Hi all..... I'm a 38 y/o mom of two recently diagnosed with LC. I always assumed I had IBS just because I had a sensitive stomach and a good meal would send me straight to the bathroom. It was actually a joke in the family- After a dinner out somewhere there would be no stopping at Target afterwards- straight home for Mom! I also have had years of back issues- a MRI last year confirmed a herniated disc, degeration, arthritis, facet disease etc. I take 300mg Ultram daily and Lortab for the breakthrough. Since pain meds constipate normal people, I always enjoyed the side effect of them making me "go like a normal person". After many years of 1.5 packs a day, I quit smoking (using alternate nic therapy) back in the summer. Almost immediately, I started getting constant raging diarrhea. At first I thought it was just my body adjusting but then I thought... no way. Well... then maybe it was the antibiotic I took last week. No. After a couple of months of this, my PCP put me on Lomotil and sent me to a GI doctor (5 weeks to get that appt! LOL!). The Lomo made it somewhat more managable except then I was getting indigestion that I never had experienced. The frequency prior to that was anywhere from 5-20x a day... once day I stopped counting at 30 and just spent the day laying on a towel in the bed :(. There were a few nighttime "accidents" as well. My aunt has colon cancer and my 75 y/o mom has had lots of polyps removed so after another 5 weeks I earned my very first colonoscopy. They did find one precancerous polyp so I'm grateful that didn't go unnoticed for another 12 years. I'm a medical laboratory technologist (IOW I'm the one who actually performs your sed rates, CBCs and CRPS :) ) so I fortunately was able to look up my path report and do some research before the doctor called with a 3 minute conversation on what I had and how he wanted to treat it. He said NOTHING about diet other than 'never drink diet soda'. My ESR, CRP and celiac tests were normal (total IGA and TTGA). I had tried a few gluten free days but no change in symptoms. I haven't been able to really figure out anything in particular that aggravates it. On this Wednesday I started 9mg Entocort for a month to be tapered to 6mg for a month then 3mg for a month. My symptoms had actually improved the last few weeks for whatever reason prior to the colonoscopy so I was down to 2-5x day in the bathroom (unless I had taken too much Lomo and didn't go at all for several days. It was a lot of back and forth). I also got a horrible itchy rash on my arm and backside the same time the other symptoms began. The Entocort is making me bloated with abd pain.. but I'm hoping my body will adjust? Should I start taking a probiotic and if so is there a particular kind recommended for LC?
Anyway.... grateful to have found this forum and I look forward to reading everyone's advice and stories! I am also a crafter if there are any scrapbooker "Cricut" folks around :)!
AmyNicki
Newbie... First post!
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
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tigereye92
- Posts: 12
- Joined: Tue Nov 06, 2012 8:05 pm
- Location: Lynchburg Virginia
Hi AmyNicki,
Welcome to the board. Yes, as you have found, for some of us (especially if we already have relatively high chronic stress levels), quitting a long-time smoking habit can trigger LC/CC/MC. (I have a theory that chronic stress is a prerequisite to the development of MC (or any other so-called autoimmune disease).
The good news is that many of us have found that when we get our MC symptoms under control, our other autoimmune-type issues tend to either improve significantly, or disappear altogether, depending on how the damage has progressed. The Entocort EC will often resolve the D, and other symptoms, but please be aware that unless we change our diet, to eliminate our food sensitivities, we virtually always relapse after the Entocort treatment is discontinued. All but an extremely small percentage of us are sensitive to gluten, probably 85 to 90% of us are also sensitive to casein (the primary protein in all dairy products), and roughly half of us are sensitive to soy and all legumes. Some of us also have additional food sensitivities.
If you're wondering how you could suddenly have food sensitivities that didn't exist for decades, research shows that when the genes that predispose to MC are triggered, the genes that predispose to gluten sensitivity are almost always triggered at the same time, and this can also cause us to be sensitive to certain other foods.
Probiotics are a very personal item. A few members here have found a specific probiotic that has been beneficial. For most of us, though, we have found that probiotics either do not help, or they make us much worse.
Incidentally, a trial of a few days on the GF diet is usually pointless. The half-life of anti-gliadin antibodies is 120 days, so for most of us, it takes much longer (often months) for the GF diet to begin to show benefits.
Again, welcome aboard, and please feel free to ask anything.
