Getting your life back
Moderators: Rosie, JFR, Gabes-Apg, grannyh, Mars, starfire, Polly, Joefnh
Getting your life back
So, I guess this is a progress report, and an opportunity to offer encouragement to the many newer posters who are in the midst of trying to get things under control, and are maybe struggling and discouraged.
I was dx with LC 2 years ago March, and luckily, along with having a knowledgeable GI doc, found this board shortly after. I have been GF/CF/as SF as possible since then. I did Entocort for a time, and have since then been on a tapering, now very low, dose of balsalazide, which I am hoping to give up in Dec. Things aren't perfect all the time, but they're good enough for me, and I am able to feel that LC is not controlling my life any more, at least 95% of the time.
The winter of 2011, leading up to my LC diagnosis, I was as sick as a dog with the same array of problems that are common to most of us. Tomorrow AM, I will head to LA to hang out with my beautiful new baby granddaughter, born 11/7, for two weeks. I feel entirely confident doing the flight, taking my own food along to eat en route, finding the food I need once I'm there. The difference amazes me, and I credit this confidence to the knowledge, and many
tips and information I found here.
I was dx with LC 2 years ago March, and luckily, along with having a knowledgeable GI doc, found this board shortly after. I have been GF/CF/as SF as possible since then. I did Entocort for a time, and have since then been on a tapering, now very low, dose of balsalazide, which I am hoping to give up in Dec. Things aren't perfect all the time, but they're good enough for me, and I am able to feel that LC is not controlling my life any more, at least 95% of the time.
The winter of 2011, leading up to my LC diagnosis, I was as sick as a dog with the same array of problems that are common to most of us. Tomorrow AM, I will head to LA to hang out with my beautiful new baby granddaughter, born 11/7, for two weeks. I feel entirely confident doing the flight, taking my own food along to eat en route, finding the food I need once I'm there. The difference amazes me, and I credit this confidence to the knowledge, and many
tips and information I found here.
Suze
Hi Suze,
Congratulations on your new granddaughter. I hope your trip goes smoothly, and you're able to enjoy every minute of your visit.
Thank you for the update,
Tex
Congratulations on your new granddaughter. I hope your trip goes smoothly, and you're able to enjoy every minute of your visit.
Thank you for the update,
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Lesley, have to see how things go. I will be online, so maybe can check in. But not sure how to PM thru this board.
My daughter and the baby are my priority, and my husband will join me out there on the 17th. We will be there thru the 27th. On the off-family/baby time, we hope to catch up on visiting stuff we didn't have time for on our previous visit. Not ruling out a meeting, just not sure it will work this time.
Just for your reference, my daughter lives near the intersection of Wilshire Blvd/La Brea.
My husband and I have rented a little studio apt. in the Larchmont area.
My daughter and the baby are my priority, and my husband will join me out there on the 17th. We will be there thru the 27th. On the off-family/baby time, we hope to catch up on visiting stuff we didn't have time for on our previous visit. Not ruling out a meeting, just not sure it will work this time.
Just for your reference, my daughter lives near the intersection of Wilshire Blvd/La Brea.
My husband and I have rented a little studio apt. in the Larchmont area.
Suze
Suze,
You can send Lesley a PM by clicking on the "pm" button at the bottom of any of her posts. The system will open a message window and after you compose your message, you just click on the "Submit" button, and the PM will be sent to her PM mailbox. It's similar to posting on the board, except that Lesley will be the only one who will receive a notification, and she will be the only one who will ever see the message.
You can also send her an email by clicking on the "email" button at the bottom of any of her posts.
Tex
You can send Lesley a PM by clicking on the "pm" button at the bottom of any of her posts. The system will open a message window and after you compose your message, you just click on the "Submit" button, and the PM will be sent to her PM mailbox. It's similar to posting on the board, except that Lesley will be the only one who will receive a notification, and she will be the only one who will ever see the message.
You can also send her an email by clicking on the "email" button at the bottom of any of her posts.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
- MaggieRedwings
- King Penguin
- Posts: 3865
- Joined: Tue May 31, 2005 3:16 am
- Location: SE Pennsylvania
Suze,
Thanks for sharing such wonderful news and congratulations on your grand-daughter - grand-children are the best!!!
Have a great trip and Happy Thanksgiving.
Love,
Kari
Thanks for sharing such wonderful news and congratulations on your grand-daughter - grand-children are the best!!!
Have a great trip and Happy Thanksgiving.
Love,
Kari
"My mouth waters whenever I pass a bakery shop and sniff the aroma of fresh bread, but I am also grateful simply to be alive and sniffing." Dr. Bernstein
Hi Suze,
If that problem is unique to iPads I've never heard of it before. In fact, I've never encountered that problem with any kind of operating system. I'm surprised that the system would allow you to post if it wouldn't allow you to see other members' contact information.
It may be due to a corrupt cookie. Try clearing your cookie cache. You can do that by clicking on the link below this forum that says, "Remove cookies set by this forum", and following the onscreen directions. When you finish, be sure that you close all open tabs in your browser. If you leave any of them open, the browser won't clear the cookies.
If that doesn't work, go to the index page (the main page) and locate Lesley's name somewhere, either associated with an old post, or in one of the lists of members who have logged on today, and click on her name, in order to open her profile information. It should have her contact information listed in her profile. If it won't let you see the information there, we may have a perplexing problem on our hands.
Tex
If that problem is unique to iPads I've never heard of it before. In fact, I've never encountered that problem with any kind of operating system. I'm surprised that the system would allow you to post if it wouldn't allow you to see other members' contact information.
It may be due to a corrupt cookie. Try clearing your cookie cache. You can do that by clicking on the link below this forum that says, "Remove cookies set by this forum", and following the onscreen directions. When you finish, be sure that you close all open tabs in your browser. If you leave any of them open, the browser won't clear the cookies.
If that doesn't work, go to the index page (the main page) and locate Lesley's name somewhere, either associated with an old post, or in one of the lists of members who have logged on today, and click on her name, in order to open her profile information. It should have her contact information listed in her profile. If it won't let you see the information there, we may have a perplexing problem on our hands.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Hi Suze,
Thanks for your report. It gives hope to new people every time they hear how one of us have been able to get our lives back to,....." good enough for me..."
If I make it to through the Holidays I'll be posting my own good update. I've been off Entocorte since July but don't want to jump the gun. I still want to see how the "foodie addictive" holidays go.
Best,
Cory
Thanks for your report. It gives hope to new people every time they hear how one of us have been able to get our lives back to,....." good enough for me..."
If I make it to through the Holidays I'll be posting my own good update. I've been off Entocorte since July but don't want to jump the gun. I still want to see how the "foodie addictive" holidays go.
Best,
Cory
CoryGut
Age 71
Diagnosed with Lymphocytic Colitis Sept. 2010
On and off Entocort(Currently Off)
Age 71
Diagnosed with Lymphocytic Colitis Sept. 2010
On and off Entocort(Currently Off)
You must be doing really well Cory. You've been off it longer than I have! Do you feel good most of the time? Do you find yourself cheating more often? I just had a piece of milk chocolate. Haven't done that in a LONG TIME. I think I will be OK though :) fingers crossed.
GF pie crust. That's my next adventure for the Holiday.
Enjoy!
Leah
GF pie crust. That's my next adventure for the Holiday.
Enjoy!
Leah