Wondered where you were today and I'm so sorry you are in such misery, Lesley. I don't think it's a fluke that so many of us have recurring UTI's, still believe that most of us have MAP because of our damaged intestines. You can't ignore an infection, you have to take something for it. I just hope that whatever you take calms it down and doesn't make your pain/D issues worse.
You just can't get a break, my friend, if you can't take your trip now it's not the end of the world, you need to focus on you. Sending you warm hugs.
A 3 toilet roll day....
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
Oh Lesley, I feel your pain. Have you ever used D-Mannose? It's a natural supplement that is either in power form or capsule. My daughter is plagued with bladder infections, UTIs and she even had a kidney infection. She swears by taking D-mannose. She has thwarted oncoming infections by taking it as soon as she feels the symptoms coming on and she has been able to actually get rid of ones that had already taken hold. She now takes it bi-weekly as a precaution and hasn't gotten one since. Not saying you shouldn't do the antibiotic, but it's pretty harmless and could give you some relief. Hope you feel better very soon
Leah
Leah
Lesley and Gabes,
I hope you both get the peace that you deserve. It is only after four weeks of trying to "fix" myself that I finally have sufficient energy - and state of mind - to offer positive thoughts for you two. I was quite a curmudgeon up to this point and would not have been a positive influence for anyone.
We all seem to have such varied yet insidious problems and complications of MC. It continues to put life into perspective for me if I only stop long enough to listen and observe.
My wife and I had a friend and his dog over for dinner last night. Sounds funny I know, but he travels a lot (actually is my pilot) so he doesn't get much time to be with his golden retriever. At our house, everyone and everything are welcome. He lost his wife to breast cancer two years ago and I hurt for him as I hear him talk about his wife. Takes me back to my wife's battle with Non-Hodgkins Lymphoma - which she fortunately - put into remission via her bone marrow transplant in 2000.
Makes me think that what I am dealing with cannot be so bad. And I can never forget this perspective that allows, in my case, the "vanity of life" to creep in. Maybe this is what prevents me from giving up and throwing in the towel. But as we all know, there are days that MC makes one want to curl up in a ball and shy away from life. And when other complications - even unrelated - hit at the same time, it can become overwhelming. I know you two are in this "curl up mode" right now, and all I can offer you at this time is to just feel what you are feeling, and get the rest and peace that you deserve to heal. And remember, we are here to prop you up, because God knows you have done so for the rest of us.
Rich
I hope you both get the peace that you deserve. It is only after four weeks of trying to "fix" myself that I finally have sufficient energy - and state of mind - to offer positive thoughts for you two. I was quite a curmudgeon up to this point and would not have been a positive influence for anyone.
We all seem to have such varied yet insidious problems and complications of MC. It continues to put life into perspective for me if I only stop long enough to listen and observe.
My wife and I had a friend and his dog over for dinner last night. Sounds funny I know, but he travels a lot (actually is my pilot) so he doesn't get much time to be with his golden retriever. At our house, everyone and everything are welcome. He lost his wife to breast cancer two years ago and I hurt for him as I hear him talk about his wife. Takes me back to my wife's battle with Non-Hodgkins Lymphoma - which she fortunately - put into remission via her bone marrow transplant in 2000.
Makes me think that what I am dealing with cannot be so bad. And I can never forget this perspective that allows, in my case, the "vanity of life" to creep in. Maybe this is what prevents me from giving up and throwing in the towel. But as we all know, there are days that MC makes one want to curl up in a ball and shy away from life. And when other complications - even unrelated - hit at the same time, it can become overwhelming. I know you two are in this "curl up mode" right now, and all I can offer you at this time is to just feel what you are feeling, and get the rest and peace that you deserve to heal. And remember, we are here to prop you up, because God knows you have done so for the rest of us.
Rich
"It's not what I believe. It's what I can prove." - A Few Good Men
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Gabes-Apg
- Emperor Penguin
- Posts: 8332
- Joined: Mon Dec 21, 2009 3:12 pm
- Location: Hunter Valley NSW Australia
Thanks Rich
your words and support mean alot.
I am doing ok. I struggled a bit on the weekend due to pain from dental work.
in amongst everything that is happening to me, none of it is MC related.
to the extent that a week ago i had a HUGE feed of gluten and dairy and had no reactions whatsoever!
Direct thanks for introducing me to Steve Jobs 'the dots'. I share this with many people, when they are struggling to make decisions, or unsettled about a decision they made etc.
Keep up the work on 'full healing'.... it is a very worthwhile investment....
your words and support mean alot.
I am doing ok. I struggled a bit on the weekend due to pain from dental work.in amongst everything that is happening to me, none of it is MC related.
to the extent that a week ago i had a HUGE feed of gluten and dairy and had no reactions whatsoever!
Direct thanks for introducing me to Steve Jobs 'the dots'. I share this with many people, when they are struggling to make decisions, or unsettled about a decision they made etc.
Keep up the work on 'full healing'.... it is a very worthwhile investment....
Gabes Ryan
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
Gabes and Jean,
I thank you for your reminders! I am actually a graduate of a couple of incredible workshops done in 1983(!!!) during which one of the processes we went through was learning to surrender and accept, so your words resonate with me big time.
I have accepted that this illness is something I have to live with, and I have made adjustments to handle it accordingly. Every now and again it gets me where it hurts most, and then I have remember to first surrender and then see what is good for me.
