What can I eat?

Feel free to discuss any topic of general interest, so long as nothing you post here is likely to be interpreted as insulting, and/or inflammatory, nor clearly designed to provoke any individual or group. Please be considerate of others feelings, and they will be considerate of yours.

Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh

Post Reply
User avatar
mickjcat
Adélie Penguin
Adélie Penguin
Posts: 118
Joined: Sat Jul 07, 2012 10:27 am
Location: Indiana

What can I eat?

Post by mickjcat »

I am 60 year old female, diagnosed with collagenous colitis after 2 months of D. I had a colonoscopy with a biopsy that confirmed this. I went on a 10 day round of cipro and flagyl which was worse than just have diarrhea. :neutral: After going to my GP I was given a decreasing 40mg prednisone x 5 days etc. I was watching my diet, low inflammatory low fiber diet. It helped but still not the normal poop prior to the onset. I started adding foods and before long, I had another flare up. I went on a "blast" of 40mg of Prednisone for 5 days and it helped until I went off.
I have gone to my GI doc and he prescribed 6mg of Entocort per day. I have to say I am willing to try this for a while just to get back to normal, if there is such a thing.
Now, here is my question: What to eat during this flare up that is low fiber and low inflammatory? I would love to eat some white rice, but fear it acts against the inflaming part of the diet.
I have orded the SCD book, and plan to adhere to it, in the meantime, it is all very confusing....
I am taking 3 teaspoons of Glutagenics powder, about 60 billion cultures of probiotics, omega 3's, 4000IU of D, Niaspan.
I have had the food allergy test, and I have only 4 foods in the 1+ catagory: String beans, mung beans, kidney beans and bean sprout.
Diagnosed with Collagenous Colitis after a 2 month bout of Diarrhea. Confirmed after a biopsy during a colonoscopy.

Mickey
Deb
Rockhopper Penguin
Rockhopper Penguin
Posts: 1657
Joined: Sat Nov 20, 2010 7:01 pm
Location: Previously MN now GA

Post by Deb »

mickjcat, I know others will chime in here but we've found that the primary food issues for most of us are gluten (wheat, barley, rye and oats). Next are dairy and soy. I found it really helpful to read (A LOT OF) older posts. Many of us can tolerate rice...in fact it was a main food for me during my flare. Some beans can be problematic for a lot of us. After you've posted a few times you can use features like "search" on this site. There is an amazing amount of information here. Deb
User avatar
mickjcat
Adélie Penguin
Adélie Penguin
Posts: 118
Joined: Sat Jul 07, 2012 10:27 am
Location: Indiana

Post by mickjcat »

Thanks for your reply, I don't know how reliable the Iga blood tests are, but they showed no sensitivity to gluten, soy, dairy etc. I think my overuse of NSAIDS and aspirin caused my colon to degrade.
I have been checking out various posts and they are helpful.
The fact is, I love food, love to cook, and this has thrown me for a loop. I am sure I will get the hang of it, and get to a workable way of eating. It is a grieving process of sorts.
Thanks again for your reply.
Diagnosed with Collagenous Colitis after a 2 month bout of Diarrhea. Confirmed after a biopsy during a colonoscopy.

Mickey
User avatar
Joefnh
Rockhopper Penguin
Rockhopper Penguin
Posts: 2478
Joined: Wed Apr 21, 2010 8:25 pm
Location: Southern New Hampshire

Post by Joefnh »

Mickjcat, I believe your correct the NSAIDs most likely contributed to the development of MC (CC) and NSAIDs should be avoided from here on out.

As far as the dietary issues, I would start simply right now with the basics such as chicken, rice, well cooked carrots, apple sauce etc...

Overall while you don't know exactly what your intolerances are as of yet, avoiding gluten, soy and dairy is probably your best first move. The goal right now is to settle things down so that later you can start figuring out your specific intolerances.

Additionally for a while, probably several months, you should avoid all raw fruits and veggies as these can be irritating to your GI system, when well cooked they will digest easier. Many here also avoid all citrus juices as that also acts as an irritant. For the most part think of how you would feed an infant that is just starting on solid foods, you would go slow with soft easy to digest foods, thats the way while avoiding gluten, soy and dairy that you will allow yourself to heal.

Don't worry after a while you will most likely be able to add in things like a salad and be able to tolerate raw fruits and veggies. It does take a while and patience and staying compliant to the diet is key.

