Hi everybody,
I have a question about LC. I eat properly (no milk, no eggs, no fatty foods, no alcohol, ...) and I take my medecine (Budenofalk - entocort 9mg a day). Why do I still have these flares? I do what I'm supposed to do, so I don't understand. Is there anybody who still has flares with medicine and diets?
And is it normal to feel this tired? I could fall a sleep at work!
Thank you!
Julie
still having flares
Moderators: Rosie, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
still having flares
It doesn't matter how many times you fall, but how many times you get up en go for it again. HOPE !!!!
Hi Julie,
I'm sorry that you're still having symptoms despite following a treatment program. I have to agree with Deb and Ant — despite what your doctors may be telling you, the gluten in your diet is almost surely the cause of your continuing symptoms. Most doctors don't know how to test for the type of gluten sensitivity that is found with this disease (non-celiac gluten sensitivity), and they will give a blood test that incorrectly shows that we are not sensitive to gluten. Gluten is a very insidious enemy and most of us are unable to notice that it is causing our problems as long as we continue to eat it. But after we eliminate gluten from our diet for a few months we find that our symptoms disappear as our digestive system heals.
As long as we continue to eat gluten, the inflammation continues to be regenerated, and for some of us, the inflammation is generated faster than Budenofalk can control it, so that the drug is never able to bring remission. For others, the drug will bring remission, but after it is discontinued, the symptoms will return. As long as the inflammation is being generated, our body uses most of it's energy to fight the inflammation, and this is the cause of the intense fatigue. Changing your diet will put an end to the inflammation so that your intestines can heal, and the fatigue will fade away as your digestive system heals.
Good luck with your treatment program, and please continue to ask questions, because many of us have been in the same situation that you are now in.
Tex
P. S. I have written a book describing how to understand this disease and how to treat it, but I'm not sure if it is available in Belgium. It's the only book ever written specifically about the disease. It's only available in an English version, but if it's not available there, if you will send me your mailing address, I will be happy to send you a free copy. You can send me your mailing address privately by clicking on either the "pm" (personal message) button or the "email" button at the bottom of this page. After you click on one of those buttons, the system will open a window where you can write your message, and when you click on the "submit" button, the message will be sent to me.
I'm sorry that you're still having symptoms despite following a treatment program. I have to agree with Deb and Ant — despite what your doctors may be telling you, the gluten in your diet is almost surely the cause of your continuing symptoms. Most doctors don't know how to test for the type of gluten sensitivity that is found with this disease (non-celiac gluten sensitivity), and they will give a blood test that incorrectly shows that we are not sensitive to gluten. Gluten is a very insidious enemy and most of us are unable to notice that it is causing our problems as long as we continue to eat it. But after we eliminate gluten from our diet for a few months we find that our symptoms disappear as our digestive system heals.
As long as we continue to eat gluten, the inflammation continues to be regenerated, and for some of us, the inflammation is generated faster than Budenofalk can control it, so that the drug is never able to bring remission. For others, the drug will bring remission, but after it is discontinued, the symptoms will return. As long as the inflammation is being generated, our body uses most of it's energy to fight the inflammation, and this is the cause of the intense fatigue. Changing your diet will put an end to the inflammation so that your intestines can heal, and the fatigue will fade away as your digestive system heals.
Good luck with your treatment program, and please continue to ask questions, because many of us have been in the same situation that you are now in.
Tex
P. S. I have written a book describing how to understand this disease and how to treat it, but I'm not sure if it is available in Belgium. It's the only book ever written specifically about the disease. It's only available in an English version, but if it's not available there, if you will send me your mailing address, I will be happy to send you a free copy. You can send me your mailing address privately by clicking on either the "pm" (personal message) button or the "email" button at the bottom of this page. After you click on one of those buttons, the system will open a window where you can write your message, and when you click on the "submit" button, the message will be sent to me.
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.