Skin sensations?
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
Skin sensations?
I popped by the post on the rash, but it didn't quite fit my question. Do any of you have odd skin sensations?
Hi Jennifer, I'm an "oldbie" here and have not posted in awhile, but always check in because this is my family. I felt like I needed to respond to your post because I had/have those weird skin sensations you mention. Sometimes it feels like creepy/crawly things and other times it can be twitches. I have thyroid issues too, so I don't know if it is the MC or the Thyroid or both. Just know you are not alone. I went through the trail of doctors too who made me feel humilated and like I was some sort of weirdo they had never encountered before.
I felt like I had come home when I found this site. I am in remission because of following the advice found on this site and I found acceptance, reassurance, and love. I am at work now and need to get back. I'll try to post more this weekend. Just know you will find your way through this. Tex's book is a treasure and will guide you through this along with all the information on this site. Good luck on this journey, Love JoAnn
I felt like I had come home when I found this site. I am in remission because of following the advice found on this site and I found acceptance, reassurance, and love. I am at work now and need to get back. I'll try to post more this weekend. Just know you will find your way through this. Tex's book is a treasure and will guide you through this along with all the information on this site. Good luck on this journey, Love JoAnn
Courage is being scared to death, but saddling up anyway. John Wayne
WELCOME, JENNIFER!! 
I occasionally have skin sensations on my face. It feels like I have a wisp of hair brushing against my nose or cheek. It goes away just as suddenly as it appears. I'm not sure what causes it. I have a benign tumor next to my brain stem and it may be that the tumor occasionally brushes against the stem and causes the facial sensations. It doesn't seem to be a problem, so I just let it pass.
This is completely separate from the itchy bumps that I am dealing with right now.
If you find an answer, let us know.
Gloria
I occasionally have skin sensations on my face. It feels like I have a wisp of hair brushing against my nose or cheek. It goes away just as suddenly as it appears. I'm not sure what causes it. I have a benign tumor next to my brain stem and it may be that the tumor occasionally brushes against the stem and causes the facial sensations. It doesn't seem to be a problem, so I just let it pass.
This is completely separate from the itchy bumps that I am dealing with right now.
If you find an answer, let us know.
Gloria
You never know what you can do until you have to do it.
Hi Jennifer,
I agree with JoAnn and Gloria. When I was still reacting, and recovering, I sometimes had skin sensations such as twitching of the skin over one of my temples, and I sometimes suddenly felt intense pain, heat, or cold on my feet, when there was nothing present to cause it.
A deficiency of vitamin B-12 can develop as MC causes a malabsorption problem, and that can cause such symptoms (they can be caused by other factors, also, though). In my case, the sensations on my feet developed into peripheral neuropathy (similar to the peripheral neuropathy that can develop with diabetes, but I don't have diabetes), and my feet lost most of their ability to feel anything, and my reflexes from my knees on down almost disappeared. Research shows that gluten can cause these issues in individuals who are gluten-sensitive. Interestingly, there is a link between gluten sensitivity, diabetes, and MC.
My peripheral neuropathy was accompanied by balance issues, also, and I couldn't stand on one foot. The good news is that I've been taking a prescription dose of vitamins B-12, B-9, and B-6 for a couple of years now, and my balance is now almost normal, my reflexes are almost normal, and I can feel a pin prick anywhere on my feet, now. My symptoms got out of hand apparently because I had untreated gluten-sensitivity for too many years before I figured out what was causing the problem.
The bottom line is, don't allow yourself to become vitamin B-12 deficient if your D continues for years, as mine did.
Tex
I agree with JoAnn and Gloria. When I was still reacting, and recovering, I sometimes had skin sensations such as twitching of the skin over one of my temples, and I sometimes suddenly felt intense pain, heat, or cold on my feet, when there was nothing present to cause it.
A deficiency of vitamin B-12 can develop as MC causes a malabsorption problem, and that can cause such symptoms (they can be caused by other factors, also, though). In my case, the sensations on my feet developed into peripheral neuropathy (similar to the peripheral neuropathy that can develop with diabetes, but I don't have diabetes), and my feet lost most of their ability to feel anything, and my reflexes from my knees on down almost disappeared. Research shows that gluten can cause these issues in individuals who are gluten-sensitive. Interestingly, there is a link between gluten sensitivity, diabetes, and MC.
My peripheral neuropathy was accompanied by balance issues, also, and I couldn't stand on one foot. The good news is that I've been taking a prescription dose of vitamins B-12, B-9, and B-6 for a couple of years now, and my balance is now almost normal, my reflexes are almost normal, and I can feel a pin prick anywhere on my feet, now. My symptoms got out of hand apparently because I had untreated gluten-sensitivity for too many years before I figured out what was causing the problem.
The bottom line is, don't allow yourself to become vitamin B-12 deficient if your D continues for years, as mine did.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.