TA DAAA! My MC is GONE!

Updates from members who have been successful in controlling their symptoms.

Moderators: Rosie, JFR, Gabes-Apg, grannyh, Mars, starfire, Polly, Joefnh

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Lesley
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Post by Lesley »

Monique, welcome!

We have all been where you are, and, most of us (Polly included) are not totally back to where we were in spite of diet. However, most of us are significantly better than we were at the time of diagnosis.
So read widely on this forum, and when you don't understand ask questions. You will always be helped and encouraged!
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wmonique2
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Post by wmonique2 »

Thank you, Leslie. I am thankful for all the wonderful replies and the support. I don't feel so alone anymore. I know I can turn to you all and get the support I need.

Monique
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Lesley
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Post by Lesley »

That's what happened to me. I no longer listen the crap my doctors try to feed me - crap in, crap out if you will excuse the put. I take ALL my information from the people on this site, and they have never let me down!
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JFR
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Post by JFR »

Lesley wrote:That's what happened to me. I no longer listen the crap my doctors try to feed me - crap in, crap out if you will excuse the put. I take ALL my information from the people on this site, and they have never let me down!
This is an important lesson to learn, I believe, that doctors don't always have the answer and sometimes their advice not only isn't helpful but can be positively harmful. In the case of MC this seems to be the case. The advice that come from this forum regarding food and medicine is the best advice out there. I certainly am glad that I found this site. We are trained to think that when we are sick we should go to a doctor to get a diagnosis and then following the diagnosis they will institute a treatment that is appropriate. This is not always true and there is no sense listening to a doctor when that doctor does not know best. Dietary change is the backbone of the treatment advice you will find here but not at most if any doctor's office.

Jean
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wmonique2
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Post by wmonique2 »

Thanks Lesley.
Glad I am not the only one having issues with GI doctors. I am on my 5th (and he doesn't know much either!) within a year and half...

The first one was sweet but with an incomprehensible Korean accent. I didn't understand a word.
The second was very young and arrogant. Hubris was his middle name.
The third misdiagnosed a serious bacterial infection that nearly killed me, sent me to the hospital and triggered colitis
The fourth one said EAT EVERYTHING!
Number 5 is the current one. Saw him twice. Will let you know when he is booted too :-) Well, he at least told me to try the elimination diet (he knew about that one! Bravo!)

I think I'll keep to the "docs" on this board.

Monique
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coryhub
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Post by coryhub »

:dancingpenguins: Such wonderful news! To think that such a remission is possible. I hope you stay this way for the longest possible time. I am inspired to read more about the Paleo diet.
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Diagnosed with Lymphocytic Colitis Sept. 2010
On and off Entocort(Currently Off)
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Lesley
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Post by Lesley »

I'm on my 3rd GI, and haven't looked for # 4 because it would be same s**t different day.
Trying to get an answer from them is adding stress for no reason. All they want to do is ADD drugs, when I am trying to throw out as many as I can.

The only reason I went back to the GI was to nag him to do an endoscopy to see if I had Barrett's esophagus.
I email my PCP for tests when I need them, or think too much time has gone by, and go from there.

You will learn to take control of your disease! Trust the people here.
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fatbuster205
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Post by fatbuster205 »

Polly,
That is amazing and I hope one day to be celebrating the same! I have a long journey ahead but that is so inspiring!! Many congratulations on your hard earned success and I hope you continue to enjoy great health!
Best wishes,
Anne
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Post by Joanna »

Congratulations!
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healthydesire
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Post by healthydesire »

congratulations, Polly! That is awesome. I hope to one day be there myself. I've been DF for over 3 months and gluten free for about 10 days. Did you take any supplements as well as avoid certain foods?
close your eyes...make a wish~**
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Post by janet »

AH POLLY I AM SO HAPPY FOR YOU, SO WELL DONE. YOU GIVE ME HOPE TO CARRY ON

LOVE MARIE :cat:
jmg
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Gabes-Apg
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Post by Gabes-Apg »

Marie /healthy desire...

Polly's original post is a few years old.
After this celebration, Polly did have a major flare, and has some histamine/mast cell irritation

MC remission can be a delicate fragile type state.
Gabes Ryan

"Anything that contradicts experience and logic should be abandoned"
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coryhub
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Post by coryhub »

Yippee Polly! Years of hard work and research paid off! There is much we can learn from you.

Cory :dancingpenguins: :circle:
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On and off Entocort(Currently Off)
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Yes!

Post by Lovinlivin8 »

So encouraging. Thank you for the "HOPE"! and Congrats. Hope all is well still.

Tammy
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Post by Deanna »

Your post is so encouraging to me! I am about two months into my journey and already have discovered so many intolerances. Now that I see your list I am convinced I can do it too.
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