Feel free to discuss any topic of general interest, so long as nothing you post here is likely to be interpreted as insulting, and/or inflammatory, nor clearly designed to provoke any individual or group. Please be considerate of others feelings, and they will be considerate of yours.
I have nothing to add about entocort, as I have never been on it and with my previous track record with steroids, I hope never to have to go on it.
I am just starting the last chapter of Tex's book. Looking back over the last 4 years, I would say that I have had a ridiculous amount of stress. I cannot imagine trying to work right now with the way I am feeling. What I find interesting about myself is that I am a person who wants to feel in control all of the time. I am not happy unless I have a plan and understand exactly what will come next. Pretty ironic (or maybe not!) that this particular disease that is chronic and absolutely out of my control for the most part has come along. The only control I have is what I put in my mouth and what doctor I will see and maybe what treatment I will use. The rest is up to my digestive system that appears to have a will of its own. God has quite a sense of humor.
If I can be grateful for anything, it is that this disease absolutely forces me to slow down and rest. This is something that I have spent most of my professional life (nursing) telling other folks to do. I guess I thought that I didn't have to. (Double standard!) It has made me be more introspective and think about the meaning and purpose for the rest of my life. I probably will never work full-time for any length of time again.
I have always been a worrier (magical thinking:if you worry enough, whatever it is won't happen) and now I really don't have the energy for any more worrying. I have to think that all I can do is the best I can do and leave the rest of it to someone else.
PS Do I get points if I'm married to an engineer?
Jane
Diagnosed with Lymphocytic Colitis 12/19/12
"When it gets dark enough,you can see the stars."
Charles A. Beard
Jane wrote:Pretty ironic (or maybe not!) that this particular disease that is chronic and absolutely out of my control for the most part has come along.
The most hopeless feeling I ever experienced in my life, occurred after my GI doc finished all the tests, and then told me that there was nothing wrong with me. After I got home, it dawned on me that I would probably have to spend the rest of my life with those miserable symptoms. In addition to being a hopeless feeling, it was an extremely lonely feeling, as if I were suddenly all alone in the world. Thank goodness Al Gore had invented the internet by then.
I have to agree that this disease has allowed me to appreciate a lot of things that I never even gave any thought to, previously. It sort of forces us to sort out our priorities, and that's surely a good thing. I doubt that anyone can go through this without making somewhat drastic changes in their lifestyle, and in their outlook on life, in general.
Jane wrote:PS Do I get points if I'm married to an engineer?
Oh, definitely!
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Well it's been a while since I've been on here posting but have been trying the last couple days to get caught up with all the new postings and such. Holidays have been busy, my 75 yr old mother needed appendectomy and being the only girl with 3 brothers..........it has and always will fall mostly on me. I'm ok with that since I'm the only retired one. Working part time to help keep my mind sharp.......but really have been mostly busy with doing stuff I couldn't do for so many months before when I was suffering the severe D. I feel great but I have also been sssssooooo picky about my food.
I am indeed completely off entocort now. I continued the regimen I was on and then the month of Dec I went to 1 pill a day until Dec 22. I stopped it at that point. I am doing well not on it, trying to follow Leah's advice of NO CARBS and eating a lot of protein and veggies. Never in my life before this would I ever even consider eating Broccoli and now it has become my favorite veggie. I eat it at least once a day and sometimes twice a day. I've been completely NORMAN with the exception of 2 days of kinda D but yet I knew it was different than before. Turns out FLU.........went through my family one after the other. Lasted about 24 to 36 hrs and wala........back to NORMAN. Hope all is well with everyone else and welcome to all the NEWBIES that have come on board.
Had another 3 month blood test in late Dec and my Cholesterol and blood sugars are still doing rock star. A1C could have been a bit better but I suspected a rise since I also needed to prove that I could bake all the xmas cookies that my mom has for years only mine were GF. Had too many of those during that time and am glad they are all gone but yet I was glad I could make them taste just as well as hers. That is what I handed out to all my friends and neighbors for Xmas.
I've found another product called Wildtree. Anyone heard of this??? I've tried some of their products and they caring many that are naturally GF but also have specific GF products. These products are a much healthier all natural product with fewer ingredients. I'm even going to have my own tasting party to again try and sway my family and friends to be healthier. I'd be interested to know if anyone else has tried these products.
Hi Cathy! It's great to hear that you are doing so well. yay!
Hey, I never said NO CARBS ( I eat rice and corn products), but I'm glad it's working for you.
I also tried some GF baking this holiday season. Most of it came out pretty good :)
I haven't heard of Wildtree. Maybe it's just in your area?
Glad to hear from you
Take care
Leah
