for this useful information. The only drawback I have found with liquid Stevia is the cost. I use NOW brand Better Stevia Glycerite. I am in the 8 week Pepto-Bismol regime and I am discovering a lot of things that are setting off the D including having a nasty cold and cough.
Thanks again,
Deb
Newbie... First post!
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
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drdebc
- Adélie Penguin
- Posts: 150
- Joined: Thu Nov 08, 2012 9:15 pm
- Location: On a lake in the N GA mountains
Thanks Zizzle
Retired marketing Higher Ed PhD striving to heal myself with a minimal amount of prescription meds.
Diagnosed w/collagenous MC, Barrett's Esophagus, Celiac, Hypothyroidism.
Diagnosed w/collagenous MC, Barrett's Esophagus, Celiac, Hypothyroidism.
I'm very leary of Splenda http://articles.mercola.com/sites/artic ... fects.aspx I use liquid stevia but have read issues about Stevia in the Raw, which has a lot of fillers. One article I just read:
http://www.facebook.com/pages/Maria-Min ... 7393421445
http://www.facebook.com/pages/Maria-Min ... 7393421445
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drdebc
- Adélie Penguin
- Posts: 150
- Joined: Thu Nov 08, 2012 9:15 pm
- Location: On a lake in the N GA mountains
I love liquid Stevia in my AM cup of black coffee
So thrilled I am doing something correct.
Retired marketing Higher Ed PhD striving to heal myself with a minimal amount of prescription meds.
Diagnosed w/collagenous MC, Barrett's Esophagus, Celiac, Hypothyroidism.
Diagnosed w/collagenous MC, Barrett's Esophagus, Celiac, Hypothyroidism.
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drdebc
- Adélie Penguin
- Posts: 150
- Joined: Thu Nov 08, 2012 9:15 pm
- Location: On a lake in the N GA mountains
AmyNicki How are you doing?
I hope you are doing well.
Deb
Deb
Retired marketing Higher Ed PhD striving to heal myself with a minimal amount of prescription meds.
Diagnosed w/collagenous MC, Barrett's Esophagus, Celiac, Hypothyroidism.
Diagnosed w/collagenous MC, Barrett's Esophagus, Celiac, Hypothyroidism.
Hello and Waving from England UK
Hi everyone
It's so lovely to be able to speak to other people who have the same condition. I just feel so alone and feel like my life has been totally blighted by this awful disease.
Three weeks ago I was diagnosed with Lymphacytic Colitis after a couple of months of horrific diarrhea. It seemed to start after an incredibly stressful few months after a house we were purchasing fell through. I have always suffered with IBS but this was very different.
Think the thing that scares me the most is the total lack of knowledge the doctors have about it. My gastro doctor has put me onto Pentasa 2mg's a day. Last weekend I noticed that my urine had turned purple!! I contacted the drug company that makes it and was sent a letter explaining that if there is bleach in the toilet it's a reaction with that and the drug!
To get me through the day if I am going out I have been taking imodium but this week have noticed that I get the most horrible stomach cramps and bloating after using it!
This week the diarrhea has been worse so I don't know if it's the Pentasa or because I am getting so depressed about it all. I now feel there is nothing I can take that will get this under control.
I have started on a gluten and dairy free diet but I know that is not going to be an instant fix. I have started to keep a food diary in the hope it will give me a clue as to why it has suddenly become worse.
Sorry if I sound so negative and miserable that really isn't me! I am normally a fighter and won't give in to things but this has totally floored me. Thanks for listening
Sally
xxx
It's so lovely to be able to speak to other people who have the same condition. I just feel so alone and feel like my life has been totally blighted by this awful disease.
Three weeks ago I was diagnosed with Lymphacytic Colitis after a couple of months of horrific diarrhea. It seemed to start after an incredibly stressful few months after a house we were purchasing fell through. I have always suffered with IBS but this was very different.
Think the thing that scares me the most is the total lack of knowledge the doctors have about it. My gastro doctor has put me onto Pentasa 2mg's a day. Last weekend I noticed that my urine had turned purple!! I contacted the drug company that makes it and was sent a letter explaining that if there is bleach in the toilet it's a reaction with that and the drug!
To get me through the day if I am going out I have been taking imodium but this week have noticed that I get the most horrible stomach cramps and bloating after using it!
This week the diarrhea has been worse so I don't know if it's the Pentasa or because I am getting so depressed about it all. I now feel there is nothing I can take that will get this under control.
I have started on a gluten and dairy free diet but I know that is not going to be an instant fix. I have started to keep a food diary in the hope it will give me a clue as to why it has suddenly become worse.
Sorry if I sound so negative and miserable that really isn't me! I am normally a fighter and won't give in to things but this has totally floored me. Thanks for listening
Sally
xxx
I didnt introduce myself......newbie!
Sorry in my haste to tell you how fed up I was feeling i didn't introduce myself....sorry! x
My name is Sally and I live in the beautiful county of Somerset in England UK. I have a cake baking and cake decorating school that I have been running for about 5 years. Sadly after my diagnosis of MC a few weeks ago I have decided to close my business and will have to find an alternative something to fill my days!...Cake will have to take a back seat until I can get myself and this *Thing* under control.
I have read some of your posts and it's clear that there really needs more time and money spent in getting this what seem's little known disease up there with the *BigBoys* of IBD. I read Wayne's book as soon as I was diagnosed after searching for more information about MC. It is a revelation and I am certain a copy of this book needs to be on EVERY Doctors shelf all over the world.