Best wishes with your path forward.

Take care
Joe
User avatar
carolm
Rockhopper Penguin
Rockhopper Penguin
Posts: 1346
Joined: Fri Sep 02, 2011 7:27 pm
Location: Kansas City

Post by carolm »

HI mickjcat,

Like Deb said it is fairly consistent that those of us with MC react to gluten, soy, dairy and sometime eggs. When I had my first big flare I lived on chicken broth, baked chicken, well cooked green beans and carrots, white rice and potatoes. My diet had to be low fiber, low fat, low sugar, caffeine free, as well as gluten, dairy and soy free. I also took Entocort starting with 9mg for several weeks then titrating down. It's much more helpful than Prednisone and the side effects are minimal compared to Prednisone.

Tex, Polly and others are much more knowledgeable about the testing but often the blood tests are not accurate. The inflammation and the antibodies created by reacting to foods are in the large intestine and don't reach the bloodstream. Most of us have had tests done through Enterolab where they will check and measure antibodies in stool samples. Then we know for sure what foods are creating the inflammation.

Probably any other newbie's posts will have information you'll also find helpful. I feel I also overused NSAIDS because a couple months before the onset I was dealing with some persistent sinus headaches. Or it was a combination of things, but I feel that was a contributing factor to my LC. the Entocort basically helped me 'buy time' and stopped the flare enough to get me back on my feet. That gave me time to sort out what I should be eating so that when I was getting off the Entocort I could maintain.

I'm sorry that you had to find this site but there is no doubt you will find a ton of information here. Feel free to ask anything.

Carol
“.... people will forget what you said, people will forget what you did, but people will never forget how you made them feel.” Maya Angelou
User avatar
mickjcat
Adélie Penguin
Adélie Penguin
Posts: 118
Joined: Sat Jul 07, 2012 10:27 am
Location: Indiana

Post by mickjcat »

Thank you all for your very fast replies! So from what I understand, the test you go by is an MRT test. Wish my doc would have sent me in that direction.....oh well I will check into that. Anyone have a cost for these tests?
I will start adding some rice to my diet. Even though it is inflammatory. I know it is easy to digest.
Any thoughts on sunflower seed butter during flare up?
Thanks for your kindness to the above folks :-)
Diagnosed with Collagenous Colitis after a 2 month bout of Diarrhea. Confirmed after a biopsy during a colonoscopy.

Mickey
User avatar
Mim18
Adélie Penguin
Adélie Penguin
Posts: 107
Joined: Tue May 08, 2012 6:41 am
Location: Massachusetts

Post by Mim18 »

Hi Mickjcat,

Welcome to this site. You will get a wealth of information here. I am 62 and only found this site a few months ago (wish it had been sooner). Depending on symptoms, I take 3 0r 6 mg per day of Entocort. As everyone says, keep it simple to start regarding foods. Also start a food diary right away. Each day record everything you eat and make any notes on the condition of stool or if you have any abdominal pain. You may start to discover foods that are causing problems. And keep in mind that every single person is different. It would just be too simple if there was one diet that would fit all.
From what you have mentioned you may want to keep a special eye on any legumes that you consume (all beans, peas, lentils, peanuts or peanut butter, and any soy products).

Good luck,

Marion
User avatar
mickjcat
Adélie Penguin
Adélie Penguin
Posts: 118
Joined: Sat Jul 07, 2012 10:27 am
Location: Indiana

Post by mickjcat »

Thanks, good advice! I will tell you all this, my empathy has already made me a better person. I had no idea that colitis could rock ones world.
You all have great attitudes, and I know this will help me to meet this challenge, hopefully with grace.
Diagnosed with Collagenous Colitis after a 2 month bout of Diarrhea. Confirmed after a biopsy during a colonoscopy.

Mickey
User avatar
draperygoddess
Rockhopper Penguin
Rockhopper Penguin
Posts: 558
Joined: Mon Aug 29, 2011 6:49 am
Location: Tennessee

Post by draperygoddess »

Welcome to the family!

The blood tests won't show if you're sensitive to gluten unless you're pretty far gone. The Enterolab tests are more sensitive because they test for antibodies in the stool (and they show up there before they get into your bloodstream). However, you don't have to have a test result in order to determine your food intolerances. Since almost all of us are intolerant of gluten, and most of us are also intolerant of dairy and soy, those are where I would start. Keep a food diary--write down everything you eat or drink, and any supplements or medications, as well as your symptoms (digestive and otherwise). Over time, a pattern will emerge.

