Hi there.
Re-awakening this thread - I found it very comforting in that, well, misery DOES love company! I am so sick of the anxiety, fear and panic that consumes my days and nights lately that I am thinking of just saying "to hell with it" and starting to wear some sort of protection. And I have to wonder after reading this thread, why don't more of you wear them regularly while having flare-ups? And if you do, do you have a recommendation for the best kind? I think I have three different types in the back of my closet (purchased 8 years ago when I first got diagnosed) and if I recall, two of them were just too huge and bulky, but one was acutally "acceptable" for those bad days. Is there any new, improved, miracle product out there that allows you to still wear decent clothes but contains the unfortunate accidents?
Sue
I wish I had worn a daiper.....
Moderators: Rosie, JFR, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
Accidents
Oh, it's humiliating, but all I can seem to do is laugh about our accidents. If we didn't, then we'd cry. I've had my share, and one was a run for the bathroom in Hobby Lobby. I barely made it, but wasn't pretty, and my dignity made me clean it up. I think we have to laugh, go on & be thankful that it's not something worse, like cancer. I make headway, do good, then off & on there's a flare up, darn it.
You can't change the wind, but you can adjust the sails.
Stanz
Stanz, just read where you resolved your symptoms w/ diff things, including vitamins. What vitamins have really helped you? I'm not much for prescription meds because of the side effects. I do ok mostly now, until a flare up hits me about every 2 or 3 mos., then it lasts awhile usually. Thanks for any info on the alternative meds.
A nurse I know told me yesterday that the generic med for Elavil cured a person she knows. I can't hardly grab that.
Stanz, just read where you resolved your symptoms w/ diff things, including vitamins. What vitamins have really helped you? I'm not much for prescription meds because of the side effects. I do ok mostly now, until a flare up hits me about every 2 or 3 mos., then it lasts awhile usually. Thanks for any info on the alternative meds.
A nurse I know told me yesterday that the generic med for Elavil cured a person she knows. I can't hardly grab that.
You can't change the wind, but you can adjust the sails.
Lulu,
Unfortunately, for many of us, amitriptyline is more likely to cause a flare, than to stop one. That said, it's not impossible that it might help in some cases where stress is a primary cause of the reaction (provided that the drug itself doesn't cause inflammation because of an autoimmune-type reaction. IOW, amitriptyline is one of many drugs that are known to cause drug-induced MC for certain individuals (but not for everyone).
Tex
Unfortunately, for many of us, amitriptyline is more likely to cause a flare, than to stop one. That said, it's not impossible that it might help in some cases where stress is a primary cause of the reaction (provided that the drug itself doesn't cause inflammation because of an autoimmune-type reaction. IOW, amitriptyline is one of many drugs that are known to cause drug-induced MC for certain individuals (but not for everyone).
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Sue,
We definitely need some user ratings and recommendations on those "security" products. I was hoping that someone would respond to your question. I've never used them, so I can't offer any opinion, unfortunately.
Tex
We definitely need some user ratings and recommendations on those "security" products. I was hoping that someone would respond to your question. I've never used them, so I can't offer any opinion, unfortunately.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
You guys and gals make me laugh! Joe, I'm going to follow your remedy and keep an emergence change of clothing at work. A couple of weeks back I was sitting at my work station not moving a muscle, when something moved. I said to myself, "Oh no that can't be, can it?!" Yes, it could be and was. Luckily it did not penetrate my outer layer of clothing. Thanks for reminding me to pack an emergency change.
CoryGut
Age 71
Diagnosed with Lymphocytic Colitis Sept. 2010
On and off Entocort(Currently Off)
Age 71
Diagnosed with Lymphocytic Colitis Sept. 2010
On and off Entocort(Currently Off)
lulu,
Here is a link to what I did. http://www.perskyfarms.com/phpBB2/viewt ... t=protocol[/img][/list][/list][/code][/i]
Here is a link to what I did. http://www.perskyfarms.com/phpBB2/viewt ... t=protocol[/img][/list][/list][/code][/i]
Resolved MC symptoms successfully w/L-Glutamine, Probiotics and Vitamins, GF since 8/'09. DX w/MC 10/'09.
Thanks so much Stanz. Do you have MC or something similar. Would have to go back & find where you listed it. I do cook in coconut oil, sometimes drink coconut water, I take D3, sometimes a probiotic, need to take one more often it looks like. Just tried it when I was so bad, and nothing was seeming to help at that time. My family has had so many bad experiences with meds that I usually try anything before them. Will research all of this & try to find them. Thx again. We've all been down the same path w/ this D & not fun. Lulu
You can't change the wind, but you can adjust the sails.
lulu,
I have both types of MC, still not sure what qualifies as Lymphocitic or Collagenic, if one is just older than the other and maybe that's already been answered here. My issues go back to early childhood and also into deep family history as well. Yeah, it's not fun, lulu, but diet is the answer, at least it was in my case. Cannot recommend the Enterolab tests highly enough, even if you just do the genetic tests. I passed my 501 gene on to both my daughters and 2 of 3 grandkids.
