The results are in! Paging Marliss......

LindyLou · Post by **LindyLou** » Mon Jun 25, 2012 7:29 pm

I received my Enterolab results today. After reviewing the results, I'm thinking I have selective Iga deficiency.

Mean Value 11 Antigenic Foods    1 Units   (Normal Range is less than 10 Units)

Fecal Anti-gliadin IgA    6 Units   (Normal Range is less than 10 Units)

Fecal Anti-casein (cow’s milk) IgA    1 Units   (Normal Range is less than 10 Units)

Fecal Anti-ovalbumin (chicken egg) IgA    1 Units   (Normal Range is less than 10 Units)

Fecal Anti-soy IgA    1 Units   (Normal Range is less than 10 Units)

Marliss, it looks like you and I are very similar. I'm scheduled for a colonoscopy and EGD next Wednesday with a new GI. When we sat and talked at our initial meeting, I basically took charge and laid my history out. She would ask questions and I'd say "I'll get to that" I did not allow her to interrupt me as I had the whole script written out. After explaining the assortment of testing I had been through and their results, she had herself suggested the deficiency. In addition to that, I had explained the research the did and the conclusion I had drawn that what I was putting in my body was poisoning me to which she responded that gluten was poison and she felt that everyone should be gluten free. A couple of years ago she was nursing and her pediatrician thought her newborn was possibly gluten intolerant so she had to go gluten free and said she was amazed at how much better she felt. In addition to the Enterolab tests, I'm awaiting the results on the Promethus test and a myriad of other blood and stool tests. They took a total of 7 vials so come the next couple of weeks I hope to have a good idea of what we're looking at. Until then, I will continue on my diet and try to educate myself as much as possible. If anyone has any suggestions for questions to ask I would really appreciate that. I am on vacation in the Smoky's this week and am trying to escape the health issues so will be relatively unplugged until next Sunday.

MBombardier · Post by **MBombardier** » Tue Jun 26, 2012 11:06 am

Wow, we do look quite similar.

Good for you, taking charge in your appointment with your GI.

She sounds like a keeper!

I have a bunch of relatives in Michigan. Do you have any Baileys or Millers in your family?

I hope your vacation is wonderful. The Smokeys are lovely. Upper east Tennessee, near North Carolina is my old stomping grounds.

Post by **tex** » Tue Jun 26, 2012 1:18 pm

Hi Linda,

I agree, it sure does appear that you have selective IgA deficiency.

Do you mind if I add your results to our list?

http://www.perskyfarms.com/phpBB2/viewtopic.php?t=10089

Tex

LindyLou · Post by **LindyLou** » Wed Jun 27, 2012 5:00 pm

Hello Tex,
Please feel free to post these results. I think with this I'm a step closer to figuring out what truly may be wrong with me. I thought with these results, I would be able to fine tune my diet......... From the little bit of research I've been able to do I know there is no cure or treatment for that matter. Now how the heck do I make adjustments? I have been gluten free for 14 months now and still have bouts with secretory D 2-3 times per week. Now that it appears there is an Iga deficiency is it possible that isn't the food I now eat but some sort of long term infection? I'm at a loss. I should find out on Wednesday what the results of my Promethus test and assorted other blood tests are and will make sure to get a copy for my personal research.
On a lighter note, we are on a family vacation in the Smoky's for the week. To feel comfortable traveling away from home we decided to rent a cabin in the mountains. It is located outside of Gatlinberg high on a mountain. It's so beautiful and tranquil! My husband and I decided to go for an evening walk. As we were casually strolling down the street, we hear rustling below us and all of a sudden this bear comes charging up the hill. The growth was so dense that I never actually saw it, but we could hear it panting loud and clear. You never saw a couple of 50 something people run like us! Backward with sandles up an incline that would have been impressive on any roller coaster.

Not sure if this link works but this is a picture of the place we are staying. The family agrees I hit a home run with this find.

http://www.jacksonmountainhomes.com/ren ... IT=ISI#top

I think that for the rest of the week, I will set the medical stuff aside and try not to worry about it for now.

Hope the week is going well for everyone!

Linda

Deb · Post by **Deb** » Wed Jun 27, 2012 5:47 pm

What a wonderful place, Linda. I hope you get lots of rest and enjoyment. Deb

Gloria · Post by **Gloria** » Wed Jun 27, 2012 6:55 pm

Beautiful scenery...I'd be worried all the time about the bears, though. I'm glad you outran him/her. Enjoy the rest of your stay!

Gloria

MBombardier · Post by **MBombardier** » Wed Jun 27, 2012 10:52 pm

If it was a black bear (likely) they are not really aggressive unless it is a mama bear with cubs. I have friends that have had many experiences with black bears, including one where one of the sons was asleep on the porch of his cabin and a black bear came up and sniffed him. He pretended he was still asleep.

That being said, my reaction would probably have been the same as yours, lol.

Deb · Post by **Deb** » Thu Jun 28, 2012 5:14 am

My husband's family had a very remote cabin up north that they let some postal worker friends use. During the night a bear came in to help himself to their food. They all ended up on the roof while the bear made himself at home.

We occasionally see bear around our cabin but I agree with Marliss, they will probably try to avoid you as long as their cubs aren't being threatened. There's a really neat bear sanctuary we visit where the bears come in from miles around for food. A guy started feeding them instead of shooting them and it turned into a big deal....especially when he was unable to take care of them anymore. Here's some info if anyone is interested. http://www.americanbear.org/

marihabs · Post by **marihabs** » Thu Jun 28, 2012 6:36 am

My 2 daughters just returned from a weekend in Gatlinburg 3 weeks ago. (They had a fantastic time and suggested we all go back there for vacation). Several trails and areas were closed due to aggresive bear activity. Your place looks beautiful, Linda. Glad you skeedaddled out of a close encounter.

Mary

LindyLou · Post by **LindyLou** » Thu Jun 28, 2012 7:18 am

I am a little puzzled as to why my result would be 6 for Fecal Anti-gliadin when I have been Very strict with my diet, yet everything else tested resulted with 1's. Is there ever a zero result?

Post by **tex** » Thu Jun 28, 2012 8:17 am

Linda wrote:I am a little puzzled as to why my result would be 6 for Fecal Anti-gliadin when I have been Very strict with my diet, yet everything else tested resulted with 1's. Is there ever a zero result?

It will never go to zero unless your body is totally incapable of producing any immunoglobulin A at all, and it still might not go to zero even then, due to the relatively long half-life of anti-gliadin antibodies and the constraints of the statistical methods used to analyze the data.

Besides the fact that it takes years for the anti-gliadin antibody level to decay to a minimum, steady-state level (homeostasis), any traces of cross-contamination are going to kick the antibody level up again (if we're capable of producing any IgA at all), and the decay process will have to start over. I have been on a strict GF diet for 9 years and 10 months now, but back in December, I suspected cross-contamination problems when I began to notice symptoms, so I ordered an EnteroLab test. My test result was 62.

For those of us who are really sensitive to gluten, it doesn't take much to kick our immune system into high gear, and it takes a long time for those antibodies to decay to a level where they will be below the threshold necessary to produce a negative result on a stool test (unless, of course, we have selective IgA deficiency).

Tex