Is "Norman" on its way???
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humbird753
- Rockhopper Penguin
- Posts: 1014
- Joined: Mon Nov 28, 2011 4:44 pm
- Location: Wisconsin
Thank you everyone for all the encouraging comments.
After going to the bathroom that day, I was actually anticipating the next time I'd have to go to the bathroom. It wasn't until the next day, but unfortunately things have not remained the same. Instead of continuing to see this improvement, things have reversed for some reason.
It has been mentioned by many that we have to be careful about cross contamination (even in our own kitchens). I think that's impossible in mine because we completely remodeled our kitchen - floor, counters, sink, walls, pots/pans, bake ware, etc. So I am having a hard time figuring this out. Somewhat confusing, but I remain optimistic.
I hope to have better news SOON!
Paula
After going to the bathroom that day, I was actually anticipating the next time I'd have to go to the bathroom. It wasn't until the next day, but unfortunately things have not remained the same. Instead of continuing to see this improvement, things have reversed for some reason.
It has been mentioned by many that we have to be careful about cross contamination (even in our own kitchens). I think that's impossible in mine because we completely remodeled our kitchen - floor, counters, sink, walls, pots/pans, bake ware, etc. So I am having a hard time figuring this out. Somewhat confusing, but I remain optimistic.
I hope to have better news SOON!
Paula
Paula
"You'll never know how strong you are until being strong is the only choice you have."
"Life is not about waiting for the storm to pass... It's learning to dance in the rain."
"You'll never know how strong you are until being strong is the only choice you have."
"Life is not about waiting for the storm to pass... It's learning to dance in the rain."
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humbird753
- Rockhopper Penguin
- Posts: 1014
- Joined: Mon Nov 28, 2011 4:44 pm
- Location: Wisconsin
I found out why things did not continue to be as good for me as they were that day.
I said we were going home to celebrate rather than eat out - treat myself good..... So, we went to a store, bought GF "pepper steaks," and headed home for dinner. I usually have my GF steaks plain and then season with sea salt. The next day it not only was not as good but reversed - what I did not mention was that I actually ended up going to the bathroom with D at least 12 times the day following this great improvement!!!
Yesterday my husband (who works closer to the grocery stores than I do) stopped at that same store and asked for the full ingredients of those marinated steaks we ate. SOY PROTEIN added!
So... there's no doubt that soy is a big issue for me. I am GF/DF/SF (but failed to ask what ingredients were in their marinated pepper steaks). They were good, but really not worth it.
Although I do have energy and feel really good, I am still not back to where I was that day which was September 25th. Apparently it has set me back in my healing process.
Just wanted to "share" this. It reminds me not only to look at labels - but also ASK in cases like these. I was just so thrilled that they had so many things behind their deli that said they were GF. Unfortunately this tells me that I should be suspicious of all the deli meats they say are GF. I thought I had found a gold mine!!!
Yet another mystery solved....
Paula
I said we were going home to celebrate rather than eat out - treat myself good..... So, we went to a store, bought GF "pepper steaks," and headed home for dinner. I usually have my GF steaks plain and then season with sea salt. The next day it not only was not as good but reversed - what I did not mention was that I actually ended up going to the bathroom with D at least 12 times the day following this great improvement!!!
Yesterday my husband (who works closer to the grocery stores than I do) stopped at that same store and asked for the full ingredients of those marinated steaks we ate. SOY PROTEIN added!
So... there's no doubt that soy is a big issue for me. I am GF/DF/SF (but failed to ask what ingredients were in their marinated pepper steaks). They were good, but really not worth it.
Although I do have energy and feel really good, I am still not back to where I was that day which was September 25th. Apparently it has set me back in my healing process.
Just wanted to "share" this. It reminds me not only to look at labels - but also ASK in cases like these. I was just so thrilled that they had so many things behind their deli that said they were GF. Unfortunately this tells me that I should be suspicious of all the deli meats they say are GF. I thought I had found a gold mine!!!
Yet another mystery solved....
Paula
Paula
"You'll never know how strong you are until being strong is the only choice you have."
"Life is not about waiting for the storm to pass... It's learning to dance in the rain."
"You'll never know how strong you are until being strong is the only choice you have."
"Life is not about waiting for the storm to pass... It's learning to dance in the rain."
Hi Paula,
I'm glad that you (or rather your husband) tracked down that mystery. Soy seems to be a big problem for many of us.
Marinated meats make me so nervous that I would be afraid to try any of them. I always avoid any pre-seasoned items in the meat counter, because even if I ask about them, it's too easy for someone to forget to mention an ingredient, and that could spoil not only my day, but my week as well.
Tex
I'm glad that you (or rather your husband) tracked down that mystery. Soy seems to be a big problem for many of us.
