Brief Update
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- MBombardier
- Rockhopper Penguin
- Posts: 1523
- Joined: Thu Oct 14, 2010 10:44 am
- Location: Vancouver, WA
Zizzle, I haven't done any research into the GA. One of these days when life settles down I would like to, I think. What I've been told so far is that it's just some random immune reaction in the skin that they don't know the cause or the cure for.
What I know from personal experience, especially this year, is that if I eat nightshades, or sweet potatoes, or anything else I am allergic to, it goes a little nuts. So my hypothesis is that there must be some mast cell involvement.
Eating something I am intolerant of doesn't bother it. I had some cookies yesterday made with predominantly rice flour and my gut is going bonkers, but the GA is somnolent.
What I know from personal experience, especially this year, is that if I eat nightshades, or sweet potatoes, or anything else I am allergic to, it goes a little nuts. So my hypothesis is that there must be some mast cell involvement.
Eating something I am intolerant of doesn't bother it. I had some cookies yesterday made with predominantly rice flour and my gut is going bonkers, but the GA is somnolent.
Marliss Bombardier
Dum spiro, spero -- While I breathe, I hope
Psoriasis - the dark ages
Hashimoto's Thyroiditis - Dec 2001
Collagenous Colitis - Sept 2010
Granuloma Annulare - June 2011
Dum spiro, spero -- While I breathe, I hope
Psoriasis - the dark ages
Hashimoto's Thyroiditis - Dec 2001
Collagenous Colitis - Sept 2010
Granuloma Annulare - June 2011
- MBombardier
- Rockhopper Penguin
- Posts: 1523
- Joined: Thu Oct 14, 2010 10:44 am
- Location: Vancouver, WA
I see I repeated myself about thinking that the GA has a mast cell component. My fault for not going back and reading my original post.
I saw a new PCP on Monday. She is very down-to-earth and personable. We share a birthday, and she was tickled by that coincidence and that she has no thyroid due to thyroid cancer and there is Hashi's in her family. She is apparently also gluten-free because she was telling me good places to find GF stuff in town.
She couldn't check my iodine and selenium levels because the lab is not set up for that. I haven't gotten my free T3 and reverse T3 levels back yet, so either she had to send them to another lab or the insurance squawked about the reverse t3, and none of the T3 tests were run.
My TSH was undetectable, which I expected, but my T4 was in about mid-range, so who knows what the values would have been if I was still only taking the 60mg I had been prescribed. My thyroid peroxidase Ab is still >1300 with normal value under 60, and my Antithyroglobulin Ab has gone up from 145 to 254 with normal value under 60, so that's not good news. I had hoped with the extra thyroid that my antibodies would have decreased because my thyroid would be working less.
The best part is that she was concerned that I am not getting consistent levels of desiccated thyroid with what I bought online, so she prescribed me 240mg of Armour. Sweet! I am to go back in a couple of months to see if the Armour has changed my lab results.
I mentioned in another thread that I got the DtaP shot, and the whooping cough vaccine has casein in it. Nothing like being injected with a food your body does not tolerate. But so far, I am doing better today. Of course, I've only been up for a couple of hours.
I saw a new PCP on Monday. She is very down-to-earth and personable. We share a birthday, and she was tickled by that coincidence and that she has no thyroid due to thyroid cancer and there is Hashi's in her family. She is apparently also gluten-free because she was telling me good places to find GF stuff in town.
She couldn't check my iodine and selenium levels because the lab is not set up for that. I haven't gotten my free T3 and reverse T3 levels back yet, so either she had to send them to another lab or the insurance squawked about the reverse t3, and none of the T3 tests were run.
My TSH was undetectable, which I expected, but my T4 was in about mid-range, so who knows what the values would have been if I was still only taking the 60mg I had been prescribed. My thyroid peroxidase Ab is still >1300 with normal value under 60, and my Antithyroglobulin Ab has gone up from 145 to 254 with normal value under 60, so that's not good news. I had hoped with the extra thyroid that my antibodies would have decreased because my thyroid would be working less.
The best part is that she was concerned that I am not getting consistent levels of desiccated thyroid with what I bought online, so she prescribed me 240mg of Armour. Sweet! I am to go back in a couple of months to see if the Armour has changed my lab results.
I mentioned in another thread that I got the DtaP shot, and the whooping cough vaccine has casein in it. Nothing like being injected with a food your body does not tolerate. But so far, I am doing better today. Of course, I've only been up for a couple of hours.
Marliss Bombardier
Dum spiro, spero -- While I breathe, I hope
Psoriasis - the dark ages
Hashimoto's Thyroiditis - Dec 2001
Collagenous Colitis - Sept 2010
Granuloma Annulare - June 2011
Dum spiro, spero -- While I breathe, I hope
Psoriasis - the dark ages
Hashimoto's Thyroiditis - Dec 2001
Collagenous Colitis - Sept 2010
Granuloma Annulare - June 2011
Wow! A GP who doesn't bat an eye at a TSH value below range, let alone waaaaaaaaay below range, is definitely a keeper.
I have a hunch that reverse T3 tests aren't available on every street corner. My sample was sent to ARUP Laboratories in Salt Lake City, UT.
The medical industry definitely needs to clean up its act regarding the ingredients used in vaccines (and all pharmaceutical products, for that matter). They cause an intolerable number of iatrogenic health issues, and there's simply no valid excuse for that kind of foolishness in this day and age.
Tex
I have a hunch that reverse T3 tests aren't available on every street corner. My sample was sent to ARUP Laboratories in Salt Lake City, UT.
