I am hoping this is all part of the disease process. If it is not call me out on it and tell me I am just being lazy. I am fine with that. Sometimes you need a wakeup call!
I have just been so tired. Is it the Endocort? Is it the MC disease process? Am I just plain lazy?
I raised four kids. (two still @ home) I worked as an R.N while raising three kids.(one set of twins) I am not a stranger to hardwork.
I can't imagine I need so much sleep. I see my son off to school in the am and then go back to bed. And I sleep. The phone rings and rings. I get out of bed.......not because I am ready to get out of bed.......just because I feel that this is lazy and looks bad to be sleeping so much. I sometimes wonder without family and spouse would I sleep till two or three in the afternoon?
What is it with this exhaustion?
Part of the disease? or should I be looking for something else?
Their are clean towels fresh laundry and dinner every night.............. but I am exhausted
Fatique right? and not lazy. Do people really understand?
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
Camie,
Are you still having the WD???? While I was suffering with that for months.......I had NO energy what so ever I think because I was loosing any and all nutrients right straight through me. I could keep nothing in for any amount of time. Since I went on entocort and my WD stopped, I have felt better and now 3 weeks into it I can't stop with projects and stuff around the house. Shoot I've done more stuff in the last few days than I have for months. I feel great now but I was where you are for months during the WD time frame. And like you.......that was NOT me. Hang in there it will get better I hope!!!!
Are you still having the WD???? While I was suffering with that for months.......I had NO energy what so ever I think because I was loosing any and all nutrients right straight through me. I could keep nothing in for any amount of time. Since I went on entocort and my WD stopped, I have felt better and now 3 weeks into it I can't stop with projects and stuff around the house. Shoot I've done more stuff in the last few days than I have for months. I feel great now but I was where you are for months during the WD time frame. And like you.......that was NOT me. Hang in there it will get better I hope!!!!
Cathy
Hi Camie,
As Cathy says, it comes with the disease. Trying to deal with the inflammation in the intestines causes the extreme fatigue that so many of us have with this disease. It takes a lot of energy to heal the damage in the intestines, but the inflammation continues to be generated, faster than it can be healed, so the body uses more and more energy to try to deal with it, and we just sorta run out of gas.
Nope, you're not lazy — you're just a typical MCer. Once you stop generating the inflammation, and your digestive system is able to make some progress healing, you will find that your energy will begin to return.
Tex
As Cathy says, it comes with the disease. Trying to deal with the inflammation in the intestines causes the extreme fatigue that so many of us have with this disease. It takes a lot of energy to heal the damage in the intestines, but the inflammation continues to be generated, faster than it can be healed, so the body uses more and more energy to try to deal with it, and we just sorta run out of gas.
Nope, you're not lazy — you're just a typical MCer. Once you stop generating the inflammation, and your digestive system is able to make some progress healing, you will find that your energy will begin to return.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Re: Fatique right? and not lazy. Do people really understand
Hey Camie, It's definitely part of the disease, although I'm wondering in my case if there is something else going on. I want to sleep alot too and am going through most days in a fog. It is so frustrating to not be able to do what you want to do, due to the fatigue. I would rest as much as you can to allow yourself to heal.Camie wrote:I am hoping this is all part of the disease process. If it is not call me out on it and tell me I am just being lazy. I am fine with that. Sometimes you need a wakeup call!
I have just been so tired. Is it the Endocort? Is it the MC disease process? Am I just plain lazy?
I raised four kids. (two still @ home) I worked as an R.N while raising three kids.(one set of twins) I am not a stranger to hardwork.
I can't imagine I need so much sleep. I see my son off to school in the am and then go back to bed. And I sleep. The phone rings and rings. I get out of bed.......not because I am ready to get out of bed.......just because I feel that this is lazy and looks bad to be sleeping so much. I sometimes wonder without family and spouse would I sleep till two or three in the afternoon?
What is it with this exhaustion?
Part of the disease? or should I be looking for something else?
Their are clean towels fresh laundry and dinner every night.............. but I am exhausted
Hi Camie,
Absolutely, I agree - it's the disease process! And it is the symptom that took the longest to improve for me. I'd say it wasn't until at least 2 years after diagnosis that the fatigue was anywhere back to normal. It improved gradually. I remember more than one Fri. night falling into bed at 6 PM, sleeping 15 hours, and waking up exhausted.
Repeat after me...."I am NOT lazy, I am NOT lazy, I am NOT lazy ................ LOL!
