Hello,
I haven't written here for such a long time. But now I have question. At first time, when i logged on here, you told me, that the only way to be in remission is to be on diet. That I have to eliminate some kind of food.
Now I'm in remission. The whole year without any symptoms and i still put on weight.And I owe my remission to azathioprine. Only. I can eat everything .
In Poland no one told me about food intolerances causing limphocytic colitis. With the aid of drugs I have remission. It is normal and typicall in your countries?
Azathioprinum- and I'm in remission.
Moderators: Rosie, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
Hi Ray,
It's good to hear that you are in remission. Actually, a small percentage of people who have lymphocytic colitis are luckier than most of us and they are able to reach remission without taking any drugs or changing their diets. Some of us are able to reach remission by taking a drug. However, unless we want to take a powerful immune system suppressant for the rest of our life, most of us have to change our diet in order to eliminate our symptoms. Even if we take an immune system suppressant, most of us have to limit our diet in order to completely control our symptoms. You are very fortunate to be able to be in remission without any diet changes.
Food sensitivities do not cause MC (usually). The inflammation that causes MC triggers gene changes that cause the food sensitivities, and once that happens, then the food sensitivities will cause the inflammation that causes MC. It's a vicious cycle.
The drug that you are taking is a powerful immune system suppressant. It was originally developed to prevent the body from rejecting organ transplants. We consider it to be a last resort treatment for treating this disease because when we suppress our immune system to stop the reactions, we also prevent our immune system from effectively controlling bacterial and viral infections and various other diseases. Immune system suppressants also make us more susceptible to certain types of cancer, because if cancer cells are somehow created, they can develop much more rapidly without the immune system to destroy them or at least retard their development.
Be sure that your doctor regularly monitors your liver enzymes, because if something goes wrong, you want to catch it as soon as possible, in order to prevent serious damage. Also make sure that he monitors your white cell count (in your blood), because that drug suppresses white cells, and if the count gets too low, you can become very vulnerable to infection or disease). In other words, your dosage rate of the drug should be no greater than the minimum amount necessary to control your symptoms. Taking more than is needed will suppress your white cell count more than is necessary, and make you more vulnerable to infections and disease.
The reason your doctors never told you about the connection between food sensitivities and LC is because they don't know that the disease can be controlled by diet changes. We have the same problem here in the U. S., but fortunately a few of our GI specialists are beginning to learn about the connection.
Thank you for the update, and good luck with your treatment. If you should ever decide to stop taking the drug, be sure to change your diet at least several months before you stop taking it, otherwise your symptoms will relapse after the drug wears off.
Tex
It's good to hear that you are in remission. Actually, a small percentage of people who have lymphocytic colitis are luckier than most of us and they are able to reach remission without taking any drugs or changing their diets. Some of us are able to reach remission by taking a drug. However, unless we want to take a powerful immune system suppressant for the rest of our life, most of us have to change our diet in order to eliminate our symptoms. Even if we take an immune system suppressant, most of us have to limit our diet in order to completely control our symptoms. You are very fortunate to be able to be in remission without any diet changes.
Food sensitivities do not cause MC (usually). The inflammation that causes MC triggers gene changes that cause the food sensitivities, and once that happens, then the food sensitivities will cause the inflammation that causes MC. It's a vicious cycle.
The drug that you are taking is a powerful immune system suppressant. It was originally developed to prevent the body from rejecting organ transplants. We consider it to be a last resort treatment for treating this disease because when we suppress our immune system to stop the reactions, we also prevent our immune system from effectively controlling bacterial and viral infections and various other diseases. Immune system suppressants also make us more susceptible to certain types of cancer, because if cancer cells are somehow created, they can develop much more rapidly without the immune system to destroy them or at least retard their development.
