Fatique right? and not lazy. Do people really understand?

Gabes-Apg · Post by **Gabes-Apg** » Sat Sep 22, 2012 3:04 pm

Camie
sometimes there is no point trying to explain as people are not really listening.....

Life with MC showed me who my 'real' friends were, i.e. the people that understood, that supported me with my eating plan and were not upset if i didnt come to a party or a get together because i was not having the best day.

I have work colleagues that invite me to dinners and outings that involve eating, and 60% of the time i dont go, i thank them for inviting me and they say, they will keep inviting me, as there are times i do come; they dont want me to feel exluded and
they know that most of time my body cant keep up with what my mind wants to do.

Mim - even now without Mc being active or being in a flare i still need 9 hours sleep a night. If i have a big week at work, i generally sleep about 12 hours on Friday night.
its not the Mc per say, it is the inflammation and other toxins in our body that cause the fatigue and heavy weighted feeling.

Beni, you are very lucky to have a wonderful man to do the work... that you can rest.

DebE13 · Post by **DebE13** » Sat Sep 22, 2012 4:39 pm

Ahh, Leslie!! Another person who knows what it's like to have heavy hair!

I wish it were literal- mine's way too thin. It's hard not having any outward signs of the disease- not that I would want any, but it's easy for others to judge.

Mim18 · Post by **Mim18** » Sat Sep 22, 2012 7:08 pm

Hi Gabes,

Thank you for your support. I really feel like some sort of failure needing so much sleep. That is not anything that I am used to. I guess I have high hopes that my batch of home made chicken soup will make me feel 100 times better by tomorrow. I can hope!
I am one of the lucky ones that has a very supportive husband. I am thankful every single day for such a wonderful husband!
Just want to be normal again, if there is such a thing.

Mim/Marion

Gabes-Apg · Post by **Gabes-Apg** » Sat Sep 22, 2012 8:39 pm

Mim
so long as you have realistic expectations about what 'normal' is, you do get your life back but it may not quite be 100% the same as what it was pre MC.

in MC world I know I have a limited bank of physical, emotional, mental energy, if I push any or all of those three areas, then I tend to have a reaction like WD or cramping pains.

the body needs the rest for cells to regenerate and the body to heal,

mzh · Post by **mzh** » Sun Sep 23, 2012 7:25 am

Ditto to what everyone has said. I don't have D anymore, am still on 1 Entocort a day but feel awfully low energy. I do plug along but forget about vacuuming; thankfully, my husband willingly does it.

wmonique2 · Post by **wmonique2** » Sun Sep 23, 2012 11:26 am

Camie and all this tired bunch,

I'd like to add something to this conversation, but I am too darn tired to write it

Seriously, I am chronically tired. Especially now that I started taking Elavil! I sleep 12 hours a night and get up wanting more. Nap several times a day...but I have no kids, no pets, no husband... (the latter I miss the most.)

Between type 1 diabetes and recently Dx'ed MC, I am wiped out. Given up on career (at least for now)----so no job, no plans for future, just putting one foot in front of another everyday and hoping that I'll improve. That's all I can ask of myself right now and not feeling the least bit guilty about it. I've learned living with diabetes that you do the best you can everyday and that's all you can do, no more. No point in beating yourself up on something you cannot control.

So, let's all take a collective breath and exhale. That's good. Now let me go back to my couch and rest.

Love y'all!

Monique

fatbuster205 · Post by **fatbuster205** » Sun Sep 23, 2012 11:29 am

I have learnt to cope with the fatigue by getting to bed 8:30pm at least twice a week during the week - I cannot get through the week otherwise. For me the fatigue is almost the worst aspect of the disease at the moment. I have been on budesonide for over two months (9mg) and while I can do a lot more, I still suffer the fatigue unless I get those early nights. Luckily I have a few days leave starting Wednesday and hopefully I will get some rest! That said I am heading to Co Wicklow to help an elderly cousin for a few days so I won't exactly be sleeping all the time!! LOL!
Anne

Mim18 · Post by **Mim18** » Sun Sep 23, 2012 5:15 pm

Life with MC is certainly a challenge! I hope each and every one of my friends here feels a little better as each day goes by!

Gabes, I try to be realistic. I know that the road is not smooth. I think I am finally accepting the fact that some nights I need to turn in early, and that it is OK. I have discovered that my horrible abdominal pain usually occurs only at work in the afternoon. It never happens on weekends. I guess that stress must be a factor, even when I am not aware of it. The watery D is every day between 4:30 to 7:30am, and several times. Then I am OK for the day. I pray that it doesn't get any worse so I can continue to work.

MZH, Monique, and Anne, I hope that you all find a way to cope with the low energy/fatigue issues. It isn't easy, but at least we are not alone.

Marion

MICROSCOPIC COLITIS SUPPORT

Fatique right? and not lazy. Do people really understand?

Fatigue? right...