Update & Thanks
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wonderwoman
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Joefnh
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Well some good news....it's not cancer!!!! 
It's called a Giant cystic Schmorl's node, which if I understand correctly is basically a cyst that's formed in the bone. It seems that the soft discs in your spine that are filled with a jelly like substance can not only bulge outwards but can also bulge upwards into the bone of the vertebrae if there is a week spot. In this case this also formed the presence of a giant cell cyst. Apparently these are somewhat rare and can look like cancer on a MRI.
So now it's just a matter of dealing with the spinal stenosis and AS. They are scheduling a session to have some long acting steroids injected into those spaces in the spinal column to settle down the pain. Apparently those can give meaningful relief for several months at a time.
Certainly thanks for all of your prayers and well wishes...I am quite humbled.
Now it feels as if a 100 pound weight has been removed, what an interesting week.
It's called a Giant cystic Schmorl's node, which if I understand correctly is basically a cyst that's formed in the bone. It seems that the soft discs in your spine that are filled with a jelly like substance can not only bulge outwards but can also bulge upwards into the bone of the vertebrae if there is a week spot. In this case this also formed the presence of a giant cell cyst. Apparently these are somewhat rare and can look like cancer on a MRI.
So now it's just a matter of dealing with the spinal stenosis and AS. They are scheduling a session to have some long acting steroids injected into those spaces in the spinal column to settle down the pain. Apparently those can give meaningful relief for several months at a time.
Certainly thanks for all of your prayers and well wishes...I am quite humbled.
Now it feels as if a 100 pound weight has been removed, what an interesting week.
Joe
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What did I tell ya? Second only to "IBS", cancer is their default diagnosis anytime something doesn't look right.Drink one for me, while you're celebrating.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Wow Joe - what a scare you've had!!! I'm so very happy to hear the good news . Lots of luck with the "repair work" - hope the procedure goes off smoothly - sending positive thoughts and prayers your way.
Love,
Kari
. Lots of luck with the "repair work" - hope the procedure goes off smoothly - sending positive thoughts and prayers your way.Love,
Kari
"My mouth waters whenever I pass a bakery shop and sniff the aroma of fresh bread, but I am also grateful simply to be alive and sniffing." Dr. Bernstein
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wonderwoman
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Kathy
Joe, I am thrilled about the dx.
I hope the steroid shots help. They have helped me in the past, enough for me to wish they would give me some right now.
Have you asked your doc about a dorsal stimulator? I have been thinking of doing it, but am a little nervous, since I am so prone to everything that CAN go wrong. I wonder if it would work for AS?
I hope the steroid shots help. They have helped me in the past, enough for me to wish they would give me some right now.
Have you asked your doc about a dorsal stimulator? I have been thinking of doing it, but am a little nervous, since I am so prone to everything that CAN go wrong. I wonder if it would work for AS?
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Christine.
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