Nothing I eat (I haven't eaten gluten or soy) seems to cause the explosive D, or even the gurgling and rumbling at all. I ate some pop corn, some eggs, and some milk chocolate. Not a lot, but here or there.
I have constant C.
When I go 2 days without a BM I take citrucel and 1 Dr. Shulze's intestinal formula (thanks Jean). If nothing happens I repeat the citrucel with 2 Dr. Shulze's, and so on. Sometimes I get to day 4 before anything happens.
When it does it comes with horrible cramps. It's formed, often a weird color, has little ribbons of mucus coming off it. The next one can be looser, and/or be pencil thin and mucusy. I have 3 or 4 of these before it's over.
I am often exhausted, always fuzzy headed, have horrible memory, concentration problems, poor balance and so forth.
I am stuck at this point, and don't have the slightest idea what to do next.
Any thoughts?
Stuck!
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Gabes-Apg
- Emperor Penguin
- Posts: 8332
- Joined: Mon Dec 21, 2009 3:12 pm
- Location: Hunter Valley NSW Australia
Lesley
i have a friend who only poops about once every 4 weeks. this works for her.
Just putting this out there.... if you dont poop and you dont take the citrucel and 1 Dr. Shulze's intestinal formula what happens??
i have a friend who only poops about once every 4 weeks. this works for her.
Just putting this out there.... if you dont poop and you dont take the citrucel and 1 Dr. Shulze's intestinal formula what happens??
Gabes Ryan
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
I get horribly uncomfortable. Heavy, pressure, more bloated (I am always bloated now. I have given up on it), more farting.
And I can get so constipated that, even with everything I can throw at it, I can't blast my way out. It has taken me up to 4 weeks to get it going, during which time I can't do ANYTHING I am that uncomfortable.
Also, I think the reflex is worse when I am so bound up. I get attacks which cause such horrible nausea and pain I can't sleep at all.
I don't seem to be able to turn this around )-;.
How are you doing? Better I hope!!
And I can get so constipated that, even with everything I can throw at it, I can't blast my way out. It has taken me up to 4 weeks to get it going, during which time I can't do ANYTHING I am that uncomfortable.
Also, I think the reflex is worse when I am so bound up. I get attacks which cause such horrible nausea and pain I can't sleep at all.
I don't seem to be able to turn this around )-;.
How are you doing? Better I hope!!
Leslie,
Bless your heart! I don't know what to tell you. I'm sure you've tried everything right? Do you take Probiotics? I remember when I first joined this forum, yours was one of the first posts I saw and I didn't realize at all that having MC could cause constipation. Now that I learned more about this disease I know that can happen. With all the D I was having, I was wishing for some constipation but I've had that many, many years ago and I do remember how uncomfortable that is. Have you tried Miralax? Probably not the best thing to take, but if it can give you some relief when you are having these episodes.....just every now and then?
I found when I started taking Probiotics that I was going to the bathroom easier and more often. Of course, they work differently for everyone. My son has constipation...only goes once a week. I've got him on Culterelle and more fiber, but apparently he needs more fiber. Can you eat any high fiber foods? I have a Yoga dvd that has yoga poses for digestion/constipation. Of course, I haven't tried that yet in fear of my D coming back! There is also a type of intestinal massage you can do for 10 minutes....just massaging clockwise Ascending to Descending. Prune juice?
Wish I had some advice. I hope you feel better soon.
Terri
Bless your heart! I don't know what to tell you. I'm sure you've tried everything right? Do you take Probiotics? I remember when I first joined this forum, yours was one of the first posts I saw and I didn't realize at all that having MC could cause constipation. Now that I learned more about this disease I know that can happen. With all the D I was having, I was wishing for some constipation but I've had that many, many years ago and I do remember how uncomfortable that is. Have you tried Miralax? Probably not the best thing to take, but if it can give you some relief when you are having these episodes.....just every now and then?