Tex (Wayne)
Welcome to the board. Yes, as you have found, for some of us (especially if we already have relatively high chronic stress levels), quitting a long-time smoking habit can trigger LC/CC/MC. (I have a theory that chronic stress is a prerequisite to the development of MC (or any other so-called autoimmune disease).
The good news is that many of us have found that when we get our MC symptoms under control, our other autoimmune-type issues tend to either improve significantly, or disappear altogether, depending on how the damage has progressed. The Entocort EC will often resolve the D, and other symptoms, but please be aware that unless we change our diet, to eliminate our food sensitivities, we virtually always relapse after the Entocort treatment is discontinued. All but an extremely small percentage of us are sensitive to gluten, probably 85 to 90% of us are also sensitive to casein (the primary protein in all dairy products), and roughly half of us are sensitive to soy and all legumes. Some of us also have additional food sensitivities.
If you're wondering how you could suddenly have food sensitivities that didn't exist for decades, research shows that when the genes that predispose to MC are triggered, the genes that predispose to gluten sensitivity are almost always triggered at the same time, and this can also cause us to be sensitive to certain other foods.
Probiotics are a very personal item. A few members here have found a specific probiotic that has been beneficial. For most of us, though, we have found that probiotics either do not help, or they make us much worse.
Incidentally, a trial of a few days on the GF diet is usually pointless. The half-life of anti-gliadin antibodies is 120 days, so for most of us, it takes much longer (often months) for the GF diet to begin to show benefits.
Again, welcome aboard, and please feel free to ask anything.
Tex (Wayne)
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Hi there,
You have come to the right place. There is a wealth of information on this forum! I've been GF since July 1 and the D did go down somewhat but mainly the pain and nausea went away. Once I went dairy free, my D was even less frequent but was still having it 1 to 3 times a day. I'm currently doing the 8-week Pepto treatment and it works very well for me. It actually surpresses the inflammation and helps you heal while Imodium and Lomotil just mask the symptoms. Most take Entocort but do a very slow tapering to get results after finding out all their food intolerances. I'm learning a lot from Tex's book! It's the first book written about MC.
Your gut needs time to heal so avoid irritant foods like beans, raw veggies and fruits, nuts and peppery things for now. I eat a lot of chicken/veggie soup, tons of meat (it's good for us), avocados, rice, bananas, some squash and zuchinni. Try to avoid processed food for now. I should take my own advice as I still get into the GF breads and Quinoa pasta.
This disease takes a lot of patience but it's worth it to feel better. I'm one of the lucky ones to tolerate Pepto so well but lots of us take Entocort and some manage to heal with just diet alone. Hope it works well for you.
I personally will not take a probiotic at this time. Just too scared to add something else. I only take Vitamin D and B-complex. I'm not one of the those who gets rashes but there are quite a few on this forum who do and can give you more insight on that.
Take care and read, read, read over this forum. It's overwhelming at first but you will learn a lot more here than at your doctor's office. I have Celiac disease as well which is why my doctor talked about the gluten free diet with me. But he never mentioned diet to me when I was diagnosed with LC.
Terri
You have come to the right place. There is a wealth of information on this forum! I've been GF since July 1 and the D did go down somewhat but mainly the pain and nausea went away. Once I went dairy free, my D was even less frequent but was still having it 1 to 3 times a day. I'm currently doing the 8-week Pepto treatment and it works very well for me. It actually surpresses the inflammation and helps you heal while Imodium and Lomotil just mask the symptoms. Most take Entocort but do a very slow tapering to get results after finding out all their food intolerances. I'm learning a lot from Tex's book! It's the first book written about MC.
Your gut needs time to heal so avoid irritant foods like beans, raw veggies and fruits, nuts and peppery things for now. I eat a lot of chicken/veggie soup, tons of meat (it's good for us), avocados, rice, bananas, some squash and zuchinni. Try to avoid processed food for now. I should take my own advice as I still get into the GF breads and Quinoa pasta.
This disease takes a lot of patience but it's worth it to feel better. I'm one of the lucky ones to tolerate Pepto so well but lots of us take Entocort and some manage to heal with just diet alone. Hope it works well for you.
I personally will not take a probiotic at this time. Just too scared to add something else. I only take Vitamin D and B-complex. I'm not one of the those who gets rashes but there are quite a few on this forum who do and can give you more insight on that.
