I first joined in 2004 have been away from this board for several years (which, with this disease, is a GOOD sign!) but I'm back (which is a bad sign). I have to wonder how many of the old gang from 2004 is still around and active on here.... I need to find some time to get reacquainted with this forum and the people!
Quick question first: is there any way to access the old posts from the old forum (from 2004 to 2005)? I would love to go back and read what I wrote during those awful first few months of this disease but I think we changed servers or forum hosts sometime in June 2005. Are all the posts written prior to that gone or are they in an archive somewhere?
Would be great to compare my symptoms and experiences from the first time to the flare up I'm having now.
Thanks, and glad to be back? (Glad to be around a great group of people again, not so glad it's because of a flare up).
Sue
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Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
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Sue
Diagnosed November 2004, Used Asacol and Lialda, sometimes worked, sometimes made it worse. Entocort always works but hate it. Remission only lasts 3-6 months and then back on Entocort. Enterolab test July 2017, now gluten free. Time will tell!
Diagnosed November 2004, Used Asacol and Lialda, sometimes worked, sometimes made it worse. Entocort always works but hate it. Remission only lasts 3-6 months and then back on Entocort. Enterolab test July 2017, now gluten free. Time will tell!
Hi Sue,
Sure we remember you. How could we forget a member of the family? Welcome back.
Regarding your question about Sally's old board, the short answer is no, those posts are gone forever. I bought that domain last year, thinking that Andy (the admin of that board) still had a backup copy of the database that he would sell me, so that the board could be restored. Unfortunately, either due to technical naivety, or a "senior" moment, he failed to keep a backup of the database, so all of the data were lost. All that's left of the domain is the name
That said, it's possible to access certain "snapshots" of the board, taken by archiving services at various times over the years. I'll try to track down some of those archives, later, when I have more time.
Sorry you're having problems, but we're always glad to see familiar faces from the past.
Tex
Sure we remember you. How could we forget a member of the family? Welcome back.
Regarding your question about Sally's old board, the short answer is no, those posts are gone forever. I bought that domain last year, thinking that Andy (the admin of that board) still had a backup copy of the database that he would sell me, so that the board could be restored. Unfortunately, either due to technical naivety, or a "senior" moment, he failed to keep a backup of the database, so all of the data were lost. All that's left of the domain is the name
That said, it's possible to access certain "snapshots" of the board, taken by archiving services at various times over the years. I'll try to track down some of those archives, later, when I have more time.
Sorry you're having problems, but we're always glad to see familiar faces from the past.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Wow..... you are amazing..... still there keeping a close eye on the board, responding to posts quickly, and offering warmth and comfort, even after all these years.
Please don't go to too much trouble (and definitely no expense!) to try and access snapshots. I figured it was a long shot that any of the old posts would be available but it was worth asking. I'm just curious if my initial experience was the same as the one I'm having now, how I handled it, how long things took, what I ate, etc.
Another question and one I can't find an answer to by Googling: The Imodium "Multi Symptom" product that is available...... why is it so important (or IS IT so important) that it be taken on any empty stomach and that you don't eat anything for at least an hour after?
It doesn't say that on the regular imodium and it doesn't say that on any of the gas caplets I've used, so why when you combine the two do you have to be empty and stay empty? Any ideas?
Sue
Please don't go to too much trouble (and definitely no expense!) to try and access snapshots. I figured it was a long shot that any of the old posts would be available but it was worth asking. I'm just curious if my initial experience was the same as the one I'm having now, how I handled it, how long things took, what I ate, etc.
Another question and one I can't find an answer to by Googling: The Imodium "Multi Symptom" product that is available...... why is it so important (or IS IT so important) that it be taken on any empty stomach and that you don't eat anything for at least an hour after?
It doesn't say that on the regular imodium and it doesn't say that on any of the gas caplets I've used, so why when you combine the two do you have to be empty and stay empty? Any ideas?
Sue
Sue
Diagnosed November 2004, Used Asacol and Lialda, sometimes worked, sometimes made it worse. Entocort always works but hate it. Remission only lasts 3-6 months and then back on Entocort. Enterolab test July 2017, now gluten free. Time will tell!
Diagnosed November 2004, Used Asacol and Lialda, sometimes worked, sometimes made it worse. Entocort always works but hate it. Remission only lasts 3-6 months and then back on Entocort. Enterolab test July 2017, now gluten free. Time will tell!