My trip is something I have to deal with. I am waiting now for the meds to take effect and to see if I will have to postpone or I can take the risk and go. I can come back early if I can't handle it. However I need to see how it goes because if the trip was today I couldn't have gone.
A very good thing - the horrible suspension the doc gave me to take has made a difference so far! I didn't have an attack last night, and so far so good today! Holding thumbs!
The UTI is still making it's presence felt.
I've just been trying on my jeans (I mostly wear elasticated pants), and although I haven't put on more weight than I was carrying before this started, the bloating has changed my shape permanently, it seems to me. I am hoping the denim stretches some because I can't sit down in them! I find this VERY hard to accept!
I thank you for your reminders! I am actually a graduate of a couple of incredible workshops done in 1983(!!!) during which one of the processes we went through was learning to surrender and accept, so your words resonate with me big time.
I have accepted that this illness is something I have to live with, and I have made adjustments to handle it accordingly. Every now and again it gets me where it hurts most, and then I have remember to first surrender and then see what is good for me.
My trip is something I have to deal with. I am waiting now for the meds to take effect and to see if I will have to postpone or I can take the risk and go. I can come back early if I can't handle it. However I need to see how it goes because if the trip was today I couldn't have gone.
A very good thing - the horrible suspension the doc gave me to take has made a difference so far! I didn't have an attack last night, and so far so good today! Holding thumbs!
The UTI is still making it's presence felt.
I've just been trying on my jeans (I mostly wear elasticated pants), and although I haven't put on more weight than I was carrying before this started, the bloating has changed my shape permanently, it seems to me. I am hoping the denim stretches some because I can't sit down in them! I find this VERY hard to accept!
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Gabes-Apg
- Emperor Penguin
- Posts: 8332
- Joined: Mon Dec 21, 2009 3:12 pm
- Location: Hunter Valley NSW Australia
Lesley.....
you know what i have found since i joined this beautiful group of people. When I am typing the words to others, there is like a 'poke poke' in my arm and the words 'listen to your own advice... listen to your own advice' come to mind!
WOO HOOO to no attack last night - softly softly catchee monkey......
you know what i have found since i joined this beautiful group of people. When I am typing the words to others, there is like a 'poke poke' in my arm and the words 'listen to your own advice... listen to your own advice' come to mind!
WOO HOOO to no attack last night - softly softly catchee monkey......
Gabes Ryan
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
I'm sorry, Kathy. Terri, Connie, Leah, Martha and Rich too! I didn't thank you specifically for you caring, hugs and help. It means the world to me, and truly does help as all of you know.
I hope I didn't leave anyone out.
Leah - were your UTI's e-coli based? That's what mine usually are. NO matter how careful I am, and I am careful, I seem to be prone to these. I will try D-Mannose as soon as I can gt out to buy it.
Gabes, I don't know if you read my happy message a while back talking of my son, Adam, who is an animation supervisor and now director, and who has sold a show to Disney. He is working flat out on the "bible" for the show. I obviously can't talk more about it since all rights belong to Disney now.
So animation, and animated movies are extremely dear to my heart!
I hope I didn't leave anyone out.
Leah - were your UTI's e-coli based? That's what mine usually are. NO matter how careful I am, and I am careful, I seem to be prone to these. I will try D-Mannose as soon as I can gt out to buy it.
Gabes, I don't know if you read my happy message a while back talking of my son, Adam, who is an animation supervisor and now director, and who has sold a show to Disney. He is working flat out on the "bible" for the show. I obviously can't talk more about it since all rights belong to Disney now.
So animation, and animated movies are extremely dear to my heart!
Lesley,
I'm sorry too that you are going through this.
I'll put in a 'second' on D-Mannose. I had a UTI a few weeks ago--- actually I had blood in my urine and felt I was getting a UTI, which is very rare for me. I took Cipro for as long as I could stand it-- 8 days-- then switched to D-Mannose. It worked and didn't come back. I took that for about a week and then backed off. I used it one other time when I was starting to feel as if a UTI might be coming on and it never developed. Looking back I now think the flushable wipes I was using had some harsh chemical in them that was irritating to me. I tossed them.
It really is something to consider.
I hope things are improving for you---
Carol
I'm sorry too that you are going through this.
I'll put in a 'second' on D-Mannose. I had a UTI a few weeks ago--- actually I had blood in my urine and felt I was getting a UTI, which is very rare for me. I took Cipro for as long as I could stand it-- 8 days-- then switched to D-Mannose. It worked and didn't come back. I took that for about a week and then backed off. I used it one other time when I was starting to feel as if a UTI might be coming on and it never developed. Looking back I now think the flushable wipes I was using had some harsh chemical in them that was irritating to me. I tossed them.
It really is something to consider.
I hope things are improving for you---
Carol
“.... people will forget what you said, people will forget what you did, but people will never forget how you made them feel.” Maya Angelou
Dear Lesley and Gabes,
“When sorrows come, they come not single spies. But in battalions!”.
Only just caught up with this post
for both of you.
Thinking of you and sending positive vibes from Hong Kong <<<<<<<<(((((((((((((((((((
Best wishes for a better tomorrow, ant
“When sorrows come, they come not single spies. But in battalions!”.
Only just caught up with this post
for both of you. Thinking of you and sending positive vibes from Hong Kong <<<<<<<<(((((((((((((((((((
Best wishes for a better tomorrow, ant
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"Softly, softly catchee monkey".....
"Softly, softly catchee monkey".....