Feel free to discuss any topic of general interest, so long as nothing you post here is likely to be interpreted as insulting, and/or inflammatory, nor clearly designed to provoke any individual or group. Please be considerate of others feelings, and they will be considerate of yours.
Welcome back but sorry it is for a flare-up. There are still a good number of us from the old days hanging out here with our family. Looking forward to seeing more of you posting. Great picture!
Maggie
Hey Maggie..... when you said "great picture" I realized that it was a very OLD photo and that I should update it out now that I'm back 8 years later. I have tried many, many times on and off over the past several hours and I can NOT get a new avatar photo to work! I successfully removed my old photo but now all I can get is the flag. I have resized the photo to the allowable limits and STILL no photo.
Thanks for the nice comment about my pic..... wish I could have given you a more recent one.
Sue
Sue
Diagnosed November 2004, Used Asacol and Lialda, sometimes worked, sometimes made it worse. Entocort always works but hate it. Remission only lasts 3-6 months and then back on Entocort. Enterolab test July 2017, now gluten free. Time will tell!
If you size it to 80 by 80 pixels max, the system should accept it, (as long as it's a JPG or GIF file).
If the system absolutely refuses to accept it, e-mail it to me, and I'll force the system to accept it. It usually works best if I have a larger-than-finished-avatar-size file to begin with, so that I can resize it with minimum loss of detail.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Hi Sue and yes, I remember you. Glad you had a period of good health with MC and sorry you had to find your way back but it's good to "see" you again in any case. I am taking 1 Asacol a day and have been for several years. Dr doesn't believe 1 tablet a day is really enough to do anything but I'm scared to let it go. I still have some symptoms, especially when I take a detour from avoiding gluten and soy but on the whole I do quite well.
Welcome back.
Love, Shirley
When the eagles are silent, the parrots begin to jabber"
-- Winston Churchill
Speaking of Asacol, if I read your post about your Asacol treatment correctly, you were taking Asacol until recently, and a few months later, you relapsed. That's not a rare event. In fact, one or two other members have done virtually the same thing (relapsed several months or so after discontinuing Asacol). In most cases, they found that when they tried to restart using Asacol, it didn't seem to work, or much more time elapsed before it began to take effect. The same thing happens with Entocort. Apparently the body builds up a tolerance after a while, and each time the drug is discontinued and restarted, either more time is required for it to take effect, or a larger dose is needed to reach the same level of control. After going through this cycle several times, may people find that they no longer respond to the drug.
If I were in your shoes, I would give the Asacol a little longer (because it will probably take longer to work this time), and if it does begin to give control, it's probably OK to eventually taper the dose, but IMO, if you want to maintain remission without diet concessions, never, ever completely stop taking Asacol, because despite what most doctors think, one pill a day, or every other day, or whatever, does indeed matter, and that dosage will maintain remission indefinitely for some people who have MC. Completely stopping the dosage is extremely risky, because of the probability (not possibility -- probability) that at some point it will stop working for you completely, if you go through that cycle one too many times. And apparently, everyone has their own individual threshold for building up a tolerance for drugs, food sensitivities, or whatever.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Thanks, Tex. I thought I read that somewhere eight years ago, too, and at each yearly physical when my doctor suggested trying to wean off I would bring up my fear of going off and not having it work again when I needed it. He said he'd never heard of that, but then again, why WOULD he? He probably only knows 5 people with this type of colitis and I doubt he does much research about it since it affects such a small percentage of his practice.
That is the underlying fear (terror!) in my head right now. I THOUGHT my body had responded by this time last time so I am getting anxious and impatient and scared to death that it won't work. I see the doc again in 2 weeks so if I am not seeing a significant improvement I will talk to him about increasing the dosage, I guess?
Sue
Sue
Diagnosed November 2004, Used Asacol and Lialda, sometimes worked, sometimes made it worse. Entocort always works but hate it. Remission only lasts 3-6 months and then back on Entocort. Enterolab test July 2017, now gluten free. Time will tell!
Sue, What happens when you eat only protein ( and maybe some cooked carrots)? Have you tried that for one day? I'm just curious since that's what works for me... along with some white rice.
Leah wrote:Sue, What happens when you eat only protein ( and maybe some cooked carrots)? Have you tried that for one day? I'm just curious since that's what works for me... along with some white rice.
Leah
Type of food doesn't seem to make too much difference. On the days when I'm eating only "allowable" things I still have some pain and frequent bathroom trips, but when I eat something I probably shouldn't, I have WORSE pain but probably the same number of bathroom trips.
I have had days where I eat nothing but chicken and white rice and still feel the rumbling and urgency and that's when I get really discouraged. At least if I cheat I can justify suffering, but when I have my couple of days of "no offenses" and see no progress, I think "why bother?"
As I type I'm eating a scrambled egg and a half a dry bagel. Yummy, huh?
Sue
Sue
Diagnosed November 2004, Used Asacol and Lialda, sometimes worked, sometimes made it worse. Entocort always works but hate it. Remission only lasts 3-6 months and then back on Entocort. Enterolab test July 2017, now gluten free. Time will tell!
Controlling MC is not a short-term project (we can't measure progress in terms of days) -- we have to measure progress over months. If you're going to eat inflammatory foods every other day or so, you might as well eat them every day, because it takes many months to heal the damage caused by gluten, if you happen to be sensitive to it, for example. The damage caused by other food sensitivities heals faster, but still requires weeks to months. The amount of healing that can be accrued in one day is negligible. That's why you can't see any difference.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