Sue,
I'm not familiar with that Imodium product. Maybe someone else has some information on it.
I found a few captured "snapshots" of the old board that contained posts in some of the forums. Apparently there was something wrong with the algorithm used to capture those archives, because there are a number of other "snapshots" available that do not contain any posts, (at least, I didn't find them if they are there). The ones that I was able to locate are listed below. There may be others that I overlooked, because I didn't check every forum in every "snapshot".
Here's one where a lot of the posts have been captured:
June 12, 2004
http://web.archive.org/web/200406120351 ... rd=_master
Posts are available to view on some of the forums, such as:
http://web.archive.org/web/200406250457 ... Discussion
Here's another, and this one seems to contain the most data, by far:
Aug 10, 2004
http://web.archive.org/web/200408101424 ... rd=_master
For example, these forums have a lot of topics for which the posts are available. I didn't check all of the others, but apparently a lot more of the forums on this particular capture contain the original posts.
http://web.archive.org/web/200408210307 ... sage_Board
http://web.archive.org/web/200408102329 ... Discussion
http://web.archive.org/web/200408102233 ... uses_of_MC
http://web.archive.org/web/200408210254 ... rs_Stories
http://web.archive.org/web/200408110003 ... her_Ha_Has
Here's another:
Jan 2, 2007
http://web.archive.org/web/200701020129 ... rd=_master
There are a few posts here:
http://web.archive.org/web/200701020130 ... sage_Board
This is the latest dated one that I could find that contained any posts:
October 10, 2007
http://web.archive.org/web/200710102205 ... rd=_master
For exampe, on this forum:
http://web.archive.org/web/200710102207 ... sage_Board
Tex
I'm not familiar with that Imodium product. Maybe someone else has some information on it.
I found a few captured "snapshots" of the old board that contained posts in some of the forums. Apparently there was something wrong with the algorithm used to capture those archives, because there are a number of other "snapshots" available that do not contain any posts, (at least, I didn't find them if they are there). The ones that I was able to locate are listed below. There may be others that I overlooked, because I didn't check every forum in every "snapshot".
Here's one where a lot of the posts have been captured:
June 12, 2004
http://web.archive.org/web/200406120351 ... rd=_master
Posts are available to view on some of the forums, such as:
http://web.archive.org/web/200406250457 ... Discussion
Here's another, and this one seems to contain the most data, by far:
Aug 10, 2004
http://web.archive.org/web/200408101424 ... rd=_master
For example, these forums have a lot of topics for which the posts are available. I didn't check all of the others, but apparently a lot more of the forums on this particular capture contain the original posts.
http://web.archive.org/web/200408210307 ... sage_Board
http://web.archive.org/web/200408102329 ... Discussion
http://web.archive.org/web/200408102233 ... uses_of_MC
http://web.archive.org/web/200408210254 ... rs_Stories
http://web.archive.org/web/200408110003 ... her_Ha_Has
Here's another:
Jan 2, 2007
http://web.archive.org/web/200701020129 ... rd=_master
There are a few posts here:
http://web.archive.org/web/200701020130 ... sage_Board
This is the latest dated one that I could find that contained any posts:
October 10, 2007
http://web.archive.org/web/200710102205 ... rd=_master
For exampe, on this forum:
http://web.archive.org/web/200710102207 ... sage_Board
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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MaggieRedwings
- King Penguin
- Posts: 3865
- Joined: Tue May 31, 2005 3:16 am
- Location: SE Pennsylvania
Tex, thanks SO MUCH for taking the time and trouble to post those links to snapshots! I'm sure that was no easy task and I'm amazed that you were able to get as much as you did!
Unfortunately I don't think I'm going to find my "beginning" posts because I think I signed onto the board in November of 2004.....none of the links seem to hit that time frame. However, there are LOTS of good things to read in what you found ..... some that I never even saw the first time around so thank you!
Maggie, thanks for the welcome. This flare up / relapse has really knocked me on my @ss (literally and figuratively) and I'm very angry at it. But I try to remind myself that I had a REALLY good run for a very long time so I should count my blessings and hope for a repeat performance sometime in the future.
