Feel free to discuss any topic of general interest, so long as nothing you post here is likely to be interpreted as insulting, and/or inflammatory, nor clearly designed to provoke any individual or group. Please be considerate of others feelings, and they will be considerate of yours.
Hey Tex,
Just got my copy on the iPad. Thank you for posting Judy malinowski's old site. She was a big help to me when I was trying to find information about my mother's terrible D. Unfortunately, even after Entero Lab testing and the suggestion to stop eating gluten, the seriousness of MC wasn't appreciated. My mother refused to go GF and I wasn't aware of the consequences of that decision. My Mom's last few years would have been a lot more comfortable had she stopped eating gluten. She used to call her home, "The House of S##t".
Thank you again,
Sheila W
To get something you never had, you have to do something you never did.
A person who never made a mistake never tried something new. Einstein
You're most welcome, of course. And don't sweat the icon — they're mostly just for grins, anyway.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Congratulations Tex! I will be ordering-- can't decide on how many copies. I'm thinking my GI doc and PCP might both want one, seriously. They've been open to considering the role of diet (my GI doc believes there is a correlation) and willing to listen to me and help me along in my journey.
Thank you for your persistence and unwavering devotion to the MC board here. I would not have my life back if not for the guidance of you and everyone here.
Carol
“.... people will forget what you said, people will forget what you did, but people will never forget how you made them feel.” Maya Angelou
That's fantastic that you have not one but two doctors who are willing to listen and learn. I have no idea whether or not it might be advisable for you to read the book first before recommending or presenting a copy to your doctors. Since I wrote it, I can't objectively make that judgment. You would be in a much better position than I to determine whether or not there may be one or more phrases in the book that might be offensive or otherwise over the line for some doctors.
Of course, all doctors are individuals, and some have much thinner skin and much bigger egos than others. Some are arrogant know-it-alls while others are so human that we feel secure and relaxed when we're around them. Some (like my GP), will defend the failings of their cohorts no matter how serious their offenses might be, while others are realistic, and realize that all of us should always remain open-minded, because no matter how much we learn, we have only scratched the surface of the potential knowledge that still remains to be learned.
I need some feedback on how most doctors are likely to interpret some of the phrases that point out the failings of the current medical approach to treating this disease, celiac disease, and other issues, because I can still make changes if they are clearly needed. I tried to be emphatic, without appearing to be overly-critical, but sometimes what we write doesn't always appear to others in the way that we intended.
Of course, I realize that there is no way that everyone will be happy with what I have written, but I certainly didn't intend for the tone of the book to be offensive to most qualified medical professionals. I'm not so concerned about the many GI specialists who don't have a clue about treating MC and who obviously aren't interested in learning how to properly treat the disease. They're not likely to read the book anyway. It's certainly their right to be offended if they choose to do so rather than to upgrade their knowledge about the disease. The world is full of people in denial, who aren't willing to change until the world forces them. But on the other hand, I certainly don't want to offend those who are unfamiliar with treating the disease, and who would like to learn more about it. Those doctors are the hope for the future for anyone diagnosed with MC in the future.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Tex, I agree with your thought that i should read the book first. As far as offering it to my docs, I am cautiously optimistic because I have told both of my docs about this site and my GI wrote it down. She wanted to see it, see what we were experiencing, what we were discussing, etc. I told her that not everyone was as fortunate as I have been and many have struggled for years to find a doctor who they could work with. She nodded and said "I'll bet you've heard some stories". Certainly she knows how tricky bowel disease can be-- I'm probably an easier case. This is the doctor/group that always call me back within 2 hours after I call with a question. I'm sure they get constant and much more urgent questions than mine. I've told both of my doctors how stunned I was to learn that others had been sick 2-3 YEARS before getting a diagnosis and that I felt fortunate to have received mine in 6 weeks of getting sick and getting on a path to remission. So, I think both of these ladies "get' that not everyone's experiences are positive. I warned my GI to be aware that many here were exasperated with trying to find competent medical help. I think they can both look past anything you said that you think might be harsh. Facts are the facts and this has been the experience of many people, maybe even the majority, of the members on our support group site.
thanks
Carol
“.... people will forget what you said, people will forget what you did, but people will never forget how you made them feel.” Maya Angelou
Well, based on an idea that I believe Joe gave me some time back, I originally planned to show the worst food sensitivities feeding into the roots, the environmental factors (such as stress, ethnic diet, etc.) and medical constraints and effects such as genetics, mast cells and leaky gut, etc., on the trunk, and celiac disease, MC, the other IBDs, and various autoimmune diseases coming out of the dead branches. Rosie pointed out that was way too "busy", though (and I certainly couldn't argue that point). LOL.
She convinced me that simple is better and most people would get the general meaning, once they read the book.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Tex, I haven't received my copy in the mail yet, but do you believe that people dx with "IBS" are also suffering from inflammation and will most likely get better with the same type of diet most of us are on?
IMO, there is no such thing as IBS. "IBS" stands for I Be Stymied, and it simply means that the doctor doesn't have the foggiest idea what's wrong with a patient. Inflammation by definition is associated with inflammatory bowel disease (remember that celiac disease is also an IBD).
IMO, a "diagnosis" of IBS occurs either because a patient's diagnostic markers simply don't fit the classic pattern required for a diagnosis of any known disease, or the markers haven't yet matured to the point where they correctly fit the arbitrary diagnostic criteria of any known disease, or the doctor fails to recognize one or more qualifying diagnostic markers due to oversight, the use of an incorrect test, corrupt test results, or some other source of human error.
Yes, if inflammation is involved, then the cause is almost surely either due to an adverse reaction to a drug or a reaction to one or more food sensitivities, or both (IMO).
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Tex is correct. Irritable Bowel Syndrome (IBS) is not considered to be a "disease" by medical professionals. It is a SYNDROME, which by definition means it is a collection of symptoms without any clear cause.
I do believe that some have more "irritable" guts than others, probably due to many different causes - stress, unsuspected food or chemical sensitivities, etc.
Hugs,
Polly
Blessed are they who can laugh at themselves, for they shall never cease to be amused.
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