Be sure that your doctor regularly monitors your liver enzymes, because if something goes wrong, you want to catch it as soon as possible, in order to prevent serious damage. Also make sure that he monitors your white cell count (in your blood), because that drug suppresses white cells, and if the count gets too low, you can become very vulnerable to infection or disease). In other words, your dosage rate of the drug should be no greater than the minimum amount necessary to control your symptoms. Taking more than is needed will suppress your white cell count more than is necessary, and make you more vulnerable to infections and disease.
The reason your doctors never told you about the connection between food sensitivities and LC is because they don't know that the disease can be controlled by diet changes. We have the same problem here in the U. S., but fortunately a few of our GI specialists are beginning to learn about the connection.
Thank you for the update, and good luck with your treatment. If you should ever decide to stop taking the drug, be sure to change your diet at least several months before you stop taking it, otherwise your symptoms will relapse after the drug wears off.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Yes i know about this but without aza i can't normally exisist.tex wrote:What is your source of information?Food sensitivities do not cause MC (usually). The inflammation that causes MC triggers gene changes that cause the food sensitivities, and once that happens, then the food sensitivities will cause the inflammation that causes MC. It's a vicious cycle.
And I don't understand- how inflammation can triggers gene changes?
The drug that you are taking is a powerful immune system suppressant. It was originally developed to prevent the body from rejecting organ transplants.
Yes, I know. Treatment for Crohn's disease usually involves Azathioprinum. And In the other hand- do you know that often LC can be the first demonstration of CD? IBD often needs so time to show histological changes.We consider it to be a last resort treatment for treating this disease because when we suppress our immune system to stop the reactions, we also prevent our immune system from effectively controlling bacterial and viral infections and various other diseases.
I didn't even catch a cold.
Immune system suppressants also make us more susceptible to certain types of cancer, because if cancer cells are somehow created, they can develop much more rapidly without the immune system to destroy them or at least retard their development.
http://www.finerhealth.com/Essay/Ray wrote:What is your source of information?
http://www.finerhealth.com/Educational_ ... c_Colitis/
http://www.finerhealth.com/Educational_ ... nsitivity/
That explanation requires more extensive coverage than I have to devote to it at the moment, because I have to get to work. All that is discussed in my book, which will soon be published.Ray wrote:And I don't understand- how inflammation can triggers gene changes?
No, the claim that MC segues into Crohn's disease is a falacy. The inflammation that causes MC and celiac disease involve T cell infiltration into the lamina propria of the intestines (both small and large bowels). Crohn's disease is marked by the infiltration of neutrophils, (T cells only play a relatively minor role).Ray wrote:do you know that often LC can be the first demonstration of CD?
That's because your diet still includes the foods that are causing the inflammation that results in your disease. Drugs can suppress the inflammation, but only diet changes can prevent the inflammation from developing in the first place. It's that simple.Ray wrote:Yes i know about this but without aza i can't normally exisist.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
so why MC is miroscopic colitis? It includes only colon. There is no disease in which inflammation is present in whole GIT ( without Crohn's disease of course).
" In 60% of CD cases in intesine's wall is granuloma which is consist of epithelial-like cells, Langhans-giant type cells and limphocytes cells present".( sorry but is hard to me to translated this medical stuff)
This sentence comes from medical book about internal medicine.
And why all medical trials ale based on T-cell ??
This is about shield-1 which, maybe someday can be used in CD treatment.
http://www.chemocentryx.com/product/CCR9.html
in chronic inflammation T cell are situated in whole thickness of small intestine.Crohn's disease is marked by the infiltration of neutrophils, (T cells only play a relatively minor role).
" In 60% of CD cases in intesine's wall is granuloma which is consist of epithelial-like cells, Langhans-giant type cells and limphocytes cells present".( sorry but is hard to me to translated this medical stuff)
This sentence comes from medical book about internal medicine.
And why all medical trials ale based on T-cell ??
This is about shield-1 which, maybe someday can be used in CD treatment.
http://www.chemocentryx.com/product/CCR9.html
Hi Ray,
I can understand why you are confused, because your doctors are also confused. Medical understanding of IBDs is very limited. However, you are trying to argue about something that you don't understand.