Remember that it takes time for the diet to work (I tried to eliminate gluten or dairy in the past, but I would only give it 3 or 4 days, then decide it wasn't helping). Give yourself several weeks to see a difference, and possibly months before any significant healing. Remember that if your digestive tract is that damaged, it didn't happen overnight, and it won't heal overnight, either.

All of us are on a continuing journey to discover how to get, and stay, healthy. I hope you find support and answers here!
Cynthia

"Can we fix it? YES WE CAN!" -Bob the Builder
User avatar
tex
Site Admin
Site Admin
Posts: 35072
Joined: Tue May 24, 2005 9:00 am
Location: Central Texas

Post by tex »

Hi Mick,

Welcome to the board. You've already received a lot of good advice so I'll just address a couple of points. First, since most of us are sensitive to casein (the main protein in all dairy products), if you try the SCD, avoid yogurt, because it will almost surely prevent you from ever reaching remission. If you omit casein from the SCD, that effectively means that you will be on the paleo diet, which is a much better diet to begin with, for treating this disease.

Secondly, IMO, it's high time someone debunked that "inflammatory foods" myth. Certain foods have been proclaimed by so-called "experts" as pro-inflammatory. Why? Well, some "experts" blame it on a report issued by the Harvard Medical School, claiming that certain foods trigger the release of cytokines. This appears to be another example of a little education being a bad thing. :lol: It amounts to using pseudo-science to promote an agenda.

The problem with that half-truth is that all foods trigger some degree of mast cell degranulation, resulting in the release of certain pro-inflammatory mediators that are used as chemical signals to trigger necessary responses from the digestive system in order for it to properly prepare to digest the food that is being ingested. For example, the release of histamine in the stomach is necessary, in order to prompt parietal cells in the stomach to produce additional gastric acid, so that the food will be at least partially-digested before it leaves the stomach -- otherwise the food will spoil in that warm, moist environment, if insufficient stomach acid is available. Consider the following quote:
Saturated fats, cholesterol and trans fat are pro-inflammatory and should be avoided. Foods high in pro-inflammatory fats include beef and other red meats, butter, whole milk, cheese, coconut oil and palm oil. You’ll find trans fats in any product that has partially hydrogenated vegetable oil, which is prominent in margarine and commercially prepared baked goods and snacks.
Unsaturated fats, including vegetable oils such as soybean, corn, safflower, canola and olive oil, are anti-inflammatory and help lower cholesterol.
Really? beef and other red meats and coconut oil are inflammatory? :monkey: :headscratch:

I don't think so -- someone is very confused, and it ain't me. Soybean oil is anti-inflammatory? I don't think so. Where do they get that BS? Soybean oil sucks, as far as general human health is concerned.

That quote comes from this site, which seems to be typical of most sites which attempt to promote certain foods as pro-inflammatory and others as anti-inflammatory:

http://www.livestrong.com/article/55508 ... d-sources/

Such agendas are an extension of the corrupt promotion of carbs and fiber that began in the 1980's (based on government propaganda), and it's only now being brought into question. Not only does the archaeological record dispute these claims, but current declining health trends also illustrate that there is a fly in the ointment, as far as those "healthy" recommendations are concerned.

All that to say that IMO, white rice is not an inflammatory food. Inflammatory foods cause autoimmune-type reactions. Fewer people in the world are sensitive to rice than any other grain. If you are going to eat a grain, rice is by far the safest choice. Brown rice would be healthier than white rice because it contains nutrients that are lost when the hull is removed from brown rice to produce white rice, except that brown rice retains all of the original fiber, and fiber is definitely contraindicated for anyone who has MC.

Everything is relative. All food causes some degree of inflammation. Sure, white rice causes more inflammation than a carrot, but so what? It's not one of the biggies. The biggies are wheat, rye, barley, oats, dairy products, and soy.

Again, welcome aboard, and please feel free to ask anything.

