I came across a listing for a clinical study on the role of Vitamin D and IBD at Uconn Medical Center in CT. I e-mailed the contact listed stating that I have MC asking if they are still recruiting for the study. The response I got back was: "the study is only on Inflammatory Bowel disease. sorry for that." I responded back with: "Microscopic Colitis is an Inflammatory Bowel Disease. (and a link to)http://digestive.niddk.nih.gov/ddisease ... rocolitis/"
I'm waiting to hear his response. Scary to think how ignorant our researchers appear to be.
Shaking my Head
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jessica329
- Adélie Penguin
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- Location: CT
Shaking my Head
Jessica
Lymphocytic colitis August 2012
Lymphocytic colitis August 2012
Ugh, so frustrating. I volunteered to be in a study at NIH on "Long Term Follow-up of Patients with Allergic and Inflammatory Disorders."
I got the following response:
I got the following response:
Yup, we remain in the shadows of other more respected, better understood diseases.Thank you for your interest in our Evaluation and Long Term Follow-up of Patients with Allergic and Inflammatory Disorders (protocol 96-I-0129) at the National Institutes of Health in Bethesda, Maryland. At this time, we are currently recruiting only a select population of patients with Eosinophilic GI Disease. We do not have any protocols that focus on any of the diagnoses that you mention.
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jessica329
- Adélie Penguin
- Posts: 214
- Joined: Thu Oct 11, 2012 6:47 pm
- Location: CT
Update-
His response: Hi jessica,
my study is only on either crohns disease or Ulcerative colitis and it is a chart based study. sorry that i wasnt helpful to you.
My response: Thank you for your reply. Most times studies are performed on only UC and Crohn's; the more known and media aware forms of IBD. I must admit that your reply was horribly offensive at first and I hope that you are knowledable on ALL forms of IBD, not just UC and Crohn's. Good luck with your study and I hope it brings a better understanding for all Irritable Bowel Diseases.
His response: Hi jessica,
my study is only on either crohns disease or Ulcerative colitis and it is a chart based study. sorry that i wasnt helpful to you.
My response: Thank you for your reply. Most times studies are performed on only UC and Crohn's; the more known and media aware forms of IBD. I must admit that your reply was horribly offensive at first and I hope that you are knowledable on ALL forms of IBD, not just UC and Crohn's. Good luck with your study and I hope it brings a better understanding for all Irritable Bowel Diseases.
Jessica
Lymphocytic colitis August 2012
Lymphocytic colitis August 2012
IOW, they're too lazy to actually do any original research. All they intend to do is to look at someone else's data and write another article about it.and it is a chart based study.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
That almost sounds like some sort of "bias" against MC, doesn't it.Yup, we remain in the shadows of other more respected, better understood diseases.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