Take care and read, read, read over this forum. It's overwhelming at first but you will learn a lot more here than at your doctor's office. I have Celiac disease as well which is why my doctor talked about the gluten free diet with me. But he never mentioned diet to me when I was diagnosed with LC.
Terri
Diagnosed with Lymphocytic Colitis in July, 2012 then with Celiac in November, 2012.
Welcome Amynicki . Read as much as you can from this forum. It saved me. I am still learning so much from everyones's struggle with this disease. I mostly stay on this board so I can help others ( like you!) navigate through this process.
Tex is the expert here. We all have slightly different cases, but as he said we also have many things in common... like gluten sensitivity. At first, I didn't believe it ( didn't want to) , but I came around. Your rash is another clue that this is probably true for you also.
I also went on Entocort while I changed my diet. Three months is what doctors think you should do, but we have proven here, that all of us heals at a different pace and weaning off VERY SLOWLY is really important to not relapsing. I only started getting the cramps when it was time to take a step down in dose and I was close to constipation.I was on the 9mg day dose for about a month. Then I went every other day 9mg, 6mg. and so on. Once I was down to 3mg a day, I stayed there for a couple of months. The whole thing took me about 6 months to get completely off.
As Tex said, gluten, dairy, and soy are all foods that cause inflammation in the gut. The other foods are just irritants but should be avoided until you heal some ( beans, raw fruits and veggies, salad, acid foods, spicey foods, processed foods etc.) We all have our own lists. All of these can be tested and added back in later after healing.
I have to go now, but hang in there. You can get better.
Leah
Tex is the expert here. We all have slightly different cases, but as he said we also have many things in common... like gluten sensitivity. At first, I didn't believe it ( didn't want to) , but I came around. Your rash is another clue that this is probably true for you also.
I also went on Entocort while I changed my diet. Three months is what doctors think you should do, but we have proven here, that all of us heals at a different pace and weaning off VERY SLOWLY is really important to not relapsing. I only started getting the cramps when it was time to take a step down in dose and I was close to constipation.I was on the 9mg day dose for about a month. Then I went every other day 9mg, 6mg. and so on. Once I was down to 3mg a day, I stayed there for a couple of months. The whole thing took me about 6 months to get completely off.
As Tex said, gluten, dairy, and soy are all foods that cause inflammation in the gut. The other foods are just irritants but should be avoided until you heal some ( beans, raw fruits and veggies, salad, acid foods, spicey foods, processed foods etc.) We all have our own lists. All of these can be tested and added back in later after healing.
I have to go now, but hang in there. You can get better.
Leah
Dear Amynicki,
Welcome from Asia
Best, ant
Welcome from Asia
Just to build on Leah's point, it is possible that for some beans (which are a legume like soy, peas and peanuts) and nightshades (like tomatoes, bell peppers, eggplant and (even) potatoes) will unfortunately remain an intolerance, not only an irritant.All of these can be tested and added back in later after healing.
Best, ant
----------------------------------------
"Softly, softly catchee monkey".....
"Softly, softly catchee monkey".....
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Joefnh
- Rockhopper Penguin
- Posts: 2478
- Joined: Wed Apr 21, 2010 8:25 pm
- Location: Southern New Hampshire
Welcome to the group AmyNiki, I can totally understand your comment about the spinal issues and the meds. I'm going through lumbar stenosis, facet hypertrophy, osteoarthritis, spondylitis etc... I have found that with the steroid joint injections and meds that MC symptoms are non existent.
You have gotten some great advice and Tex is quite correct, it takes several months of GF eating to actually see the benefits. As mentioned most of us also react to soy and possibly dairy products. Initially until the diet has had time to allow things to heal, most of us need to avoid raw fruits and veggies as our GI systems are quite swollen and irritated. Once things have had a chance to heal, we generally can go back to things like a salad or piece of fruit. Overall probiotics are a mixed bag, for as many that it seems to help, just as many cannot tolerate them.
I hope you feel better soon.
You have gotten some great advice and Tex is quite correct, it takes several months of GF eating to actually see the benefits. As mentioned most of us also react to soy and possibly dairy products. Initially until the diet has had time to allow things to heal, most of us need to avoid raw fruits and veggies as our GI systems are quite swollen and irritated. Once things have had a chance to heal, we generally can go back to things like a salad or piece of fruit. Overall probiotics are a mixed bag, for as many that it seems to help, just as many cannot tolerate them.