Hugs,
Polly
Absolutely, I agree - it's the disease process! And it is the symptom that took the longest to improve for me. I'd say it wasn't until at least 2 years after diagnosis that the fatigue was anywhere back to normal. It improved gradually. I remember more than one Fri. night falling into bed at 6 PM, sleeping 15 hours, and waking up exhausted.
Repeat after me...."I am NOT lazy, I am NOT lazy, I am NOT lazy ................ LOL!
Hugs,
Polly
Blessed are they who can laugh at themselves, for they shall never cease to be amused.
Definitely agree.
MC can force people to stop working, not only because of needing to be near a loo all the time, but because of exhaustion. Took me two years or so to get back to some semblance of real work....even now I pace myself much more than I did.
I hope you start to get your energy back soon, Ant
MC can force people to stop working, not only because of needing to be near a loo all the time, but because of exhaustion. Took me two years or so to get back to some semblance of real work....even now I pace myself much more than I did.
I hope you start to get your energy back soon, Ant
----------------------------------------
"Softly, softly catchee monkey".....
"Softly, softly catchee monkey".....
Camie,
I am so glad you posted this--- my sentiments exactly! Ever since I started with the MC symptoms I thought I had started becoming a lazy worthless bum.
Like you, before MC, I always felt busy, industrious and was never concerned about not having enough energy to do things. This new tired lazy life wasn't always so. I remember the days going to nursing school full-time, raising a toddler, teaching ESL to kids, working 20 hours a week in the research lab and still having time to study, play, travel, and take care of my pets.
Then a couple years ago when my daughter was still in high school and the D was really bad, I remember many days when I was so tired I didn't even want to get ready in the morning and give her a ride to school---I just wanted to slip a 20 dollar bill under my bedroom door and tell her to take a cab to school...haha! That's really bad, I know but I could barely move, let alone get back in the work force.
I just started the generic Endocort (budesonide) and I don't know if it is making me MORE tired or not but I am trying to get better by forcing myself on the treadmill 30 minutes every day and trying to eat a nutrient rich diet. I am actually feeling a little more energetic and hopeful that I can rejoin society again! Hope you feel better and I truly am in awe of your accomplishments as a working mother of four...WOW.
Best,
Pam
I am so glad you posted this--- my sentiments exactly! Ever since I started with the MC symptoms I thought I had started becoming a lazy worthless bum.
Like you, before MC, I always felt busy, industrious and was never concerned about not having enough energy to do things. This new tired lazy life wasn't always so. I remember the days going to nursing school full-time, raising a toddler, teaching ESL to kids, working 20 hours a week in the research lab and still having time to study, play, travel, and take care of my pets.
Then a couple years ago when my daughter was still in high school and the D was really bad, I remember many days when I was so tired I didn't even want to get ready in the morning and give her a ride to school---I just wanted to slip a 20 dollar bill under my bedroom door and tell her to take a cab to school...haha! That's really bad, I know but I could barely move, let alone get back in the work force.
I just started the generic Endocort (budesonide) and I don't know if it is making me MORE tired or not but I am trying to get better by forcing myself on the treadmill 30 minutes every day and trying to eat a nutrient rich diet. I am actually feeling a little more energetic and hopeful that I can rejoin society again! Hope you feel better and I truly am in awe of your accomplishments as a working mother of four...WOW.
Best,
Pam
Hi PJ and Cammie,
The fatigue is the disease process. I'm just now getting my energies back. Get as much rest as your lifestyle permits. Try to eat protein at least 3 x per day. (Tough I know). I also found it helpful to still get some exercise although it was much less than pre CC. My outside walks helped to relieve stress and take my mind off of things. At some point I started taking a B multivitamin after the discussion on this board.
It gets better, Brandy
The fatigue is the disease process. I'm just now getting my energies back. Get as much rest as your lifestyle permits. Try to eat protein at least 3 x per day. (Tough I know). I also found it helpful to still get some exercise although it was much less than pre CC. My outside walks helped to relieve stress and take my mind off of things. At some point I started taking a B multivitamin after the discussion on this board.
It gets better, Brandy
I'm still dealing with fatigue issues too and it's almost been a year since I drastically changed my diet. I was always a go-to-bed-at 9PM kind of girl but the fatigue has robbed me of my productivity during waking hours. I still am up around 5 or 6 AM each morning but I very rarely sleep soundly or wake up refreshed. Some days out of the blue I'll start to feel like the old me but I have more "lazy" days than anything- it drives me crazy. I work in a very fast paced understaffed work environment that is very stressful so it seems that I I give it all I got all day long and come home and fizzle only to wake up and do it again the next day. Really not much I can do since I haven't won the lottery yet and still need the paycheck. 