Marinated meats make me so nervous that I would be afraid to try any of them. I always avoid any pre-seasoned items in the meat counter, because even if I ask about them, it's too easy for someone to forget to mention an ingredient, and that could spoil not only my day, but my week as well.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Tex, do you react to soy? As I know you're aware, I tested positive to dairy and positive to soy. I still don't appear to react to either though I'm starting to track some body aches as possible dairy. How did Dr. Fine determine "10" to be the magic number? Might there be some of us that could have a higher threshhold and some with a lower? My gluten, the first time tested was 510. It still surprises me it was that high and that I hadn't reacted sooner. Deb
Edited to add: I see in another post, Tex, that you don't react to soy either. Is soy a lifetime avoidance or one of those that can be reintroduced after substantial healing? Does it cause the inflammation that dairy does? Thanks.
Edited to add: I see in another post, Tex, that you don't react to soy either. Is soy a lifetime avoidance or one of those that can be reintroduced after substantial healing? Does it cause the inflammation that dairy does? Thanks.
Hi Deb,
Back when I was recovering, I avoided all soy, just in case, but I never could tell that I reacted to it. Later, I ordered EnteroLab tests for soy, eggs, and yeast. All three were negative.
The breakpoint for ELISA test results is located by standard statistical analysis techniques. The results follow a standard bell curve. For test results that fall close to the breakpoint (within a point or two of it), there is indeed a low statistical probability of a false positive result or a false negative result. The farther away from the breakpoint that the test results fall, the lower the chances of a false result. For a result of 14 or 15, for example, the odds of a false result would be extremely low, and a reading of 18 or 20 can be considered to be virtually 100% reliable.
We all have different thresholds as far as our sensitivities to certain foods are concerned, (IOW, some of us react to smaller amounts than others), but that shouldn't affect our test results, because the tests measure our antibody production level (quantity), not the sensitivity threshold at which we begin to produce antibodies, or the level at which we begin to show clinical symptoms. For example, my recent casein test showed a test result of 24, but I didn't notice any clinical symptoms. Despite the lack of symptoms, a test level of 24 units is indisputable proof of sensitivity.
IMO, dairy and soy don't cause an equivalent level of physical damage to the intestines, when compared with gluten, but they apparently do cause similar inflammation levels, because those who are sensitive to soy seem to react to it at least as severely as they react to gluten. To me, this implies that soy can make us just as sick, and a flare might last just as long, but any damage done to the intestines should heal much faster than the damage done by gluten. That's just my opinion, though, and I'm not aware of any research that's ever been done to quantify the physical damage done by various food sensitivities.
IMO, a yeast sensitivity virtually always disappears after the intestines heal, and I believe that many/most of us who are sensitive to eggs may be able to eat eggs at some point (after extensive healing). I believe that gluten sensitivity is 100% permanent. I have a hunch that we react to casein and soy because their molecules yield certain peptides during digestion that closely mimic the alpha gliadin peptide known as 33-mer, or one of the other major peptides in gluten. If that's the case, then theoretically at least, it might be possible to lose that sensitivity after extensive healing. The fly in the ointment is that I'm not aware of anyone who has ever been able to do that (so far, at least). IOW, at this point, it appears that casein and soy sensitivities are permanent.
That said, it's certainly possible to develop a tolerance for both gluten and casein, so it's probably also possible to develop a tolerance for soy. I'm not sure that gets us anywhere, though, because when we develop a tolerance, we still produce antibodies, so we are obviously still sensitive, even though we're asymptomatic.
Tex
Back when I was recovering, I avoided all soy, just in case, but I never could tell that I reacted to it. Later, I ordered EnteroLab tests for soy, eggs, and yeast. All three were negative.
The breakpoint for ELISA test results is located by standard statistical analysis techniques. The results follow a standard bell curve. For test results that fall close to the breakpoint (within a point or two of it), there is indeed a low statistical probability of a false positive result or a false negative result. The farther away from the breakpoint that the test results fall, the lower the chances of a false result. For a result of 14 or 15, for example, the odds of a false result would be extremely low, and a reading of 18 or 20 can be considered to be virtually 100% reliable.
We all have different thresholds as far as our sensitivities to certain foods are concerned, (IOW, some of us react to smaller amounts than others), but that shouldn't affect our test results, because the tests measure our antibody production level (quantity), not the sensitivity threshold at which we begin to produce antibodies, or the level at which we begin to show clinical symptoms. For example, my recent casein test showed a test result of 24, but I didn't notice any clinical symptoms. Despite the lack of symptoms, a test level of 24 units is indisputable proof of sensitivity.
IMO, dairy and soy don't cause an equivalent level of physical damage to the intestines, when compared with gluten, but they apparently do cause similar inflammation levels, because those who are sensitive to soy seem to react to it at least as severely as they react to gluten. To me, this implies that soy can make us just as sick, and a flare might last just as long, but any damage done to the intestines should heal much faster than the damage done by gluten. That's just my opinion, though, and I'm not aware of any research that's ever been done to quantify the physical damage done by various food sensitivities.
