, and the inflammation is below the level to qualify for a diagnosis of LC, the doctor will try to tell you that you no longer have MC, and that's absolutely ridiculous, because once the genes are triggered, the disease is forever. They just don't understand the disease, so they hand out incorrect information.
Tex
Certain cleanout solutions have been taken off the market, because they have been documented to actually cause MC, in previously healthy individuals, and the fact of the matter is, the remaining products are not much safer, because no one has ever come up with a safe alternative.Anyway the point is, the only reason most of us do colonoscopies, is as part of regular cancer screening. There's little value in a followup for MC, because there is no cure, so it will always be there, either active or latent. If it's active, you'll know it by the symptoms, and if it's in remission, all that most of us have to do in order to relapse, is to start eating the foods that trigger our symptoms, or stop taking a maintenance medication. Unless your last colonoscopy showed polyps, the only reason for another colonoscopy, is cancer screening, on a 5 year or so basis, depending on your age.
Gastroenterologists who request followup colonoscopies for MC, simply don't know much about the disease, and they're using their patients as guinea pigs, to try to learn more about the disease. Most of us simply decline, rather than to meekly submit to such an unnecessary, expensive, risky, and invasive exam. Over the years, I can recall many members who agreed to a followup exam, just to humor their doc, but the exam was always a waste of time and money - they never found any new information. An experienced GI doc, who knows what he or she is doing, will virtually never request a followup exam for a patient with MC, (except for the regular cancer screening exams, of course).
If you allow another colonoscopy exam, and the inflammation is below the level to qualify for a diagnosis of LC, the doctor will try to tell you that you no longer have MC, and that's absolutely ridiculous, because once the genes are triggered, the disease is forever. They just don't understand the disease, so they hand out incorrect information.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Barbara Maresca
- Posts: 8
- Joined: Fri Dec 09, 2011 1:58 pm
Due to a recent flair up with severe pain my doctor stopped Asacol and Entercort completely. New drug is Lomotil up to 6 times a day. I am going to a new gastro dr. this Friday and hope I get some answers. Has anyone used Lomotil? Has it been effective? Right now I'm going 12 to 15 times a day...What a mess. Please help.
lymphocytic colitis, gluten free
I am reading lots of information about using coconut oil to treat and reverse dementia and alzheimers. Patients take a couple of spoonfuls a day, from what I recall, and they can notice a difference when they miss doses. Many here with MC also cook with coconut oil, or eat it plain to maintain weight and benefit from it's healing, soothing effects.raemckee wrote:Also, is anyone else concerned about long term care insurance and medical ID bracelets? I have a family history for dementia, alzheimers and glaucoma.