I've got a lot of catching up to do and maybe I can help some newbies with my experiences so it's time to get my butt back in gear and get on here on a regular basis. I'm going to try to run an errand (the stomach rumbles seem to have quieted for the moment) but after that I will spend some time catching up.
See you soon.
Sue
Unfortunately I don't think I'm going to find my "beginning" posts because I think I signed onto the board in November of 2004.....none of the links seem to hit that time frame. However, there are LOTS of good things to read in what you found ..... some that I never even saw the first time around so thank you!
Maggie, thanks for the welcome. This flare up / relapse has really knocked me on my @ss (literally and figuratively) and I'm very angry at it. But I try to remind myself that I had a REALLY good run for a very long time so I should count my blessings and hope for a repeat performance sometime in the future.
I've got a lot of catching up to do and maybe I can help some newbies with my experiences so it's time to get my butt back in gear and get on here on a regular basis. I'm going to try to run an errand (the stomach rumbles seem to have quieted for the moment) but after that I will spend some time catching up.
See you soon.
Sue
Sue
Diagnosed November 2004, Used Asacol and Lialda, sometimes worked, sometimes made it worse. Entocort always works but hate it. Remission only lasts 3-6 months and then back on Entocort. Enterolab test July 2017, now gluten free. Time will tell!
Diagnosed November 2004, Used Asacol and Lialda, sometimes worked, sometimes made it worse. Entocort always works but hate it. Remission only lasts 3-6 months and then back on Entocort. Enterolab test July 2017, now gluten free. Time will tell!
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draperygoddess
- Rockhopper Penguin
- Posts: 558
- Joined: Mon Aug 29, 2011 6:49 am
- Location: Tennessee
Sue,
I have also wondered about the Immodium multi-symptom product and that prohibition against eating. I decided not to buy it for that reason--if I'm going to have a problem, I don't want to have to stop and think, "When's the last time I ate?" If I have to, I use Gas-X instead.
I have also wondered about the Immodium multi-symptom product and that prohibition against eating. I decided not to buy it for that reason--if I'm going to have a problem, I don't want to have to stop and think, "When's the last time I ate?" If I have to, I use Gas-X instead.
Cynthia
"Can we fix it? YES WE CAN!" -Bob the Builder
"Can we fix it? YES WE CAN!" -Bob the Builder
Hi Deb.Deb wrote:Hello Sue, I'm Deb....a very grateful member since 2010. I googled "Sue777 MC" and pulled up some of your posts from 2005, if that helps. Welcome back!
Thanks for the warm welcome, and for the tip on pulling up some old posts. Unfortunately it's the ones I wrote on the old site that I was hoping to access but most of those are gone forever. Ahhh well, no sense in trying to compare what I did then to what I'm dealing with now..... I'm sure my body has changed a lot and there's no guarantee that what worked then will work now, and vice versa. This disease likes to keep us guessing.
Sue
Sue
Diagnosed November 2004, Used Asacol and Lialda, sometimes worked, sometimes made it worse. Entocort always works but hate it. Remission only lasts 3-6 months and then back on Entocort. Enterolab test July 2017, now gluten free. Time will tell!
Diagnosed November 2004, Used Asacol and Lialda, sometimes worked, sometimes made it worse. Entocort always works but hate it. Remission only lasts 3-6 months and then back on Entocort. Enterolab test July 2017, now gluten free. Time will tell!
Isn't that strange???? And I can't find the answer anywhere, nor do I even find posts anywhere on the internet of others asking a similar question. You would think there would be someone else somewhere who took the warning seriously and asked about it. (shrug)draperygoddess wrote:Sue,
I have also wondered about the Immodium multi-symptom product and that prohibition against eating. I decided not to buy it for that reason--if I'm going to have a problem, I don't want to have to stop and think, "When's the last time I ate?" If I have to, I use Gas-X instead.
I bought some but after reading the instructions I was afraid to take it. Like you, I have enough issues to deal with and don't want to do anything to potentially make it worse. But I didn't go to work today so when I woke up I thought "today's the day to experiment" so I took one (after all my morning bathroom trips). It really did help a lot and I had a great day. I don't know if it was the Imodium MS or if my colon would have behaved anyway today but I think it was the Imodium MS.