I sure do appreciate the little things a lot more these days.
I sure do appreciate the little things a lot more these days.-
Gabes-Apg
- Emperor Penguin
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only when friends get a really bad flu or have the equivalent of CFS do they 'get it', they say - ohhh this is how you felt for xx months!!
Deb - i hear you.
Due to some BP issues, i am changing roles at work to a job with less intensity/less stress (which means less money each month) the fatigue and struggle to concentrate after 2pm is not ideal. and my body is definately sending a strong message that i cant keep doing what i have been doing....
early in my MC journey there were many days that i came home, skipped dinner and went straight to bed.
there is a level of frustration/disapointment that our bodies can not keep up with what our minds want to do. on the other side there is the peace and acceptance that we are listening to our bodies and making the adjustments to nuture our bodies and managing to work, live life and not let MC win per say..
Deb - i hear you.
Due to some BP issues, i am changing roles at work to a job with less intensity/less stress (which means less money each month) the fatigue and struggle to concentrate after 2pm is not ideal. and my body is definately sending a strong message that i cant keep doing what i have been doing....
early in my MC journey there were many days that i came home, skipped dinner and went straight to bed.
there is a level of frustration/disapointment that our bodies can not keep up with what our minds want to do. on the other side there is the peace and acceptance that we are listening to our bodies and making the adjustments to nuture our bodies and managing to work, live life and not let MC win per say..
Gabes Ryan
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
Somewhere, way back, I did a post called "I am so tired". When exhaustion overtakes I feel as if I could DIE from being so tired. Every movement is too much effort. My eyelashes feel to heavy. So does my hair.
Most of us have been there, many of us still are there often. One thing about this group of people - THEY UNDERSTAND! Where other people do not and look at you funny when you are like this (and notice how you look at yourself!) everyone here knows all about it.
So just give in and let your body heal. Eat as much protein as you can, and rest!
I am nowhere near "normal", but I have much more energy on the whole than I had before. The exhausted times are fewer and further between.
Most of us have been there, many of us still are there often. One thing about this group of people - THEY UNDERSTAND! Where other people do not and look at you funny when you are like this (and notice how you look at yourself!) everyone here knows all about it.
So just give in and let your body heal. Eat as much protein as you can, and rest!
I am nowhere near "normal", but I have much more energy on the whole than I had before. The exhausted times are fewer and further between.
Thank you friends for all your commennts. I feel less crazy. I want to print out all of the above comments, and leave them in a prominent place for all family memebers to read. I would like to leave them a note attached to the comments. " I am not lazy. I sleep in late because I am exhausted. I don't know why I am exhausted. I have this disease.............maybe it exhausts me. I may look ok on the outside...........but their is some raging battle going on inside my body.
And the battle goes on
:)
And the battle goes on
:)
in my strange thought moments(I have them from time to time) I have wondered what to have put on my gravestone! my hubby has heard me constantly saying when I am resting "I am not being lazy" he has decided the would write that!!!!!! dont worry about being so tired, like everyone says it goes with the disease, MC changed my life in many ways, not least I cant work so hard, having always been someone who feels a need to acheive daily it has taken a year to come to terms with the fact I cant push myself to the limits anymore to acheive the feeling of yea you can stop for the day now, now I pace myself, take more care of me, have learnt to say no when I have to, the only difficult bit is seeing my husband work so hard, he has had to do more because I cant, that makes me feel bad. You have to learn to accept with this disease, as you get better the "sleeping sickness" will improve, as Polly said it may take years but you will get there, Beni
Thanks to all for posting on this topic of extreme fatigue. Lately I've taken to sleeping 10-11 hours some nights (not my usual 7). After working all day I get home about 6 pm. I used to enjoy my time from 6 to 11 to prepare supper, do a few chores, and then relax by spending some time on the computer or watching TV. Now I am just too tired for much of anything. I try to force myself to stay awake until 8:30 or 9. It's just nice to know that I am not alone.
I'm in a flare, and I'm sure that is contibuting to my fatigue. This flare is probably my own fault for having eaten gluten recently. The past few weeks were busy, I had guests here, and I just didn't adhere to the diet! Today is a new day, and I will start over - NO GLUTEN, NO LACTOSE, NO SOY!
I'm in a flare, and I'm sure that is contibuting to my fatigue. This flare is probably my own fault for having eaten gluten recently. The past few weeks were busy, I had guests here, and I just didn't adhere to the diet! Today is a new day, and I will start over - NO GLUTEN, NO LACTOSE, NO SOY!