I hope you feel better soon.
Joe
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drdebc
- Adélie Penguin
- Posts: 150
- Joined: Thu Nov 08, 2012 9:15 pm
- Location: On a lake in the N GA mountains
Welcome AmyNicki!
You have come to the right place! The folks on this site can empathize with what you are going through. Following a non-gluten diet and the treatment regime (Pepto Bismol for 8 weeks) has really helped me already. Today I am beginning week 2 and I am already feeling SO much better. This is a lonely humbling disease and the folks on this site are here for you. Tex is a genius and his book is well-worth purchasing.
Hang in there!
Welcome again,
Deb
Hang in there!
Welcome again,
Deb
Retired marketing Higher Ed PhD striving to heal myself with a minimal amount of prescription meds.
Diagnosed w/collagenous MC, Barrett's Esophagus, Celiac, Hypothyroidism.
Diagnosed w/collagenous MC, Barrett's Esophagus, Celiac, Hypothyroidism.
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tigereye92
- Posts: 12
- Joined: Tue Nov 06, 2012 8:05 pm
- Location: Lynchburg Virginia
Wow. Since I'm still obviously in denial, I ate Ramen noodles (I can see yall shaking your head!) last night. Was up sick at 3am for ALL morning. Ok. I get it. Gotta go grocery shopping!! Question... sometimes the D is just normal D with cramping, stomach rolling etc... I call that "the anger". Other times it's a full body affair with waves of nausea, dripping sweat-- a total full body sick experiance. We call that "Anger with the Evil" LOL. Is that common? I hadn't had that in a few months. Of course... I haven't eaten cheap yucky Ramen in a few months either.
Since I'm at work now w few options... I'm having raisens for dinner till I get home for a piece of steak. I'm very lucky that the lady I share a desk with is GF and leaves me "snacks". Grocery store this weekend.
AmyNicki
Since I'm at work now w few options... I'm having raisens for dinner till I get home for a piece of steak. I'm very lucky that the lady I share a desk with is GF and leaves me "snacks". Grocery store this weekend.
AmyNicki
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drdebc
- Adélie Penguin
- Posts: 150
- Joined: Thu Nov 08, 2012 9:15 pm
- Location: On a lake in the N GA mountains
Hi AmiNicki
Hang in there. It will get better.
Speaking from experience, bananas, green tea, rice or mashed potatoes (bland), and plain cooked chicken, fish and meat will be the best for you, right now.
I know for me, (I am in a flair up) cooked tomatoes and red peppers set my D off. While plain meat and shaved non gluten chicken and turkey (from the deli) seems to work.
I have experienced the types of D you describe for no rhyme or reason. Yesterday, few swigs of zero vitamin water (now note it included apple concentrate) really messed me up.
Personally, I have discovered that 8 Pepto Bismols a day plus one Curielle probiotic and a cup of plain Kefir per day is helping me. You will find that plan on this site. The suggested Pepto regime has really restored my energy and lowered my potty room visits. You need to keep it up for 8 weeks, in order to heal your body. I am beginning week 2 and will absolutely see this through! I do not want to return to this stage again. I also have prescription Lomitil for emergency D.
Not completely certain what you could eat at work. If it were me, I would pack bananas and meat.
Once you discover how much better you feel without this disease, you will make better eating decisions. Don't beat yourself up! We have all been there done that and suffered the consequences. IOnce you are healed, you can experiment with more foods. I recommend, however that you avoid gluten and cornstarch.
Regards,
Deb
Speaking from experience, bananas, green tea, rice or mashed potatoes (bland), and plain cooked chicken, fish and meat will be the best for you, right now.
I know for me, (I am in a flair up) cooked tomatoes and red peppers set my D off. While plain meat and shaved non gluten chicken and turkey (from the deli) seems to work.
I have experienced the types of D you describe for no rhyme or reason. Yesterday, few swigs of zero vitamin water (now note it included apple concentrate) really messed me up.
Personally, I have discovered that 8 Pepto Bismols a day plus one Curielle probiotic and a cup of plain Kefir per day is helping me. You will find that plan on this site. The suggested Pepto regime has really restored my energy and lowered my potty room visits. You need to keep it up for 8 weeks, in order to heal your body. I am beginning week 2 and will absolutely see this through! I do not want to return to this stage again. I also have prescription Lomitil for emergency D.
