What Happened?
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christinakay
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What Happened?
I am new to this forum. Thanks to all of you for your great information. I am currently taking 9mg Entocort (4th week) and was doing really well. Yesterday everything literally fell apart. I am DF/GF/SF. Not sure what I ate that was different. New Years Eve I ate a very small amount of corn(grown in our garden last summer), didn't think that would be a problem because I have been eating Corn Chex cereal regularly with no problem. New Years day ate out and had a few bites of a salad, didn't think that would be a problem because have had salad couple of weeks ago at another restaurant. I am not sure what to do or not to do at this point. I need some suggestions please!
Re: What Happened?
Hi there,christinakay wrote:I am new to this forum. Thanks to all of you for your great information. I am currently taking 9mg Entocort (4th week) and was doing really well. Yesterday everything literally fell apart. I am DF/GF/SF. Not sure what I ate that was different. New Years Eve I ate a very small amount of corn(grown in our garden last summer), didn't think that would be a problem because I have been eating Corn Chex cereal regularly with no problem. New Years day ate out and had a few bites of a salad, didn't think that would be a problem because have had salad couple of weeks ago at another restaurant. I am not sure what to do or not to do at this point. I need some suggestions please!
I can't eat corn so that would've done me in but since you've been eating corn with no problems, I would say that wasn't the issue. I know when I was healing, I could NOT and would not eat out anywhere...even gluten free, as you take the risk of cross contamination. I have found 1 bakery in my area that is dedicated gluten free and that is the only place I trust. I would suggest that your meal on New Years day was to blame for your difficulties. IMHO, I would try to eat out as little as possible. Good luck to you and good for you for taking control of your diet!
Hi Christina Kay,
I'm going to guess that your problem was the corn. Not because you are sensitive to corn per se, but because if you harvested the corn in the roasting ear stage, at that stage the sugar has not been converted to starch. That conversion occurs during drydown (after the shuck turns brown). Most of us cannot tolerate large amounts of sugar in our diet until our intestines heal, and immature corn (especially sweet corn) is loaded with sugar. That's why I'm guessing that this may have been the problem, especially if you ate a significant amount of it, which would have exposed you to a large dose of sugar.
As Cathy pointed out, eating out is fraught with peril for most of us. There is a lot of "dribbling" going on at most salad bars (where small quantities of ingredients are dribbled into other ingredients as people transfer batches of various veggies above them, to add to their plates. There is a good chance that there may have been some crumbs from croutons, or some other source of gluten, (macaroni, for example) in one of the ingredients in your salad.
If the salad came from the kitchen, all that someone had to do in order to contaminate your salad, was to handle (touch) croutons, or a bun, or anything else that contains gluten, before they touched anything in your salad. Even if they were wearing plastic gloves, that wouldn't help, because plastic gloves will transfer gluten just as well as bare hands. It only takes a tiny trace to make many of us react. For some of us, Entocort will mask small amounts of contamination, while others seem to be more sensitive, and get into trouble even with trace amounts.
It sounds as though you were definitely doing well, before this came up. Hopefully, the setback won't last long.
Tex
I'm going to guess that your problem was the corn. Not because you are sensitive to corn per se, but because if you harvested the corn in the roasting ear stage, at that stage the sugar has not been converted to starch. That conversion occurs during drydown (after the shuck turns brown). Most of us cannot tolerate large amounts of sugar in our diet until our intestines heal, and immature corn (especially sweet corn) is loaded with sugar. That's why I'm guessing that this may have been the problem, especially if you ate a significant amount of it, which would have exposed you to a large dose of sugar.
As Cathy pointed out, eating out is fraught with peril for most of us. There is a lot of "dribbling" going on at most salad bars (where small quantities of ingredients are dribbled into other ingredients as people transfer batches of various veggies above them, to add to their plates. There is a good chance that there may have been some crumbs from croutons, or some other source of gluten, (macaroni, for example) in one of the ingredients in your salad.
If the salad came from the kitchen, all that someone had to do in order to contaminate your salad, was to handle (touch) croutons, or a bun, or anything else that contains gluten, before they touched anything in your salad. Even if they were wearing plastic gloves, that wouldn't help, because plastic gloves will transfer gluten just as well as bare hands. It only takes a tiny trace to make many of us react. For some of us, Entocort will mask small amounts of contamination, while others seem to be more sensitive, and get into trouble even with trace amounts.
It sounds as though you were definitely doing well, before this came up. Hopefully, the setback won't last long.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Just want to add that I am another one who avoids going out to eat. There are just too many hidden dangers in restaurant food. Maybe I am just a control freak but I like to know what's in my food and that can only happen if I make it myself. I cook really simple kinds of foods. I just hate being too sick to leave the house so I'll do almost anything so that won't happen. I've been gf/df/sf/ef since last March. I don't eat any grains and have to avoid chicken and beef too. It's amazing what you can get used to. I've worked a lot on attitude, accepting what is. For me that's been as important as figuring out what I can and cannot eat. The other night the young niece of my down stair's neighbor who doesn't know about my strange food requirements brought me up a large slice of homemade bread hot from the oven, some kind of Mexican traditional food. I thanked her for the bread, looked at it somewhat longingly (it smelled really good) and then tossed it in the garbage after she left. Really a small price to pay for health although I sure was tempted.
Jean
Jean
I have come to the same "acceptance" Jean about my food. There have been so many instances over the past 2 weeks with holiday celebrations and people have really tried to be sensitive to my dietary restrictions but even then, I can't win. For example, a woman brought in vegan, gluten-free, chocolate PB no bake cookies. When I asked if there was sugar in them (one of my high yellows) of course there was, so I had to say I don't eat sugar. I felt awful and I so appreciate when people try but like you say, it's just not worth it!JFR wrote:Just want to add that I am another one who avoids going out to eat. There are just too many hidden dangers in restaurant food. Maybe I am just a control freak but I like to know what's in my food and that can only happen if I make it myself. I cook really simple kinds of foods. I just hate being too sick to leave the house so I'll do almost anything so that won't happen. I've been gf/df/sf/ef since last March. I don't eat any grains and have to avoid chicken and beef too. It's amazing what you can get used to. I've worked a lot on attitude, accepting what is. For me that's been as important as figuring out what I can and cannot eat. The other night the young niece of my down stair's neighbor who doesn't know about my strange food requirements brought me up a large slice of homemade bread hot from the oven, some kind of Mexican traditional food. I thanked her for the bread, looked at it somewhat longingly (it smelled really good) and then tossed it in the garbage after she left. Really a small price to pay for health although I sure was tempted.
Jean
Hi CK. I eat corn products, but cannot handle fresh corn. I don't know if it's the sugar ( because I CAN handle some sugar) or the fiber, but it's a no go for me. Eating out is tricky... and so is salad. I can now eat SOFT salad greens, but no iceberg or romaine. Also, no raw veggies that usually come in the salad. The roughage is very hard on our systems.
Remember that the Entocort will mask some of your reactions. It wasn't until I was down to one pill a day that I really started to see small reactions to things that I was eating all along while on a higher dose ( like peanut butter).
This disease will test you over and over again. Almost a year later, I still am not sure about everything.
Leah
Remember that the Entocort will mask some of your reactions. It wasn't until I was down to one pill a day that I really started to see small reactions to things that I was eating all along while on a higher dose ( like peanut butter).
This disease will test you over and over again. Almost a year later, I still am not sure about everything.
Leah