I found when I started taking Probiotics that I was going to the bathroom easier and more often. Of course, they work differently for everyone. My son has constipation...only goes once a week. I've got him on Culterelle and more fiber, but apparently he needs more fiber. Can you eat any high fiber foods? I have a Yoga dvd that has yoga poses for digestion/constipation. Of course, I haven't tried that yet in fear of my D coming back! There is also a type of intestinal massage you can do for 10 minutes....just massaging clockwise Ascending to Descending. Prune juice?
Wish I had some advice. I hope you feel better soon.
Terri
Diagnosed with Lymphocytic Colitis in July, 2012 then with Celiac in November, 2012.
Terri,
Citrucel is better than miralax. Tex has the explanation. My head is dead! I take it almost every day, and sometimes 2x.
I actually bought a squatty Potty. It really does help guys, if anyone is considering it. Basically it helps do the massage while you sit. I can feel the change in internal posture.
Prunes - I go through so many of them. One of the ways I like it is as the fruit in paleo muffins. Not too sweet, some tartness and makes them very moist.
I have tried lots of probiotics. The one my gut seems to like the best is Culturelle. I don't know why.
And as for the reflex - it's the one that is going to sink me for sure. I don't know what else I can do about it.
Citrucel is better than miralax. Tex has the explanation. My head is dead! I take it almost every day, and sometimes 2x.
I actually bought a squatty Potty. It really does help guys, if anyone is considering it. Basically it helps do the massage while you sit. I can feel the change in internal posture.
Prunes - I go through so many of them. One of the ways I like it is as the fruit in paleo muffins. Not too sweet, some tartness and makes them very moist.
I have tried lots of probiotics. The one my gut seems to like the best is Culturelle. I don't know why.
And as for the reflex - it's the one that is going to sink me for sure. I don't know what else I can do about it.
Lesley,
Obviously your intestinal motility is extremely, extremely slow. Why is that and has your doctor offered you any ideas for speeding it up or moving it along?
I don't have any good ideas or sure fire fixes. My doctor put me on a progressive program of Citricel and stool softeners. I didn't get very far into it before I had to level off. But then I started amitriptyline and the erratic motility I was having has smoothed out, so I've kept the Citricel but have been able to back off the stool softeners.
I have a hard time accepting that there isn't something that can be done for you. Wish I knew what it was.
Although, thinking of Gabe's comment-- I'm thinking that going only once a month would not be a bad thing. Wish I could figure out how to make that work.
take care,
Carol
Obviously your intestinal motility is extremely, extremely slow. Why is that and has your doctor offered you any ideas for speeding it up or moving it along?
I don't have any good ideas or sure fire fixes. My doctor put me on a progressive program of Citricel and stool softeners. I didn't get very far into it before I had to level off. But then I started amitriptyline and the erratic motility I was having has smoothed out, so I've kept the Citricel but have been able to back off the stool softeners.
I have a hard time accepting that there isn't something that can be done for you. Wish I knew what it was.
Although, thinking of Gabe's comment-- I'm thinking that going only once a month would not be a bad thing. Wish I could figure out how to make that work.
take care,
Carol
“.... people will forget what you said, people will forget what you did, but people will never forget how you made them feel.” Maya Angelou
Carol, it is. My whole gut appears to be in decidedly poor shape. My esophagus is hypersensitive, I have gastric paresis, and you know the rest.
My PCP doesn't know anything about this. She made me feel awful at the start of this, first not believing me that I have it until she saw the biopsy results, and then telling me that most patients would deal with it once the heard it is benign. My GI doesn't really talk about it with me. When I described how I am feeling he emailed back with a dx and a drug to try.
Talking to me? Listening? Trying to really figure out what to do? In another life honey.
My PCP doesn't know anything about this. She made me feel awful at the start of this, first not believing me that I have it until she saw the biopsy results, and then telling me that most patients would deal with it once the heard it is benign. My GI doesn't really talk about it with me. When I described how I am feeling he emailed back with a dx and a drug to try.
Talking to me? Listening? Trying to really figure out what to do? In another life honey.