Soy allergy

Gabes-Apg · Post by **Gabes-Apg** » Wed Oct 17, 2012 3:15 pm

Terri

I mean really, do I need to give up my Aveeno!? And to top off that....I read that if I share my toothpaste with someone who eats gluten (my hubby for example), then I need to have my own toothpaste.

the answer is 'it depends'. depends what stage you are at healing/reaction wise, depends on how reactive you are to those ingredients, depends on how much other exposure/cross contamination you are getting.

as i am so reactive to soy, i ensure that no soy can enter my mouth or digestion, hence why i do soy free lipbalms, but dont worry about the small amt of soy in the small amount of foundation i use.

if you put an ingredient that is an irritant on your skin, then it may not cause issues in the gut, albeit it is causing an inflammation reaction in the cells of the skin.
my aim at the moment is trying to eliminate inflammation everywhere. as it is a toxin to the body, and the cells ability to repair/recover reduces as we age. this is also due to some other health issues that i am having.

if you use the aveno and you feel ok, use it. If you start having symptoms, stop using it and see if it is the trigger.
(the same for the shared toothpaste)

Leah · Post by **Leah** » Wed Oct 17, 2012 6:10 pm

Terri, not all of us are THAT intolerant to it. Although I don't eat food that has soy, I have not gone the cosmetic route. Just not that sensitive to it.

Monique, I went on a every other day of entocort schedule for about a month. When I finally dropped down to one every three days, it was only for a couple of weeks before I decided that my tummy actually felt worse on the days I took it. Some days were soft, but I was also testing foods at that point.

Good luck!

Leah

wmonique2 · Post by **wmonique2** » Wed Oct 17, 2012 6:51 pm

thanks Gabes for all that info. As usual, very helpful.

thanks Leah, will follow your regimen...see how that works...

FB---just when I thought that I had figured out what I needed to abstain from, here comes another restriction ---SOY is even worse than gluten because it is hidden and disguised as other things...

Terri---I think the toothpaste thing verges on the paranoid IMO....goes a bit too far, if you ask me...

Love,

Monique

Gloria · Post by **Gloria** » Wed Oct 17, 2012 7:10 pm

Pat wrote:So I'll switch back to my generic rice biscuits with no vitamin E, but does anyone know if there is a multivitamin without it that we can take?

You may be familiar with the Freeda vitamin brand which is free of the most common allergens. I use their Geri-Freeda multivitamin brand.

Gloria

wmonique2 · Post by **wmonique2** » Wed Oct 17, 2012 7:13 pm

Gloria,

Where do you buy them? thx

Monique

Post by **tex** » Wed Oct 17, 2012 8:51 pm

Hi Monique,

Obviously I'm not Gloria, but here is the link:

http://www.freedavitamins.com/

I believe this is where Polly buys any vitamins that she takes, also.

Love,
Tex

JFR · Post by **JFR** » Wed Oct 17, 2012 9:13 pm

Kirkman Labs is another company that makes allergen free vitamins and other supplements. I buy from them.

http://kirkmanlabs.com/

Jean

tlras · Post by **tlras** » Thu Oct 18, 2012 9:07 am

@Monique...I believe you are right about the toothpaste....a little paranoid. I have learned that Celiacs are some tough cookies. One got on me for cooking gluten in my house even though I was keeping it separated from the GF stuff I eat. When I responded about the toothpaste thing....well never again unless you want your you-know-what chewed out. They are a tough bunch! I felt like I wasn't getting any support unlike this group. So glad I found this forum.

Terri

wmonique2 · Post by **wmonique2** » Thu Oct 18, 2012 9:35 am

Terri,

I believe that we have to restore some sanity in our lives...I ate gluten for 8 months after my diagnosis not knowing if I was sensitive or not. I wasn't affected by it. I went to Italy and France and ate pasta and French bread everyday. I was, probably, doing damage to my GIT but I wasn't hurting but I wasn't healing. And I wanted to heal not just survive. After my trip, I went GF on my own volition after I read about the damage that gluten can cause to LC's like ourselves. I did the enterolab test just last month and it confirmed that, indeed, I was sensitive.

Now I know that celiacs are different from us. They have the celiac gene. We don't. I took a celiac test when I was dx'ed with LC and there was no celiac gene...(Tex knows a lot more about this) I also believe that we all react differently to gluten----some of us are very sensitive and others are not. What we don't want to do is exacerbate the inflammation.