Not completely certain what you could eat at work. If it were me, I would pack bananas and meat.
Once you discover how much better you feel without this disease, you will make better eating decisions. Don't beat yourself up! We have all been there done that and suffered the consequences. IOnce you are healed, you can experiment with more foods. I recommend, however that you avoid gluten and cornstarch.
Regards,
Deb
Retired marketing Higher Ed PhD striving to heal myself with a minimal amount of prescription meds.
Diagnosed w/collagenous MC, Barrett's Esophagus, Celiac, Hypothyroidism.
Diagnosed w/collagenous MC, Barrett's Esophagus, Celiac, Hypothyroidism.
AmyNicki,
I too had the same bouts of nausea with sweating and all. Hated it! That stopped pretty quickly after going 100% GF.
@Deb...I tried the zero water as well....tons of artificial sweeteners in it.....messed me up too! Never again!
I'm now taking 3 Peptos and this is my 10th week. So far doing very well even with the too many GF/DF pumpkin bars I had the other day. Need to really cut that out and go back to low sugar.
In regards to the Kefir, isn't there casein in that? I'm totally terrified of trying that but it would be nice to hear if it works for you after weaning off the Pepto. Would you believe that even with Pepto I could probably eat all my food intolerances and not have a reaction? The reason I say this is because I took Imodium before I went GF and it totally got rid of my symptoms. I'm expecting some loose stools once I get off the Pepto but I'm hoping it won't be WD again. It's just too bad you can't take Pepto for as long as you can Entocort because I honestly believe that our guts need more time to heal than just 2 months. But since Pepto seems to speed up the healing process, I'm hoping for the best.
It's nice to hear someone else doing this treatment. Let's pray it works!!
Keep us updated Amynicki!
Terri
I too had the same bouts of nausea with sweating and all. Hated it! That stopped pretty quickly after going 100% GF.
@Deb...I tried the zero water as well....tons of artificial sweeteners in it.....messed me up too! Never again!
I'm now taking 3 Peptos and this is my 10th week. So far doing very well even with the too many GF/DF pumpkin bars I had the other day. Need to really cut that out and go back to low sugar.
In regards to the Kefir, isn't there casein in that? I'm totally terrified of trying that but it would be nice to hear if it works for you after weaning off the Pepto. Would you believe that even with Pepto I could probably eat all my food intolerances and not have a reaction? The reason I say this is because I took Imodium before I went GF and it totally got rid of my symptoms. I'm expecting some loose stools once I get off the Pepto but I'm hoping it won't be WD again. It's just too bad you can't take Pepto for as long as you can Entocort because I honestly believe that our guts need more time to heal than just 2 months. But since Pepto seems to speed up the healing process, I'm hoping for the best.
It's nice to hear someone else doing this treatment. Let's pray it works!!
Keep us updated Amynicki!
Terri
Diagnosed with Lymphocytic Colitis in July, 2012 then with Celiac in November, 2012.
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drdebc
- Adélie Penguin
- Posts: 150
- Joined: Thu Nov 08, 2012 9:15 pm
- Location: On a lake in the N GA mountains
Hey tiras and AmyNicki
I have all of the zero vitamin water packed up with the receipt and plan to return it tomorrow. LOL What has worked for me is Fuze slenderize. If I want to grab a drink on the go or if I want an alcoholic mixer, it works for me. I cannot tolerate red wine when I am in a D stage. I am also making my own decaf green tea with splenda and that is great but boring.
Tiras, I am so proud for you. Ten weeks wow.
I am no expert on the kefir. I am attempting to follow the trackyourplaque.com as well as advice on this site. It is strange to me that I am able to handle the kefir (1 cup), 3 tbs of flaxseed meal as well as 1/2 c ground raw nuts-almond or walnut. I mix it together and drink it. Tex warned that flaxseed meal can cause D. However, that has not been my experience. That is my breakfast. It does not affect me via D in the least. Dr. Davis (Wheat Belly) recommends I do this. I am striving to heal my MC as well as my plaque.
AmyNicki, I meant, in my last post to question raisins. They might hurt you. I am unsure. For what it is worth, I craved a snack this afternoon and enjoyed a few plain pork rinds. They did not bother me in the least.
7 more weeks for me with the Pepto plan. I do have Imonium should I need it. But so far, I have only taken 3 after eating something with red peppers and other spices.