Here are some facts:
Microscopic colitis can (and does) affect every organ in the digestive tract (similar to Crohn's disease). Virtually everyone with MC has inflammation in not only their colon, but their small intestine as well. Most doctors don't know that simple fact.
The same is true for celiac disease. Virtually everyone who has celiac disease also has an inflamed colon, in addition to their small intestine. Most doctors are not aware of that fact, either.
Those are facts (not unfounded claims), and I can cite research references on all of them. All of this is discussed in detail in my book, with numerous references, so there is no question about the validity of my claims. My book will be published (hopefully) within a few weeks. If you will send me your mailing address, I'll send you a copy, at no cost to you, and after you read it, (and when I have more time), if you're still not convinced, I will be happy to debate any part of it to your heart's content. However, at the moment, and for the next month or so, I am very short on time, so I don't have any time to waste arguing about facts which have already been proven by published research. Your doctors simply don't keep up with research, so they don't understand the disease as well as they should. Their knowledge is outdated.
My book is the first one ever written that's dedicated to understanding microscopic colitis and treating it. After you read my book, you will know more about the disease than at least 95% of the GI specialists in the world (except for those who also read the book).
I apologize, please forgive me, but I simply don't have time to debate any of this at the moment.
Tex
I can understand why you are confused, because your doctors are also confused. Medical understanding of IBDs is very limited. However, you are trying to argue about something that you don't understand.
Here are some facts:
Microscopic colitis can (and does) affect every organ in the digestive tract (similar to Crohn's disease). Virtually everyone with MC has inflammation in not only their colon, but their small intestine as well. Most doctors don't know that simple fact.
The same is true for celiac disease. Virtually everyone who has celiac disease also has an inflamed colon, in addition to their small intestine. Most doctors are not aware of that fact, either.
Those are facts (not unfounded claims), and I can cite research references on all of them. All of this is discussed in detail in my book, with numerous references, so there is no question about the validity of my claims. My book will be published (hopefully) within a few weeks. If you will send me your mailing address, I'll send you a copy, at no cost to you, and after you read it, (and when I have more time), if you're still not convinced, I will be happy to debate any part of it to your heart's content. However, at the moment, and for the next month or so, I am very short on time, so I don't have any time to waste arguing about facts which have already been proven by published research. Your doctors simply don't keep up with research, so they don't understand the disease as well as they should. Their knowledge is outdated.
My book is the first one ever written that's dedicated to understanding microscopic colitis and treating it. After you read my book, you will know more about the disease than at least 95% of the GI specialists in the world (except for those who also read the book).
I apologize, please forgive me, but I simply don't have time to debate any of this at the moment.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Christine.
- Gentoo Penguin
- Posts: 260
- Joined: Mon Feb 20, 2012 1:15 pm
Hi Chris,
It's my regular work that's keeping me occupied these days, but I hope to get a break this weekend (if it rains), and then hopefully I'll be able to finish the final editing and upload it so that a proof copy can be printed. If it checks out OK, then it will be good to go.
Thanks, these delays are frustrating.
Tex
It's my regular work that's keeping me occupied these days, but I hope to get a break this weekend (if it rains), and then hopefully I'll be able to finish the final editing and upload it so that a proof copy can be printed. If it checks out OK, then it will be good to go.
Thanks, these delays are frustrating.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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wonderwoman
- Rockhopper Penguin
- Posts: 574
- Joined: Wed Feb 17, 2010 8:59 pm
- Location: Sun City, AZ
Great news Tex. Can't wait to get a copy. How do you plan on offering it to us on PP? Will we be able to get it from you directly or will there be another source?If it checks out OK, then it will be good to go.
Charlotte
The food you eat can be either the safest and most powerful form of medicine, or the slowest form of poison. Ann Wigmore
The food you eat can be either the safest and most powerful form of medicine, or the slowest form of poison. Ann Wigmore
It will be available on Amazon, but I'll probably try to figure out a direct way to offer it to members of the board at a discounted rate.
Tex
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.