The medical industry definitely needs to clean up its act regarding the ingredients used in vaccines (and all pharmaceutical products, for that matter). They cause an intolerable number of iatrogenic health issues, and there's simply no valid excuse for that kind of foolishness in this day and age.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
- MBombardier
- Rockhopper Penguin
- Posts: 1523
- Joined: Thu Oct 14, 2010 10:44 am
- Location: Vancouver, WA
Well, I got my reverse T3 back. It has gone to 344 from 183 last year. The range is 90-350. But my PCP didn't run a free T3 test. I don't think she was quite awake yet when we had my appointment. I'm a morning person, and she doesn't seem to be, lol. So that result is pretty useless at this point. However, I am to go in for lab work in a couple of months and I can use the free T3 from that to see what's going on since I will not change my dose between now and then.
I suspect that my free T3/revere T3 value has fallen. To achieve my prior 13.7, my free T3 would have to be 4.7+, which is above standard range of 4.20.
As long as I continue feeling good with no symptoms of hyperthyroidism and continue losing weight at a slow rate, I am happy. I have to keep reminding myself of that because I have a hard time getting away from looking at the labs to tell me how I am doing myself. Brainwashing...
I am doing better with the WD, the joint pain, and the fatigue. Apparently the casein from the vaccination has finally worked it's way out of my system.
I suspect that my free T3/revere T3 value has fallen. To achieve my prior 13.7, my free T3 would have to be 4.7+, which is above standard range of 4.20.
As long as I continue feeling good with no symptoms of hyperthyroidism and continue losing weight at a slow rate, I am happy. I have to keep reminding myself of that because I have a hard time getting away from looking at the labs to tell me how I am doing myself. Brainwashing...
I am doing better with the WD, the joint pain, and the fatigue. Apparently the casein from the vaccination has finally worked it's way out of my system.
Marliss Bombardier
Dum spiro, spero -- While I breathe, I hope
Psoriasis - the dark ages
Hashimoto's Thyroiditis - Dec 2001
Collagenous Colitis - Sept 2010
Granuloma Annulare - June 2011
Dum spiro, spero -- While I breathe, I hope
Psoriasis - the dark ages
Hashimoto's Thyroiditis - Dec 2001
Collagenous Colitis - Sept 2010
Granuloma Annulare - June 2011
Remember, the body has to do something with the T4 that you take, so the more you take, the more will be converted into reverse T3 (if it doesn't need more T3), unless I'm looking at this wrong.
Tex
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
I'm not sure if this information will benefit anyone but here it is anyway. I take an OTC medication, Iodoral, in addition to my thyroid med. Each tablet contains: Iodine (potassium salt) 7.5 mg & Iodine 5 mg. The doctor that prescribes my thyroid med started me on 1 tablet a day in 2009. Along with them increasing my thyroid medication dose last year, they suggested I take 2 Iodoral tablets per day. I recently increased the dosage to 3 tablets a day. My symptoms have decreased some more. I'll probably stay with 3 until my labs are run again in September. My pharmacy carries this but not all of them in Amarillo do. I have a phone appointment with this doctor every year in conjunction with the labs. They use the lab data as well as my account of how I feel to determine what changes (if any) to make in my treatment plan. Wow, what a concept.
Brenda
- MBombardier
- Rockhopper Penguin
- Posts: 1523
- Joined: Thu Oct 14, 2010 10:44 am
- Location: Vancouver, WA
Good idea, Brenda. When we get back on our feet financially (my husband has had a job for a couple of weeks now, I'm not sure I mentioned it), I want to go to a naturopath and get some things like my iodine and selenium levels tested. The selenium is supposed to help with the antibodies, but since mine are higher than last year, I have no idea if it helped or not.
I have Celtic salt that has all sorts of minerals in it that I use for myself, but my family uses Hain sea salt because the Celtic salt won't go through the holes in the salt shaker, and my husband balks at the cost of Real Salt for the family. The sea salt he purchased last time doesn't have iodine in it, so I'm not getting as much iodine as I was, since that's the salt I use in cooking.
I have Celtic salt that has all sorts of minerals in it that I use for myself, but my family uses Hain sea salt because the Celtic salt won't go through the holes in the salt shaker, and my husband balks at the cost of Real Salt for the family. The sea salt he purchased last time doesn't have iodine in it, so I'm not getting as much iodine as I was, since that's the salt I use in cooking.
Marliss Bombardier
Dum spiro, spero -- While I breathe, I hope
Psoriasis - the dark ages
Hashimoto's Thyroiditis - Dec 2001
Collagenous Colitis - Sept 2010
Granuloma Annulare - June 2011
Dum spiro, spero -- While I breathe, I hope
Psoriasis - the dark ages
Hashimoto's Thyroiditis - Dec 2001
Collagenous Colitis - Sept 2010
Granuloma Annulare - June 2011
- Deanna in CO
- Adélie Penguin
- Posts: 220
- Joined: Mon Feb 20, 2012 2:16 pm
- Location: Colorado
Marliss,
I also use sea salt, and at my naturopath's recommendation I take an iodine supplement (from kelp). It's drops - you need only one drop per day in. Glass of water or juice, and the bottle says it has about 1300 drops in it. I don't remember how much it costs, but it wasn't much for 1300 days' worth. And my TSH dropped pretty significantly in the 3 months after I started taking it (my Dr doesn't do all the other fancy thyroid tests, but that one was noticeable).
Deanna
I also use sea salt, and at my naturopath's recommendation I take an iodine supplement (from kelp). It's drops - you need only one drop per day in. Glass of water or juice, and the bottle says it has about 1300 drops in it. I don't remember how much it costs, but it wasn't much for 1300 days' worth. And my TSH dropped pretty significantly in the 3 months after I started taking it (my Dr doesn't do all the other fancy thyroid tests, but that one was noticeable).
Deanna