Cross our fingers that we all will be well soon. And most importantly, that we will remain D free.
Hope you have a Happy Thanksgiving, (I am taking a boiled shrimp ring and plain fresh pole greens to my family gathering so I can be sure to have something I can safely eat)
Deb
Tiras, I am so proud for you. Ten weeks wow.
I am no expert on the kefir. I am attempting to follow the trackyourplaque.com as well as advice on this site. It is strange to me that I am able to handle the kefir (1 cup), 3 tbs of flaxseed meal as well as 1/2 c ground raw nuts-almond or walnut. I mix it together and drink it. Tex warned that flaxseed meal can cause D. However, that has not been my experience. That is my breakfast. It does not affect me via D in the least. Dr. Davis (Wheat Belly) recommends I do this. I am striving to heal my MC as well as my plaque.
AmyNicki, I meant, in my last post to question raisins. They might hurt you. I am unsure. For what it is worth, I craved a snack this afternoon and enjoyed a few plain pork rinds. They did not bother me in the least.
7 more weeks for me with the Pepto plan. I do have Imonium should I need it. But so far, I have only taken 3 after eating something with red peppers and other spices.
Cross our fingers that we all will be well soon. And most importantly, that we will remain D free.
Hope you have a Happy Thanksgiving, (I am taking a boiled shrimp ring and plain fresh pole greens to my family gathering so I can be sure to have something I can safely eat)
Deb
Retired marketing Higher Ed PhD striving to heal myself with a minimal amount of prescription meds.
Diagnosed w/collagenous MC, Barrett's Esophagus, Celiac, Hypothyroidism.
Diagnosed w/collagenous MC, Barrett's Esophagus, Celiac, Hypothyroidism.
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fatbuster205
- Gentoo Penguin
- Posts: 342
- Joined: Tue May 22, 2012 7:53 am
- Location: Carrickfergus, Northern Ireland
Welcome AmyNicki,
I am (relatively) new - almost 6 months - and am going GF on Thursday (I have an edoscopy tomorrow to rule in or out Coeliac Disease!
This Forum is great - people on here really care and provide great advice and encouragement. Treatment approaches vary - I have been on 9mg entocort since the end of July and my GI Consultant isn't in a rush to reduce it yet but I hope once I go GF he will let me start to taper it off. I was also on Asacol but he took me off that a few weeks back and things have improved significantly - it would seem side affects were causing D!
I am hoping to just go GF - if symptoms improve - great - but I may have to consider other foods, specifically dairy down the road. All going well however, things will improve just going GF!
The first few months I was on here I was miserable and felt really ill and from March to June I was in hospital 4 times! Things are so much better now, and a lot of that is having found this forum and getting the support, advice and encouragement from people on here. My advice to you is read as much as you can, ask questions, read the jokes pages when you feel down and buy Tex's book!
Anne
PS And note the advice about diet!!
I am (relatively) new - almost 6 months - and am going GF on Thursday (I have an edoscopy tomorrow to rule in or out Coeliac Disease!
This Forum is great - people on here really care and provide great advice and encouragement. Treatment approaches vary - I have been on 9mg entocort since the end of July and my GI Consultant isn't in a rush to reduce it yet but I hope once I go GF he will let me start to taper it off. I was also on Asacol but he took me off that a few weeks back and things have improved significantly - it would seem side affects were causing D!
I am hoping to just go GF - if symptoms improve - great - but I may have to consider other foods, specifically dairy down the road. All going well however, things will improve just going GF!
The first few months I was on here I was miserable and felt really ill and from March to June I was in hospital 4 times! Things are so much better now, and a lot of that is having found this forum and getting the support, advice and encouragement from people on here. My advice to you is read as much as you can, ask questions, read the jokes pages when you feel down and buy Tex's book!
Anne
PS And note the advice about diet!!
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drdebc
- Adélie Penguin
- Posts: 150
- Joined: Thu Nov 08, 2012 9:15 pm
- Location: On a lake in the N GA mountains
Hi fatbuster
Bless your heart! You really have had a rough time with MC. It is terrible that you were hospitalized so many times. The next time I feel sorry for myself, I will remember you.
