Hello all,
I have been GF for about two weeks and things have remained the same since I stopped taking entocort 6 weeks ago. No D just frequent rumbling. I will continue with the GF diet in hopes that my gut becomes normal.
A couple of questions:
What is the new normal? Do you all have flare-ups and if so what do you do? Does diet alone prevent flare-ups? I'm interested in what my future holds and what I should expect. I would guess that answers will vary. Any information would be helpful and I spend a good deal of time worrying about another flare.
Also, I consistently see references to L-Glutamine as a possible aid to MC. What are your thoughts? Have any of you given this a try?
Thank You,
kristi
L-Glutamine
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Hi Kristi. I also take two tsp. of L-Glutamine powder a day. It is suppose to help heal the intestine lining. I also get little flares. Although I am still "testing" foods. My flares usually consist of a couple loose BMs in the morning and then I am fine. They are lasting anywhere from 1-7 days. The rumbling could be from something else you are eating that is just a little too hard for your inflamed gut to handle ( like salad, fruit, nuts, dairy....etc). Everyone is different.
Leah
Leah
Hi Kristi,
I retained remission a couple of years ago fairly quickly and usually the only issues I would have would be if I got unintentionally glutened. Things would usually return to normal in a day or two. However, I had an intestinal bug a couple of months ago which must have triggered my MC again (DH had it too but he got better after a week). I had a full-scale flare again which took nearly a month to get through. It kind of surprised me....I naively thought I was past that!
I retained remission a couple of years ago fairly quickly and usually the only issues I would have would be if I got unintentionally glutened. Things would usually return to normal in a day or two. However, I had an intestinal bug a couple of months ago which must have triggered my MC again (DH had it too but he got better after a week). I had a full-scale flare again which took nearly a month to get through. It kind of surprised me....I naively thought I was past that!
Kristi, I also had those rumbles while I was GF and DF until I dropped soy and that put an end to those. It apparently was an additive in some things I was eating and as it turns out, a REAL problem for me according to my Enterolab results. I also would have an occasional mini-flare, lasting a day or so, but they resolved as long as I went back to my basic diet and made sure I was getting enough rest. Sometimes it wasn't even a whole day, just a 'rough morning'.
Since I've received my MRT results and dropped foods that were problematic and added (after testing) foods that weren't causing histamine reactions, my gut is calm. I have not tried L-Glutamine but it seems others are having positive results.
Things do get better buts it's a slow process.
Carol
Since I've received my MRT results and dropped foods that were problematic and added (after testing) foods that weren't causing histamine reactions, my gut is calm. I have not tried L-Glutamine but it seems others are having positive results.
Things do get better buts it's a slow process.
Carol
“.... people will forget what you said, people will forget what you did, but people will never forget how you made them feel.” Maya Angelou
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HI Kristi,
I'm 5.5 months off of Entocort.
Re: flareups I've been to 4 restaurants since I got off of Entocort. Three of the 4 times were not good experiences even though I followed our GF,DF,SF regimen. I think I either got gluttened or soyed. No WD but 2-3 hours of nausea the next morning followed by headache of 1-3 days. I'm trying to stay out of restaurants for awhile until I'm better healed.
WD flareup--I've had 1 of these at week 14 off of Ento. It was NOT tied out to diet as my diet doesn't change a lot. It was strictly caused by an extremely stressful family situation that you would encounter once every 25 years. I managed to handle it w/ chicken broth, pepto bismol, and my meditation tapes. By day 4 I was back to my normal. I was proud of my self for managing it without taking Entocort. Since the flare I put an emergency supply of chicken soup in my freezer and put some backup clothes in my car as well as a roll of TP.
L Glutamine--I'm on my 3rd big container of it. I've never stopped taking it since Connie originally posted about it. It's not hurting me but I can't clearly say it is helping. I think it helps me get more water in as I mix 1 heaping tsp in a tall glass of water 3x per day.
Re: Rumbling--I had this daily all day long until about a week ago. Now I have a little less rumbling but still daily rumbling.
Going forward---I'm working on stress reduction which seems like an on going battle. I find I do best staying in my regular food routine and I try to take snacks when I'm out and about so that I don't get too hungry.
Carol is right, things get better with time but for me it has all taken awhile. Hope this helps, regards, Brandy
I'm 5.5 months off of Entocort.
Re: flareups I've been to 4 restaurants since I got off of Entocort. Three of the 4 times were not good experiences even though I followed our GF,DF,SF regimen. I think I either got gluttened or soyed. No WD but 2-3 hours of nausea the next morning followed by headache of 1-3 days. I'm trying to stay out of restaurants for awhile until I'm better healed.
WD flareup--I've had 1 of these at week 14 off of Ento. It was NOT tied out to diet as my diet doesn't change a lot. It was strictly caused by an extremely stressful family situation that you would encounter once every 25 years. I managed to handle it w/ chicken broth, pepto bismol, and my meditation tapes. By day 4 I was back to my normal. I was proud of my self for managing it without taking Entocort. Since the flare I put an emergency supply of chicken soup in my freezer and put some backup clothes in my car as well as a roll of TP.
L Glutamine--I'm on my 3rd big container of it. I've never stopped taking it since Connie originally posted about it. It's not hurting me but I can't clearly say it is helping. I think it helps me get more water in as I mix 1 heaping tsp in a tall glass of water 3x per day.
Re: Rumbling--I had this daily all day long until about a week ago. Now I have a little less rumbling but still daily rumbling.
Going forward---I'm working on stress reduction which seems like an on going battle. I find I do best staying in my regular food routine and I try to take snacks when I'm out and about so that I don't get too hungry.
Carol is right, things get better with time but for me it has all taken awhile. Hope this helps, regards, Brandy