I have both types of MC, still not sure what qualifies as Lymphocitic or Collagenic, if one is just older than the other and maybe that's already been answered here. My issues go back to early childhood and also into deep family history as well. Yeah, it's not fun, lulu, but diet is the answer, at least it was in my case. Cannot recommend the Enterolab tests highly enough, even if you just do the genetic tests. I passed my 501 gene on to both my daughters and 2 of 3 grandkids.
Resolved MC symptoms successfully w/L-Glutamine, Probiotics and Vitamins, GF since 8/'09. DX w/MC 10/'09.
I plan on taking them, but have been centered on diet for over a yr. & also spending lots of time taking care of my 86 yr. old mom who has Parkinsons. My Dr. did do a gluten intolerance test, which showed none, which I expected to be lacking compared to what I've read on here about Entero Lab.. Plus I was gluten free at the time (still am), so don't know if that hurt or not. I've done so much better since end of year, but have had two flare ups since, one lasting 2 wks. (going on now, but not as bad as used to have the D, & one was just for one night. I want to take anything naturally though that would help me stay better. There for awhile, even trying to learn to be GF, I had D around 18 to 20 times. I still can't gain weight back. Am 5'3 & 100 lbs.
You can't change the wind, but you can adjust the sails.
lulu,
Never underestimate stress as a factor for your symptoms, it's been a major factor for most of us here and I can only imagine that taking care of your Mom is pretty stressful. Good to hear that you are GF, it certainly can't hurt and will give you an advantage if and when you know you have a gluten sensitivity.
I'm with you on the weight issue. I'm 5'7" and right now weigh 112, keep losing weight, just have no appetite, guess I am afraid to eat, I don't know. Hang in there, sister.
Connie
Never underestimate stress as a factor for your symptoms, it's been a major factor for most of us here and I can only imagine that taking care of your Mom is pretty stressful. Good to hear that you are GF, it certainly can't hurt and will give you an advantage if and when you know you have a gluten sensitivity.
I'm with you on the weight issue. I'm 5'7" and right now weigh 112, keep losing weight, just have no appetite, guess I am afraid to eat, I don't know. Hang in there, sister.
Connie
Resolved MC symptoms successfully w/L-Glutamine, Probiotics and Vitamins, GF since 8/'09. DX w/MC 10/'09.
Sue,
I ALWAYS wear long, thick pads, and do not move without them. I take extras when I go out to deal with wet farts and such like, which happen way too often.
I also have depends in my closet, and use them when need arises,which is fairly often.
I have the opposite weight problem. Seem to absorb too much of whatever I eat. I have C dominant MC, and struggle all the time.
I can't have rice so the Namaste stuff, and most others, are not for me.
I ALWAYS wear long, thick pads, and do not move without them. I take extras when I go out to deal with wet farts and such like, which happen way too often.
I also have depends in my closet, and use them when need arises,which is fairly often.
I have the opposite weight problem. Seem to absorb too much of whatever I eat. I have C dominant MC, and struggle all the time.
I can't have rice so the Namaste stuff, and most others, are not for me.
I've looked at the long, thick pads, but I really think that for peace of mind I would need full coverage with elastic around the legs to feel "safe". They sell some "panties" now that claim to do the job but I'm not sure if ANYTHING would suffice if there were an unexpected blow out.Lesley wrote:Sue,
I ALWAYS wear long, thick pads, and do not move without them. I take extras when I go out to deal with wet farts and such like, which happen way too often.
I also have depends in my closet, and use them when need arises,which is fairly often.
What really amazes me is that we talk about this as if it's a normal way of life, whereas if we mentioned it to someone who doesn't suffer with this, they would think it was horrific and unheard of. It's incredible how we all learn to live with and deal with whatever life throws at us and just keep on going. God bless us all - what hasn't killed us has made us stronger.
Sue
Sue
Diagnosed November 2004, Used Asacol and Lialda, sometimes worked, sometimes made it worse. Entocort always works but hate it. Remission only lasts 3-6 months and then back on Entocort. Enterolab test July 2017, now gluten free. Time will tell!
Diagnosed November 2004, Used Asacol and Lialda, sometimes worked, sometimes made it worse. Entocort always works but hate it. Remission only lasts 3-6 months and then back on Entocort. Enterolab test July 2017, now gluten free. Time will tell!