IMO, a yeast sensitivity virtually always disappears after the intestines heal, and I believe that many/most of us who are sensitive to eggs may be able to eat eggs at some point (after extensive healing). I believe that gluten sensitivity is 100% permanent. I have a hunch that we react to casein and soy because their molecules yield certain peptides during digestion that closely mimic the alpha gliadin peptide known as 33-mer, or one of the other major peptides in gluten. If that's the case, then theoretically at least, it might be possible to lose that sensitivity after extensive healing. The fly in the ointment is that I'm not aware of anyone who has ever been able to do that (so far, at least). IOW, at this point, it appears that casein and soy sensitivities are permanent.
That said, it's certainly possible to develop a tolerance for both gluten and casein, so it's probably also possible to develop a tolerance for soy. I'm not sure that gets us anywhere, though, because when we develop a tolerance, we still produce antibodies, so we are obviously still sensitive, even though we're asymptomatic.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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fatbuster205
- Gentoo Penguin
- Posts: 342
- Joined: Tue May 22, 2012 7:53 am
- Location: Carrickfergus, Northern Ireland
Hi Paula,
That's fantastic news and well done you for persevering. For what it is worth, when I was hospitalised in June having had a severe episode of WD for 36 hours which left me very dehydrated (36 hours on fluids), I finally had a BM after 24 hours in hospital and it was a 4/5 BSC which I was told was within normal range. According to Antrim Hospital, anything between a 3 and 5 is considered normal - it's the extremities that cause concern. If that is right - and I have to say there is a certain logic there - then congratulations because Norman has arrived!! I would be interested to know views on the Bristol Stool Chart - I am using it currently to monitor my BMs (and my Doctors are happy that I am doing it as they are getting a much more accurate picture). Here in the UK on Channel 4 there is a programme called the Food Hospital which is really interesting - last episode included a patient who had just been diagnosed with Coeliac. Anyway they have produced an App which allows you to record your BMs. Now I should warn you all they are advocating a high fibre diet!! I am just using it as a handy and more discrete tool to record BMs as they happen - better than getting my spreadsheet out with the BSC on plain view in an open plan office!!
The link to the app is http://foodhospital.channel4.com/fibre- ... wnload-app. As I say, I am using it simply as a tool!
Hope things continue to improve for you - I hope to eventually get to the diet only treatment!!
Take care,
Anne
That's fantastic news and well done you for persevering. For what it is worth, when I was hospitalised in June having had a severe episode of WD for 36 hours which left me very dehydrated (36 hours on fluids), I finally had a BM after 24 hours in hospital and it was a 4/5 BSC which I was told was within normal range. According to Antrim Hospital, anything between a 3 and 5 is considered normal - it's the extremities that cause concern. If that is right - and I have to say there is a certain logic there - then congratulations because Norman has arrived!! I would be interested to know views on the Bristol Stool Chart - I am using it currently to monitor my BMs (and my Doctors are happy that I am doing it as they are getting a much more accurate picture). Here in the UK on Channel 4 there is a programme called the Food Hospital which is really interesting - last episode included a patient who had just been diagnosed with Coeliac. Anyway they have produced an App which allows you to record your BMs. Now I should warn you all they are advocating a high fibre diet!! I am just using it as a handy and more discrete tool to record BMs as they happen - better than getting my spreadsheet out with the BSC on plain view in an open plan office!!
The link to the app is http://foodhospital.channel4.com/fibre- ... wnload-app. As I say, I am using it simply as a tool!Hope things continue to improve for you - I hope to eventually get to the diet only treatment!!
Take care,
Anne
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humbird753
- Rockhopper Penguin
- Posts: 1014
- Joined: Mon Nov 28, 2011 4:44 pm
- Location: Wisconsin
Leah - Thank you for the krispy treats recipe you use. Next time I am shopping, I plan on trying them. Even if I end up only eating one, I can give the rest away, I am sure.
Anne - Thank you for the web site you've recommended. It is interesting on the different approaches taken. I'll have to read on it for awhile. I know someone here posted a Bristol stool chart fairly recently. I'm not good at adding links, but if you click on search above and type that in I'm sure it will come up.
Paula
Anne - Thank you for the web site you've recommended. It is interesting on the different approaches taken. I'll have to read on it for awhile. I know someone here posted a Bristol stool chart fairly recently. I'm not good at adding links, but if you click on search above and type that in I'm sure it will come up.
Paula
Paula
"You'll never know how strong you are until being strong is the only choice you have."
"Life is not about waiting for the storm to pass... It's learning to dance in the rain."
"You'll never know how strong you are until being strong is the only choice you have."
"Life is not about waiting for the storm to pass... It's learning to dance in the rain."
-
humbird753
- Rockhopper Penguin
- Posts: 1014
- Joined: Mon Nov 28, 2011 4:44 pm
- Location: Wisconsin