In my search for more information I tried The Colitis and Chronns Society and the Coeliac Society and clearly we are not part of their *Gang* we are very much alone.......but....I guess with forums like this we can all get together and make ourselves heard! (See I can do positive) In the UK *Twitter* is a very big part of our lives and its an amazing place to find out info and to make contacts and friends. I have *Tweeted* about MC and have to date only had two responses from people here in the UK who have it. I shall continue to try and find more people but it would seem you in America have an even better idea of this disease than we do in the UK.
Must dash......I think you can all imagine where!!!! Speak soon Sally x
My name is Sally and I live in the beautiful county of Somerset in England UK. I have a cake baking and cake decorating school that I have been running for about 5 years. Sadly after my diagnosis of MC a few weeks ago I have decided to close my business and will have to find an alternative something to fill my days!...Cake will have to take a back seat until I can get myself and this *Thing* under control.
I have read some of your posts and it's clear that there really needs more time and money spent in getting this what seem's little known disease up there with the *BigBoys* of IBD. I read Wayne's book as soon as I was diagnosed after searching for more information about MC. It is a revelation and I am certain a copy of this book needs to be on EVERY Doctors shelf all over the world.
In my search for more information I tried The Colitis and Chronns Society and the Coeliac Society and clearly we are not part of their *Gang* we are very much alone.......but....I guess with forums like this we can all get together and make ourselves heard! (See I can do positive) In the UK *Twitter* is a very big part of our lives and its an amazing place to find out info and to make contacts and friends. I have *Tweeted* about MC and have to date only had two responses from people here in the UK who have it. I shall continue to try and find more people but it would seem you in America have an even better idea of this disease than we do in the UK.
Must dash......I think you can all imagine where!!!! Speak soon Sally x
Is this typical?
hahahahaha I am sorry but I have to laugh...I called my GP to say that imodium seemed to give me terrible pains in my bowel and a huge bloated stomach! (Poor hubby was getting worried) and was there anything else I could take. She rang me back about 4 hours later and said "No sorry there is nothing else we can give you except codeine" Collected prescription read leaflet that came with them *DO NOT take if you have colitis* Duh.....*Throws hands up in despair*
Welcome Sally!
Hang in there! This disease is unrelenting as you know. I was diagnosed in July. Going GF did not help with the D much so went DF and that helped a little. Since you have read Tex's book, you already know a lot....definitely more than our GI doctors do.
Imodium worked wonders for me but I do remember the first day I took it, it would give me a little stomach bloating/discomfort. I then took one a day for a week and felt great after that initial dose. I'm surprised you doctor did not mention Pepto. My doctor started me on that after Asacol only made things worse. Pepto is a healing med....Imodium just gets rid of the symptoms. (sometimes) We are all different in the way we react to meds. A lot of people react to Pepto but I have been one of the lucky ones. I'm currently down to 2 tablets and I'm on my 12th week of being on them. Started out with 7 pills a day. Started weaning off a few weeks ago.
Bloating and D, I've found out are pretty difficult to get rid of. Sometimes I feel it's all the carbs I'm eating but have been afraid to go the Paleo route just yet. Go low sugar, low fiber. I'm still reacting to something I think even after being GF for 6 months and DF for almost 5 months. It's the bloating I'm still having issues with even while on the Pepto even though it's been mild. This is a very frustrating disease. Like one lady said on here "you have to play detective".
Good luck! Sorry you had to give up cake baking for now. It's a good thing I don't work.....I'm sure my symptoms would be worse if I did.
Terri
Hang in there! This disease is unrelenting as you know. I was diagnosed in July. Going GF did not help with the D much so went DF and that helped a little. Since you have read Tex's book, you already know a lot....definitely more than our GI doctors do.
Imodium worked wonders for me but I do remember the first day I took it, it would give me a little stomach bloating/discomfort. I then took one a day for a week and felt great after that initial dose. I'm surprised you doctor did not mention Pepto. My doctor started me on that after Asacol only made things worse. Pepto is a healing med....Imodium just gets rid of the symptoms. (sometimes) We are all different in the way we react to meds. A lot of people react to Pepto but I have been one of the lucky ones. I'm currently down to 2 tablets and I'm on my 12th week of being on them. Started out with 7 pills a day. Started weaning off a few weeks ago.
Bloating and D, I've found out are pretty difficult to get rid of. Sometimes I feel it's all the carbs I'm eating but have been afraid to go the Paleo route just yet. Go low sugar, low fiber. I'm still reacting to something I think even after being GF for 6 months and DF for almost 5 months. It's the bloating I'm still having issues with even while on the Pepto even though it's been mild. This is a very frustrating disease. Like one lady said on here "you have to play detective".
Good luck! Sorry you had to give up cake baking for now. It's a good thing I don't work.....I'm sure my symptoms would be worse if I did.
Terri
Diagnosed with Lymphocytic Colitis in July, 2012 then with Celiac in November, 2012.
Hi Sally,
Welcome to our internet family. It's good to see you posting. Sharing thoughts and questions with others who have the disease almost always leads to new insight into the disease, and reveals additional ideas about ways to help control the symptoms.
Again, welcome aboard, and please feel free to ask anything.
Tex (Wayne)
Welcome to our internet family. It's good to see you posting. Sharing thoughts and questions with others who have the disease almost always leads to new insight into the disease, and reveals additional ideas about ways to help control the symptoms.
Again, welcome aboard, and please feel free to ask anything.
Tex (Wayne)
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Thank you for making me feel welcome
Thank you for making me feel welcome means a lot xx