I have had MC for 30 years. I was finally diagnosed in 2008. One of my treatments was Entocort. I took myself off of it after 3 days because it stimulated my appetite so much! Too bad I did that. I was simply treating the symptoms with Lomitil. Therefore the D would come and go and then in the last year, the D came without going away most of the time . I am now doing the Pepto 8 week plan in the hopes I can heal it forever. You are fortunate that you have lost so much weight. However I am sure this wasn't a pleasant way to do so. Unfortunately, weight is still something I struggle with despite being non gluten for 6 months and really watching what goes into my body.
Great idea to go to the joke page. I have not yet done that. I have ordered Tex's book.
I hope you continue to experience renewed health,
Deb
I have had MC for 30 years. I was finally diagnosed in 2008. One of my treatments was Entocort. I took myself off of it after 3 days because it stimulated my appetite so much! Too bad I did that. I was simply treating the symptoms with Lomitil. Therefore the D would come and go and then in the last year, the D came without going away most of the time . I am now doing the Pepto 8 week plan in the hopes I can heal it forever. You are fortunate that you have lost so much weight. However I am sure this wasn't a pleasant way to do so. Unfortunately, weight is still something I struggle with despite being non gluten for 6 months and really watching what goes into my body.
Great idea to go to the joke page. I have not yet done that. I have ordered Tex's book.
I hope you continue to experience renewed health,
Deb
Retired marketing Higher Ed PhD striving to heal myself with a minimal amount of prescription meds.
Diagnosed w/collagenous MC, Barrett's Esophagus, Celiac, Hypothyroidism.
Diagnosed w/collagenous MC, Barrett's Esophagus, Celiac, Hypothyroidism.
Re: Hi fatbuster
Welcome AmyNicki! You will find tons of support and advice on this forum. I too used to drink Vitamin Water Zero but read the label a few weeks ago and promptly stopped buying it. When there are things in the ingredient list that I can't pronounce and have no idea what they are, that food is eliminated from my diet! I like the Sparkling Spring Water from Trader Joe's. I drink it straight and when I want a mixed drink will use that rather than club soda. It does have a fizz to it but it doesn't seem to bother me. I find I get so dehydrated that I need to constantly be drinking water.
I hope everyone has a nice Thanksgiving as well. We are taking my dad and brothers out to eat on Thursday and going to my nieces house on Saturday for a home cooked meal. I will be making my "famous" Broccoli slaw with either shrimp or crab dish to bring so that I can eat something.
DrDeb-I too found this awful side effect from the Entocort. My appetite went through the roof and was similar to a "binge" type of a feeling. I hated it! My poor body has gone up and down in weight but I think it's finally settled around 120lbs., which I'm happy with. When I was in my worst flare up, I got down to 109lbs so the appetite thing was a blessing for a little while.drdebc wrote: One of my treatments was Entocort. I took myself off of it after 3 days because it stimulated my appetite so much! Too bad I did that.
I hope everyone has a nice Thanksgiving as well. We are taking my dad and brothers out to eat on Thursday and going to my nieces house on Saturday for a home cooked meal. I will be making my "famous" Broccoli slaw with either shrimp or crab dish to bring so that I can eat something.
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drdebc
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CathyMe
It is so true to not buy anything with crazy sounding ingredients. Laura Lynn (Ingle's) brand sparkling diet flavored water is something I have no problem digesting despite some strange ingredients. It does have Sucralose (Splenda). Wow if my weight fluctuated between 120 and 109 I would say Thank You Dear God! LOL I have not weighed 109 since I was 21! Lucky you.
The Thanksgiving gathering we will be attending always includes cocktails and appetizers for at least an hour-gluten items and raw fruits and veggies. So I am bringing a shrimp ring. Your broccoli slaw sounds wonderful. I am bringing fresh pole beans so I can eat something with my turkey.
Happy Thanksgiving to All of You,
Deb
The Thanksgiving gathering we will be attending always includes cocktails and appetizers for at least an hour-gluten items and raw fruits and veggies. So I am bringing a shrimp ring. Your broccoli slaw sounds wonderful. I am bringing fresh pole beans so I can eat something with my turkey.
Happy Thanksgiving to All of You,
Deb
Retired marketing Higher Ed PhD striving to heal myself with a minimal amount of prescription meds.
Diagnosed w/collagenous MC, Barrett's Esophagus, Celiac, Hypothyroidism.
Diagnosed w/collagenous MC, Barrett's Esophagus, Celiac, Hypothyroidism.