For sure I am avoiding it but we can drive ourselves over the edge with this stuff. Mind you I also battle type 1 diabetes for 40 years (juvenile) so for me keeping a balance in my life (that includes my mental self) is an imperative. I know from dealing with diabetes that you have to keep things in perspective and not add the guilt trip in addition to the disease and its vicissitudes.

Love,

Monique

tlras · Post by **tlras** » Thu Oct 18, 2012 11:11 am

Thanks Monique! I agree. My doctor said I didn't have Celiac because my biopsy was negative however, my bloodwork showed Celiac...high levels of anti-gliadin antibodies and Anti-Tissue Transglutamise antibodies were high. According to Tex, I may have Marsh I Celiac disease. I would have full blown disease if I kept eating gluten. I will probably do Enterolabs soon to find out other intolerances. I've been having a problem with Gluten I think for a few years...stomach pain, bloating, distention, gas pains, nausea. When I got the blood work back I was in shock. I didn't get the chronic WD until March when I started my beta blockers. I really can't wait to read Tex's book....it shipped today... so I can get a better understanding of this. Gluten could be damaging my small intestines elsewhere just not the Duodenum right now.

Wondering if I should have Celiac genes checked? Why bother if I'm pretty sure I have it or will get it. May cost more to have it done anyway. I think my Anti-tissue antibodies pretty much show my body is attacking itself.

I'm sorry you are having to deal with Diabetes as well. My A1C was 5.7 so doctor warned me about the carbs. She says I'm at risk. What kind of carbs do you eat? I feel like I'm overdoing the carbs....how much is too much? I have heard that Diabetics need some carbs.

Terri

Zizzle · Post by **Zizzle** » Thu Oct 18, 2012 4:10 pm

I'm confused about this issue of soy allergy. My daughter is IgE allergic based on blood and skin tests, yet her allergist said she can have products with soy lecithin and processed soybean oil in them (because the soy protein should be absent). I am soy-sensitive and also allow these in my diet in small quantities (dark chocolate, etc). We both seem fine with it. We both also seem fine with small amounts of soy sauce, because the fermentation process breaks down the proteins.

I do suspect the problem with Chex cereals is the BHT. It's a very toxic preservative and we should be advocating for a safer one, although I suppose that would be mixed tocopherols! You can't win!

tlras · Post by **tlras** » Thu Oct 18, 2012 4:18 pm

Zizzle...you warned me about BHT and I had totally forgotten. I eat Rice Chex every day and wonder if I react to the BHT...though don't react to anything right now cause of the bright pink pill. Need to find me something else to eat in the morning. I also want to research this nasty BHT preservative.

Thanks for the info about the soy. I may just try a little dark chocolate after all. Though I really don't think I react to soy products. Gosh...I hope not. Interesting what the allergist told you.

Terri

Post by **tex** » Thu Oct 18, 2012 4:22 pm

Zizzle wrote:My daughter is IgE allergic based on blood and skin tests, yet her allergist said she can have products with soy lecithin and processed soybean oil in them (because the soy protein should be absent).

Yep, that's the official "expert" opinion, based on a theoretical analysis of the issues (in their opinion, pure oil means no protein, which means a reaction would be theoretically impossible). They say the same thing about soy lecithin and processed soybean oil for people like us, who produce IgA antibodies to soy in our intestines. Unfortunately, many of us have discovered that the official "expert" opinion on this issue is pure hogwash, because we do indeed react to soy lecithin and soy oil. My guess is that the manufacturing processes that produce soy lecithin and oil are not "perfect", and therefore don't produce pure products, as claimed.

In the real world, opinions based on theoretical analysis don't always cut the mustard. In the real world, honest-to-goodness "pure" products are extremely rare. Most pure products are produced by the electronics industry, in what's known as "clean rooms". There are no clean rooms in the food manufacturing industry.

Tex

Zizzle · Post by **Zizzle** » Thu Oct 18, 2012 4:26 pm

My favorite cereal is Udi's GF granola, but I'm trying to eat less grains, so I've replaced cereal with green smoothies in the morning. It's so hard not to instinctively reach for a cereal, but I feel so much better after my smoothies!

Zizzle · Post by **Zizzle** » Thu Oct 18, 2012 4:37 pm

Good point Tex,
The pediatric allergist was basing her opinion on theoretical risk, but she also was clear that my daughter's allergy may be mild enough that she can tolerate what little might still remain in those products. She said to "test" them, and so far, so good. I've noticed that allergists look for "clinical" evidence of reactions, not just going by (what many consider unreliable--too many false positive) blood and skin prick results, which I suppose is how medicine used to be practiced....not always bowing to the mighty blood tests. I guess I'm OK with that.