Tex
:cowboy:

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
User avatar
Zizzle
King Penguin
King Penguin
Posts: 3492
Joined: Thu Jul 22, 2010 9:47 am

Post by Zizzle »

Welcome!
I just wanted to add that many of us react adversely to probiotics. I had incredible D after starting a multi-strain variety. Many here do tolerate Culturelle and a coupe of other single-strain varieties. It appears you may have an issue with legumes too. If you are reacting to green beans, sprouts, kidney beans, etc, you should probably assume soy, peanuts, green peas, chickpeas and other beans from the legume family are not going to digest well for you. Legumes as a whole pose problems for many people, so they are best avoided during a flare.
Leah
King Penguin
King Penguin
Posts: 2533
Joined: Thu Feb 02, 2012 10:16 pm
Location: San Francisco Bay Area

Post by Leah »

Welcome aboard. I know the whole process of trying to accept this disease is very hard. I loved to cook also. I was a trained chef at one time! But I think that it has made this process a little easier for me since I know food so well ( plus I am a fitness trainer now and work with people's diets also)

Tex is a wealth of information. He really knows his stuff, so learn as much as you can from him... and from the experiences of us all. I was dx with CC in February. I started with 9 mg. of entocort a day. Made a HUGE difference, but you can't stay on this dose forever. Using it does however give you a chance to work on getting the inflammatory foods out of your diet and begin the healing process. I took gluten and dairy out- along with fresh fruits and veggies. In a month I was able to step down to 6 mg. Now, I am down to less then 3 mg. a day. I have had a few mini flares, but it's mostly because I am "testing" foods to put back in. I also found myself reacting to soy after a few months, so took that out to. It's a long process, but everyone has given you some great advice. I have been able to add back in some fruits, a little salad, homemade popcorn, and beans.

Read EVERY LABLE. Try to cook most of your own food. Your best friend is protein. If you can afford to do the Enterolab testing, it will make this process faster. Just look on the web site.

There is hope. It's a big life change, but hey, life throws us curve balls. We just have to put things into perspective. Feeling good and living life to it's fullest becomes more important than being able to eat certain foods.

Please ask lots of questions and read as much as you can here. But you may want to start a new thread when you do ask things. good luck

Leah
amberlink09
Adélie Penguin
Adélie Penguin
Posts: 130
Joined: Sun Jun 24, 2012 5:44 pm
Location: United States

Post by amberlink09 »

Hi mickjcat!

I wish I could give you more advice on what to eat, but I'm currently on an elimination diet trying to figure that out myself and I know everyone else here has a ton of experience and suggestions on what's best.

I just wanted to let you know that I love to cook too. I grew up helping my mom in the kitchen, baking cakes and cookies on a weekly basis to share with friends and family, and being addicted to food network (still am!). After being diagnosed with Celiac I had to mourn for a while, but then I got on the internet and into my kitchen and even through going SCD and later Paleo I've managed to to actually love cooking even more! I spend a lot of time on food blogs or trying to recreate things to be dairy free. Sometimes I feel like I'm a kitchen Macgyver lol. I still do a lot of cooking for my family get togethers and no one knows the difference. Last week I made up a grain- dairy- refined sugar-free cobbler and it was everyone's favorite dessert!

I just wanted to let you know there is some hope for us "foodies" even on a restricted diet :) I hope you get to feeling better soon!
Deb
Rockhopper Penguin
Rockhopper Penguin
Posts: 1657
Joined: Sat Nov 20, 2010 7:01 pm
Location: Previously MN now GA

Post by Deb »

Mickjcat, food/eating has also been a big part of my family life. Give yourself time to heal and then you can find alternatives that work. My family is constantly amazed as I'm bringing foods that "don't have gluten" and they're good!The grieving process is real but there really is life without some of these foods. It can actually become fun again as you find a "different way".
User avatar
kayare
Adélie Penguin
Adélie Penguin
Posts: 148
Joined: Sun Oct 23, 2011 2:27 pm
Location: Florida

Post by kayare »

Hi mickjcat! You can trust all of the advice here. You are accepting this much better than I was when I was diagnosed. I was diagnosed in August, joined the forum in October, but didn't make changes until April after several medicines had failed, and I had many additional months of misery. After Enterolab testing and eliminating gluten, corn, soy (especially soy), eggs, tomatoes, beans, and a few other key foods (cheese is still okay for me), I am feeling so much better. The Entocort - 9 mg. - is still essential for me. I hope to begin to taper that, but I was very sick for many years. Like others have said, read every label and enjoy simple foods for now. The relief is a real treat. Best wishes! Kathy
Post Reply

Return to “Main Message Board”