I wish I knew if it just won't be as effective if mixed with food or if we'll have unpleasant side affects but again, I can't find that answer anywhere. Seems strange.... they don't warn you with regular imodium and they don't warn you with Gax-X, so why warn you when they combine the two?
Sue
Sue
Diagnosed November 2004, Used Asacol and Lialda, sometimes worked, sometimes made it worse. Entocort always works but hate it. Remission only lasts 3-6 months and then back on Entocort. Enterolab test July 2017, now gluten free. Time will tell!
Diagnosed November 2004, Used Asacol and Lialda, sometimes worked, sometimes made it worse. Entocort always works but hate it. Remission only lasts 3-6 months and then back on Entocort. Enterolab test July 2017, now gluten free. Time will tell!
Hi,
My question has always been; what happened to the previous members over the years. Did you ever reach remission and how did you do it? I know with this disease 2/3 go into spontaneous remission but I do not think I am one of them unless I follow a diet. I was hoping I would be one!
Thanks!
My question has always been; what happened to the previous members over the years. Did you ever reach remission and how did you do it? I know with this disease 2/3 go into spontaneous remission but I do not think I am one of them unless I follow a diet. I was hoping I would be one!
Thanks!
Denise
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draperygoddess
- Rockhopper Penguin
- Posts: 558
- Joined: Mon Aug 29, 2011 6:49 am
- Location: Tennessee
Denise,
There are several people here who have been in remission for a number of years--some of them went into remission using diet alone, while others needed the help of medication. I have only been here since last September, so I certainly don't have the experience many others do, but for me, what worked was a combination of changing my diet, discontinuing Zoloft, and adding a half dose of Zyrtec daily. (Apparently some of my issues are mast cell-related, and the Zyrtec seems to keep me on an even keel most of the time.)
There are several people here who have been in remission for a number of years--some of them went into remission using diet alone, while others needed the help of medication. I have only been here since last September, so I certainly don't have the experience many others do, but for me, what worked was a combination of changing my diet, discontinuing Zoloft, and adding a half dose of Zyrtec daily. (Apparently some of my issues are mast cell-related, and the Zyrtec seems to keep me on an even keel most of the time.)
Cynthia
"Can we fix it? YES WE CAN!" -Bob the Builder
"Can we fix it? YES WE CAN!" -Bob the Builder
Denise,Denise wrote:I know with this disease 2/3 go into spontaneous remission but I do not think I am one of them unless I follow a diet.
FWIW, the two old research studies that touted that conclusion are pure BS. I debunk them in the book I'm writing. Their conclusions were based on faulty methods and "creative" data selection. If so many people with MC experience spontaneous remission, considering that there are approximately a thousand members on this board, why can I count those who have enjoyed spontaneous remission on the fingers of one hand? Why do those of us who have had the disease for 10 years or longer still have to continue our treatment every day, if we want to remain in remission?
More recent studies have reached completely different conclusions than those two old studies. Remission after several years is not automatic, as was first claimed.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Hi there.
I was first diagnosed in 2004 (after months of suffering and tests and no one being able to find anything wrong with me). Finally the biopsy during a colonscopy confirmed collagenous colitis. My gastroenterologist started me on Asacol and I don't remember how long it took (that's why I've been trying to access my posts from 2004) but it worked (I'm guessing 4-6 weeks?) and I started getting my life back. I don't recall how soon after that I was eating anything I wanted (another reason I was hoping to find the old posts) but I know for the past 7 years or so I have never altered or chosen my diet based on colitis. I ate whatever, whenever, tons of fruits and vegetables, spicy foods, fried foods, dairy, very high-fiber foods, etc. and had better digestive health than I had ever had in my life.
Every year during my check up the doctor would tell me to experiment with cutting down my dosage of Asacol and whenever I did I would notice a negative affect within days so would quickly go back to my full dose. When I tried cutting back about 2 years ago I noticed no difference so I cut back even further (down to two Asacol tablets once a day) and did great... no issues whatsoever. I stayed that way for most of the two years and then this past January I decided I could probably discontinue the Asacol altogether. I did and everything was fine, for about 4 months. I was in total remission, eating everything and anything, with no medication. Then in Mid April, the problems started. I figured it was just a stomach bug (since so many others had one) but I soon could tell this was good ol' colitis rearing its ugly head again. I decided I should go back on the Asacol and then called my doc. He agreed I should go back to full dose, take Imodium to get things under control, and slowly try to remove the imodium after a few weeks to see if the Asacol were working or not. It's been about 4.5 weeks now since I went back on Asacol and I can see improvement but am by no means problem free. I am not even close to eating whatever I want..... I'm going against every grain in my being by having to eat white bread, potatoes, white rice, regular pasta, etc. I HATE IT! for the past several years I had sworn off all those high carb foods and now I'm forced to live on them (for a while).
