ROTFL after reading the list of abreviations on the web address provided by Tex above. Hope all of you are having good days. Back on sulfasalazine but taking 2 twice a day instead of 3 and lomotil 4 times a day. Was able to eat chicken last night without any D!
B-F-N...Carol
Mini flare today and then I remembered...
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Hi Carol1946,
I was also briefly on Sulfasalazine and I have to say the side effects were worse than the MC symptoms I was having. My primary care doc gave it to me while we were waiting for my appt with the GI to roll around. I know she thought it was the standard treatment. It made me soooo dizzy and unsteady, I titrated myself off after 2 weeks. With my LC I was sick in the mornings. With Sulfasalazine I was sick all day. My GI doc told me "we don't even use that stuff (Sulfasalazine). There are so many more effective meds we can use" and she immediately put me on Entocort. It made all the difference.
So that's my 2 cents on Sulfasalazine. For me that stuff was poison. I think very few people do well on it. I wonder if it could be complicating your situation.
take care,
Carol
I was also briefly on Sulfasalazine and I have to say the side effects were worse than the MC symptoms I was having. My primary care doc gave it to me while we were waiting for my appt with the GI to roll around. I know she thought it was the standard treatment. It made me soooo dizzy and unsteady, I titrated myself off after 2 weeks. With my LC I was sick in the mornings. With Sulfasalazine I was sick all day. My GI doc told me "we don't even use that stuff (Sulfasalazine). There are so many more effective meds we can use" and she immediately put me on Entocort. It made all the difference.
So that's my 2 cents on Sulfasalazine. For me that stuff was poison. I think very few people do well on it. I wonder if it could be complicating your situation.
take care,
Carol
“.... people will forget what you said, people will forget what you did, but people will never forget how you made them feel.” Maya Angelou
Hi Carol,
Sulphasalazine is definitely not my med of choice, however, I have no RX plan and can't even afford Asacol let alone Intocort(sp?). I plan to pursue a pharmasuetical plan for assistance as soon as I get my strength back, the last 3 months have been rocky. One litle annoyance is that I don't have a printer to print out the forms but maybe my PCP office can help.
However, I've been on sulfasalazine for 17 years for my CC and it has usually worked well for me as long as I take my doses on time and don't let myself think, "Oh, I'm doing so well, guess I don't need to take it anymore".....trial and error. But, having said that, since our systems are changing constantly it may now be a problem.
Thank you for replying, Carol
Carol K
Sulphasalazine is definitely not my med of choice, however, I have no RX plan and can't even afford Asacol let alone Intocort(sp?). I plan to pursue a pharmasuetical plan for assistance as soon as I get my strength back, the last 3 months have been rocky. One litle annoyance is that I don't have a printer to print out the forms but maybe my PCP office can help.
However, I've been on sulfasalazine for 17 years for my CC and it has usually worked well for me as long as I take my doses on time and don't let myself think, "Oh, I'm doing so well, guess I don't need to take it anymore".....trial and error. But, having said that, since our systems are changing constantly it may now be a problem.
Thank you for replying, Carol
Carol K
Don't Forget to Laugh Today!
Carol1946,
There are members here who have ordered their meds (Entocort included) from Canada and India, at a greatly reduced price for the same med I pick up at Walgreens. Somewhere down the road that may be an option for you too.
Carol
There are members here who have ordered their meds (Entocort included) from Canada and India, at a greatly reduced price for the same med I pick up at Walgreens. Somewhere down the road that may be an option for you too.
Carol
“.... people will forget what you said, people will forget what you did, but people will never forget how you made them feel.” Maya Angelou
Hi Carol,
I appreciate the recommendation regarding "out of the US" for med sources.....great idea!!! I did check out All Day Chemist for Entocort and the generic but the price, if I recall correctly, was $4.50 for 10 tabs on both, which surprised me, so had to cross that off my list. Another to check out is the Free Medicine Foundation sponsored by Montel Williams, and, NeedyMeds.com. So, if anyone has data on purchasing pharmaceuticals from Canada or India I'd appreciate the input.
Thank You All,
Carol
I appreciate the recommendation regarding "out of the US" for med sources.....great idea!!! I did check out All Day Chemist for Entocort and the generic but the price, if I recall correctly, was $4.50 for 10 tabs on both, which surprised me, so had to cross that off my list. Another to check out is the Free Medicine Foundation sponsored by Montel Williams, and, NeedyMeds.com. So, if anyone has data on purchasing pharmaceuticals from Canada or India I'd appreciate the input.
Thank You All,
Carol
Don't Forget to Laugh Today!
I don't understand why that price surprised you. That's only $121.50 for a 3-month supply (270 capsules). That much budesonide in the U.S. would cost almost $4,000, and Entocort EC would cost over $5,000. Check these current prices (which require a discount coupon at most pharmacies):Carol wrote:but the price, if I recall correctly, was $4.50 for 10 tabs on both, which surprised me, so had to cross that off my list.
http://www.goodrx.com/entocort
All Day Chemist is the only game in town for anyone who needs budesonide and doesn't have either excellent insurance or a high income. That's cheaper than a lot of co-pays, and it works the same as the name brand stuff.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
THX Tex,
Guess I misunderstood what I was reading. Don't ask me how, but I was coming up with a cost of almost $4.50 per day which would be $135/month. Forgetting that 9mg seems to be a starting point for many and that the caps are 3mg. DUH!!! When in effect it looks to be around $40/mo which is just about what I pay for sulfasalazine. Have I got it right now??? That's what I get for not exercising my brain enough!
Appreciate the help!!!
Carol
Guess I misunderstood what I was reading. Don't ask me how, but I was coming up with a cost of almost $4.50 per day which would be $135/month. Forgetting that 9mg seems to be a starting point for many and that the caps are 3mg. DUH!!! When in effect it looks to be around $40/mo which is just about what I pay for sulfasalazine. Have I got it right now??? That's what I get for not exercising my brain enough!
Appreciate the help!!!
Carol
Don't Forget to Laugh Today!
Hi Carol,
Yes, the cost of the med would be about $40.00 per month. The cost of shipping has to be added to that, of course. I'm not sure what the cost would be (I've never ordered from them), but it will probably amount to something like another $10.00 per month. Maybe someone here who has ordered from them before can give you a much better estimate of the shipping cost.
Tex
Yes, the cost of the med would be about $40.00 per month. The cost of shipping has to be added to that, of course. I'm not sure what the cost would be (I've never ordered from them), but it will probably amount to something like another $10.00 per month. Maybe someone here who has ordered from them before can give you a much better estimate of the shipping cost.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.