I don't know if the Asacol will work this time or not. I'm definitely better than I was 4 weeks ago but I'm far from recovered. I only eat when I'm at home and hesitate to go anywhere that doesn't have a bathroom within running distance.
Do I know what ended my remission? I have a hunch but will never know for sure. My son got married on May 19th so the 2 months before the wedding were very busy, stressful, hectic, and high pressure. And that happened to be during the period when I was taking NO Asacol. Had I stayed on the one daily dose, would this have happened? I wish I knew.
So there you have it. Feel free to ask questions. The summary for my experience with this disease is: when I'm flaring, there is nothing I can eat, and when I'm in remission, there is nothing I can't eat!" Food doesn't really seem to make much of a difference for me.
Sue
I was first diagnosed in 2004 (after months of suffering and tests and no one being able to find anything wrong with me). Finally the biopsy during a colonscopy confirmed collagenous colitis. My gastroenterologist started me on Asacol and I don't remember how long it took (that's why I've been trying to access my posts from 2004) but it worked (I'm guessing 4-6 weeks?) and I started getting my life back. I don't recall how soon after that I was eating anything I wanted (another reason I was hoping to find the old posts) but I know for the past 7 years or so I have never altered or chosen my diet based on colitis. I ate whatever, whenever, tons of fruits and vegetables, spicy foods, fried foods, dairy, very high-fiber foods, etc. and had better digestive health than I had ever had in my life.
Every year during my check up the doctor would tell me to experiment with cutting down my dosage of Asacol and whenever I did I would notice a negative affect within days so would quickly go back to my full dose. When I tried cutting back about 2 years ago I noticed no difference so I cut back even further (down to two Asacol tablets once a day) and did great... no issues whatsoever. I stayed that way for most of the two years and then this past January I decided I could probably discontinue the Asacol altogether. I did and everything was fine, for about 4 months. I was in total remission, eating everything and anything, with no medication. Then in Mid April, the problems started. I figured it was just a stomach bug (since so many others had one) but I soon could tell this was good ol' colitis rearing its ugly head again. I decided I should go back on the Asacol and then called my doc. He agreed I should go back to full dose, take Imodium to get things under control, and slowly try to remove the imodium after a few weeks to see if the Asacol were working or not. It's been about 4.5 weeks now since I went back on Asacol and I can see improvement but am by no means problem free. I am not even close to eating whatever I want..... I'm going against every grain in my being by having to eat white bread, potatoes, white rice, regular pasta, etc. I HATE IT! for the past several years I had sworn off all those high carb foods and now I'm forced to live on them (for a while).
I don't know if the Asacol will work this time or not. I'm definitely better than I was 4 weeks ago but I'm far from recovered. I only eat when I'm at home and hesitate to go anywhere that doesn't have a bathroom within running distance.
Do I know what ended my remission? I have a hunch but will never know for sure. My son got married on May 19th so the 2 months before the wedding were very busy, stressful, hectic, and high pressure. And that happened to be during the period when I was taking NO Asacol. Had I stayed on the one daily dose, would this have happened? I wish I knew.
So there you have it. Feel free to ask questions. The summary for my experience with this disease is: when I'm flaring, there is nothing I can eat, and when I'm in remission, there is nothing I can't eat!" Food doesn't really seem to make much of a difference for me.
Sue
Sue
Diagnosed November 2004, Used Asacol and Lialda, sometimes worked, sometimes made it worse. Entocort always works but hate it. Remission only lasts 3-6 months and then back on Entocort. Enterolab test July 2017, now gluten free. Time will tell!
Diagnosed November 2004, Used Asacol and Lialda, sometimes worked, sometimes made it worse. Entocort always works but hate it. Remission only lasts 3-6 months and then back on Entocort. Enterolab test July 2017, now gluten free. Time will tell!